Re: Questions regarding loss of ability to form words and ...

[Guest guest]

Everyone,

Tracie, you mentioned about what Joan may have had is a T.I.A. that is nickname of a mini-

stroke in your last e-mail. I may have mentioned about this before what happened to me back in March of 2002. I suspected that I had one of these but just lasted for only a few minutes though. I was reaching for my telephone on counter in the kitchen and I didn't have compen-

sion of the direction of my feet where I was standing at the time. A couple of minutes later when I was getting something out of my refridgerator I was talking with garbled speech. These symptoms were going on only for about 5 to 10 minutes at the most and then disapeared. It hasn't happen since then at all. I told the V.A. doctors' about this after this happen. When I had a MRI on my head in the spring of 2003 I did forgot to tell the radiologist doctor about this earlier espode of this though.

Some have said awhile back they were amenic for whatever reason. I don't remember now what or who said this happen to them. Recently I sent a e-mail out the situation that I very well be facing at some point in whenever in the future medically that is. If I develope a bleeding ulcer on it's own or because an result of taking Predinsone or any like type of a drug that I would become amenic because the lost of blood.

(1) Whoever was amenic, was this because of taking Predinsone or any like type of drugs?

(2) If this was because of taking Predinsone, did you had to stop taking this drug imediatly and not be "weened" gradually like it is supposed to be done this way?

What I had written before is that if I was put on this Predinsone or something like it, I just feel I would develope a bleeding ulcer and any doctors would tell me that I would have to stop taking Predinsone right away. I'am very surprise this HASN'T happened specially over the past 10 years. Lately, this ulcer symptoms has gotten worse and I have stopped taking my Salasate medcine. I can't handle the anti-inflammatary nature of this medcine on my stomach now. The pain that this medcine is for relieving is now bad now anyway. This might very well be because of the colder weather that is going on in Michigan now.

Joan and Tracie, you've both mentioned within this past month in your e-mails that I should probility should start taking a drug like Predinsone ASAP. Taking a drug like this for me is going to cause more problems than what it is to help in. I may never elect to take this and saying that is nothing to do with those depressed feelings I had over the past months. Why, I say that? It is because of the nature of what has happen in the past and what is going on now with my stomach. I'am afraid this medcally part of me very well will "do me in" before Sarcoidosis will. You may think, ", you're just having anxeity". Well I have a report about all the digestive tract, this ani't going to be good.

Has anyone heard or read this doctor of the name of Dr. Donaque (I think I have his name mis-

pell) that answers peoples' medical questions in the newspapers? I don't have the article that he had written recently with me. Perhaps next time I write, I'll state what he had written about taking anti-inflammatary drugs and stomach ulcers. I think y'all would understand this better what I going through now and taking a drug such as ibrufroen and worst Predinsone is going to affect my stomach. Joan, if you were told when you was taking this Predinsone that you had to stop taking this RIGHT AWAY because of some entirely different medical condition unrelated to Sarcoidosis regardless of "rebound effects" that may occur going off this Predinsone abruptly, would you? You say, "I'am screwed" medically that is. Well see that is the snernio I very facing sometime in the future. All said and done, compare what I've I read what , Rose, Ester, Tracie, Gregg, and yourself Joan have described what y"all have experience or doing now presently, each one of you would

say "I take you're symptoms in a heartbeat". I very well maybe years away to having the medical problems everyone else is going through now.

About spring of 2002 there was an special on our local Public Broadcasting Station in the Grand Rapids, Michigan area about Multiple Sclerous. I remember what was said in the pro-

gram that colder weather climate suppresses the pain, symptoms with the folks with this dis-

ease. It is coincidentally the last two winters and now already going into this winter that my pain in my bones, muscles, and perherial neuropathy has decrease. I can't say this for a fact, but I believe that Sarcoidosis like Multiple Sclerous is reacting the same when it comes to being around colder weather. I can't speak for each of everyone else, but to some degree everything that has happen in my life is happening in cycles. I'am not feeling downright depressed that wish I would die like I did back in late summer and early fall. My Sarcoidosis symptoms overall is better now and this very well like I just said that the colder weather is sup-

pressing the pain. Other than the constant ringing in my ears which is probility tinistis (mispell?), I'am better presently than the heat of this past summer.

QUESTIONS: Has anyone who has had this tinistis cause by sarcoid lesions in the inner ear?

Also if this was the case did you have headaches caused by this?

Yes this stuff is going on perhaps in cycles. The symptoms of this nagging pain of these ulcer type is worst now.

Bye,

tiodaat@... wrote:

have any of you had these types of vision/speech problems?Joan,It sounds like you may have had a "Transient Ischemic Attack"--or slight stroke. Unfortunately, they are a part of NS. I know I wrote about TIA's and strokes previously-- but when something like that happens--get to teh ER immediately. TIA's are "mini-strokes" or precursors to a full blown stroke. Remember, with a stroke, TIA, or heart-attack-- the 1st hour is called the "Golden Hour." If you get to an ER quickly, they can administer a "clot busting" medication that is excellant at

breaking up a blood clot and keeps you from having permanent damage- paralysis, loss of speech, etc. ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database