Update

[Guest guest]

Sounds like you are having a little bit of low adrenal problem,

which might be expected since you have increased your dose and are

also getting T3 now. Thyroid increases the breakdown and loss of the

adrenal hormone cortisol from the body and it also increases the

demand on the adrenals as if you were giving them a little speed. T3

in the naurals is way more potent than T4 (synthroid)

These are things that happen to me when I have low adrenal. My face

will turn red as a beet either for no reason or when overheated a

little. Palipitations after dinner are very common, especially since

people often eat their bigger meals then. Digesting food takes a lot

of adrenal horomes and palipitations show up commonly after dinner.

I also get mild hypoglycemia after dinner, or basically, I will feel

hungry even though I know I can't be. I get hot sweats frequently

when I have overdone and taxed my adrenals. Sometimes they can wake

me up every half hour at night or will hit me at mealtimes or for no

reason I can think of. Sometimes my hands will get hot and sweaty.

The sleep problems can also be adrenal. When your adrenals are

overtaxed or depleted from extra thyroid, it causes them to put out

their hormones in spurts. This disrupts your circadian rythem and

prevents you from making sufficient melatonin.

The other thing that happens when adrenal gets low is that thyroid

will build up in the blood. Adrenal horomes are needed to get

thyroid into cells and to help it make energy there. If you do not

have enough adrenal with respect to thyoid, thyroid hormone will

build up in the blood and affect the heart and give symptoms of

thyroid overdose. It will also affect the tests you have done since

they are taking a sample of the blood that has a build of of

thyroid. You might come out with results saying that you are too

high even though you really aren't. Your tissues can be starved for

thyroid and yet you have tons in the blood when there isn't enough

cortisol from the adrenals.

The solution is to either drop down a little on the thyroid for a

few weeks to give your adrenals a rest and chance to rebuild their

stores before increasing again, or take an adrenal glandular like

IsoCort or Nutri+meds for a short while to help your adrenals out

while they recover, or take licorice root tea 4 times a day to help

your body hold on to adrenal hormones longer, or rest more, eat more

and smaller meals, lay down several times a day and reduce stress.

This is not the time to go out for a long walk or to have some big

stresser. It'll make you crash. If your adrenal fatigue is not too

bad, you can probably recover in 4 weeks to 4 months.

If your total thyroid dose is less than 4-1/2 to 5 grains, then you

probably do not have a thyroid overdose. This is how much the

thyroid makes in a day. Whatever you take below that level the

thyroid drops it's own output by that much to bring levels in line.

Tish

[Guest guest]

!! Glad to hear you are doing so well. Looks like you have

found your optimal dose, plus the Delta! Really excited for you. You

are going to slim and trim before long!!

janie

> I have been pretty busy with going to the gym in the morning

before work and

> than when I get home I am exhausted.

> I have been sleeping very well the past 2 week or so. I cannot

tell you how happy I am. I am taking all my Armour in the morning

(at Gracia's suggestion)

> and I am not having a major crash in the afternoon. Actually, my

energy is pretty even. No heart

> palps in a while. I have to say I think the Delta has made all the

difference. I have been on it since July 4. I don't plan on thinking

about going off until at least six months.

> I have lost 4.4 pounds and am aiming at losing 30 more.

[Guest guest]

!! Glad to hear you are doing so well. Looks like you have

found your optimal dose, plus the Delta! Really excited for you. You

are going to slim and trim before long!!

janie

> I have been pretty busy with going to the gym in the morning

before work and

> than when I get home I am exhausted.

> I have been sleeping very well the past 2 week or so. I cannot

tell you how happy I am. I am taking all my Armour in the morning

(at Gracia's suggestion)

> and I am not having a major crash in the afternoon. Actually, my

energy is pretty even. No heart

> palps in a while. I have to say I think the Delta has made all the

difference. I have been on it since July 4. I don't plan on thinking

about going off until at least six months.

> I have lost 4.4 pounds and am aiming at losing 30 more.

