Guest guest Posted May 10, 2006 Report Posted May 10, 2006 My deepest sympathies Ruth on the loss of your Mom...I will especially think of you and say a prayer for you both when I visit Mom's grave on Saturday. Life just isn't fair sometimes, but I know my Mom gave me the strength I now possess to get through this journey and remain healthy. I feel for you. Best, Quote
Guest guest Posted May 10, 2006 Report Posted May 10, 2006 My sympathy Ruth for the loss of your Mom during your time of fighting this battle. I didn't know she was ill but I will pray for her and you this Mother's Day. Think of all the good memories you had with her and honor her in being strong for your fight with this dragon. Sharon C SHARON COLEY DIRECTOR OF SALES DOUBLETREE HOTEL LOS ANGELES/ROSEMEAD 888 MONTEBELLO BLVD. ROSEMEAD, CA 91770 Yahoo! Mail goes everywhere you do. Get it on your phone. Quote
Guest guest Posted May 10, 2006 Report Posted May 10, 2006 Ruth I am so sorry to hear about the loss of your mother. May she rest in peace and you find comfort among those who love & care for you. Sending you warm hugs from Ohio. Jackie Quote
Guest guest Posted May 11, 2006 Report Posted May 11, 2006 I am so sorry about the loss of your mother. My prayers are with you and your family. Ren Quote
Guest guest Posted May 11, 2006 Report Posted May 11, 2006 Ruth, I just sent you two articles on chemo brain you can take to your onc. You know this makes me soooooo mad. Wait, some day HE may need chemo and end up with it and then he will have to eat his words! Shame on him. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.comCinDWood Craftshttp://www.cindwoodcrafts.com Quote
Guest guest Posted May 11, 2006 Report Posted May 11, 2006 My sentiments, exactly, nne. Thank you for the articles. I brought up the issue with my onc because dementia runs in the family as well as congestive heart failure. He was recommending AC followed by Arimidex. I told him if I follow the pattern I have 10 maybe 15 good years left and I was not about to risk losing those, between chemo brain and the heart effects of AC. I would rather die of breast cancer than live to 90 having spent 20 years with dementia. Shades of my mother and grandmother. Turns out when he ran a computer model, taking into consideration my cancer's unique qualities, chemo only increased my chances of living the next 10 years, disease free, by 2%, the Arimidex by 17% and a combination of both by 19%. Given family history NO CONTEST. He pushed pretty hard until he ran the model! Ruth > > Ruth, > I just sent you two articles on chemo brain you can take to your onc. You know this makes me soooooo mad. Wait, some day HE may need chemo and end up with it and then he will have to eat his words! Shame on him. > Hugs > nne > Breast Cancer Patients Soul Mates for Life > http://www.geocities.com/chucky5741/breastcancerpatients.html > Check out my other ornaments at > www.geocities.com/chucky5741/bcornament.html > Lots of info and gifts at: > www.cancerclub.com > CinDWood Crafts > http://www.cindwoodcrafts.com > Quote
Guest guest Posted May 31, 2006 Report Posted May 31, 2006 Ruth; I am an Arimidex taker and I blame my weight gain on it and my lack of control in the CANDY!!!!!!!!!!!!!! have a great evening. Ren Quote
Guest guest Posted June 1, 2006 Report Posted June 1, 2006 We keep taking it becauz, that means we have to pay for it and the drug companies get mo money and then the drs. get a kick back for using their drugs. Unfortunatley that is true. But, then on the other hand, at least we have that reassurance that it is always with us. sssssshhhhhhh, a secret that you already know is they do make candy for diabetics.......................... Thanks for the thoughts and prayers, I also keep you in mine. Have a great day today, Ren Quote
Guest guest Posted June 1, 2006 Report Posted June 1, 2006 If it were based on weight, they would give me one a month. If we are talking about how it makes you gain. ren Quote
Guest guest Posted June 1, 2006 Report Posted June 1, 2006 Hi Ruth, The Arimidex doesn't seem to effect my hair. Although I did not have chemo. I have only had bone aches and mood swings so far from this drug. I do notice as soon as I take it before I go to bed I get severe hot flashes but the primrose oil 1000 mg. capsules help. Do you take it at bedtime? I find the least effects during the day if I take it at bedtime. Sharon C SHARON COLEY DIRECTOR OF SALES DOUBLETREE HOTEL LOS ANGELES/ROSEMEAD 888 MONTEBELLO BLVD. ROSEMEAD, CA 91770 __________________________________________________ Quote
Guest guest Posted June 23, 2006 Report Posted June 23, 2006 I haven't had any time over the past week to answer your post about being HER/neu-2++ and yet recently finding out. First, the worst possible thing you could be doing right now is stressing over whether they should have been treating you differently since your pathology was done. When you stress, your body is so busy fighting all the negatives: " Stress produces an acid body and an acid body cannot properly heal. An essential link in our ability to fight cancer, our immune system, is shut down by stress " Her/neu2++, according to my oncologist, is " borderline " HER/neu2 positive (without FISH). A 2+++ is more indicative of HER/neu-2 positive cancer. I was 2.2 (my path was done 6/04 - herceptin study came out 10/05) - I brought it up at my 3 month checkup in December of 2005, because of all the news reports. There was no " sample " available over one year later, I couldn't go 'Backwards' and