Re: EDS... Intermittant Mitral valve prolapse and/or Benign heart murmur

[Guest guest]

Jill, do they find this out just by listening to the heart or do they have to

do a certain kind of test??

Love Lana

[Guest guest]

MVP is a common condition that may or may not be significant. It's only

significant if there are symptoms, but most people who have an MVP are not

aware they have one. This is not something that signifies vascular type EDS

at all - a large portion of the non-EDS population have this as well.

When an MVP is described as benign it usually means that the patient is

asymptomatic or that it has no regurgitation.

Jill

EDS... Intermittant Mitral valve prolapse and/or Benign

heart murmur

Hi all,

Hey, is a benign heart murmur or sound the same thing as EDS Mitral valve

prolapse?

I read that Mitral valve prolapse is a consistent manifestation of type IV

Ehlers-Danlos syndrome. Well, throughout my life I have had a murmur that

comes

and goes. It got to the point where I could point to where the doctor could

or

could NOT hear it. Some times they would hear it and freak. But after

examination or tests [no I don't remember what] I would be said to be okay,

that it

was a BENIGN heart murmur.

But, gee :-< ... I now know I am an EDSer. Not to mention I might be a type

IV EDSer. My brother and I both had/have/will have again a murmur as did

EDSer

Mom. Suspected EDSer Pop, well, I never heard anything except for his

complaints about his chronic ulcer, needing pain medicine and about how his

appendectomy surgery wound had ruptured.

So anyone with heart murmurs? Benign or otherwise. How do you know you have

one other than the doctor telling us so? Caro.

[Guest guest]

one thing to note though is the need for antibiotics before dental work and

surgery, a MVP invites a condition known as bacterial endocarditis in the

right environment and bacteria in the bloodstream can quickly descend upon

the heart valve if it's weak...

Jill

[Guest guest]

If it's loud enough it can be detected through the stethoscope, yes. It

should be investigated more thoroughly by an ultrasound of the heart though,

to visualize the leaflets of the mitral valve.

Jill

Jill, do they find this out just by listening to the heart or do they have

to

do a certain kind of test??

[Guest guest]

I too have a heart murmur (a flow murmur) which was found with a

stethescope, upon investigation (echocardiogram) I was told it was

trivial mitral valve regurgitation and increased flow across the

aorta and told it was nothing to worry about and NO need for

antibiotics (that was about 2 years ago) I was sent for another this

year (as I was getting occasional fast beat and palpitations (still

do) and it showed the above + trivial tricuspid valve regurgitation

and still told I do NOT need antibiotics, I am wondering if since 2

years ago the tricuspid regurgitation didn't show , they shouldn't I

say have the antibiotics as a precaution? I was also told I DO NOT

need to have another echo. this bothers me as if this further stuff

showed up in 2 years and I am having occasional mild symptoms, and I

have EDS (HEDS) which I told the cardiologist (I don't think she knew

what it was, although she said she sis, as I had to duck to the

toilet and I saw her FRANTICALLY rummigaing through text books). So I

am thinking I should probably find a NEW Cardiologist to get a 2nd

opinion (both tf the others were done by the same person, one before

I knew I had EDS and one after.

Sharon

HEDS, Canberra, Australia

> Hi all,

>

> Hey, is a benign heart murmur or sound the same thing as EDS Mitral

valve

> prolapse?

>

> I read that Mitral valve prolapse is a consistent manifestation of

type IV

> Ehlers-Danlos syndrome. Well, throughout my life I have had a

murmur that comes

> and goes. It got to the point where I could point to where the

doctor could or

> could NOT hear it. Some times they would hear it and freak. But

after

> examination or tests [no I don't remember what] I would be said to

be okay, that it

> was a BENIGN heart murmur.

>

> But, gee :-< ... I now know I am an EDSer. Not to mention I might

be a type

> IV EDSer. My brother and I both had/have/will have again a murmur

as did EDSer

> Mom. Suspected EDSer Pop, well, I never heard anything except for

his

> complaints about his chronic ulcer, needing pain medicine and about

how his

> appendectomy surgery wound had ruptured.

>

> So anyone with heart murmurs? Benign or otherwise. How do you know

you have

> one other than the doctor telling us so? Caro.

>

>

>

>

>

>

>

>