[Guest guest]

!! Glad to hear you are doing so well. Looks like you have

found your optimal dose, plus the Delta! Really excited for you. You

are going to slim and trim before long!!

janie

> I have been pretty busy with going to the gym in the morning

before work and

> than when I get home I am exhausted.

> I have been sleeping very well the past 2 week or so. I cannot

tell you how happy I am. I am taking all my Armour in the morning

(at Gracia's suggestion)

> and I am not having a major crash in the afternoon. Actually, my

energy is pretty even. No heart

> palps in a while. I have to say I think the Delta has made all the

difference. I have been on it since July 4. I don't plan on thinking

about going off until at least six months.

> I have lost 4.4 pounds and am aiming at losing 30 more.

[Guest guest]

You have to be careful about which beta blockers to take while on

thyroid meds, some are actually used to releieve hyper symptoms

because they stop the conversion of T4 to T3.

> Well my situation has taken a disappointing turn. The nurse pract,

> Edna, I have been seeing had a fit the other day when I called to

get

> my script filled. I had just gotten my lab results back and things

> had leveled out quite a bit. The last time i had tests done they

had

> gotten worse even tho I was taking thyroid meds( synthroid at the

> time) She had given me 60 mg of natural thyroid to take which I

did

> for about a week. I upped it to 90 for the next week and a half.

I

> started having a lot of trouble with my heart rhythm, so I cut it

> back down to 60mg and was splitting it into 2 doses. I kept feeling

> more and more hyper even tho 4-5 days had gone by since I cut the

> dose back down. The day she had such a fit I thought I was going to

> go into some kind of meltdown. I did feel a little better on the

90

> mg...except for the heart thing. When she renewed my med she would

> only give me the 60 mg X 30 doses, even tho the labs showed I was

> still lacking somewhat at 90. So Now I am sinking fast. I tried to

> talk to her about the adrenal thing, but she is being a real bitch

> about this whole thing. Tha last thing I need is to get involved

in

> a peeing contest with some Witch over what quality my life is going

> to have. I am seriously thinking about going this one on my own.

> But I have to admit the thing with my heart worries me. I already

> take a beta blocker because I have rhythm problems related to

mvp.....

>

> Thanks for listening

> Sharon

[Guest guest]

You have to be careful about which beta blockers to take while on

thyroid meds, some are actually used to releieve hyper symptoms

because they stop the conversion of T4 to T3.

> Well my situation has taken a disappointing turn. The nurse pract,

> Edna, I have been seeing had a fit the other day when I called to

get

> my script filled. I had just gotten my lab results back and things

> had leveled out quite a bit. The last time i had tests done they

had

> gotten worse even tho I was taking thyroid meds( synthroid at the

> time) She had given me 60 mg of natural thyroid to take which I

did

> for about a week. I upped it to 90 for the next week and a half.

I

> started having a lot of trouble with my heart rhythm, so I cut it

> back down to 60mg and was splitting it into 2 doses. I kept feeling

> more and more hyper even tho 4-5 days had gone by since I cut the

> dose back down. The day she had such a fit I thought I was going to

> go into some kind of meltdown. I did feel a little better on the

90

> mg...except for the heart thing. When she renewed my med she would

> only give me the 60 mg X 30 doses, even tho the labs showed I was

> still lacking somewhat at 90. So Now I am sinking fast. I tried to

> talk to her about the adrenal thing, but she is being a real bitch

> about this whole thing. Tha last thing I need is to get involved

in

> a peeing contest with some Witch over what quality my life is going

> to have. I am seriously thinking about going this one on my own.

> But I have to admit the thing with my heart worries me. I already

> take a beta blocker because I have rhythm problems related to

mvp.....

>

> Thanks for listening

> Sharon

[Guest guest]

You have to be careful about which beta blockers to take while on

thyroid meds, some are actually used to releieve hyper symptoms

because they stop the conversion of T4 to T3.

