Guest guest Posted March 19, 2002 Report Share Posted March 19, 2002 , I thought I'd jump in when you said he was light sensitive. My Jill has Reninitis Pigmentosa and is very light sensitive and has dilated pupils at times and when they react to light, they react slower than normal. We have found a type of lens made by the Corning company that are good. They are dark orange normally and will turn almost black looking when Jill goes outside. The thing about these glasses is that they seem to work faster than other transitional glasses so it's easier on her eyes. Jill wears these when she is outside and wears a slightly tinted pair inside. We too had trouble with an ophthalmologist when she was little. The woman just did not want to believe me when I said something was wrong. We switched docs and found another more willing to do the tests needed to find out what was wrong. If there is any chance you can have him seen by a pediatric ophthalmologist it might be worth it. Just my two cents worth. Re: Dilated Pupils > After reading all your responses I am very frustrated with our > opthamologist and his office staff. Several of Ronan's therapists > noticed that his pupils are very dialated. One therapist suggested > a " functional vision exam " (not performed by a Doctor, but a special > therapist) and we also arranaged for an Opthamologist appiontment. > Turned out both exams were within a few days of each other. When we > went to the opthmologist an assistant came in to do a primary exam > and put in dilating drops. Before she put in the drops I mentioned > that his therapists thought his eyes were very dialated. The > assistant looked kind of annoyed and said that young children often > had very dialated eyes (Ronan is 2yrs). The opthamologist said the > same. Stupid thing is , ALL Ronan's therapists (OT , PT, Speech and > visual) ONLY deal with children and most of them only work with > children between the ages of 3 and 5 years! Don't you think they > would have seen enough kids to notice if one was a bit different that > the norm! I am glad I have read all these other posts. Ronan has > some symptoms of dysautonomia so perhaps I can chalk this up to that > (although the visual specialist also mentioned Cortical Visual > Impairment, his optic nerves are normal). I am going to try some > sunglasses because he is light sensative as well. > > Take Care, > > > > > Please contact mito-owner with any problems or questions. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2002 Report Share Posted March 19, 2002 , I thought I'd jump in when you said he was light sensitive. My Jill has Reninitis Pigmentosa and is very light sensitive and has dilated pupils at times and when they react to light, they react slower than normal. We have found a type of lens made by the Corning company that are good. They are dark orange normally and will turn almost black looking when Jill goes outside. The thing about these glasses is that they seem to work faster than other transitional glasses so it's easier on her eyes. Jill wears these when she is outside and wears a slightly tinted pair inside. We too had trouble with an ophthalmologist when she was little. The woman just did not want to believe me when I said something was wrong. We switched docs and found another more willing to do the tests needed to find out what was wrong. If there is any chance you can have him seen by a pediatric ophthalmologist it might be worth it. Just my two cents worth. Re: Dilated Pupils > After reading all your responses I am very frustrated with our > opthamologist and his office staff. Several of Ronan's therapists > noticed that his pupils are very dialated. One therapist suggested > a " functional vision exam " (not performed by a Doctor, but a special > therapist) and we also arranaged for an Opthamologist appiontment. > Turned out both exams were within a few days of each other. When we > went to the opthmologist an assistant came in to do a primary exam > and put in dilating drops. Before she put in the drops I mentioned > that his therapists thought his eyes were very dialated. The > assistant looked kind of annoyed and said that young children often > had very dialated eyes (Ronan is 2yrs). The opthamologist said the > same. Stupid thing is , ALL Ronan's therapists (OT , PT, Speech and > visual) ONLY deal with children and most of them only work with > children between the ages of 3 and 5 years! Don't you think they > would have seen enough kids to notice if one was a bit different that > the norm! I am glad I have read all these other posts. Ronan has > some symptoms of dysautonomia so perhaps I can chalk this up to that > (although the visual specialist also mentioned Cortical Visual > Impairment, his optic nerves are normal). I am going to try some > sunglasses because he is light sensative as well. > > Take Care, > > > > > Please contact mito-owner with any problems or questions. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2002 Report Share Posted March 19, 2002 Hi All, My son's eyes dilated very very quickly also when seeing the opthamologist - they even commented on it but did not pursue further - seems to be a very common finding with our children and probably yet another clue that is just overlooked. For us, it seems that when something happens to my son that the doctor (and it is most of them) finds 'odd' - he/she just calls it 'peculiar' or something to that affect and leaves it at that. You need to be with a researcher type doctor to get any interest. We also find that if a blood test comes back not as expected very often it will be labeled 'lab error' or 'it isn't off by that much' etc. I feel so many clues are wasted with this type of thinking. The doctors probably hate the internet and lists like this where parents can actually compare symptoms - seems alot of 'very rare' things turn out to be not so rare once parents start talking. H Re: Re: Dilated Pupils Cara, This thing with the dialated eyes was new to ne also but last week when I took for an Opthomology exam it was strange because it took just about 5 min. for her eyes to completely dialatenot the usual 30 or so. But after we left the office the the day progressed her eyes never returned to normal. Two days later they were still dialated, but one more than the other. This was on the 12th of this month and today they are still dialated. Both about the same today. I dont understand this but sure hope someone has some insight. Have a great week! Horsley Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 In a message dated 03/14/2002 11:23:09 PM Eastern Standard Time, heather@... writes: << Have any of the children on the list had problems with their pupils being dilated when they shouldn't be? >> Yes, my son's pupils get dialated and I notive more autistic behaviors when this happens. Michele Quote Link to comment Share on other sites More sharing options...
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