Re: New and confused... ~~~~

[Guest guest]

, I too wish they had known about this back in the 70's, I've been fighting

it since 72, and what a 'laugh' (NOT) that was!! Actually, IMHO, pain IS a

constant, it's only the level of pain that isn't. I consider a great day to be

anything under a 4, a normal day is around a 5 or 6, (and those are with

narcotic pain meds.) A flare will easily have me at a 9 or 10 constantly, and

none of my meds touch the da--!! pain. The difference is, that we adjust our way

of thinking, and can still manage to pretty much ignore anything under a 6. Most

days I fluctuate between the 5 and 6, when it gets up to 6 I swallow another

oxy.

But, there are also those days where it never gets over a 4, and stays like that

for several days in a row. 'Normals' would describe this as 'nagging pain', and

yet I celebrate those days. We ARE much stronger than 'normals' as far as I'm

concerned.

Peace and Love

Caroline

To everyone who thinks that the pain will be a constant, I can verify

that I have not had a really bad flare in awhile. Doesn't mean I

won't get up tomorrow and be pain free, because I never am. But

there are ways to find support --- here is one of the best places I

know. And now we also know that there are several research studies

on the problem --- would have been nice back in the late 1970's! But

better late than never!!

And to those of you who feel treated like a druggie, I know how that

is, I can feel that way also, try to save the percocet for really

serious pain! Which reminds me I should check with doctor tomorrow

to see if I can get a script and also if she or her assistant will be

in the office Thursday so I can pick it up! Not something I would

want to call my ex-brother in-law and explain why I need the pain

meds while we are back home. He probably does know, but it's just

better to get the script from my own doc!

And , I think you have mentioned an overdose? Well, don't feel

as if you are the only one! I have spent a total of 4 weeks in 2

different hospitals -- first time I swallowed a few too many valium

but the other time was very serious as I took about 80 elavil and got

my stomach pumped. They tell me that one should remember that as

they don't want a person to need that done again, but I have no

memory of that. I have several other memories of that night and also

the days that followed in that rural hospital. Took awhile before

the staff realized I am an educated person and was not trying to get

declared disabled at the time.

But I think one thing many of us share is depression and it's hard to

know which came first --- rather like the chicken and egg situation???

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