> Well my situation has taken a disappointing turn. The nurse pract,

> Edna, I have been seeing had a fit the other day when I called to

get

> my script filled. I had just gotten my lab results back and things

> had leveled out quite a bit. The last time i had tests done they

had

> gotten worse even tho I was taking thyroid meds( synthroid at the

> time) She had given me 60 mg of natural thyroid to take which I

did

> for about a week. I upped it to 90 for the next week and a half.

I

> started having a lot of trouble with my heart rhythm, so I cut it

> back down to 60mg and was splitting it into 2 doses. I kept feeling

> more and more hyper even tho 4-5 days had gone by since I cut the

> dose back down. The day she had such a fit I thought I was going to

> go into some kind of meltdown. I did feel a little better on the

90

> mg...except for the heart thing. When she renewed my med she would

> only give me the 60 mg X 30 doses, even tho the labs showed I was

> still lacking somewhat at 90. So Now I am sinking fast. I tried to

> talk to her about the adrenal thing, but she is being a real bitch

> about this whole thing. Tha last thing I need is to get involved

in

> a peeing contest with some Witch over what quality my life is going

> to have. I am seriously thinking about going this one on my own.

> But I have to admit the thing with my heart worries me. I already

> take a beta blocker because I have rhythm problems related to

mvp.....

>

> Thanks for listening

> Sharon

[Guest guest]

>I upped it to 90 for the next week and a half. I started having a

>lot of trouble with my heart rhythm, so I cut it back down to 60mg

>and was splitting it into 2 doses.

Sharon, I have MVP, and I had to start low and raise in small doses

because of it. With each raise, I always had a slight increase in

palps. But they subsided within the week. Now, I have none.

Janie

[Guest guest]

It's low adrenal that is racing your heart - been there done that.

You can stop the thryoid meds all together for a day to get the

blood levels down quickly so your heart slows down. Then start over

again only more slowly. Sounds like you really need adrenal support.

When you are really hypothyroid for some time the adrenals have

become so weak that they are hardly putting anything out. The body

is compensating by slowing it;s breakdown and thus keeping more in

the blood. The moment you take thyroid, especially one with a little

T3, adrenal suddenly gets eliminated from the body at the normal

rate and the adrenals themselves get speeded up and quickly loose

any stores they might have. The result it that tiny amounts of

thyroid can really deplete hydrocortisone down. Then you get

palpitations because thyroid, especially T3 builds up in the blood

and affects the heart because it has to pump all this high thyroid

blood. Thyroid can't get into tissues without enough adrenal. In

these cases, you must go very slow raising thryoid. Or add adrenal

support. Why not get yourself some Licorice root tea or order

IsoCort so you can take a little higher dose of thyoid.

I had to start at 1/8 of a grain fo Armour and even that was too

much for me. Then I was given adrenal support by my new doc and was

able to go up to 1/4 grain after two weeks. But, it has taken me

almost 2 years to get up to 3-1/2 to 4 grains, because I am so

sensitive to it from being hypo for too long. Dr. Peatfield and

others have written that those who have been hypo too long take a

very long time to get thyroid doses up to where they need them.

Tish

[Guest guest]

Sharon!

Those labs reflected NEITHER the 60 mg dose or the 90 mg dose, because

neither one was taken for several wks to reflect a true picture of either

one of them. You switched doses way too fast to get the real lab picture

here. I'm for self treating, all in all, but this must be done slowly,

staying on one dose, once you get to around about the 60 mg (1 grain mark)

mark, for about 6 to 8 wks. As some people start out on about 30 mgs, they

would want to bring it from that to around the one grain a little faster,

even though they may feel more hypo, in the beginning, but would not be

testing for a full picture until around 6 wks. I don't like the testing

thing that so many doctors still do at around the 3 wk mark, with new

patients, because it's like so-what, it doesn't give a full picture. The T4

has not come into " full bloom " until the 6 to 8 week mark, period. This was

one thing that I did wrong, going from 90 to 120 and then on up to 180 mgs

so fast, because I did not understand this, at that time, either. What

exactly is the doc ticked about, the fact that you increased it yourself, or

were the test results off? Did I miss another post on this?

