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1. What did you do in 2003 that you'd never done before?

2. Did you keep your new years' resolutions, and will you make more for next

year?

3. Did anyone close to you give birth?

4. Did anyone close to you die?

5. What countries did you visit?

6. What would you like to have in 2004 that you lacked in 2003?

7. What date from 2003 will remain etched upon your memory, and why?

8. What was your biggest achievement of the year?

9. What was your biggest failure?

10. Did you suffer illness or injury?

11. What was the best thing you bought?

12. Whose behavior merited celebration?

13. Whose behavior made you appalled and depressed?

14. Where did most of your money go?

15. What did you get really, really, really excited about?

16. What song will always remind you of 2003?

17. Compared to this time last year, are you:

i. happier or sadder?

ii. thinner or fatter?

iii. richer or poorer?

18. What do you wish you'd done more of?

19. What do you wish you'd done less of?

20. How will you be spending Christmas?

21. How will you be spending New Years Eve?

22. Did you fall in love in 2003?

23. How many one-night stands?

24. What was your favorite TV program?

25. Do you hate anyone now that you didn't hate this time last year?

26. What was the best book you read?

27. What was your greatest musical discovery?

28. What did you want and get?

29. What did you want and not get?

30. What was your favorite film of this year?

31. What did you do on your birthday, and how old were you?

32. What one thing would have made your year immeasurably more satisfying?

33. How would you describe your personal fashion concept in 2003?

34. What kept you sane?

35. Which celebrity/public figure did you fancy the most?

36. What political issue stirred you the most?

37. Who did you miss?

38. Who was the best new person you met?

39. Tell us a valuable life lesson you learned in 2003:

40. What song lyrics sum up your year?

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1. What did you do in 2003 that you'd never done before?

I got my disability,

2. Did you keep your new years' resolutions, and will you make more for next

year? I don't make them, cause I won't keep them

3. Did anyone close to you give birth? Nope not this last year

4. Did anyone close to you die? A dear and close friend for years of mine, his name was Jess.. He was one of my singing buddies and I loved him and his wife Jean...

5. What countries did you visit? lol I can't even get out of the house.. so if you want to talk about which grocery store can you walk though or what doctors office has the longest wait...

6. What would you like to have in 2004 that you lacked in 2003? More visits from my friends or at least phone calls from my long time friends, I know they still work but once in a while would be nice.

7. What date from 2003 will remain etched upon your memory, and why? The month of May,I don't remember the exact date but that's when my long awaited disability came through.

8. What was your biggest achievement of the year? My achievements and goals always include Damian.. SO, He's my biggest achievement

9. What was your biggest failure?Not having the money to do the things he wants or the clothes like the other kids..

10. Did you suffer illness or injury? Yes, I have been sick for the most of 2003

11. What was the best thing you bought? I bought a few gifts for some of my sarcoid family that was going through a hard time...

12. Whose behavior merited celebration?People that are honest, and true to who they are..

13. Whose behavior made you appalled and depressed?

People that try to cause discord among our sarcoid family,

Those that like to argue theories or try and deceive the desperate sick people on our list.....

14. Where did most of your money go? Bills, food...

15. What did you get really, really, really excited about?

A Phone call from a special friend..A surprise in the mail...

Treatment for my disease..

16. What song will always remind you of 2003? Dunno

17. Compared to this time last year, are you:

i. happier or sadder? Happier I'm usually always happy

ii. thinner or fatter? After Prednisone, what do you think?

iii. richer or poorer? I'm Richer due to the fact I do have funds coming in.. but they leave just as fast as they come..

18. What do you wish you'd done more of? I would love to have been more able to do physical things, such as camping, fishing...doing things any things...

19. What do you wish you'd done less of? Staying in the house, watching tv,

20. How will you be spending Christmas? I spent Christmas with my family...

21. How will you be spending New Years Eve? Here with Damian, We have a special bottle of sparkling grape juice for midnight...

22. Did you fall in love in 2003? Lord NAW

23. How many one-night stands? Only in my dreams...lol

24. What was your favorite TV program? I love the show Queer Eye for the Straight Guy, Young and the Restless, and Ellen Degeneres.. The s, Trading Spaces Oh yeah and Suvivor.. I love it.....

25. Do you hate anyone now that you didn't hate this time last year? Naw, to much energy... I don't have it... and it sucks the life away..

26. What was the best book you read?Harry Potter Books.. Till my eyes went bad then we got them on tape..

27. What was your greatest musical discovery? I have none, I once was good at guitar, piano and saxaphone, and now, I can't play any of them..

28. What did you want and get? I wanted a calander with Queer Eye for the Straight Guy.. and I got it for Christmas..

29. What did you want and not get? I don't want anything, other than to be healthier, enough money to pay my bills and keep my growing teen in clothes...

30. What was your favorite film of this year? Pirates of the Caribbean

31. What did you do on your birthday, and how old were you? I was 46, and did absolutely nothing special..

32. What one thing would have made your year immeasurably more satisfying?Being a part of you guys..

33. How would you describe your personal fashion concept in 2003? comfortable

34. What kept you sane? You guys, my mom, and Damian, my son..

35. Which celebrity/public figure did you fancy the most? Clooney, Russel Crowe,

36. What political issue stirred you the most? I'm not a political person, It probably stirred me the most that NO ONE asked my opinion....LOL ON ANYTHING!!!

37. Who did you miss? I miss my singing friends, one of them past away in November

38. Who was the best new person you met?just people over the internet, Elodia, Neisa,Quint,Aisha, Lora, Loren, ... people that come to the chat room I know more than others..

39. Tell us a valuable life lesson you learned in 2003: To believe in myself and not to move a inch when it comes to doctors and what I believe will improve my health

40. What song lyrics sum up your year? Dunno

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Live Group Chat:-

Mondays & Fridays 10pm EST USA

http://www.elderwyn.com/neurosarcoidosis/chat.php

Message Archives:-

http://groups.yahoo.com/group/Neurosarcoidosis/messages

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1. What did you do in 2003 that you'd never done before?

got married to a wonderful man

2. Did you keep your new years' resolutions, and will you make more for next

year? no i did not keep it, it was to stop smoking, then dealin with my moms illness, was just to stressed!

3. Did anyone close to you give birth? my sister did in october to bennett david micheal

4. Did anyone close to you die? a gentalman that i toook care of one on one in the nursing home that i worked in

5. What countries did you visit? cancoon mexico, sorry if thats not spelled right, lol

6. What would you like to have in 2004 that you lacked in 2003? a better car!

7. What date from 2003 will remain etched upon your memory, and why? march 8th my wedding day/night, i was so happy, and did not have a worry in the world, and mom was able to come, and she actaully remebers parts of it

8. What was your biggest achievement of the year? gettin the doctors to diagnose mom

9. What was your biggest failure?taking so long to get mom diagnosed

10. Did you suffer illness or injury? just a little depression, ok i guess you could say alot

11. What was the best thing you bought? a talking photo frame for mom

12. Whose behavior merited celebration?could not tell ya

13. Whose behavior made you appalled and depressed?

my dads mother, dont get me started on her

14. Where did most of your money go? gas to go to the doctors with mom, and the wedding

15. What did you get really, really, really excited about?

when loren sang keeper of the stars to me at our wedding resption

16. What song will always remind you of 2003? keeper of the stars, and rember when

17. Compared to this time last year, are you:

i. happier or sadder? ummmmmmmm compaired to this time last year, sadder, do to moms illness

ii. thinner or fatter? fatter do to stress, lol

iii. richer or poorer? poorer do to gas money to go to doctors appointments, and the weddin