have it analyzed via FISH. I got over it, moved on and realized I was better off even one year later, than if the study had been done say in 2008. He gave me the option of beginning Herceptin (weekly) at 1 year, 5 months out of Taxol. It is usually administered during or immediately following. I will not dwell on what " could " have been had I been told sooner, and neither should you. If you can't get over what was or wasn't done, I'd suggest you search for a new team. You have to be able to put your life in their hands, and sometimes when something like this occurs, the negatives cloud any chance for " trust " again. Bottom line? You need to be positive to survive...no drug in the world will help to keep you in remission unless you help to keep yourself there. Drop your anger, Ruth. It is not good for you. Focus on living and positives, not what you could have, should have or would have done. Best, Quote
Guest guest Posted June 23, 2006 Report Posted June 23, 2006 Thanks , ingore my last post you have answered my question re Fish. I am grateful that I pushed on finding out my status and as said Her2++ is iffy, but I was able to talk my onc into doing the FISH even though he was reluctent because of the cost. I got news, I am worth the cost! Ruth > > I haven't had any time over the past week to answer your post about being > HER/neu-2++ and yet recently finding out. > > First, the worst possible thing you could be doing right now is stressing > over whether they should have been treating you differently since your pathology > was done. When you stress, your body is so busy fighting all the negatives: > > " Stress produces an acid body and an acid body cannot properly heal. An > essential link in our ability to fight cancer, our immune system, is shut down by > stress " > > Her/neu2++, according to my oncologist, is " borderline " HER/neu2 positive > (without FISH). A 2+++ is more indicative of HER/neu-2 positive cancer. I was > 2.2 (my path was done 6/04 - herceptin study came out 10/05) - I brought it up > at my 3 month checkup in December of 2005, because of all the news reports. > There was no " sample " available over one year later, I couldn't go 'Backwards' > and have it analyzed via FISH. I got over it, moved on and realized I was > better off even one year later, than if the study had been done say in 2008. He > gave me the option of beginning Herceptin (weekly) at 1 year, 5 months out of > Taxol. It is usually administered during or immediately following. > > I will not dwell on what " could " have been had I been told sooner, and > neither should you. If you can't get over what was or wasn't done, I'd suggest you > search for a new team. You have to be able to put your life in their hands, > and sometimes when something like this occurs, the negatives cloud any chance > for " trust " again. Bottom line? You need to be positive to survive...no drug > in the world will help to keep you in remission unless you help to keep > yourself there. Drop your anger, Ruth. It is not good for you. Focus on living > and positives, not what you could have, should have or would have done. > > Best, > > > > Quote
Guest guest Posted June 23, 2006 Report Posted June 23, 2006 It is true we should not dwell on what has happened, (although I am still going to that doctors office, the one who was negligent, and make him eat the path reports), it sure does us harm. But in cases like Ruth's there is a lesson to be learned. We should be on top of our health. Another thing is to let those women who are just being diagnosed know what they have to pay attention to. An histo HER-2 with a +2 (and even a +1, by some studies) needs a FISH confirmation. I was a +2 who turn out negative. Hugs ssist@... wrote: I haven't had any time over the past week to answer your post about being HER/neu-2++ and yet recently finding out. First, the worst possible thing you could be doing right now is stressing over whether they should have been treating you differently since your pathology was done. When you stress, your body is so busy fighting all the negatives: " Stress produces an acid body and an acid body cannot properly heal. An essential link in our ability to fight cancer, our immune system, is shut down by stress " Her/neu2++, according to my oncologist, is " borderline " HER/neu2 positive (without FISH). A 2+++ is more indicative of HER/neu-2 positive cancer. I was 2.2 (my path was done 6/04 - herceptin study came out 10/05) - I brought it up at my 3 month checkup in December of 2005, because of all the news reports. There was no " sample " available over one year later, I couldn't go 'Backwards' and have it analyzed via FISH. I got over it, moved on and realized I was better off even one year later, than if the study had been done say in 2008. He gave me the option of beginning Herceptin (weekly) at 1 year, 5 months out of Taxol. It is usually administered during or immediately following. I will not dwell on what " could " have been had I been told sooner, and neither should you. If you can't get over what was or wasn't done, I'd suggest you search for a new team. You have to be able to put your life in their hands, and sometimes when something like this occurs, the negatives cloud any chance for " trust " again. Bottom line? You need to be positive to survive...no drug in the world will help to keep you in remission unless you help to keep yourself there. Drop your anger, Ruth. It is not good for you. Focus on living and positives, not what you could have, should have or would have done. Best, Quote