update

>

> Well my situation has taken a disappointing turn. The nurse pract,

> Edna, I have been seeing had a fit the other day when I called to get

> my script filled. I had just gotten my lab results back and things

> had leveled out quite a bit. The last time i had tests done they had

> gotten worse even tho I was taking thyroid meds( synthroid at the

> time) She had given me 60 mg of natural thyroid to take which I did

> for about a week. I upped it to 90 for the next week and a half. I

> started having a lot of trouble with my heart rhythm, so I cut it

> back down to 60mg and was splitting it into 2 doses. I kept feeling

> more and more hyper even tho 4-5 days had gone by since I cut the

> dose back down. The day she had such a fit I thought I was going to

> go into some kind of meltdown. I did feel a little better on the 90

> mg...except for the heart thing. When she renewed my med she would

> only give me the 60 mg X 30 doses, even tho the labs showed I was

> still lacking somewhat at 90. So Now I am sinking fast. I tried to

> talk to her about the adrenal thing, but she is being a real bitch

> about this whole thing. Tha last thing I need is to get involved in

> a peeing contest with some Witch over what quality my life is going

> to have. I am seriously thinking about going this one on my own.

> But I have to admit the thing with my heart worries me. I already

> take a beta blocker because I have rhythm problems related to mvp.....

>

> Thanks for listening

> Sharon

[Guest guest]

Sharon!

Those labs reflected NEITHER the 60 mg dose or the 90 mg dose, because

neither one was taken for several wks to reflect a true picture of either

one of them. You switched doses way too fast to get the real lab picture

here. I'm for self treating, all in all, but this must be done slowly,

staying on one dose, once you get to around about the 60 mg (1 grain mark)

mark, for about 6 to 8 wks. As some people start out on about 30 mgs, they

would want to bring it from that to around the one grain a little faster,

even though they may feel more hypo, in the beginning, but would not be

testing for a full picture until around 6 wks. I don't like the testing

thing that so many doctors still do at around the 3 wk mark, with new

patients, because it's like so-what, it doesn't give a full picture. The T4

has not come into " full bloom " until the 6 to 8 week mark, period. This was

one thing that I did wrong, going from 90 to 120 and then on up to 180 mgs

so fast, because I did not understand this, at that time, either. What

exactly is the doc ticked about, the fact that you increased it yourself, or

were the test results off? Did I miss another post on this?

update

>

> Well my situation has taken a disappointing turn. The nurse pract,

> Edna, I have been seeing had a fit the other day when I called to get

> my script filled. I had just gotten my lab results back and things

> had leveled out quite a bit. The last time i had tests done they had

> gotten worse even tho I was taking thyroid meds( synthroid at the

> time) She had given me 60 mg of natural thyroid to take which I did

> for about a week. I upped it to 90 for the next week and a half. I

> started having a lot of trouble with my heart rhythm, so I cut it

> back down to 60mg and was splitting it into 2 doses. I kept feeling

> more and more hyper even tho 4-5 days had gone by since I cut the

> dose back down. The day she had such a fit I thought I was going to

> go into some kind of meltdown. I did feel a little better on the 90

> mg...except for the heart thing. When she renewed my med she would

> only give me the 60 mg X 30 doses, even tho the labs showed I was

> still lacking somewhat at 90. So Now I am sinking fast. I tried to

> talk to her about the adrenal thing, but she is being a real bitch

> about this whole thing. Tha last thing I need is to get involved in

> a peeing contest with some Witch over what quality my life is going

> to have. I am seriously thinking about going this one on my own.

> But I have to admit the thing with my heart worries me. I already

> take a beta blocker because I have rhythm problems related to mvp.....