18. What do you wish you'd done more of? presuing a treatment and diagnosis for my mom

19. What do you wish you'd done less of?eating, lol

20. How will you be spending Christmas?spent christmas with mom mom dad sister her boyfriend their 2 kids, loren and his 4 kids, and my good grandma

21. How will you be spending New Years Eve? either in rochester with mom or with my ex who is my best friend playing card and board games

22. Did you fall in love in 2003? more in love than i was

23. How many one-night stands? none

24. What was your favorite TV program? will and grace, king of queens

25. Do you hate anyone now that you didn't hate this time last year? yes my dads mother my evil grandma

26. What was the best book you read?ummmmmmmmmm whats a book??????lol

27. What was your greatest musical discovery? nothing

28. What did you want and get? my wrap for my engagment ring that we could not afford at the time of the wedding

29. What did you want and not get? my mom to be back to her old self again

30. What was your favorite film of this year? none

31. What did you do on your birthday, and how old were you? i got drunk off my butt because #1 it was my 21st, and #2 it was my bachloet party at a bar!!

32. What one thing would have made your year immeasurably more satisfying?loren being there for me when i needed him the most, and finding the chat room and site on neurosarc gives me poeple to vent to and learn lots of new things

33. How would you describe your personal fashion concept in 2003? hectic lol

34. What kept you sane? loren and my best friends named stan, sarah and max, and my neice, and my step childeren

35. Which celebrity/public figure did you fancy the most? Clooney, and kenny chesney

36. What political issue stirred you the most? undecided dunno

37. Who did you miss? my mom like she was when i was younger,

38. Who was the best new person you met?teresa, and denise, and quint( my new grits partner) lots of people

39. Tell us a valuable life lesson you learned in 2003: to never take anything for granted, someday i may not be able to do what i normaly do do

40. What song lyrics sum up your year? dazed and confused0

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Neurosarcoidosis Community

Live Group Chat:-

Mondays & Fridays 10pm EST USA

http://www.elderwyn.com/neurosarcoidosis/chat.php

Message Archives:-

http://groups.yahoo.com/group/Neurosarcoidosis/messages

Members Database:-

Listings of locations, phone numbers, and instant messengers.

http://groups.yahoo.com/group/Neurosarcoidosis/database

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Share on other sites

Faith makes all things possible,Love makes it easy!

Janjanbovi@... 1. What did you do in 2003 that you'd never done before? Moved into my very first apartment

2. Did you keep your new years' resolutions, and will you make more for nextyear? not very good at keeping them3. Did anyone close to you give birth? nope, Corrina carried her baby to 16 weeks then lost it.4. Did anyone close to you die? nope5. What countries did you visit? none this year didn't get to do anything was too sick.6. What would you like to have in 2004 that you lacked in 2003? I would like to be healthier and would like to find a special someone maybe meet a special guy7. What date from 2003 will remain etched upon your memory, and why? when Janice went back to her abusive husband8. What was your biggest achievement of the year? Finding out it's ok to live alone. And finding salvation and a closer walk with God9. What was your biggest failure? my inabilities and lack of confidence in myself10. Did you suffer illness or injury? yes I was sick all year, I was also in an auto accident this year I also need neck surgery for a herniated disc in my neck11. What was the best thing you bought? cd's and movies12. Whose behavior merited celebration? my grand kids13. Whose behavior made you appalled and depressed? my daughter Janice14. Where did most of your money go? bills, the usual stuff15. What did you get really, really, really excited about? getting my daughter and grand babies out of a bad situation16. What song will always remind you of 2003? Everyday by Jon Bon Jovi17. Compared to this time last year, are you: i. happier or sadder? happierii. thinner or fatter? thinner by 110 poundsiii. richer or poorer? poorer18. What do you wish you'd done more of? traveling19. What do you wish you'd done less of? being sick20. How will you be spending Christmas? All alone21. How will you be spending New Years Eve? going to try and go to church after i'm finished babysitting22. Did you fall in love in 2003? no I hope I will in 200423. How many one-night stands? are you kidding.lol.none24. What was your favorite TV program? none really25. Do you hate anyone now that you didn't hate this time last year? nope I don't hate anyone26. What was the best book you read? The Holy Bible27. What was your greatest musical discovery? none28. What did you want and get? just peace and love 29. What did you want and not get? love30. What was your favorite film of this year? dunno31. What did you do on your birthday, and how old were you? I was the big 40 this year and I spent it with Corrina after she had just lost the baby32. What one thing would have made your year immeasurably more satisfying? Having my family and my friends to be a little more understanding of what i'm going through33. How would you describe your personal fashion concept in 2003? laid back relaxed and casual34. What kept you sane? my online friends and God35. Which celebrity/public figure did you fancy the most? No one really in particular36. What political issue stirred you the most? not too much of a political person37. Who did you miss? my friends in Michigan38. Who was the best new person you met? all the new people I met online in my sarc family39. Tell us a valuable life lesson you learned in 2003: always trust your instincts and listen to your heart God is always with you even when you feel all alone. God never puts more on us than we can bear.40. What song lyrics sum up your year?Its my life its now or never I ain't gonna live forever I just wanna live while i'm alive, my heart is like an open highway like ie said I did it my way .....It's my Life......good old Jon Bon Jovi total yayness

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Aisha wrote:

1.

What did you do in 2003 that you'd never done before?

I walked around the block with my new sit-down walker

without stopping or sitting down once -- a first not only for 2003 but for

the last eight+ years.

2. Did you keep your new years' resolutions, and will you make more for

next

year?

CRS prevents me from remembering, but I think they

might be on the livejournal. This year I will make new ones, and I will

write them for you. Here I'll just write a few:

1. Love myself more and regardless of how others are feeling about me.

2. Spread joy as often as possible, and keep a calendar recognizing what

days were spent in helping others and myself and for how much time.

3. Stop, I mean absolutely stop with the "Why me?" and the self-pity parties.

Period.

4. Exercise daily, even if it's just in bed -- I can still do leg lifts and

other abdominal exercises.

5.Realize that I have a LARGE support group and I vow to become a more integral

part of it.

6.Research how I can improve my sex life regardless of all of my physical

and hormonal limitations (I found out yesterday that the one little ovary

they left during my hysterectomy is no longer working and I am now POST menopausal.

Kind of funny -- I have so many sweat-filled night from sarc that I don't

really mind the hot flashes but was curious about them and so had my levels

tested...argh. Since the prednisone gifted me with osteoporosis and osteoarthritis,

I'm not too keen on hormone replacement anyway...) Thanks to whomever sent

the web address for the new book. I'll order it today, if possible!

3. Did anyone close to you give birth? Another rugby

coach who works with hubby gave birth to his first girl.

4. Did anyone close to you die? Yes. An older woman

we called "Grandmother" and whom we drove up to her summer home in the Upper

Peninsula for four years passed away in early winter. Her only blood-related

child lives in California and didn't have a funeral and had Grandmother cremated,

awaiting a memorial service in the spring. She gave the Kelty family less

than 12 hours notice and we were unable to attend as it was out of town.