Guest guest Posted June 23, 2006 Report Posted June 23, 2006 When I was first dx 11 years ago. I was so angry. You see the bc had been missed in a previous mammogram. I wanted to yell at the radiologist and find out how he could have missed it. I wondered how he could have missed something so just there. I mean my sister who was trained in x-ray could see the tumor by holding the film up to my kitchen window. Anyway while at a support group meeting at the hospital and the leader there told me that I had to let it go. That anger wasn't going to help my treatment at all. After all I couldn't change what had already happened. I'm very happy that I had excellent doctors to help me through it all. Now they check for so many more things than they did back in 95. Gosh taxol was just in trial stage back then. Sharon Pinheiro wrote: It is true we should not dwell on what has happened, (although I am still going to that doctors office, the one who was negligent, and make him eat the path reports), it sure does us harm. But in cases like Ruth's there is a lesson to be learned. We should be on top of our health. Another thing is to let those women who are just being diagnosed know what they have to pay attention to. An histo HER-2 with a +2 (and even a +1, by some studies) needs a FISH confirmation. I was a +2 who turn out negative. Hugs ssist@... wrote: I haven't had any time over the past week to answer your post about being HER/neu-2++ and yet recently finding out. First, the worst possible thing you could be doing right now is stressing over whether they should have been treating you differently since your pathology was done. When you stress, your body is so busy fighting all the negatives: " Stress produces an acid body and an acid body cannot properly heal. An essential link in our ability to fight cancer, our immune system, is shut down by stress " Her/neu2++, according to my oncologist, is " borderline " HER/neu2 positive (without FISH). A 2+++ is more indicative of HER/neu-2 positive cancer. I was 2.2 (my path was done 6/04 - herceptin study came out 10/05) - I brought it up at my 3 month checkup in December of 2005, because of all the news reports. There was no " sample " available over one year later, I couldn't go 'Backwards' and have it analyzed via FISH. I got over it, moved on and realized I was better off even one year later, than if the study had been done say in 2008. He gave me the option of beginning Herceptin (weekly) at 1 year, 5 months out of Taxol. It is usually administered during or immediately following. I will not dwell on what " could " have been had I been told sooner, and neither should you. If you can't get over what was or wasn't done, I'd suggest you search for a new team. You have to be able to put your life in their hands, and sometimes when something like this occurs, the negatives cloud any chance for " trust " again. Bottom line? You need to be positive to survive...no drug in the world will help to keep you in remission unless you help to keep yourself there. Drop your anger, Ruth. It is not good for you. Focus on living and positives, not what you could have, should have or would have done. Best, Quote
Guest guest Posted June 23, 2006 Report Posted June 23, 2006 Oh , I am so glad the FISH came out negative. That is such good news! If nothing else is learned from my experience let those who come after be aware, as you said, that they need to keep on top of things. You can bet, we are more concerned about our health and quality of life, than anyone else, including the doctor. Ruth > I haven't had any time over the past week to answer your post about being > HER/neu-2++ and yet recently finding out. > > First, the worst possible thing you could be doing right now is stressing > over whether they should have been treating you differently since your pathology > was done. When you stress, your body is so busy fighting all the negatives: > > " Stress produces an acid body and an acid body cannot properly heal. An > essential link in our ability to fight cancer, our immune system, is shut down by > stress " > > Her/neu2++, according to my oncologist, is " borderline " HER/neu2 positive > (without FISH). A 2+++ is more indicative of HER/neu-2 positive cancer. I was > 2.2 (my path was done 6/04 - herceptin study came out 10/05) - I brought it up > at my 3 month checkup in December of 2005, because of all the news reports. > There was no " sample " available over one year later, I couldn't go 'Backwards' > and have it analyzed via FISH. I got over it, moved on and realized I was > better off even one year later, than if the study had been done say in 2008. He > gave me the option of beginning Herceptin (weekly) at 1 year, 5 months out of > Taxol. It is usually administered during or immediately following. > > I will not dwell on what " could " have been had I been told sooner, and > neither should you. If you can't get over what was or wasn't done, I'd suggest you > search for a new team. You have to be able to put your life in their hands, > and sometimes when something like this occurs, the negatives cloud any chance > for " trust " again. Bottom line? You need to be positive to survive...no drug > in the world will help to keep you in remission unless you help to keep > yourself there. Drop your anger, Ruth. It is not good for you. Focus on living > and positives, not what you could have, should have or would have done. > > Best, > > > Quote
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