>

> Thanks for listening

> Sharon

[Guest guest]

Hi, ,

That's great! I hope you continue to do well! Thirty minutes! I can't

even imagine!

in Va.

Hi Everyone

I have been pretty busy with going to the gym in the morning before work

and

than when I get home I am exhausted.

I have been sleeping very well the past 2 week or so. I cannot tell you

how

happy I am. I am taking all my Armour in the morning (at Gracia's

suggestion)

and I am not having a

major crash in the afternoon. Actually, my energy is pretty even. No

heart

palps

in a while.

I am almost afraid to say I am doing so well because that's when the

shit

hits the fan for me.

I am at the gym four mornings per week. I do the recumbent bike for 30

minutes on Level Two in the fat burning range. That is a friggin

miracle. I have to

say I think the Delta has made all the difference. I have been on it

since

July 4. I don't plan on thinking about going off until at least six

months.

I have lost 4.4 pounds and am aiming at losing 30 more.

I hope the rest of you are all doing okay and making progress in our

quest

for wellness.

For today,

[Guest guest]

Hi, Sharon. I have MVP, too, and have had it my whole life. For the

most part it's a pretty benign condition (as you might already know),

but when/if it does start causing problems, then it's definitely

worth sitting up and taking attention.

That nurse is JUST a nurse, and NOT a doctor, and maybe she needs to

be reminded of that. It's YOUR life, YOUR body, and YOUR decision..

right, wrong, or indifferent.

There's nothing that ticks me off more than a nurse with a too-high

opinion of his/herself!

Hope you get this worked out. Can you get another nurse and get rid

of this one??

Ella

I already

> take a beta blocker because I have rhythm problems related to

mvp.....

>

> Thanks for listening

> Sharon

[Guest guest]

Kathleen, sorry to hear you were not helped by the Tikosyn. Starting the

drug, as you know, is such a big production (hospital admission, drug education,

patient resources consultations, all the monitors and hullabaloo) -- it's not

like you just run down to the pharmacy, pick up a bottle of pills and take

some. I mean, you can't help but expect some results. OK, so for some of us

maybe it won't work, and we have to move on to the next logical step. I see my

EP on Monday and will let you know what he says. If I remember correctly, you

are thinking of having your ablation done locally. Have you scheduled it?

Where are you in MS? I hope away from the coast. Be safe. Sandy

> Sandy, I am an afibber who was not helped by Tikosyn. My breakthrough

> episodes are like yours, lasting up to 36 hours or so. I am curious to hear

> what your EP says, too. My EP told me that I am a candidate for ablation.

> --

> Kathleen Stept (Dofetilide 250mcg bid, Diltiazem 120 mg, Coumadin 5mg, baby

> aspirin), , Mississippi

>

[Guest guest]

In a message dated 9/15/2004 8:58:06 AM Pacific Daylight Time,

RaichelRidge@... writes:

> This episode lasted ~4 hours (shorter than normal). I see

> the EP on Monday. I am curious to know what he will say, now that it's

> pretty

> clear the Tikosyn is not going to keep me out of afib and I am on the max

> dose.

Sandy,

I'm so sorry to hear about all the trouble. However, I see a glimmer of hope

in that statement " this episode lasted four hours, shorter than normal. " I

realize that your situation is quite different from mine, but shorter episodes

were, for me, the precursor of almost no afib. It seems to me that the fact

that your episodes are shortening might be a good sign as it was for me. Since

I gave up dairy, my heart just doesn't seem to want to stay in afib very

long. Three weeks ago I had two short afib episodes, probably as an aftermath

of

my injuries from a fall, and thought that this was the beginning of the end of

my afib freedom. However, I have had no afib since. Things are completely

back to normal. I guess I don't have to tell you how unpredictable afib is,

but it is that very unpredictability that can be a source of hope for us. I

have found repeatedly that an apparent worsening in afib was not a sign that my

afib would continue to worsen or to become permanent. We just can't predict

what will happen, but shorter episodes have always been a good sign for me.

