Hi Everyone

[Guest guest]

Elaine, good to have you back again. Hope you had a nice trip. Are you

feeling any better. Let us know.

Love

[Guest guest]

Thanks Lu,

Sorry I'm so late getting back to you, been away for a few days. We went to

Alert Bay and sold some of my jewellery, did okay, just in time to buy some

school supplies. Hope everyone had a good weekend. Take care Elaine.

Re: Hi everyone

In a message dated 08/17/2000 9:49:31 AM Central Daylight Time,

cottage@... writes:

<< We have court coming up in a few weeks

and the whole thing will be settled. will not be going to see her

father again until after the court date and some visitation guidelines are

set. >>

Hi Elaine,

I'm so glad your daughter is back with you. I'm so sorry that you are under

so much stress right now. You need some rest & relaxation.

I will keep you in my prayers as you face the upcoming court dates. Please

take care,

Love ya!

Lu

DISCLAIMER!!

WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED

HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING

ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND

ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE

DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Hi ,

Thanks for your support. I've been feeling better the last few days, except

that the breathing is still difficult. My ribs feel sore and I wheeze a bit.

Doc thinks it's anxiety, but I don't.

Only two more weeks of work until I get to have a big rest, yeah! Hope you

had a nice weekend. Take care,

Elaine

Re: Hi everyone

Elaine, I'm glad that your daughter is home safe and I'm so proud of you for

standing your ground. My granddaughter is only 3yrs old but I know that my

daughter will have the same problems for years to come with her ex. It

began

from day one. You have the will and strength to take charge and I admire

you for that.

I'm sorry that the metho is making you yucky. It did me too in the

beginning. Seems to be better now, only achey and fatigued. My thoughts

are

with you and your family. Hope all works out well for you.

Love

DISCLAIMER!!

WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED

HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING

ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND

ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE

DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Elaine,

Lu is in Orlando with her husband . He had a business trip so she went with

him.She wishes everyone a good week and sends her love. She will return on

Thursday.

Hugs,

Sandy

Re: Hi everyone

>

>

> In a message dated 08/17/2000 9:49:31 AM Central Daylight Time,

> cottage@... writes:

>

> << We have court coming up in a few weeks

> and the whole thing will be settled. will not be going to see her

> father again until after the court date and some visitation guidelines

are

> set. >>

> Hi Elaine,

> I'm so glad your daughter is back with you. I'm so sorry that you are

under

> so much stress right now. You need some rest & relaxation.

> I will keep you in my prayers as you face the upcoming court dates. Please

> take care,

> Love ya!

> Lu

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED

> HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE

TRYING

> ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND

> ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE

> DIFFERENT FOR MANY OF US. THANK YOU

>

>

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

[Guest guest]

Elaine, So sorry that you are feeling well. I find the same thing happens

with me. I take my metho on Sunday night and it use to be that Friday, Sat

and most of Sunday were terrible. I upped my meth to 7 tabs last week and

found that I only felt bad yesterday (Sat) and today. I don't know, go

figure? I usually feel yucky Mon & Tues., but don't hurt so bad. I guess

it all works out in the wash.LOL If you find anything out from your doctor,

let me know. I''m game to try almost anything. I know my doctor did tell me

to drink a lot of water to flush it through the system. (Look who I'm telling

to drink)LOL

Please feel better soon and let us know how you are doing.

Love

[Guest guest]

Hi ,

I felt okay today except for the difficulty breathing, but tonight I feel

awful. I'm so tired and everything hurts. Is this because I'm due to take

the methotrexate tomorrow? If so I don't like it one bit. I go back to see

my doc tomorrow to find out about some tests. Maybe he'll have some answers.

Hope your feeling well. Take care,

Elaine

Re: Hi everyone

Elaine, good to have you back again. Hope you had a nice trip. Are you

feeling any better. Let us know.

Love

DISCLAIMER!!

WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED

HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING

ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND

ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE

DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Elaine, They started me on 3 tabs a week and then I was suppose to increase

one tab a week until I got to 6. I had to go alot slower though. I would

spend a few weeks on 3 tabs and let my body adjust and then increase to 4

etc. It took me 3-4 months to get to 6 tabs a week. My body did adjust to

it. I was still a little tired, I never had any vomiting, just nausea, joint

pain, headache, and fatigue. I am now at 7 and this morning i feel a little

yucky and tired. I think this will pass. At least I hope so.LOL

Please rest and take care of yourself. Our body tells us what we need.

Drink that water.

Love you

[Guest guest]

Hi ,

Maybe I feel crappy because I didn't get as much water as I usually drink

over the weekend. I don't know. I'm taking 7.5mg of metho. Yesterday

evening I was so tired I just fell asleep on the couch. I still feel wiped

this morning and I had a really good sleep. I was only up once with leg

cramps. I'm really looking forward to some time off and hopefully get

better. Do you feel yucky the first few days that you take metho and does

that go away? I hope so. Sometimes you never now what's worse the disease or

the meds. Hope you're feeling okay. Take care,

Elaine

Re: Hi everyone

Elaine, So sorry that you are feeling well. I find the same thing happens

with me. I take my metho on Sunday night and it use to be that Friday, Sat

and most of Sunday were terrible. I upped my meth to 7 tabs last week and

found that I only felt bad yesterday (Sat) and today. I don't know, go

figure? I usually feel yucky Mon & Tues., but don't hurt so bad. I guess

it all works out in the wash.LOL If you find anything out from your doctor,

let me know. I''m game to try almost anything. I know my doctor did tell

me

to drink a lot of water to flush it through the system. (Look who I'm

telling

to drink)LOL

Please feel better soon and let us know how you are doing.

Love

DISCLAIMER!!

WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED

HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING

ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND

ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE

DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Hi Angie, soooo good to hear from you. I miss you and hope you are better. Glad to hear you have the machine where you can move about. Sorry about your mom and will be much in prayer for her and continue to remember you. For all you newcomers, in case you do not know - - Angie is the founder of this group and I, for one, am indebted forever to her, and Roy. They have meant more to me than they will ever know. So have many of you others. Gotta go.

Love you,

Jo

hi everyone

Hi Everyone!!!!Gee I have missed you ll so much. There is a lot going on with me that you oldies know about ab d I won't bore the newcomers with all that crap. Welcome all newcomers sorry I didn't welcome you all sooner but I DO intend to get to know you better. Happy birthday to all those that I have missed. I am sorry for missing it and have no just excuse please accept my apologies. I have noticed we are growing by leaps and bounds here, does that mean we are not so rare anymore? or are doctors becoming smarter (HA!)We are anxiously awaiting the arrival of Heidi and Dom. to our humble home next week, it is finally getting closer hurray!!! My Mom can use a few prayers she has a growth on her vocal cords and it is being removed next Friday while Heidi is here and that will take a day out of our visit, for that I feel terrible but we will find a way to make it up I am sure. Please keep a good thought for her, I would appreciate it. Jerry and are both doing fine. I finally was able to get my machine in a portable mode, so now I can get the hell out of the house a little. It will be all hooked up by this weekend. just wanted to pop in and say Hi and let you all know I am alive. be back as soon as I can. welcome again all the new people, you'll love it here everyone is just terrific and caringlove, hugs and hopeAngieDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Hi Angie, soooo good to hear from you. I miss you and hope you are better. Glad to hear you have the machine where you can move about. Sorry about your mom and will be much in prayer for her and continue to remember you. For all you newcomers, in case you do not know - - Angie is the founder of this group and I, for one, am indebted forever to her, and Roy. They have meant more to me than they will ever know. So have many of you others. Gotta go.

