Guest guest Posted December 14, 2004 Report Share Posted December 14, 2004 Thanks for the hugs Rita, I got it , we had not thought about adjusting the dosage, tomorrow we will ask our neph about it, or maybe some solution for this problem,, I remember our neph put him on alternate day pred as he thought it might cause less side effects,??? well I will keep you all posted on it Hope you are feeling better today Hugs, Aruna --- Rita Nucciarone wrote: > Hi Aruna, > > I read the same thing you mentioned about prednisone > causing cateracts. I believe this problem is > related to the meds or the disease or both. As I've > said before, I never had a problem with my eyes > until after diagnosis and well into my prednisone > taking. Even before the redness, I usually get a > sharp jab-like pain in the eye and the light really > bothers me. No need to worry about sunlight now - > not here in the Northwest :-( Please let Manju's > neph know about the problem. > > Also, when I first started with prednisone - I too > took it every other day. The day I did not take it > - I felt absolutely horrible - achy, tired - just > plain miserable. My neph changed the dosage around > and I began taking everyday - that worked out much > better for me. Just a little thought, since Manju > seems to be having some bad days off of prednisone. > Hugs for you and Manju, Rita > > prm wrote: > Hi Rita, > Me too trying to find an answer for this??? > > Manju is developing red eye every alternate day, > i.e., > the day he would not have taken Prednisone. > He is on 100 mg Pred every alternate day, and since > 2-3 weeks we are observing his eyes become red , > looks > as though he is very tired. And he will be too tired > infact the day he is not on pred. I can see those > tiny > blood vessels in his eyes. > Don't know whether there will be any cure for this. > I read else where , that pred leads to cataract, I > am > worried about it. Hope its not so > > Aruna > > > --- Rita Nucciarone wrote: > > > Hi Mark - good question - I too would like to know > > the answer to it. I've been having problems with > my > > eyes beginning about 6 months after my IgAN > > diagnosis. One eye then the other...I developed > > corneal ulcers in both eyes. My eye doctor said > it > > could be because of my imune system and yes > steroids > > can absolutely provoke eye problems. I was on > > prednisone for about 5 months when my first eye > > problem occurred. Rita > > > > mark lynch wrote:I am 45 and > > have had swollen feet/eyelids for about ten years. > I > > was > > diagnosed with IgA only this year and started > taking > > 25 mg Prednisone in > > June, continuing for 3 months and then slowly > > tapering down to 5 mg. > > Proteinuria currently 3.5 g, down from 6; GFR 25%. > > I have had frequent inflammations of the eye, > > usually one but sometimes > > both. I am told that steroids can provoke eye > > infections, but can this also > > be due to the disease? > > > > > > > > To edit your settings for the group, go to our > Yahoo > > Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The > site > > is entirely supported by donations. If you would > > like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2004 Report Share Posted December 15, 2004 Hey Aruna, My neph originally did the same thing with me - by alternating the days I take prednisone - he thought it would have less of an impact - BUT it was worse for me. I dealt much better with smaller doses taken every day rather than a large dose every other day. If this isn't working for Manju, I'm certain his neph will try another approach. Please let us know. many hugs, Rita prm wrote: Thanks for the hugs Rita, I got it , we had not thought about adjusting the dosage, tomorrow we will ask our neph about it, or maybe some solution for this problem,, I remember our neph put him on alternate day pred as he thought it might cause less side effects,??? well I will keep you all posted on it Hope you are feeling better today Hugs, Aruna --- Rita Nucciarone wrote: > Hi Aruna, > > I read the same thing you mentioned about prednisone > causing cateracts. I believe this problem is > related to the meds or the disease or both. As I've > said before, I never had a problem with my eyes > until after diagnosis and well into my prednisone > taking. Even before the redness, I usually get a > sharp jab-like pain in the eye and the light really > bothers me. No need to worry about sunlight now - > not here in the Northwest :-( Please let Manju's > neph know about the problem. > > Also, when I first started with prednisone - I too > took it every other day. The day I did not take it > - I felt absolutely horrible - achy, tired - just > plain miserable. My neph changed the