Of course, your doctor will and should have the final say on this, but I do

hope you don't have to give up on Dofetilide. It has helped so many, and it

may help you yet.

What about taking a beta blocker along with the Dofetilide to control that

160 rate? I think I have read of others doing that. I do hope things improve

for you.

in sinus in Seattle

[Guest guest]

Sandy, I am an afibber who was not helped by Tikosyn. My breakthrough

episodes are like yours, lasting up to 36 hours or so. I am curious to hear

what your EP says, too. My EP told me that I am a candidate for ablation.

--

Kathleen Stept (Dofetilide 250mcg bid, Diltiazem 120 mg, Coumadin 5mg, baby

aspirin), , Mississippi

> Had another breakthrough episode during the night. Was on my way to the

> hospital for an EKG (according to the EP's instructions) but converted on the

> way,

> so turned around and came back home to get some sleep. My husband, who was

> driving me, had arranged to take the morning off, and one minute later (when I

> converted) called to cancel the morning off. He is definitely feeling the

> frustration of this. Fortunately I have nothing pressing at the office today,

> so

> I can stay home. This episode lasted ~4 hours (shorter than normal). I see

> the EP on Monday. I am curious to know what he will say, now that it's pretty

> clear the Tikosyn is not going to keep me out of afib and I am on the max

> dose. Sandy, 57, North Carolina, Tikosyn since Aug. 27 with 3 breakthrough

> episodes (2 minutes, 9 hours, 4 hours).

>

>

>

[Guest guest]

Sandy

Glad to hear you are home . The last two times I had to wake my wife

out of a deep sleep the last one at 3AM thankfully she was off the

next day but she didn't get the things she wanted done because she

was so tired.

Being new to this I worry its going to get worse so I do need to

maybe get a new doctor and look to options if it does get worse.

Hope you got some sleep

Pete NY

> Had another breakthrough episode during the night. Was on my way

to the

> hospital for an EKG (according to the EP's instructions) but

converted on the way,

> so turned around and came back home to get some sleep. My husband,

who was

> driving me, had arranged to take the morning off, and one minute

later (when I

> converted) called to cancel the morning off. He is definitely

feeling the

> frustration of this. Fortunately I have nothing pressing at the

office today, so

> I can stay home. This episode lasted ~4 hours (shorter than

normal). I see

> the EP on Monday. I am curious to know what he will say, now that

it's pretty

> clear the Tikosyn is not going to keep me out of afib and I am on

the max

> dose. Sandy, 57, North Carolina, Tikosyn since Aug. 27 with 3

breakthrough

> episodes (2 minutes, 9 hours, 4 hours).

>

>

>

[Guest guest]

Hi Sandy! You have a good memory! Yes, I am planning to have the ablation

done in . They won¹t schedule it until my INT level has been in

range for 4 consecutive weeks. For some reason, a couple of weeks ago, my

level dropped for no apparent reason after I had been in range for three

months! Had to start the count over. Who knows, maybe my afib will go away

before have the surgery. I can dream, can¹t I ?! I live in , so I

am safely away from the Coast. Thank you for thinking about me!

--

Kathleen Stept (Dofetilide 250mcg bid, Diltiazem 120 mg, Coumadin 5mg, baby

aspirin), , Mississippi

> I see my EP on Monday and will let you know what he says. If I remember

> correctly, you are thinking of having your ablation done locally. Have you

> scheduled it? Where are you in MS? I hope away from the coast. Be safe.

> Sandy

>

>

>

>> > Sandy, I am an afibber who was not helped by Tikosyn. My breakthrough

>> > episodes are like yours, lasting up to 36 hours or so. I am curious to

>> hear

>> > what your EP says, too. My EP told me that I am a candidate for ablation.

