Guest guest Posted March 14, 2009 Report Share Posted March 14, 2009 My 14 y.o. son is still on 4mg of methylprednisilone (variation on prednisone) after a long taper. He seems to be doing well and we're beginning stage 4 foods this week. His G.I. doc doesn't want to taper him off the last 4mg of steroid. She says her patients who are on remicade (as my son still is) always start bleeding when they go off that last little bit of steroid. I'd like to wean him off the remicade as well, but I'm trying to work on one thing at a time. Does anyone on the diet have experience getting off steroids while on remicade? Her other patients are not doing the SCD. A little history -- my son has been in & out of the hospital over the years -- much less since he's been on the diet, but he still has landed in the hospital after a bout of cheating on the diet and also after a particularly nasty flu. So though the doctor approves of the diet, she hasn't seen a huge enough change for her to think he will be much different than her other patients. Thanks, 14 yo son w. UC, diagnosed 2005 SCD 2007 Quote Link to comment Share on other sites More sharing options...
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