Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 Thanks, Pierre! Very interesting article. ~Dana Late diagnosis We often have questions on here from new members about being diagnosed late, ie. not knowing they had a kidney problem until it was already very advanced, despite having seen doctors all along. Here's a news item that shows why: http://www.medicalnewstoday.com/medicalnews.php?newsid=17932 Pierre To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 We often have questions on here from new members about being diagnosed late, ie. not knowing they had a kidney problem until it was already very advanced, despite having seen doctors all along. Here's a news item that shows why: http://www.medicalnewstoday.com/medicalnews.php?newsid=17932 Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 I'm glad you found it interesting Dana. People are getting diagnosed earlier now, sometimes, but still, most people who have early IgAN do not have any symptoms at all that would attract attention, except perhaps a bit of microscopic blood in the urine, and maybe trace protein. Even more testing at that point, like a kidney ultrasound, etc., might not show anything wrong at all, and the symptoms are not severe enough to justify doing a kidney biopsy. When a doctor first found blood in my urine, I don't think they did kidney ultrasounds yet in those days, but at the time, I was sent for a kidney X-ray, and other tests. None showed anything unusual. Many times, it's just not possible to know there's an actual kidney problem until serum creatinine is affected, and very often, people are already at 50% kidney function by that time. Pierre Late diagnosis > > > We often have questions on here from new members about being diagnosed late, > ie. not knowing they had a kidney problem until it was already very > advanced, despite having seen doctors all along. Here's a news item that > shows why: > > http://www.medicalnewstoday.com/medicalnews.php?newsid=17932 > > Pierre > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Thanks for posting this Pierre! It certainly was an eye opener for me. Makes me think that the folks on this list are an exceptionally informed bunch! The reference to " women with moderately decreased kidney function were significantly less aware of their illness compared to similarly affected men. " had me perplexed. I wonder how they arrived at that conclusion. Cy Late diagnosis > > We often have questions on here from new members about being diagnosed late, > ie. not knowing they had a kidney problem until it was already very > advanced, despite having seen doctors all along. Here's a news item that > shows why: > > http://www.medicalnewstoday.com/medicalnews.php?newsid=17932 > > Pierre > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Thanks for posting this Pierre! It certainly was an eye opener for me. Makes me think that the folks on this list are an exceptionally informed bunch! The reference to " women with moderately decreased kidney function were significantly less aware of their illness compared to similarly affected men. " had me perplexed. I wonder how they arrived at that conclusion. Cy Late diagnosis > > We often have questions on here from new members about being diagnosed late, > ie. not knowing they had a kidney problem until it was already very > advanced, despite having seen doctors all along. Here's a news item that > shows why: > > http://www.medicalnewstoday.com/medicalnews.php?newsid=17932 > > Pierre > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 My guess re the women is that with less muscle mass, their ser cr was naturally lower even with kidney disease fomenting in there, so, nobody noticed. Pierre Late diagnosis > > > > > > We often have questions on here from new members about being diagnosed > late, > > ie. not knowing they had a kidney problem until it was already very > > advanced, despite having seen doctors all along. Here's a news item that > > shows why: > > > > http://www.medicalnewstoday.com/medicalnews.php?newsid=17932 > > > > Pierre > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 I can see how this can happen. If a doctor in a walk-in clinic had not decided to dipstik my urine that time in 1977-78 or so, the fact that I had a kidney problem might not have been discovered until more than a decade later when I started having high blood pressure. Pierre Re: Late diagnosis > > > Thanks for posting this Pierre! It certainly was an eye opener for me. > Makes me think that the folks on this list are an exceptionally informed > bunch! > > The reference to " women with moderately decreased kidney function were > significantly less aware of their illness compared to similarly affected > men. " had me perplexed. I wonder how they arrived at that conclusion. > > Cy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 That would certainly make sense. Thanks for thinking of that one! Cy Late diagnosis > > > > > > > > > > We often have questions on here from new members about being diagnosed > > late, > > > ie. not knowing they had a kidney problem until it was already very > > > advanced, despite having seen doctors all along. Here's a news item that > > > shows why: > > > > > > http://www.medicalnewstoday.com/medicalnews.php?newsid=17932 > > > > > > Pierre > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
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