dosage around > and I began taking everyday - that worked out much > better for me. Just a little thought, since Manju > seems to be having some bad days off of prednisone. > Hugs for you and Manju, Rita > > prm wrote: > Hi Rita, > Me too trying to find an answer for this??? > > Manju is developing red eye every alternate day, > i.e., > the day he would not have taken Prednisone. > He is on 100 mg Pred every alternate day, and since > 2-3 weeks we are observing his eyes become red , > looks > as though he is very tired. And he will be too tired > infact the day he is not on pred. I can see those > tiny > blood vessels in his eyes. > Don't know whether there will be any cure for this. > I read else where , that pred leads to cataract, I > am > worried about it. Hope its not so > > Aruna > > > --- Rita Nucciarone wrote: > > > Hi Mark - good question - I too would like to know > > the answer to it. I've been having problems with > my > > eyes beginning about 6 months after my IgAN > > diagnosis. One eye then the other...I developed > > corneal ulcers in both eyes. My eye doctor said > it > > could be because of my imune system and yes > steroids > > can absolutely provoke eye problems. I was on > > prednisone for about 5 months when my first eye > > problem occurred. Rita > > > > mark lynch wrote:I am 45 and > > have had swollen feet/eyelids for about ten years. > I > > was > > diagnosed with IgA only this year and started > taking > > 25 mg Prednisone in > > June, continuing for 3 months and then slowly > > tapering down to 5 mg. > > Proteinuria currently 3.5 g, down from 6; GFR 25%. > > I have had frequent inflammations of the eye, > > usually one but sometimes > > both. I am told that steroids can provoke eye > > infections, but can this also > > be due to the disease? > > > > > > > > To edit your settings for the group, go to our > Yahoo > > Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The > site > > is entirely supported by donations. If you would > > like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2004 Report Share Posted December 15, 2004 Hey Aruna, My neph originally did the same thing with me - by alternating the days I take prednisone - he thought it would have less of an impact - BUT it was worse for me. I dealt much better with smaller doses taken every day rather than a large dose every other day. If this isn't working for Manju, I'm certain his neph will try another approach. Please let us know. many hugs, Rita prm wrote: Thanks for the hugs Rita, I got it , we had not thought about adjusting the dosage, tomorrow we will ask our neph about it, or maybe some solution for this problem,, I remember our neph put him on alternate day pred as he thought it might cause less side effects,??? well I will keep you all posted on it Hope you are feeling better today Hugs, Aruna --- Rita Nucciarone wrote: > Hi Aruna, > > I read the same thing you mentioned about prednisone > causing cateracts. I believe this problem is > related to the meds or the disease or both. As I've > said before, I never had a problem with my eyes > until after diagnosis and well into my prednisone > taking. Even before the redness, I usually get a > sharp jab-like pain in the eye and the light really > bothers me. No need to worry about sunlight now - > not here in the Northwest :-( Please let Manju's > neph know about the problem. > > Also, when I first started with prednisone - I too > took it every other day. The day I did not take it > - I felt absolutely horrible - achy, tired - just > plain miserable. My neph changed the dosage around > and I began taking everyday - that worked out much > better for me. Just a little thought, since Manju > seems to be having some bad days off of prednisone. > Hugs for you and Manju, Rita > > prm wrote: > Hi Rita, > Me too trying to find an answer for this??? > > Manju is developing red eye every alternate day, > i.e., > the day he would not have taken Prednisone. > He is on 100 mg Pred every alternate day, and since > 2-3 weeks we are observing his eyes become red , > looks > as though he is very tired. And he will be too tired > infact the day he is not on pred. I can see those > tiny > blood vessels in his eyes. > Don't know whether there will be any cure for this. > I read else where , that pred leads to cataract, I > am > worried about it. Hope its not so > > Aruna > > > --- Rita Nucciarone wrote: > > > Hi Mark - good question - I too would like to know > > the answer to it. I've been having problems with > my > > eyes beginning about 6 months after my IgAN > > diagnosis. One eye then the other...I developed > > corneal ulcers in both eyes. My eye doctor said > it > > could be because of my imune system and yes > steroids > > can