Love you,

Jo

hi everyone

Hi Everyone!!!!Gee I have missed you ll so much. There is a lot going on with me that you oldies know about ab d I won't bore the newcomers with all that crap. Welcome all newcomers sorry I didn't welcome you all sooner but I DO intend to get to know you better. Happy birthday to all those that I have missed. I am sorry for missing it and have no just excuse please accept my apologies. I have noticed we are growing by leaps and bounds here, does that mean we are not so rare anymore? or are doctors becoming smarter (HA!)We are anxiously awaiting the arrival of Heidi and Dom. to our humble home next week, it is finally getting closer hurray!!! My Mom can use a few prayers she has a growth on her vocal cords and it is being removed next Friday while Heidi is here and that will take a day out of our visit, for that I feel terrible but we will find a way to make it up I am sure. Please keep a good thought for her, I would appreciate it. Jerry and are both doing fine. I finally was able to get my machine in a portable mode, so now I can get the hell out of the house a little. It will be all hooked up by this weekend. just wanted to pop in and say Hi and let you all know I am alive. be back as soon as I can. welcome again all the new people, you'll love it here everyone is just terrific and caringlove, hugs and hopeAngieDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Hi Angie,

So good to hear from you! Good news about your machine,

glad you will have some freedom and be able to go out.

I will offer up prayers for your Mom. I hope all goes well for her.

Love Ya,

Sandy

hi everyone

>

>

> Hi Everyone!!!!

> Gee I have missed you ll so much.

> There is a lot going on with me that you oldies know about ab d I won't

bore

> the newcomers with all that crap.

> Welcome all newcomers sorry I didn't welcome you all sooner but I DO

intend

> to get to know you better.

> Happy birthday to all those that I have missed. I am sorry for missing it

and

> have no just excuse please accept my apologies.

> I have noticed we are growing by leaps and bounds here, does that mean we

are

> not so rare anymore? or are doctors becoming smarter (HA!)

> We are anxiously awaiting the arrival of Heidi and Dom. to our humble home

> next week, it is finally getting closer hurray!!!

> My Mom can use a few prayers she has a growth on her vocal cords and it is

> being removed next Friday while Heidi is here and that will take a day out

of

> our visit, for that I feel terrible but we will find a way to make it up I

am

> sure. Please keep a good thought for her, I would appreciate it.

> Jerry and are both doing fine.

> I finally was able to get my machine in a portable mode, so now I can get

the

> hell out of the house a little. It will be all hooked up by this weekend.

> just wanted to pop in and say Hi and let you all know I am alive.

> be back as soon as I can.

> welcome again all the new people, you'll love it here everyone is just

> terrific and caring

> love, hugs and hope

> Angie

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR

BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR

PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND

TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

>

[Guest guest]

Ros,

well, the key thing with food is to avoid fat, and meats usually have a

high quantity of fat. I don't usually have a problem with most

vegetable, except for avocados. they have a ton of fat and even a small

bit just makes my pancreas really unhappy. The gas, well, that he may

get but if so it's a symptom of pancreatitis so anything you feed him

may cause gas. Sorry about that.

I also drink a lot of Ensure, the high protein because it's low in fat,

but high in protein so I can get some of that in my diet and vitamins

and minerals.

Kimber

hominid2@...

California State Chapter Representative

Pancreatitis Asssociation, International

[Guest guest]

Hello Roslyn,

Welcome! I am so sorry to hear of your fiance and his battle.

However, having a wonderful caregiver goes a long way towards

coping. Good luck!

I am sure there were many answers to your diet questions, so I will

leave that one to the experts!

Welcome again!

Be well,

[Guest guest]

Hello Everyone,

I hope everyone is doing well. I have had a really challenging week

or so. This is what my doctors used to call Traumatic Brain

Relapse. I am thinking it is a NS flair. My brain can only handle

one thing at a time and it seems to fixate on that one thing. I

can't seem to get enough energy to do the basics that need to be

done everyday and a lot of days I have trouble remembering what

needs to get done. This episode is a little bit better than the

others in that I have felt strong enough both physically and more

importantly mentally to still have the girls home without

assistance. I think that might be from the prednisone, because I

have gone the longest without an episode since being on it, and this

one was the most mild, although still very frustrating.

What really stinks is the next two weeks are going to be horrible

and I am afraid it will keep me in this bad spot, or even make it

worse! My daughters have a spring concert tonight that I have to

find special outfits for. MY oldest daughter has her first

communion on Saturday with a picnic here at the house afterword. I

have to remember to order the cake, I keep forgetting that. Then on

Tuesday they have some big ceremony at school and then Thursday I

leave for California to cook some burgers for a judge!