Her passing evoked mixed emotions -- traveling with her made Driving Miss

Daisy seem like a walk in the park, but she was extremely wise (if one could

get passed her rough yet prim and proper exterior) and in her own ways. I

will miss her very much.

5. What countries did you visit? Homebound as I am

most of the time, I was able watch a great documentary about wardogs in VietNam.

I had no idea how much those shepherds did for our troops, and the US Gov.

wouldn't see clear to spend the money to ship them home. Not that I was

surprised about the latter. I own a shepherd and I wonder if she could be

trained to help me as I grow more and more disabled.

6. What would you like to have in 2004 that you lacked in 2003? Some dresses to wear to Temple in the winter weather. I've

not bought anything "fancy" since I was a size 14 that would do for the colder

weather here in Indiana, and I am old-fashioned enough not to wear pants

in the Synagogue. I'm getting all sorts of "women's sizes" catalogues in

my email, so I think I'll order some today while I'm at the puter. I'd also

love to buy some new CD's to play on the DVD/CD home theater I gave my son

for Chanukah. hehe

7. What date from 2003 will remain etched upon your memory, and why? My birthday, cause hubby gave me a lovely "bling bling"

five diamond wedding ring to replace the one they had to cut off in emergency.

Also Thanksgiving since my run-away eldest son decided to eat with a friend's

family rather than keep me company since I was home alone all day (the Kelty

turykey day was out of town and I was quite ill post chemo). ((Why the heck

am I being so personal here?????)) OH! And Chanukah when I received a dozen

red roses and a found of Godivas from a couple of dear, dear friends!

8. What was your biggest achievement of the year? Walking

around the block (a very large block) without resting or sitting. Attending

the Indpls. Sarc Conference (thanks to plenty of Provigil and Methadone).

Sitting chatting with Kay Pullen in Wilkes/Knox's waiting room, ordering

a conference shirt, and recruiting a 15+ year sarc patient into the Indiana

Sarc Support Group, as she had been pleasantly eavesdropping on our loud

and lengthy conversation! Finally, making peace with a great member of Aisha's

Army, Ron, and Rose has the pictures to prove it!!!!! ;-) ;-) ;-)

9. What was your biggest failure? Falling into a four

month funk -- the worst in the 8+ years. I've always been a positive-thinking

person, but this past relapse blind-sided me. But, since Baughman explained

that it was all VERY microbiological and not the result of the lack of affirmations

from me to me. BTW, if anyone has some new affirmations (God talk is fine,

but please remember I am a radical Jew) I am of open ears and heart! Oh.

And I have also failed this group BIG TIME, especially calling Shar from

my self-pitying bed BEFORE getting on the computer and reading about her

visit to Baughman which was before I called her. She never said a word about

it. By the time I had read about it, None of my calls were answered, so

all I could do was leave phone messages and emails, praying that she would

forgive me for my extreme selfishness. Also, I have failed everyone in Aisha's

group who could have benefited from my experiences. But I'm back and I hop

not to make the same mistake in 2004.

10. Did you suffer illness or injury? Let's skip this

-- I'm trying to follow my resolutions early.

11. What was the best thing you bought? The DVD player

for my son

12. Whose behavior merited celebration? Rose's for

the conference. I would have never made it without her encouragement

13. Whose behavior made you appalled and depressed? My eldest son who ran away two years ago during my first

chemo treatment. He freaked out with the psychotic episodes brought on by

the prednisone (no one warned me until much later -- and never the docs)

and with the hallucinations brought on by the narcolepsy. And the coaches

call him brave! We were inseparable for 15 years and then he couldn't face

life without the "old" mom.

14. Where did most of your money go? My husband is

amazing a dealing with money. I'd say most of the money went to the following

(in order) 1. mortgage 2. husband's chiropractic school loan (about the same

as #1, so I'm basically paying two mortgages) (BTW, with the new PAYING coaching

job, he is no longer employed as a chiropractor except for house calls and

locum ((substitute chiropractor)). We are getting by okay on his teaching,

coaching, and summer school. Of course, rugby season has already started,

so I won't see him until June...) 3. $700 a month COPAY for all my drug!!!!!

Man! I HAVE to get better quick, because I have a son starting college

in the fall!!!!!

15. What did you get really, really, really excited about? The Sarc Conference. The two mini -vacations at the state

park inns.

16. What song will always remind you of 2003? Together

Wherever We Go

17. Compared to this time last year, are you:

i. happier or sadder?

ii. thinner or fatter?

iii. richer or poorer? Wish I knew. By my own request,

I am not appraised of the balance of our savings account. (My husband has

been a wizard at getting us out of debt.)

18. What do you wish you'd done more of? Gone out

to see the fall colors

19. What do you wish you'd done less of? Crying

20. How will you be spending Christmas? Christmas

and Chanukah overlapped this year. Each night my younger son was home (and

not with his father) he received a gift. We both received lava lamps. How

cool. We did say our prayers and light the Chanukiah (most think it is a

menorah -- the latter has seven candles and the former has nine), and I even

got my son to wear a yarmulke. Since the garage is buried under woodworking

gear (hubby built very nice oak built-in bookshelves in the living room before

his knee surgery) I could not find my box of Chanukah decorations. I have

a really nice electric one for the front window with large blue "candle flames,"

and whatever I've accumulated over the years, but none of it could be found.

I had my best friend pick up a Channukiah and candles so we were able to

fulfill our mizvot of lighting the candles

21. How will you be spending New Years Eve? Watching

DVDs, eating chips and dip and drinking cranapple juice -- at tradition started

by my mom forty years ago, and since she lives with us now, I'd like to make

her happy. Neither of my sons can make it.

22. Did you fall in love in 2003? Some friends of

mine who have been very happily married forever told me the secret to a good

marriage is falling in love over and over again. I think I did that yesterday

with my husband (with whom I have not been very happy lately) -- he was so

kind as I suffered through my infusion which was over three times stronger

than I was used to. He held my hand gently and did not say a cross or bossy

word to me in the last 24 hours. Perhaps, if he can keep it going until midnight

he will win my heart right at the end of 2003.

23. How many one-night stands? I think three or four

IN A YEAR (all with my husband). I did find out yesterday that it appears

from the blood tests I requested back in November, but upon which no one

has commented, that I am now "post menopausal." The nurse practitioner said

I had to go to an OBGYN to make sure the levels weren't skewed by the drugs

or my illnesses, but the level shows YES. That would account for my lack

of interest, pain, and general crabbiness. Not to mention the weird five

to ten minute hot flashes.

24. What was your favorite TV program? Law and Order

CI, CSI Las Vegas, West Wing. I also love the

Gilmore Girls, Less than Perfect, Whoopi (I'm not worthy, I'm not worthy)

for lighter fare, and Actor's Studio and any show's about the ancient world.

