Guest guest Posted May 17, 2001 Report Share Posted May 17, 2001 Tracey My aunty and uncle live in west sussex, is that near you? Cf does not have a big profile here either, but were all working on it, but then without government funding there is only so much we can afford to do. from Australia Re: Enzymes > > > > Thank you very much Max..You said it alot better than I could have! > > Carla > > > > > > > > > At the risk of swimming against a tidal wave, I think some are > > being too > > > hasty in criticizing Carla's doctor for prescribing enzymes four > > times a > > > day. Although it is much more common to give the enzymes at the > > beginning > > > of each feed, it could be this doctor's experience that spacing the > > enzymes > > > throughout the day is a reasonable approach until a definite > > feeding pattern > > > emerges. Remember how badly the enzymes can burn the skin if too > > much is > > > given? If a baby starts to nurse and is given enzyme, then decides > > to stop > > > nursing, it could be very hard on the skin. And don't forget > > gastric > > > emptying can take four hours or more - kids with cf often have > > delayed > > > gastric emptying so there can still be food in the tummy hours > > later. > > > > > > Now please don't get me wrong. It sounds like some adjustments are > > needed, > > > and hopefully Carla's doctor will be responsive when she calls. > > But we're > > > not talking about treating first growth Pseudomonas here - if they > > take a > > > slow and measured approach to adjusting the enzymes and it takes a > > few days > > > to get it right, no permanent damage will be done. We are talking > > about a > > > newly diagnosed child - we all know cf care requires constant > > adjustments, > > > especially at the beginning. > > > > > > I know Carla's cf doctor by reputation. He is a very experienced, > > caring > > > clinician and the quality of care at Winnipeg's cf clinic is > > outstanding. > > > If anyone doubts it, check the stats - contact the Canadian CF > > Foundation > > > for info on life expectancy and quality of care. So let's not jump > > the gun > > > and cause Carla to panic. Ask questions, yes. Be forceful when > > needed, > > > yes. But they are going to have to work together for a long time > > and we > > > would not be doing Carla or Dallas any favours by turning this into > > a life > > > or death decision. > > > > > > n, thanks for the note the other day. I hope you and your > > cousin are > > > both doing well. Things haven't changed much in Winnipeg, at least > > not > > > since I lived there as a kid. I really enjoyed being there - hot > > and windy, > > > just as I remember it! > > > > > > Take care, everyone. Max > > > > > > > > PLEASE do not post religious emails to the list. > > > > > > ------------------------------------------- > > > > > > The opinions and information exchanged on this list should > > IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > > > -------------------------------------------------- > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2001 Report Share Posted May 21, 2001 Is anyone using the Pancreacarb enzymes? My son is on the MT-8's - I'm wondering if these same standards apply??? It seems everyone has a different method to enzymes. I was told to give them to my son with applesauce (or soft foods) before meals or snacks. Just curious - thanks. Carey (Mom of Liam - 14 mo. w/ CF) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2001 Report Share Posted May 21, 2001 Is anyone using the Pancreacarb enzymes? My son is on the MT-8's - I'm wondering if these same standards apply??? It seems everyone has a different method to enzymes. I was told to give them to my son with applesauce (or soft foods) before meals or snacks. Just curious - thanks. Carey (Mom of Liam - 14 mo. w/ CF) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2001 Report Share Posted May 21, 2001 Is anyone using the Pancreacarb enzymes? My son is on the MT-8's - I'm wondering if these same standards apply??? It seems everyone has a different method to enzymes. I was told to give them to my son with applesauce (or soft foods) before meals or snacks. Just curious - thanks. Carey (Mom of Liam - 14 mo. w/ CF) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2001 Report Share Posted May 22, 2001 Hello Sussex is not too near Essex. I have 3 aunts and at least a dozen cousins all over Australia. I sometines wonder if the weather would be better for Lydia over there. Do you think it makes any difference to the health of people with CF ? Is it true that Australia has a fairly high incidence of CF? Retgards Tracey Re: Enzymes > > > > > > > Thank you very much Max..You said it alot better than I could have! > > > Carla > > > > > > > > > > > > > At the risk of swimming against a tidal wave, I think some are > > > being too > > > > hasty in criticizing Carla's doctor for prescribing enzymes four > > > times a > > > > day. Although it is much more common to give the enzymes at the > > > beginning > > > > of each feed, it could be this doctor's experience that spacing the > > > enzymes > > > > throughout the day is a reasonable approach until a definite > > > feeding pattern > > > > emerges. Remember how badly the enzymes can burn the skin if too > > > much is > > > > given? If a baby starts to nurse and is given enzyme, then decides > > > to stop > > > > nursing, it could be very hard on the skin. And don't forget > > > gastric > > > > emptying can take four hours or more - kids with cf often have > > > delayed > > > > gastric emptying so there can still be food in the tummy hours > > > later. > > > > > > > > Now please don't get me wrong. It sounds like some adjustments are > > > needed, > > > > and hopefully Carla's doctor will be responsive when she calls. > > > But we're > > > > not talking about treating first growth Pseudomonas here - if they > > > take a > > > > slow and measured approach to adjusting the enzymes and it takes a > > > few days > > > > to get it right, no permanent damage will be done. We are talking > > > about a > > > > newly diagnosed child - we all know cf care requires constant > > > adjustments, > > > > especially at the beginning. > > > > > > > > I know Carla's cf doctor by reputation. He is a very experienced, > > > caring > > > > clinician and the quality of care at Winnipeg's cf clinic is > > > outstanding. > > > > If anyone doubts it, check the stats - contact the Canadian CF > > > Foundation > > > > for info on life expectancy and quality of care. So let's not jump > > > the gun > > > > and cause Carla to panic. Ask questions, yes. Be forceful when > > > needed, > > > > yes. But they are going to have to work together for a long time > > > and we > > > > would not be doing Carla or Dallas any favours by turning this into > > > a life > > > > or death decision. > > > > > > > > n, thanks for the note the other day. I hope you and your > > > cousin are > > > > both doing well. Things haven't changed much in Winnipeg, at least > > > not > > > > since I lived there as a kid. I really enjoyed being there - hot > > > and windy, > > > > just as I remember it! > > > > > > > > Take care, everyone. Max > > > > > > > > > > > > PLEASE do not post religious emails to the list. > > > > > > > > > ------------------------------------------- > > > > > > > > > The opinions and information exchanged on this list should > > > IN NO WAY > > > be construed as medical advice. > > > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > > TREATMENTS. > > > > > > -------------------------------------------------- > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2009 Report Share Posted March 28, 2009 www.enzymestuff.comTheir is much information for everyone. You dont have to be autistic to view this site. When nothing is working, might try Candidase as it really gets the body to do it stuff. I take 1 3xs a day between meals, what a difference! It was like the missing link. -- JHscd 4 yearscd Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.