I know in my head that I just need to take each day slowly as it

comes and just do what I can every day. But I am still afraid that

I will forget something important or not do something that needed to

be done for anyone, or all of these events!

On top of all that, my roof has several leaks and has ruined one of

the walls in the house so I have to have people around here banging

making all kinds of noise and a mess! The lawn needs to be tended,

and I can't find any neighborhood kids to do it, the house is

getting messier and if it rains the picnic will have to be inside,

then what? I think I broke my finger this week, but I can't rememver

how I did it! It is just a finger, and I am really tired of going

to Drs and there isn't much they can do for a finger, but it does

hurt! I am going to get a splint for it today. HELP!

I used to be so good at this stuff! My friends always commented on

the great parties I had and asked advice on parties they were

having. People always commented on how clean my house was and how

nice my yard looked. I could always make a list and prioritize

everything I needed to do. I hate this more than the physical

limitations. I just moved here a year ago and I invited all the

neighbors on our whole street to come to the party when I was having

a good week! I wanted to make a good impression. Not so likely now!

But the most important thing is My daughter's Communion Ceremony and

that she has everything she needs for that. I bought her a nice

dress, but I was not raised Catholic, is it against the board rules

if I just ask if anyone knows what a little girl needs for her first

communion?

Well, I hope everyone is having a painfree day and can always find

at least one thing to smile about.

Lots of Love,

[Guest guest]

Poor Jodi,

Sounds awful so far. I was afraid you might have a hard

time with the adjustments - that's one reason I haven't gone

traveling since I began SCD. Also 15 hour flights are very

physically taxing. Last time I flew to Israel, which was before

starting SCD, I found the transition quite difficult for my body

and had a terrible time catching up to the correct time, much

worse than ever before. Also, I was afraid some of the

dehydrated food might be harder for you to digest.

Do you know/suspect why the lamb made you ill?

At least the CT scan show significant improvement. Big Yay for you

on that account.

What are the consequences for changing the time of your LDN?

This came up this week on the LDN list, and all they said was

take the meds according to the timezone of the new country

you are traveling to.

Can you get hold of the DL-Phenylalanine, to increase the range

of the endorphins?

I think it's a good plan to stick with the simple food you are eating

and

see how you do - if you can maintain that diet and your daily health

stabilizes then stick it out. If not, consider coming home.

> Israel trip is not going as planned.

> I have what looks like 2 pancreatitis attacks since I have been here.

> I never knew I had pancreatitis.

> First one was so violent I ended up in the ER- vomiting green bile

> full of retching and orange/pale stools.

> Yesterday, I ate a lamb roast which was a nono causing me disasterous

> pain again. Here in Israel there are still house visits by docs so I

> got IV fluids and meds again like I did in the ER at my in-laws house.

> Obviously, immediately everything was blamed on CD- but a CT in the

> hospital as awful as it looked to everyone- my husband and I saw that

> there is -significant- improvement with my CD CT from about 4 years

> ago.

> On the CT they found that I have CD on my appendix. Does anyone know

> what this means?

>

> Another thing is the changing of time taking my LDN seems to have had

> bad consequences- I spoke to my doc in NY about this and she does not

> agree.

>

> Also, I am quite glutened here and there is much cross contamination.

> Bless my in-laws as much as they try illegals get into my food.

> Like there is a corner in the kitchen designated for my stuff/food

> items. My mom-in-law was mixing cake ingredients and flour from the

> mixer got onto my food. I feel this is a problem.

> These kind of events have been happening from day 1. Can this be

> contributing to my current state?

>

> I have lost so much weight here it is not even funny.

> I am so happy I had extra weight..

>

> My husband thinks we should cut our stay short and get home he is just

> worried I may not be strong enough for the flight...

>

> We are still considering this..

>

> My will to live has diminished by this experience. My intention was

> not to become sick as a dog while here.. anyway- sticking to pureed

> chicken soup, apple sauce, steamed zucchinis, home-made pear juice,

> apple juice and green tea.

>

> Jodi

>

>

>

> ------------------------------------

>

>