Just call me a renaissance couch potato

25. Do you hate anyone now that you didn't hate this time last year? Yes. The idiot neurologist (not my regular one) who was

doing rounds with about ten med students and openly said I needed to see

a psychiatrist because they could not see neurosarc on my MRI's (however,

Dr. Stern in Atlanta had seen it on my two previous MRI's just one month

before). I immediately called my personal neurologist who works at the IU

hospital but does not do rounds (he is the top research neurologist) and

started ranting about this woman and demanded she apologize. He apologized

for her, but I said that wasn't enough. Later, after my release, I called

the hospital administration. They apologized, but could not get that specific

doctor to apologize. Soon after her incompetent diagnosis and recommendation,

I developed a very rare and very bad case of subcutaneous sarc and was taken

under the wing of this amazing immunologist who has no affiliation with the

solaced sarc clinic at IU and the so-called Dr. Wilkes (I see Dr. Knox, after

Dr. Baughman asked me to have all my docs at IU hospital. They do not, no

matter how much they plead, administer my Remicade. I leave this to my main

doc, Dr. , the immunologist/oncologiset who spends most of his time

doing bone marrow transplants at Riley Children's Hospital. He sees unusual

adult immunological cases two days a week. Lucky for me. For anyone with

sarc involvement so wide spread and so weird, please take our almighty leader's

advice and find and immunologist!!!!! Even if you have to go out of state.

Just do it!

26. What was the best book you read? Harry Potter

The Order of the Phoenix

27. What was your greatest musical discovery? That

my larynx is healing and I can sing a little

28. What did you want and get? A new wedding ring

29. What did you want and not get? A loving family

and the return of my eldest son

30. What was your favorite film of this year? Chicago

31. What did you do on your birthday, and how old were you? I was sick.

44

32. What one thing would have made your year immeasurably more satisfying? Having all of my family under one roof.

33. How would you describe your personal fashion concept in 2003?Hide the zebra stretch marks

34. What kept you sane? Ha ha.

35. Which celebrity/public figure did you fancy the most? Sheen. I love his politics.

36. What political issue stirred you the most?

37. Who did you miss? My eldest son

38. Who was the best new person you met? Robbie Darden.

She is the president of the Indiana Sarcoidosis Support Group. We've been

phone buddies for a few years but the conference allowed us to meet for the

first time.

39. Tell us a valuable life lesson you learned in 2003: Ask very detailed questions before you start a chemotherapy

treatment.

40. What song lyrics sum up your year? What's hard

is easy, what's easiest comes hard....

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Neurosarcoidosis Community

Live Group Chat:-

Mondays & Fridays 10pm EST USA

http://www.elderwyn.com/neurosarcoidosis/chat.php

Message Archives:-

http://groups.yahoo.com/group/Neurosarcoidosis/messages

Members Database:-

Listings of locations, phone numbers, and instant messengers.

http://groups.yahoo.com/group/Neurosarcoidosis/database

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Share on other sites

Aisha wrote:

1.

What did you do in 2003 that you'd never done before?

I walked around the block with my new sit-down walker

without stopping or sitting down once -- a first not only for 2003 but for

the last eight+ years.

2. Did you keep your new years' resolutions, and will you make more for

next

year?

CRS prevents me from remembering, but I think they

might be on the livejournal. This year I will make new ones, and I will

write them for you. Here I'll just write a few:

1. Love myself more and regardless of how others are feeling about me.

2. Spread joy as often as possible, and keep a calendar recognizing what

days were spent in helping others and myself and for how much time.

3. Stop, I mean absolutely stop with the "Why me?" and the self-pity parties.

Period.

4. Exercise daily, even if it's just in bed -- I can still do leg lifts and

other abdominal exercises.

5.Realize that I have a LARGE support group and I vow to become a more integral

part of it.

6.Research how I can improve my sex life regardless of all of my physical

and hormonal limitations (I found out yesterday that the one little ovary

they left during my hysterectomy is no longer working and I am now POST menopausal.

Kind of funny -- I have so many sweat-filled night from sarc that I don't

really mind the hot flashes but was curious about them and so had my levels

tested...argh. Since the prednisone gifted me with osteoporosis and osteoarthritis,

I'm not too keen on hormone replacement anyway...) Thanks to whomever sent

the web address for the new book. I'll order it today, if possible!

3. Did anyone close to you give birth? Another rugby

coach who works with hubby gave birth to his first girl.

4. Did anyone close to you die? Yes. An older woman

we called "Grandmother" and whom we drove up to her summer home in the Upper

Peninsula for four years passed away in early winter. Her only blood-related

child lives in California and didn't have a funeral and had Grandmother cremated,

awaiting a memorial service in the spring. She gave the Kelty family less

than 12 hours notice and we were unable to attend as it was out of town.

Her passing evoked mixed emotions -- traveling with her made Driving Miss

Daisy seem like a walk in the park, but she was extremely wise (if one could

get passed her rough yet prim and proper exterior) and in her own ways. I

will miss her very much.

5. What countries did you visit? Homebound as I am

most of the time, I was able watch a great documentary about wardogs in VietNam.

I had no idea how much those shepherds did for our troops, and the US Gov.

wouldn't see clear to spend the money to ship them home. Not that I was

surprised about the latter. I own a shepherd and I wonder if she could be

trained to help me as I grow more and more disabled.

6. What would you like to have in 2004 that you lacked in 2003? Some dresses to wear to Temple in the winter weather. I've

not bought anything "fancy" since I was a size 14 that would do for the colder

weather here in Indiana, and I am old-fashioned enough not to wear pants

in the Synagogue. I'm getting all sorts of "women's sizes" catalogues in

my email, so I think I'll order some today while I'm at the puter. I'd also

love to buy some new CD's to play on the DVD/CD home theater I gave my son

for Chanukah. hehe

7. What date from 2003 will remain etched upon your memory, and why? My birthday, cause hubby gave me a lovely "bling bling"

five diamond wedding ring to replace the one they had to cut off in emergency.

Also Thanksgiving since my run-away eldest son decided to eat with a friend's

family rather than keep me company since I was home alone all day (the Kelty

turykey day was out of town and I was quite ill post chemo). ((Why the heck

am I being so personal here?????)) OH! And Chanukah when I received a dozen

red roses and a found of Godivas from a couple of dear, dear friends!

8. What was your biggest achievement of the year? Walking

around the block (a very large block) without resting or sitting. Attending

the Indpls. Sarc Conference (thanks to plenty of Provigil and Methadone).

Sitting chatting with Kay Pullen in Wilkes/Knox's waiting room, ordering

a conference shirt, and recruiting a 15+ year sarc patient into the Indiana

Sarc Support Group, as she had been pleasantly eavesdropping on our loud

and lengthy conversation! Finally, making peace with a great member of Aisha's

Army, Ron, and Rose has the pictures to prove it!!!!! ;-) ;-) ;-)

9. What was your biggest failure? Falling into a four

month funk -- the worst in the 8+ years. I've always been a positive-thinking

person, but this past relapse blind-sided me. But, since Baughman explained

that it was all VERY microbiological and not the result of the lack of affirmations

from me to me. BTW, if anyone has some new affirmations (God talk is fine,

but please remember I am a radical Jew) I am of open ears and heart! Oh.

And I have also failed this group BIG TIME, especially calling Shar from

my self-pitying bed BEFORE getting on the computer and reading about her

visit to Baughman which was before I called her. She never said a word about

it. By the time I had read about it, None of my calls were answered, so

all I could do was leave phone messages and emails, praying that she would

forgive me for my extreme selfishness. Also, I have failed everyone in Aisha's

group who could have benefited from my experiences. But I'm back and I hop

not to make the same mistake in 2004.

