hello, i'm judy,new to the group, Warm Wecome Judy ! ! !

[Guest guest]

Judy,

Sorry for late welcome but I've been in a severe flare for some time now.

Lyrica has been amiracle for me but has not ended my pain. Lyrica isn't for

everyone but has worked for 5 mos. for me now. I take 300mgs. per day

and I would rather not be on such a high dose but my current PCP will NOT

give me anything for pain. I wish YOU the best of luck and I HOPE YOU

find the Love,encouragement and support I have found in the 9 mo. I've been

a member.

GOD Bless YOU Judy ! ! ! . . .

...................................................................

S.E. Ark.

To: Fibromyalgia_Support_Group@...:

j_dare2dream@...: Tue, 18 Dec 2007 01:14:08 +0000Subject:

hello, i'm judy and new to the group

Where should I start, I have been on a long journey that probably started in

1995 after a miscarriage. I hemmoraged alot and did not recover quickly. Slept

all the time, very puffy, several mo's my fp diagnosed me with hypothyroidism.

As time passed I wasn't able to get to sleep at night til 3 or 4 in the morning.

My legs would drive me nuts with the urge to move along with pain. My fp then

diagnosed me with restless leg syndrome. Prescribed requip. It helped the

restlessness for a while, did nothing for the pain. My fp then sent me to a

neurolagist. He tripled my requip dosage. By this time the pain is all over.

Espescially bad in the mornings, change of weather, after over doing it, etc. My

neurolagist then sends me to a rhymatoligist. He rules out lyme's, lupus,

rhymatial arthritis, etc. and diagnosed me with polymyalgia. The treatment for

poly is steriods (predinisone) I think this is a nasty drug!! Poly is suppose to

go away within a year or two. I'm still on predinisone, ever so slowly tapering

off. By March 1 I should be off. I recently, switched to a new rhymatoligist.

After doing my own research, I felt my symtoms pointed more to fibro and not

poly. My old prior doc could not get that word out of his mouth, that would have

meant he misdiagnosed me. After the new doc did his own lab testing and the

tender point test, I FINALLY heard him refer to fibromyagia. Sorry for the long

background, but it has been a progressing problem going back to 1995. My new doc

recommended starting lyrica. I'm alittle skeptical with one of the side effects

being weight gain. The prednisone has made me gain tons of weight. Any insight

on giving this med a try would be greatly appreciated.I'm happy to have found

this group to be able to talk to people who understand. My family is not very

supportive, to them I look fine. My next appointment is to get a tatoo on my

forhead that says, " I HURT " Thank you!

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