absolutely provoke eye problems. I was on > > prednisone for about 5 months when my first eye > > problem occurred. Rita > > > > mark lynch wrote:I am 45 and > > have had swollen feet/eyelids for about ten years. > I > > was > > diagnosed with IgA only this year and started > taking > > 25 mg Prednisone in > > June, continuing for 3 months and then slowly > > tapering down to 5 mg. > > Proteinuria currently 3.5 g, down from 6; GFR 25%. > > I have had frequent inflammations of the eye, > > usually one but sometimes > > both. I am told that steroids can provoke eye > > infections, but can this also > > be due to the disease? > > > > > > > > To edit your settings for the group, go to our > Yahoo > > Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The > site > > is entirely supported by donations. If you would > > like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2004 Report Share Posted December 15, 2004 Hey Aruna, My neph originally did the same thing with me - by alternating the days I take prednisone - he thought it would have less of an impact - BUT it was worse for me. I dealt much better with smaller doses taken every day rather than a large dose every other day. If this isn't working for Manju, I'm certain his neph will try another approach. Please let us know. many hugs, Rita prm wrote: Thanks for the hugs Rita, I got it , we had not thought about adjusting the dosage, tomorrow we will ask our neph about it, or maybe some solution for this problem,, I remember our neph put him on alternate day pred as he thought it might cause less side effects,??? well I will keep you all posted on it Hope you are feeling better today Hugs, Aruna --- Rita Nucciarone wrote: > Hi Aruna, > > I read the same thing you mentioned about prednisone > causing cateracts. I believe this problem is > related to the meds or the disease or both. As I've > said before, I never had a problem with my eyes > until after diagnosis and well into my prednisone > taking. Even before the redness, I usually get a > sharp jab-like pain in the eye and the light really > bothers me. No need to worry about sunlight now - > not here in the Northwest :-( Please let Manju's > neph know about the problem. > > Also, when I first started with prednisone - I too > took it every other day. The day I did not take it > - I felt absolutely horrible - achy, tired - just > plain miserable. My neph changed the dosage around > and I began taking everyday - that worked out much > better for me. Just a little thought, since Manju > seems to be having some bad days off of prednisone. > Hugs for you and Manju, Rita > > prm wrote: > Hi Rita, > Me too trying to find an answer for this??? > > Manju is developing red eye every alternate day, > i.e., > the day he would not have taken Prednisone. > He is on 100 mg Pred every alternate day, and since > 2-3 weeks we are observing his eyes become red , > looks > as though he is very tired. And he will be too tired > infact the day he is not on pred. I can see those > tiny > blood vessels in his eyes. > Don't know whether there will be any cure for this. > I read else where , that pred leads to cataract, I > am > worried about it. Hope its not so > > Aruna > > > --- Rita Nucciarone wrote: > > > Hi Mark - good question - I too would like to know > > the answer to it. I've been having problems with > my > > eyes beginning about 6 months after my IgAN > > diagnosis. One eye then the other...I developed > > corneal ulcers in both eyes. My eye doctor said > it > > could be because of my imune system and yes > steroids > > can absolutely provoke eye problems. I was on > > prednisone for about 5 months when my first eye > > problem occurred. Rita > > > > mark lynch wrote:I am 45 and > > have had swollen feet/eyelids for about ten years. > I > > was > > diagnosed with IgA only this year and started > taking > > 25 mg Prednisone in > > June, continuing for 3 months and then slowly > > tapering down to 5 mg. > > Proteinuria currently 3.5 g, down from 6; GFR 25%. > > I have had frequent inflammations of the eye, > > usually one but sometimes > > both. I am told that steroids can provoke eye > > infections, but can this also > > be due to the disease? > > > > > > > > To edit your settings for the group, go to our > Yahoo > > Group > > home page: > > http://groups.yahoo.com/group/iga-nephropathy/ > > > > To unsubcribe via email, > > iga-nephropathy-unsubscribe > > Visit our companion website at www.igan.ca. The > site > > is entirely supported by donations. If you would > > like to help, go to: > > http://www.igan.ca/id62.htm > > > > Thank you > > > > > > Quote Link to comment Share on other sites More sharing options...
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