10. Did you suffer illness or injury? Let's skip this

-- I'm trying to follow my resolutions early.

11. What was the best thing you bought? The DVD player

for my son

12. Whose behavior merited celebration? Rose's for

the conference. I would have never made it without her encouragement

13. Whose behavior made you appalled and depressed? My eldest son who ran away two years ago during my first

chemo treatment. He freaked out with the psychotic episodes brought on by

the prednisone (no one warned me until much later -- and never the docs)

and with the hallucinations brought on by the narcolepsy. And the coaches

call him brave! We were inseparable for 15 years and then he couldn't face

life without the "old" mom.

14. Where did most of your money go? My husband is

amazing a dealing with money. I'd say most of the money went to the following

(in order) 1. mortgage 2. husband's chiropractic school loan (about the same

as #1, so I'm basically paying two mortgages) (BTW, with the new PAYING coaching

job, he is no longer employed as a chiropractor except for house calls and

locum ((substitute chiropractor)). We are getting by okay on his teaching,

coaching, and summer school. Of course, rugby season has already started,

so I won't see him until June...) 3. $700 a month COPAY for all my drug!!!!!

Man! I HAVE to get better quick, because I have a son starting college

in the fall!!!!!

15. What did you get really, really, really excited about? The Sarc Conference. The two mini -vacations at the state

park inns.

16. What song will always remind you of 2003? Together

Wherever We Go

17. Compared to this time last year, are you:

i. happier or sadder?

ii. thinner or fatter?

iii. richer or poorer? Wish I knew. By my own request,

I am not appraised of the balance of our savings account. (My husband has

been a wizard at getting us out of debt.)

18. What do you wish you'd done more of? Gone out

to see the fall colors

19. What do you wish you'd done less of? Crying

20. How will you be spending Christmas? Christmas

and Chanukah overlapped this year. Each night my younger son was home (and

not with his father) he received a gift. We both received lava lamps. How

cool. We did say our prayers and light the Chanukiah (most think it is a

menorah -- the latter has seven candles and the former has nine), and I even

got my son to wear a yarmulke. Since the garage is buried under woodworking

gear (hubby built very nice oak built-in bookshelves in the living room before

his knee surgery) I could not find my box of Chanukah decorations. I have

a really nice electric one for the front window with large blue "candle flames,"

and whatever I've accumulated over the years, but none of it could be found.

I had my best friend pick up a Channukiah and candles so we were able to

fulfill our mizvot of lighting the candles

21. How will you be spending New Years Eve? Watching

DVDs, eating chips and dip and drinking cranapple juice -- at tradition started

by my mom forty years ago, and since she lives with us now, I'd like to make

her happy. Neither of my sons can make it.

22. Did you fall in love in 2003? Some friends of

mine who have been very happily married forever told me the secret to a good

marriage is falling in love over and over again. I think I did that yesterday

with my husband (with whom I have not been very happy lately) -- he was so

kind as I suffered through my infusion which was over three times stronger

than I was used to. He held my hand gently and did not say a cross or bossy

word to me in the last 24 hours. Perhaps, if he can keep it going until midnight

he will win my heart right at the end of 2003.

23. How many one-night stands? I think three or four

IN A YEAR (all with my husband). I did find out yesterday that it appears

from the blood tests I requested back in November, but upon which no one

has commented, that I am now "post menopausal." The nurse practitioner said

I had to go to an OBGYN to make sure the levels weren't skewed by the drugs

or my illnesses, but the level shows YES. That would account for my lack

of interest, pain, and general crabbiness. Not to mention the weird five

to ten minute hot flashes.

24. What was your favorite TV program? Law and Order

CI, CSI Las Vegas, West Wing. I also love the

Gilmore Girls, Less than Perfect, Whoopi (I'm not worthy, I'm not worthy)

for lighter fare, and Actor's Studio and any show's about the ancient world.

Just call me a renaissance couch potato

25. Do you hate anyone now that you didn't hate this time last year? Yes. The idiot neurologist (not my regular one) who was

doing rounds with about ten med students and openly said I needed to see

a psychiatrist because they could not see neurosarc on my MRI's (however,

Dr. Stern in Atlanta had seen it on my two previous MRI's just one month

before). I immediately called my personal neurologist who works at the IU

hospital but does not do rounds (he is the top research neurologist) and

started ranting about this woman and demanded she apologize. He apologized

for her, but I said that wasn't enough. Later, after my release, I called

the hospital administration. They apologized, but could not get that specific

doctor to apologize. Soon after her incompetent diagnosis and recommendation,

I developed a very rare and very bad case of subcutaneous sarc and was taken

under the wing of this amazing immunologist who has no affiliation with the

solaced sarc clinic at IU and the so-called Dr. Wilkes (I see Dr. Knox, after

Dr. Baughman asked me to have all my docs at IU hospital. They do not, no

matter how much they plead, administer my Remicade. I leave this to my main

doc, Dr. , the immunologist/oncologiset who spends most of his time

doing bone marrow transplants at Riley Children's Hospital. He sees unusual

adult immunological cases two days a week. Lucky for me. For anyone with

sarc involvement so wide spread and so weird, please take our almighty leader's

advice and find and immunologist!!!!! Even if you have to go out of state.

Just do it!

26. What was the best book you read? Harry Potter

The Order of the Phoenix

27. What was your greatest musical discovery? That

my larynx is healing and I can sing a little

28. What did you want and get? A new wedding ring

29. What did you want and not get? A loving family

and the return of my eldest son

30. What was your favorite film of this year? Chicago

31. What did you do on your birthday, and how old were you? I was sick.

44

32. What one thing would have made your year immeasurably more satisfying? Having all of my family under one roof.

33. How would you describe your personal fashion concept in 2003?Hide the zebra stretch marks

34. What kept you sane? Ha ha.

35. Which celebrity/public figure did you fancy the most? Sheen. I love his politics.

36. What political issue stirred you the most?

37. Who did you miss? My eldest son

38. Who was the best new person you met? Robbie Darden.

She is the president of the Indiana Sarcoidosis Support Group. We've been

phone buddies for a few years but the conference allowed us to meet for the

first time.

39. Tell us a valuable life lesson you learned in 2003: Ask very detailed questions before you start a chemotherapy

treatment.

40. What song lyrics sum up your year? What's hard

is easy, what's easiest comes hard....

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Neurosarcoidosis Community

Live Group Chat:-

Mondays & Fridays 10pm EST USA

http://www.elderwyn.com/neurosarcoidosis/chat.php

Message Archives:-

http://groups.yahoo.com/group/Neurosarcoidosis/messages

Members Database:-

Listings of locations, phone numbers, and instant messengers.

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Share on other sites

Aisha wrote:

1.

What did you do in 2003 that you'd never done before?

I walked around the block with my new sit-down walker

without stopping or sitting down once -- a first not only for 2003 but for

the last eight+ years.

2. Did you keep your new years' resolutions, and will you make more for

next

year?

CRS prevents me from remembering, but I think they

might be on the livejournal. This year I will make new ones, and I will

write them for you. Here I'll just write a few:

1. Love myself more and regardless of how others are feeling about me.

2. Spread joy as often as possible, and keep a calendar recognizing what

days were spent in helping others and myself and for how much time.

3. Stop, I mean absolutely stop with the "Why me?" and the self-pity parties.

Period.

