Guest guest Posted March 2, 2002 Report Share Posted March 2, 2002 >It sounds like Gabby is doing well. Thanks for the update. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2002 Report Share Posted March 2, 2002 >It sounds like Gabby is doing well. Thanks for the update. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 Hi guys...what is the HArt ? DO you need to have alot of upper body strength fo rthat device? We have a 3 year old son with complex I who can't sit...would that walker work for him? Liz Kamens Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 ne & Tony, Great to hear from you, and your updated news of Gaby's progress. has very limited mobility when left on the floor, so when he has the energy, he gets pretty excited about going in and using his Hart walker. On average he would spend 1 or 2 sessions in it each day, lasting between 1/2 hour and 1 1/2 hours. On really good days he has spent well over 2 hours in it in one session, particularly when he has plenty of flat wide open space, like the local double tennis court. The only thing that slowed him up was when he got hit in the head with a tennis ball - bouncing not a direct hit thankfully! Regards, & Savage. ( 6yrs - Mito complex IV) Gaby update > > > I haven't posted for a while, and never seem to access the computer much now > that number 1 son Rhys is doing his School Certificate assignments. > Gaby continues to stay well, thanks I am sure to her ketogenic diet. She > rarely even gets sick these days, though when she does, she really makes up > for it. > She is happy and alert, crawling around the floor. She can spin 'anything' > on its axis on the floor (something that has to be seen to be believed), and > is singing her ABC's (keeps the tune..but as created her own alphabet!!) > Gives a change to her endless singing of Happy Birthday! > Gaby still hates anything orally, and will'smell' a spoon a mile off and cry > out 'noooo' before you can get near her. Thank God for her gastrostomy! > We are working hard trying to establish some communication with Gaby. as we > are sure she has a substantial amount of understanding, but processing the > response seems to be quite a prob. We have tried picture cards, switches, > signing etc, all with a small degree of success, but nothing overall > consistency. > Anyone got any ideas here? > Orthopaedic problems in her lower limbs continue to be her main medical > issues. She is heading toward bony hip surgery, but we are trying to put > this off as long as possible. We would love her to 'master' her Hart , > but as she is so fast when on her tummy on the floor, I think she just sees > the Hart as a hindrance. Sadly, she has stubborn parents who will > persist in her using the walker daily! > We pass on our regards to you all, > > ne And Tony, parents to 6 year old Gaby, with PDH > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 Liz: Leah can't sit on her own. She tries very hard and can sometimes for 10 seconds prop sit. Hey, I'll take anything. But she uses a pony walkter. She doesn't need to stand up in it. She sort of leans in to it. A little bulky sometimes, but very easy to move around and it requires very little energy use from her. I'm sure you could find information on the web. Also, if you get any catalogues, I have seen them in there. Or if you have a medical equipment place, you can go there and look at their cataloges or may be they have one for you to look at. N. mom to Leah Lizgk@... wrote: > Hi guys...what is the HArt ? DO you need to have alot of upper body > strength fo rthat device? We have a 3 year old son with complex I who can't > sit...would that walker work for him? Liz Kamens > > Please contact mito-owner with any problems or questions. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 Liz, had fairly poor upper body strength, and very limited ability to sit unsupported on the floor, when he first got his Hart walker in October 2000. The main things that they look for in determining if a Hart walker will be suitable for a certain child is if the child has a desire/willingness to bear weight (i.e. put their feet to the ground & attempt to bear weight on their feet/legs, when held upright) and a desire to take a step/be mobile. Socially it opened up a whole new world for , instead of lying or sitting around all the time. Regards, & Savage. ( - 6yrs - mito complex IV) Re: Gaby update > Hi guys...what is the HArt ? DO you need to have alot of upper body > strength fo rthat device? We have a 3 year old son with complex I who can't > sit...would that walker work for him? Liz Kamens Quote Link to comment Share on other sites More sharing options...
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