Re: Re: I am new here...To mistycooksey

[Guest guest]

Welcome to the group. Everything you are describing sounds like fibromyalgia.

I also thought I had Carpal Tunnel Syndrome for years until I found out it was

the fibro. I do not have carpal tunnel and I don't have arthritis. It just so

happened that my fingers tingling was one of the very first symptoms of this

monster back about 15 years ago or more. The first major flare I had right

before diagnosis.... my hands were burning and hurting for about 3 or 4 weeks.

The exhaustion is a typical thing to. The insomnia. Everything you are

talking about here. I would almost bet a winning lottery ticket that you have

fibro. Of course I am not a doctor and don't know you. I am a registered nurse

though, like your friend.

We get the brush off treatment from most of the medical profession because

they can't see a definitive lab test or anything. Alot of us have been treated

like hypochondriacs, liars, and drug seekers. ( I am fortunate.... I have a doc

that believes me and knows about fibro).

We have something else in common. I have a 5 year old and a 10 year old also.

I am 43 and had them a little late in life..... before I knew this horrible

fibromyalgia beast was with me. I love them dearly but I am limited as a parent

as to how much I can do for them. I still work full time, but that is the only

thing I can do. I have to spend my off time resting or I will never make it to

work.

I am in East Tx. My name is Debra Van Ness. Write me anytime personally or

to the group. This is a wonderful group and I have been here almost everyday

for the last year and a half. They are supportive, understanding, and

knowledgable.

I would love to converse with you anytime.

hugs and welcome,

Debra V.

Jerilyn wrote:

Hi. First let me say I am sorry you are going through all this. We

all have or are so know how you feel.

When you see a doctor, they will first rule out everything else since

there is no laboratory test to diagnose FM. They will most likely

test you for MS, Lupus, Lyme, vitamin deficiencies,thyroid disorders,

and maybe other things. Maybe not all I listed, but maybe so.

So it will be a long haul. Mine was only about a month because my

docs were great. It is hard to find good doctors. But when you do you

can get some relief once diagnosed.

I myself am on Cymbalta for my pain. And Nexium for my acid reflux.

Alot of people experience that with FM, but not all. I also take

sleep meds. Lunesta right now.

So good luck and please let us know what happens.

Happy Holidays!!

Jerilyn

>

> Hi all,

>

> I am new on here. I have not been formally diagnosed as of yet. In

> fact, my Dr. really hasn't taken the time to listen to me at all. A

> friend who is a nurse and knows what all has been going on with me

> suggested that FM might be the source of my issues. So now I need to

> find a Dr. to try and follow up and maybe finally get some answers.

>

> So here is my story. I have had some bouts of depression, nothing

> major and anti-d's worked for me quickly.

>

> In the past year I have just felt like my body is falling apart. I

> ache a majority of time, from the time I get up until I go to bed at

> night. I go to sleep quickly, but I can never stay asleep and I am

> usually still exhausted when I wake up in the morning.

>

> I have having major issues with my feet and my hands...my feet ache

> ANY time I have been sitting for more then 5 minutes at a time.

When I

> get back up, I can hardly walk and have to limp around. My hands

ache

> and tingle at times. I have been tested for arthritis and carpal

> tunnel, negative on both. My back and neck are always aching and

well

> I get pains and aches everywhere from time to time.

>

> I feel exhausted all the time and once I get through the day at

work,

> when I get home and I finally sit down..that's it I am done for the

> night. I literally cannot get back up and moving again, which sicks

> since I have two kids ages 10 and 5.

>

> Anyway, just wondering if what I have described sounds like FM to

you

> guys..since I know you are the experts on this.

>

> I am just kind of lost as to what to do next and where to go...when

I

> went to my Dr. previously about this he pretty much said that there

> was nothing wrong and that I needed to exercise more (, umm OK I

used

> to walk 1-3 miles a day until the pain stopped me!) and relax

more...I

> am too young for these issues!

>

> In all honesty, I feel like I am 34 in the body of a 70 year old!

>

>

> Thanks for your opinions, I appreciate any and all.

>

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