4. Exercise daily, even if it's just in bed -- I can still do leg lifts and

other abdominal exercises.

5.Realize that I have a LARGE support group and I vow to become a more integral

part of it.

6.Research how I can improve my sex life regardless of all of my physical

and hormonal limitations (I found out yesterday that the one little ovary

they left during my hysterectomy is no longer working and I am now POST menopausal.

Kind of funny -- I have so many sweat-filled night from sarc that I don't

really mind the hot flashes but was curious about them and so had my levels

tested...argh. Since the prednisone gifted me with osteoporosis and osteoarthritis,

I'm not too keen on hormone replacement anyway...) Thanks to whomever sent

the web address for the new book. I'll order it today, if possible!

3. Did anyone close to you give birth? Another rugby

coach who works with hubby gave birth to his first girl.

4. Did anyone close to you die? Yes. An older woman

we called "Grandmother" and whom we drove up to her summer home in the Upper

Peninsula for four years passed away in early winter. Her only blood-related

child lives in California and didn't have a funeral and had Grandmother cremated,

awaiting a memorial service in the spring. She gave the Kelty family less

than 12 hours notice and we were unable to attend as it was out of town.

Her passing evoked mixed emotions -- traveling with her made Driving Miss

Daisy seem like a walk in the park, but she was extremely wise (if one could

get passed her rough yet prim and proper exterior) and in her own ways. I

will miss her very much.

5. What countries did you visit? Homebound as I am

most of the time, I was able watch a great documentary about wardogs in VietNam.

I had no idea how much those shepherds did for our troops, and the US Gov.

wouldn't see clear to spend the money to ship them home. Not that I was

surprised about the latter. I own a shepherd and I wonder if she could be

trained to help me as I grow more and more disabled.

6. What would you like to have in 2004 that you lacked in 2003? Some dresses to wear to Temple in the winter weather. I've

not bought anything "fancy" since I was a size 14 that would do for the colder

weather here in Indiana, and I am old-fashioned enough not to wear pants

in the Synagogue. I'm getting all sorts of "women's sizes" catalogues in

my email, so I think I'll order some today while I'm at the puter. I'd also

love to buy some new CD's to play on the DVD/CD home theater I gave my son

for Chanukah. hehe

7. What date from 2003 will remain etched upon your memory, and why? My birthday, cause hubby gave me a lovely "bling bling"

five diamond wedding ring to replace the one they had to cut off in emergency.

Also Thanksgiving since my run-away eldest son decided to eat with a friend's

family rather than keep me company since I was home alone all day (the Kelty

turykey day was out of town and I was quite ill post chemo). ((Why the heck

am I being so personal here?????)) OH! And Chanukah when I received a dozen

red roses and a found of Godivas from a couple of dear, dear friends!

8. What was your biggest achievement of the year? Walking

around the block (a very large block) without resting or sitting. Attending

the Indpls. Sarc Conference (thanks to plenty of Provigil and Methadone).

Sitting chatting with Kay Pullen in Wilkes/Knox's waiting room, ordering

a conference shirt, and recruiting a 15+ year sarc patient into the Indiana

Sarc Support Group, as she had been pleasantly eavesdropping on our loud

and lengthy conversation! Finally, making peace with a great member of Aisha's

Army, Ron, and Rose has the pictures to prove it!!!!! ;-) ;-) ;-)

9. What was your biggest failure? Falling into a four

month funk -- the worst in the 8+ years. I've always been a positive-thinking

person, but this past relapse blind-sided me. But, since Baughman explained

that it was all VERY microbiological and not the result of the lack of affirmations

from me to me. BTW, if anyone has some new affirmations (God talk is fine,

but please remember I am a radical Jew) I am of open ears and heart! Oh.

And I have also failed this group BIG TIME, especially calling Shar from

my self-pitying bed BEFORE getting on the computer and reading about her

visit to Baughman which was before I called her. She never said a word about

it. By the time I had read about it, None of my calls were answered, so

all I could do was leave phone messages and emails, praying that she would

forgive me for my extreme selfishness. Also, I have failed everyone in Aisha's

group who could have benefited from my experiences. But I'm back and I hop

not to make the same mistake in 2004.

10. Did you suffer illness or injury? Let's skip this

-- I'm trying to follow my resolutions early.

11. What was the best thing you bought? The DVD player

for my son

12. Whose behavior merited celebration? Rose's for

the conference. I would have never made it without her encouragement

13. Whose behavior made you appalled and depressed? My eldest son who ran away two years ago during my first

chemo treatment. He freaked out with the psychotic episodes brought on by

the prednisone (no one warned me until much later -- and never the docs)

and with the hallucinations brought on by the narcolepsy. And the coaches

call him brave! We were inseparable for 15 years and then he couldn't face

life without the "old" mom.

14. Where did most of your money go? My husband is

amazing a dealing with money. I'd say most of the money went to the following

(in order) 1. mortgage 2. husband's chiropractic school loan (about the same

as #1, so I'm basically paying two mortgages) (BTW, with the new PAYING coaching

job, he is no longer employed as a chiropractor except for house calls and

locum ((substitute chiropractor)). We are getting by okay on his teaching,

coaching, and summer school. Of course, rugby season has already started,

so I won't see him until June...) 3. $700 a month COPAY for all my drug!!!!!

Man! I HAVE to get better quick, because I have a son starting college

in the fall!!!!!

15. What did you get really, really, really excited about? The Sarc Conference. The two mini -vacations at the state

park inns.

16. What song will always remind you of 2003? Together

Wherever We Go

17. Compared to this time last year, are you:

i. happier or sadder?

ii. thinner or fatter?

iii. richer or poorer? Wish I knew. By my own request,

I am not appraised of the balance of our savings account. (My husband has

been a wizard at getting us out of debt.)

18. What do you wish you'd done more of? Gone out

to see the fall colors

19. What do you wish you'd done less of? Crying

20. How will you be spending Christmas? Christmas

and Chanukah overlapped this year. Each night my younger son was home (and

not with his father) he received a gift. We both received lava lamps. How

cool. We did say our prayers and light the Chanukiah (most think it is a

menorah -- the latter has seven candles and the former has nine), and I even

got my son to wear a yarmulke. Since the garage is buried under woodworking

gear (hubby built very nice oak built-in bookshelves in the living room before

his knee surgery) I could not find my box of Chanukah decorations. I have

a really nice electric one for the front window with large blue "candle flames,"

and whatever I've accumulated over the years, but none of it could be found.

I had my best friend pick up a Channukiah and candles so we were able to

fulfill our mizvot of lighting the candles

21. How will you be spending New Years Eve? Watching

DVDs, eating chips and dip and drinking cranapple juice -- at tradition started

by my mom forty years ago, and since she lives with us now, I'd like to make

her happy. Neither of my sons can make it.

22. Did you fall in love in 2003? Some friends of

mine who have been very happily married forever told me the secret to a good

marriage is falling in love over and over again. I think I did that yesterday

with my husband (with whom I have not been very happy lately) -- he was so

kind as I suffered through my infusion which was over three times stronger

than I was used to. He held my hand gently and did not say a cross or bossy

word to me in the last 24 hours. Perhaps, if he can keep it going until midnight

he will win my heart right at the end of 2003.

