Re: Digest Number 2395((JOANN))

[Guest guest]

Jo ann, i have da same probs wit my speech and jaw. for awhile now. its RSD. i dont bother wit tests or anything, its just common sense ya know?? I just bk from Canada, and my ANS (stim) went out the day i got there a week ago!!!!! I cant beleive it!! I called my ANS guy (MY SAVIOUR) and he wants an xray to see if it discanneced or not? wats weird is i was bent over in all kindsa a positions at da fire and i got Stim all off a sudden for like 5 mins and then faded away!! I have noooo idea wats up?? Maybe happened to one of you?? Let me know. Take care, Amey ((THE RAMBLER)) P.S. anybody miss me??? LOLjaismonkey@... wrote:

In a message dated 8/5/04 8:04:47 PM Pacific Daylight Time, RSD-CRPSofAmerica writes:

.. Also can someone please tell me if they have these days where your talking and right in middle of it forget what you were discussing, what you said, just not able to be following line of discussion????????? I am really getting somewhat nervous about this. Now could be I am just not getting enough rest but can't see how that would be. Hi JoAnn,I totally understand what you are talking about! Since the RSD I always was having some problems with short term memory but about two years ago my memory problems became very severe. I too would be talking and just stop and have no idea what I was talking about. Also, everyday things like getting food, medicne,or something out of a cabinet I would not be able to remember where things were kept even though it had been in the same place for

years. Or I would open a cabinet to get cookies or something and be standing in front of the cabinet and have no idea why I was standing there. Also I started falling. I mean everyday. Not tripping or losing my balance but just all of the sudden drop. This was not good because I have Osteoporosis (from the RSD, I am only in my 30's) And also my speech became almost unintelligible. I would try to say something and my voice and jaw would go into these spasms it was embarrassing and frustrating. My neuro did many tests and basically determined it was related to the RSD, I can't remember the actual diagnosis, but they changed my meds around put me on some new stuff and changed dosages of other stuff. It took a while but it helped. Sorry I can't be more specific about what exactly it was it's been a while ago,but it WAS related to the RSD. Have you called your doctor yet? I would definitely let him know, it's

scary stuff when things like this happen. I still have short term memory loss and occasionally have the speech problems but I have not had a fall in a long time. Since my body is in intense physical and occupational therapy I decided t o take it upon my self to get some BRAIN therapy! I enrolled in a class at a local college, I already have my degree but thought this would be a good way to make my brain have to work. What used to come so naturally to me was very difficult. I graduated nursing school on the Dean's list and here I was taking a semi easy class and struggling through. I had an extremely difficult time with reading comprehension and memorization. I studied for hours every day. I ended up with a B which I was proud of considering that just a couple of years ago I was in a rehab hospital unable to do anything for my self and a poor prognosis. I was in a wheel chair and weighed 89 pounds (I am 5'11" tall) that's scary. I

guess that even at our darkest hours we need to push hard to get our bodies and minds back in shape. It is so easy to give up, and believe me sometimes I did! Somewhere there was a spark in me that has kept me going. I think we all have that in us, sometimes it is just hard to find! Sorry to ramble on........and talk your ear off! Please let me know of your progress. Love, Jai

[Guest guest]

Amey so sorry about the Stem stopping, that has got to be really rotten timing and just plain rotten to have happen.......they will have to do surgery to fix it won't they? I do not have one so have to ask if that is okay? I hope you had nice time and just glad not alone when comes to my brain not thinking clear when talking or just thinking to myself. Well gotta go try and get some sleep. Been up all night again and so very tired just cannot sleep. Thanks for the message Amey and pray you get Stem fixed soon.

s Momma

JoAnn

Re: Digest Number 2395((JOANN))

Jo ann, i have da same probs wit my speech and jaw. for awhile now. its RSD. i dont bother wit tests or anything, its just common sense ya know?? I just bk from Canada, and my ANS (stim) went out the day i got there a week ago!!!!! I cant beleive it!! I called my ANS guy (MY SAVIOUR) and he wants an xray to see if it discanneced or not? wats weird is i was bent over in all kindsa a positions at da fire and i got Stim all off a sudden for like 5 mins and then faded away!! I have noooo idea wats up?? Maybe happened to one of you?? Let me know. Take care, Amey ((THE RAMBLER)) P.S. anybody miss me??? LOLjaismonkey@... wrote: In a message dated 8/5/04 8:04:47 PM Pacific Daylight Time, RSD-CRPSofAmerica writes:

.. Also can someone please tell me if they have these days where your talking and right in middle of it forget what you were discussing, what you said, just not able to be following line of discussion????????? I am really getting somewhat nervous about this. Now could be I am just not getting enough rest but can't see how that would be. Hi JoAnn,I totally understand what you are talking about! Since the RSD I always was having some problems with short term memory but about two years ago my memory problems became very severe. I too would be talking and just stop and have no idea what I was talking about. Also, everyday things like getting food, medicne,or something out of a cabinet I would not be able to remember where things were kept even though it had been in the same place for years. Or I would open a cabinet to get cookies or something and be standing in front of the cabinet and have no idea why I was standing there. Also I started falling. I mean everyday. Not tripping or losing my balance but just all of the sudden drop. This was not good because I have Osteoporosis (from the RSD, I am only in my 30's) And also my speech became almost unintelligible. I would try to say something and my voice and jaw would go into these spasms it was embarrassing and frustrating. My neuro did many tests and basically determined it was related to the RSD, I can't remember the actual diagnosis, but they changed my meds around put me on some new stuff and changed dosages of other stuff. It took a while but it helped. Sorry I can't be more specific about what exactly it was it's been a while ago,but it WAS related to the RSD. Have you called your doctor yet? I would definitely let him know, it's scary stuff when things like this happen. I still have short term memory loss and occasionally have the speech problems but I have not had a fall in a long time. Since my body is in intense physical and occupational therapy I decided t o take it upon my self to get some BRAIN therapy! I enrolled in a class at a local college, I already have my degree but thought this would be a good way to make my brain have to work. What used to come so naturally to me was very difficult. I graduated nursing school on the Dean's list and here I was taking a semi easy class and struggling through. I had an extremely difficult time with reading comprehension and memorization. I studied for hours every day. I ended up with a B which I was proud of considering that just a couple of years ago I was in a rehab hospital unable to do anything for my self and a poor prognosis. I was in a wheel chair and weighed 89 pounds (I am 5'11" tall) that's scary. I guess that even at our darkest hours we need to push hard to get our bodies and minds back in shape. It is so easy to give up, and believe me sometimes I did! Somewhere there was a spark in me that has kept me going. I think we all have that in us, sometimes it is just hard to find! Sorry to ramble on........and talk your ear off! Please let me know of your progress. Love, Jai

[Guest guest]

Joann, yeh if its not a proggramming problem theyll have to go bk in and re-attach it. I hav and xray on monday to see wats up and see da ANS guy on tuesday. HOPEFULLY a programing problem ONLY! But, if not i need a top 1/2 body 1 put in any way so......... itll be easier on me that way instead of goin in twice. they can put dat one in my other ass cheek. But, i was gunna ask my dr, how am i gunna get "spanked" if i have both butt cheeks taken up??? HA HA!! (you know wat i mean) LOL. DAM! i hate wen i lose my train of thought! UGH!!! well, wen i think of it ill tellya later, amey JoAnn & Russ Ford wrote:

Amey so sorry about the Stem stopping, that has got to be really rotten timing and just plain rotten to have happen.......they will have to do surgery to fix it won't they? I do not have one so have to ask if that is okay? I hope you had nice time and just glad not alone when comes to my brain not thinking clear when talking or just thinking to myself. Well gotta go try and get some sleep. Been up all night again and so very tired just cannot sleep. Thanks for the message Amey and pray you get Stem fixed soon.

s Momma

JoAnn

Re: Digest Number 2395((JOANN))