>> > --

>> > Kathleen Stept (Dofetilide 250mcg bid, Diltiazem 120 mg, Coumadin 5mg, baby

>> > aspirin), , Mississippi

>> >

>

>

[Guest guest]

Hi Sandy! You have a good memory! Yes, I am planning to have the ablation

done in . They won¹t schedule it until my INT level has been in

range for 4 consecutive weeks. For some reason, a couple of weeks ago, my

level dropped for no apparent reason after I had been in range for three

months! Had to start the count over. Who knows, maybe my afib will go away

before have the surgery. I can dream, can¹t I ?! I live in , so I

am safely away from the Coast. Thank you for thinking about me!

--

Kathleen Stept (Dofetilide 250mcg bid, Diltiazem 120 mg, Coumadin 5mg, baby

aspirin), , Mississippi

> I see my EP on Monday and will let you know what he says. If I remember

> correctly, you are thinking of having your ablation done locally. Have you

> scheduled it? Where are you in MS? I hope away from the coast. Be safe.

> Sandy

>

>

>

>> > Sandy, I am an afibber who was not helped by Tikosyn. My breakthrough

>> > episodes are like yours, lasting up to 36 hours or so. I am curious to

>> hear

>> > what your EP says, too. My EP told me that I am a candidate for ablation.

>> > --

>> > Kathleen Stept (Dofetilide 250mcg bid, Diltiazem 120 mg, Coumadin 5mg, baby

>> > aspirin), , Mississippi

>> >

>

>

[Guest guest]

Tami,

I wish you would have waited at least 6 weeks before trying to

do any of the things you did.

The reason is b/c that 1-2 weeks is just an average time to see

if it's going to work. Nerves can take a good while to heal.

The same principal applies to laparoscopy. Hun, you just had

major surgery so you need to take it easy still. That's why you

are back up to the number of pills you are on and having the

other problems.

Nerves take lots of time to heal so you need to keep on resting,

and not just for one or two days.

Pls wait another 6 weeks or so if you can to see if the nerves

heal and show that this procedure is successful.

Kristy

__________________________________________________

[Guest guest]

Hi Tami, Please try and take it easy. I know its hard - on the less painful days I run around like a chicken w/o its head doing all sorts of chores but then I later pay for it. You are in my prayers. I have so much faith that we both will get out of this Hell. Some day - hopefully soon. Love, Sandi

See the all-new, redesigned Yahoo.com. Check it out.

[Guest guest]

I am so sorry you are in pain again. Maybe you did overdue do it a little when you pain free , I would have too. What a great feeling! YIPEE How can you get it back is the $100,000,000 Sue

[Norton AntiSpam] Update

Hello Ladies,Well it's 2 weeks wens. that was the date they gave me, if I didnt respond by then than it didn't work. After 1 week's time I noticed a little differance, which ment alot to me. I went from 8 pain pills (yuck) a day to 6, I was able to go 13 hours for each dose (3 in the a.m and 3 in the p.m) I was having easier bowel movements b/c of less pain meds. and I was also able to urinate with out stalling or having to push or turn on cold water. I had full active days ( cutting the grass, running arons, cleaning house, walking the dogs ect...) with out pain most of the time, and when I did it was very minimual.Since sat. that has all changed. I went back up to 8. Im back to the same bowel and urine problems b/c the amount of pain meds. im on. Im not making it the 12 hours I have to wait to take my second dose. Im back to severe suffering the 2-3 hours before im able to take my second dose. Im right back to where I was. I dont understand? When you cut a nerve it shouldnt work 1 week and not the next? It's more permanant than 2 weeks. I know I got used to being more active and way over did it. I took the kids school shopping fri and sat. to the mail. Among other things. I ran from morning till night. I thought maybe I did over do it and just needed to rest. So I did sun. but no change. Im back to having severe back pain, lower abdomen, right leg and oh yeah the suppositories arnt working. My vulva and vaginal entrance are back to severe burning. I quit taking the suppositories for 1 week to see if I could make it with out them, but by the end of 5 days it slowly worked it's way back to where it was before. I thought no problem I'll just go back on them. Well Ive been on them 5 days and nothing, no relief. When I first took the atropin/biotin/ketcozole suppositories I got relief the first hour. So I quit using them to see if I had an infection. Bingo I must have an infection. I have a terrible odor and it smells like fish ewww. No itching which leads me to believe it's not the glabrata. I douched b/c there has been alot of talk about douching with benaditin ( I spelt it wrong) or vinger. I cant find benadin so I got the viniger and I did get relief. So im leaning more towards vaginitis. It sucks though b/c you have to go 5 days with out having anything in the vagina so the culters will come back accurate. I make it to day 2 and I end up sticking in estrogen or something b/c I cant take the burn. I dont know how im gonna make it 5 days and go through a vaginal exam. Well ladies if something doesnt give im gonna look back into the SpinalCord Stimulator. I cant live on this amount of pain meds.