23. How many one-night stands? I think three or four

IN A YEAR (all with my husband). I did find out yesterday that it appears

from the blood tests I requested back in November, but upon which no one

has commented, that I am now "post menopausal." The nurse practitioner said

I had to go to an OBGYN to make sure the levels weren't skewed by the drugs

or my illnesses, but the level shows YES. That would account for my lack

of interest, pain, and general crabbiness. Not to mention the weird five

to ten minute hot flashes.

24. What was your favorite TV program? Law and Order

CI, CSI Las Vegas, West Wing. I also love the

Gilmore Girls, Less than Perfect, Whoopi (I'm not worthy, I'm not worthy)

for lighter fare, and Actor's Studio and any show's about the ancient world.

Just call me a renaissance couch potato

25. Do you hate anyone now that you didn't hate this time last year? Yes. The idiot neurologist (not my regular one) who was

doing rounds with about ten med students and openly said I needed to see

a psychiatrist because they could not see neurosarc on my MRI's (however,

Dr. Stern in Atlanta had seen it on my two previous MRI's just one month

before). I immediately called my personal neurologist who works at the IU

hospital but does not do rounds (he is the top research neurologist) and

started ranting about this woman and demanded she apologize. He apologized

for her, but I said that wasn't enough. Later, after my release, I called

the hospital administration. They apologized, but could not get that specific

doctor to apologize. Soon after her incompetent diagnosis and recommendation,

I developed a very rare and very bad case of subcutaneous sarc and was taken

under the wing of this amazing immunologist who has no affiliation with the

solaced sarc clinic at IU and the so-called Dr. Wilkes (I see Dr. Knox, after

Dr. Baughman asked me to have all my docs at IU hospital. They do not, no

matter how much they plead, administer my Remicade. I leave this to my main

doc, Dr. , the immunologist/oncologiset who spends most of his time

doing bone marrow transplants at Riley Children's Hospital. He sees unusual

adult immunological cases two days a week. Lucky for me. For anyone with

sarc involvement so wide spread and so weird, please take our almighty leader's

advice and find and immunologist!!!!! Even if you have to go out of state.

Just do it!

26. What was the best book you read? Harry Potter

The Order of the Phoenix

27. What was your greatest musical discovery? That

my larynx is healing and I can sing a little

28. What did you want and get? A new wedding ring

29. What did you want and not get? A loving family

and the return of my eldest son

30. What was your favorite film of this year? Chicago

31. What did you do on your birthday, and how old were you? I was sick.

44

32. What one thing would have made your year immeasurably more satisfying? Having all of my family under one roof.

33. How would you describe your personal fashion concept in 2003?Hide the zebra stretch marks

34. What kept you sane? Ha ha.

35. Which celebrity/public figure did you fancy the most? Sheen. I love his politics.

36. What political issue stirred you the most?

37. Who did you miss? My eldest son

38. Who was the best new person you met? Robbie Darden.

She is the president of the Indiana Sarcoidosis Support Group. We've been

phone buddies for a few years but the conference allowed us to meet for the

first time.

39. Tell us a valuable life lesson you learned in 2003: Ask very detailed questions before you start a chemotherapy

treatment.

40. What song lyrics sum up your year? What's hard

is easy, what's easiest comes hard....

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Neurosarcoidosis Community

Live Group Chat:-

Mondays & Fridays 10pm EST USA

http://www.elderwyn.com/neurosarcoidosis/chat.php

Message Archives:-

http://groups.yahoo.com/group/Neurosarcoidosis/messages

Members Database:-

Listings of locations, phone numbers, and instant messengers.

http://groups.yahoo.com/group/Neurosarcoidosis/database

Link to comment
Share on other sites

Thanks for this...I love doing these...Alison x

1. What did you do in 2003 that you'd never done before?

A presentation!

2. Did you keep your new years' resolutions, and will you make more

for next year?

I kept one...to lose some weight!

3. Did anyone close to you give birth?

No...

4. Did anyone close to you die?

No...Thankfully!!

5. What countries did you visit?

Just England.

6. What would you like to have in 2004 that you lacked in 2003?

Better health, and a little more money!!

7. What date from 2003 will remain etched upon your memory, and why?

As always....17th January, the day I lost my first daughter

she would have been 18 this year 2004!! Oh yes, and 31st August, my

40th Birthday!!

8. What was your biggest achievement of the year? Believing in

myself...I think!!

9. What was your biggest failure? Not understanding my children!

10. Did you suffer illness or injury? YES

11. What was the best thing you bought? A pair of jeans for my

40th, 3 sizes smaller than the previous year!!

12. Whose behavior merited celebration? My husbands.

13. Whose behavior made you appalled and depressed? EVERY BAD

person in the world...

14. Where did most of your money go? House/family

15. What did you get really, really, really excited about? My 'new

to me' car for my 40th.

16. What song will always remind you of 2003? Leave Right Now, by

Will Young

17. Compared to this time last year, are you:

i. happier or sadder? Happier

ii. thinner or fatter? Thinner

iii. richer or poorer? At the moment..moneywise, poorer

18. What do you wish you'd done more of? Family stuff

19. What do you wish you'd done less of? Complaining and moaning!!

20. How will you be spending Christmas? At home with my family

21. How will you be spending New Years Eve? With our friends, Dave

and Jean

22. Did you fall in love in 2003? No, but my love for my husband is

stronger!!

23. How many one-night stands?..believe it or not...NONE, I married

my first love!!

24. What was your favorite TV program? Cornation Street

25. Do you hate anyone now that you didn't hate this time last year?

SADDAM

26. What was the best book you read? Anything about the Titanic

27. What was your greatest musical discovery? Grease

28. What did you want and get? A gold locket

29. What did you want and not get? A new cd by Will Young, so I

bought it myself!!

30. What was your favorite film of this year? Too many to list

31. What did you do on your birthday, and how old were you? Had a

family 'surprise' party as I was 40!!

32. What one thing would have made your year immeasurably more

satisfying?

Nothing!!

33. How would you describe your personal fashion concept in 2003?

Comfortable!!

34. What kept you sane? My husband and children

35. Which celebrity/public figure did you fancy the most? Hmmm

Clooney

36. What political issue stirred you the most? Iraq

37. Who did you miss? , my first daughter.......

38. Who was the best new person you met? ALL OF YOU IN HERE !!!!!!!!

39. Tell us a valuable life lesson you learned in 2003: Not to be

too hard on yourself....

40. What song lyrics sum up your year? I'll have to think about

that one!!! hahahahaha

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> 1. What did you do in 2003 that you'd never done before? Applied for

disability.

>

> 2. Did you keep your new years' resolutions, and will you make more for

next year? Do I look like a fool?

> 3. Did anyone close to you give birth? My lovely niece Sharon; I got to

catch the baby!

>

> 4. Did anyone close to you die? My dog Trixie.

>

> 5. What countries did you visit? California; no, wait, that's is the U.S.

>

> 6. What would you like to have in 2004 that you lacked in 2003? More

energy & better health.

>

> 7. What date from 2003 will remain etched upon your memory, and why?

1/12/03; reconciled with daughter.

>

> 8. What was your biggest achievement of the year? Nothing jumps out at

me.

>

> 9. What was your biggest failure? Too many to choose from.

>

> 10. Did you suffer illness or injury? I like " endured " better than

" suffered. "

>

> 11. What was the best thing you bought? Camcorder.