[Guest guest]

i highly recommend cymbalta to anyone who hasn't tried it. i was on neurontin for a couple of years and it helped but i noticed a dramatic difference within a few weeks of starting the cymbalta. i am on 30 mg, 2x per day.

update

I had the surgery in October 2005.Here is how it helped. It removed most of the skin that hadultra-sensitive nerve endings. So I can put chemicals such as Estraceon the skin now, whereas before it was out of the question.I can *kind of* have sex. The muscle is in a permanent spasm. If itgets stretched it hurts and gives me a pain flareup. I can use a vibrator that is 1 inch in diameter comfortably. (in factit is very pleasant) However my partner's penis is about twice asthick as that. I have not succeeded in getting the muscle to stretchbig enough to have sex comfortably with him.==================================================================I still have the neuropathy pain. It comes and goes. I take 150 mg ofeffexor, the Extended Release kind, and 3000 mg of Neurontin.======================================================================I know if I could get that muscle into condition, I could have moresex. I stretch it and vibrate it every night. It doesn't seem to beresponding.

[Guest guest]

i highly recommend cymbalta to anyone who hasn't tried it. i was on neurontin for a couple of years and it helped but i noticed a dramatic difference within a few weeks of starting the cymbalta. i am on 30 mg, 2x per day.

update

I had the surgery in October 2005.Here is how it helped. It removed most of the skin that hadultra-sensitive nerve endings. So I can put chemicals such as Estraceon the skin now, whereas before it was out of the question.I can *kind of* have sex. The muscle is in a permanent spasm. If itgets stretched it hurts and gives me a pain flareup. I can use a vibrator that is 1 inch in diameter comfortably. (in factit is very pleasant) However my partner's penis is about twice asthick as that. I have not succeeded in getting the muscle to stretchbig enough to have sex comfortably with him.==================================================================I still have the neuropathy pain. It comes and goes. I take 150 mg ofeffexor, the Extended Release kind, and 3000 mg of Neurontin.======================================================================I know if I could get that muscle into condition, I could have moresex. I stretch it and vibrate it every night. It doesn't seem to beresponding.

[Guest guest]

i highly recommend cymbalta to anyone who hasn't tried it. i was on neurontin for a couple of years and it helped but i noticed a dramatic difference within a few weeks of starting the cymbalta. i am on 30 mg, 2x per day.

update

I had the surgery in October 2005.Here is how it helped. It removed most of the skin that hadultra-sensitive nerve endings. So I can put chemicals such as Estraceon the skin now, whereas before it was out of the question.I can *kind of* have sex. The muscle is in a permanent spasm. If itgets stretched it hurts and gives me a pain flareup. I can use a vibrator that is 1 inch in diameter comfortably. (in factit is very pleasant) However my partner's penis is about twice asthick as that. I have not succeeded in getting the muscle to stretchbig enough to have sex comfortably with him.==================================================================I still have the neuropathy pain. It comes and goes. I take 150 mg ofeffexor, the Extended Release kind, and 3000 mg of Neurontin.======================================================================I know if I could get that muscle into condition, I could have moresex. I stretch it and vibrate it every night. It doesn't seem to beresponding.