>

> 12. Whose behavior merited celebration? I guess the cat's.

>

> 13. Whose behavior made you appalled and depressed? .

>

> 14. Where did most of your money go? Pills & food.

>

> 15. What did you get really, really, really excited about? Kayaking.

>

> 16. What song will always remind you of 2003? " Have Yourself a Merry

Little Christmas, " sung by a dear friend.

>

> 17. Compared to this time last year, are you:

> i. happier or sadder? Well, more content, I'd say.

> ii. thinner or fatter? I take up more space now.

> iii. richer or poorer? Money? poorer. Friends? richer.

>

> 18. What do you wish you'd done more of? study.

> 19. What do you wish you'd done less of? Look for stuff lost in Clutter

Space.

>

> 20. How will you be spending Christmas? spent it with family.

>

> 21. How will you be spending New Years Eve?

> spent it with family.

>

> 22. Did you fall in love in 2003? Har, har, har.

>

> 23. How many one-night stands? Oh, sure.

>

> 24. What was your favorite TV program? CSI.

>

> 25. Do you hate anyone now that you didn't hate this time last year? Nah,

takes too much energy.

>

> 26. What was the best book you read? Traveling Mercies.

>

> 27. What was your greatest musical discovery? That I really, really hate

rap. Did I mention that I hate rap?

>

> 28. What did you want and get? Disability.

>

> 29. What did you want and not get? Healthy.

>

> 30. What was your favorite film of this year? My favorite of every year,

" It's a Wonderful Life. "

>

> 31. What did you do on your birthday, and how old were you? 54 and I

don't remember what I did.

>

> 32. What one thing would have made your year immeasurably more satisfying?

More harmony among my children.

>

> 33. How would you describe your personal fashion concept in 2003? Sloppy

& comfy.

>

> 34. What kept you sane? Faith & friends.

>

> 35. Which celebrity/public figure did you fancy the most? Bill O'Reilley

>

> 36. What political issue stirred you the most? War in Iraq.

>

> 37. Who did you miss? My dog Trixie.

>

> 38. Who was the best new person you met? This question's too hard.

>

> 39. Tell us a valuable life lesson you learned in 2003:

> " Live each day as if it's your last, because one of these days you'll be

right. " (Ray )

>

> 40. What song lyrics sum up your year? For some reason, " It's now or

never " is going through my head.

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>

>Reply-To: Neurosarcoidosis

>To: " Neurosarc list " <neurosarcoidosis >

>Subject: 2003 Survey

>Date: Wed, 31 Dec 2003 14:19:36 +1100 (AUS Eastern Daylight Time)

>

>1. What did you do in 2003 that you'd never done before?

>break up with someone

>

>2. Did you keep your new years' resolutions, and will you make more for

>next

>year?

>i dont think i even remember what i resoluted last year!!! lol

>

>3. Did anyone close to you give birth?

>a friend i went to high school with. senior year

>

>4. Did anyone close to you die?

>grandfather. may 25th

>

>5. What countries did you visit?

> i stayed in the states for once

>

>6. What would you like to have in 2004 that you lacked in 2003?

> personal freedom, a left eye that works, twenty thousand more dollars, a

>modeling contract, a personal hair stylist, my own gym, a job thats more

>fun.

>

>7. What date from 2003 will remain etched upon your memory, and why?

>may 25th, i was very close to my grandfather. he died at our house while

>i was on an anniversary trip in florida (bf and i). that day we got back,

>not even five minutes after being on ground my mom called and told me to

>get to nj as soon as possible. he was already gone. all my family was

>already at the house. i was the last one to find out.

>

>8. What was your biggest achievement of the year?

>getting into the class that allows me to travel to cuba this summer

>

>9. What was your biggest failure?

>procrastinating on so many things

>

>10. Did you suffer illness or injury?

>this is the first year i had no sarc related illness. i have been in

>remission for a little over a year with only minor twinges of numbness here

>and there when i dont sleep enough.

>

>11. What was the best thing you bought?

>lunch with my mom

>

>12. Whose behavior merited celebration?

>mine for realizing the need to break up before it got worse

>

>13. Whose behavior made you appalled and depressed?

> my ex, what an immature, insecure ass.

>

>14. Where did most of your money go?

> food shopping and me shopping. or was it books??

>

>15. What did you get really, really, really excited about?

>getting into cuba and also, my dad got me an x box for christmas

>

>16. What song will always remind you of 2003?

> i love you by dru hill

>

>17. Compared to this time last year, are you:

>i. happier or sadder? not really sure. im kind of floating in between

>ii. thinner or fatter? not fatter but definitely not thinner

>iii. richer or poorer? oh so poorer!!!

>

>18. What do you wish you'd done more of?

>sleep and read

>

>19. What do you wish you'd done less of?

>smoke

>

>20. How will you be spending Christmas?

>family family family

>

>21. How will you be spending New Years Eve?

>drinking fine wines and champagne

>

>22. Did you fall in love in 2003?

>no

>

>23. How many one-night stands?

>0

>

>24. What was your favorite TV program?

>i never really get to watch that much tv

>

>25. Do you hate anyone now that you didn't hate this time last year?

>yes. a best friend i once had. five years we were friends. now,their

>name must never be mentioned in my house.

>

>26. What was the best book you read?

>well right now im reading " finding fish " the antwonne fisher story.

>pretty damn good

>

>27. What was your greatest musical discovery?

>christina aguillera's voice is phenomenal. i went to her concert this

>year.

>

>28. What did you want and get?

>staying healthy this year

>

>29. What did you want and not get?

>oooooo, me thinks ill keep this one to meself ( zay u know this one!!)

>

>30. What was your favorite film of this year?

>finding nemo, i laughed a lot and i really like Frida. selma hayek is

>great!!

>

>31. What did you do on your birthday, and how old were you?

>20. i went clubbing the night before and smoked and drank and the next day

>had class. muahahahahahahahaha!!!!

>

>32. What one thing would have made your year immeasurably more satisfying?

>running track again.

>

>33. How would you describe your personal fashion concept in 2003?

>comfort, comfort comfort, ecxept of course for shoes. sometimes they just

>have to be cute!!!

>

>34. What kept you sane?

>im not really sure.......what is sane???

>

>35. Which celebrity/public figure did you fancy the most?

>not really fancy, but, i love that paris hilton. what a waste of plasma.

>

>36. What political issue stirred you the most?

>this current one dealing with afghanistan and the towers blah blah blah.

>many people are just ignorant about the whole thing. i think the media

>has really taken advantage of peoples little little minds.

>

>37. Who did you miss?

>my grandfather definitely

>

>38. Who was the best new person you met?

>this guy named daniel in my tv production class. he is very quiet and

>introverted. but i got to know him and he is such a great person!! now ,

>he is more social and more outgoing. hes a really good friend.

>

>39. Tell us a valuable life lesson you learned in 2003:

>rock always beats scissors

>pixi stix and starbucks frappuccino are not breakfast

wear clean underwear incase of an accident

>40. What song lyrics sum up your year?

> " ....and i dont want the whole world to see me.... cuz i dont think that

>they'd understand.. "

_________________________________________________________________

Working moms: Find helpful tips here on managing kids, home, work — and

yourself. http://special.msn.com/msnbc/workingmom.armx

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