Jo ann, i have da same probs wit my speech and jaw. for awhile now. its RSD. i dont bother wit tests or anything, its just common sense ya know?? I just bk from Canada, and my ANS (stim) went out the day i got there a week ago!!!!! I cant beleive it!! I called my ANS guy (MY SAVIOUR) and he wants an xray to see if it discanneced or not? wats weird is i was bent over in all kindsa a positions at da fire and i got Stim all off a sudden for like 5 mins and then faded away!! I have noooo idea wats up?? Maybe happened to one of you?? Let me know. Take care, Amey ((THE RAMBLER)) P.S. anybody miss me??? LOLjaismonkey@... wrote: In a message dated 8/5/04 8:04:47 PM Pacific Daylight Time, RSD-CRPSofAmerica writes:

.. Also can someone please tell me if they have these days where your talking and right in middle of it forget what you were discussing, what you said, just not able to be following line of discussion????????? I am really getting somewhat nervous about this. Now could be I am just not getting enough rest but can't see how that would be. Hi JoAnn,I totally understand what you are talking about! Since the RSD I always was having some problems with short term memory but about two years ago my memory problems became very severe. I too would be talking and just stop and have no idea what I was talking about. Also, everyday things like getting food, medicne,or something out of a cabinet I would not be able to remember where things were kept even though it had been in the same place for

years. Or I would open a cabinet to get cookies or something and be standing in front of the cabinet and have no idea why I was standing there. Also I started falling. I mean everyday. Not tripping or losing my balance but just all of the sudden drop. This was not good because I have Osteoporosis (from the RSD, I am only in my 30's) And also my speech became almost unintelligible. I would try to say something and my voice and jaw would go into these spasms it was embarrassing and frustrating. My neuro did many tests and basically determined it was related to the RSD, I can't remember the actual diagnosis, but they changed my meds around put me on some new stuff and changed dosages of other stuff. It took a while but it helped. Sorry I can't be more specific about what exactly it was it's been a while ago,but it WAS related to the RSD. Have you called your doctor yet? I would definitely let him know, it's

scary stuff when things like this happen. I still have short term memory loss and occasionally have the speech problems but I have not had a fall in a long time. Since my body is in intense physical and occupational therapy I decided t o take it upon my self to get some BRAIN therapy! I enrolled in a class at a local college, I already have my degree but thought this would be a good way to make my brain have to work. What used to come so naturally to me was very difficult. I graduated nursing school on the Dean's list and here I was taking a semi easy class and struggling through. I had an extremely difficult time with reading comprehension and memorization. I studied for hours every day. I ended up with a B which I was proud of considering that just a couple of years ago I was in a rehab hospital unable to do anything for my self and a poor prognosis. I was in a wheel chair and weighed 89 pounds (I am 5'11" tall) that's scary. I

guess that even at our darkest hours we need to push hard to get our bodies and minds back in shape. It is so easy to give up, and believe me sometimes I did! Somewhere there was a spark in me that has kept me going. I think we all have that in us, sometimes it is just hard to find! Sorry to ramble on........and talk your ear off! Please let me know of your progress. Love, Jai

[Guest guest]

I sure hope today you have could news about your stem.......don't want you to have 2 surgeries. I also hate that train of thought thing that leaves and goes out to my pool, at least that is my guess where it goes. THink going to go get in pool today just to see if can find any lost thoughts floating around. Besides it is hot and looks nice to me. Well take care Amey and look forward to hearing what happens. Hugs

s Momma

JoAnn

Re: Digest Number 2395((JOANN))

Jo ann, i have da same probs wit my speech and jaw. for awhile now. its RSD. i dont bother wit tests or anything, its just common sense ya know?? I just bk from Canada, and my ANS (stim) went out the day i got there a week ago!!!!! I cant beleive it!! I called my ANS guy (MY SAVIOUR) and he wants an xray to see if it discanneced or not? wats weird is i was bent over in all kindsa a positions at da fire and i got Stim all off a sudden for like 5 mins and then faded away!! I have noooo idea wats up?? Maybe happened to one of you?? Let me know. Take care, Amey ((THE RAMBLER)) P.S. anybody miss me??? LOLjaismonkey@... wrote: In a message dated 8/5/04 8:04:47 PM Pacific Daylight Time, RSD-CRPSofAmerica writes:

.. Also can someone please tell me if they have these days where your talking and right in middle of it forget what you were discussing, what you said, just not able to be following line of discussion????????? I am really getting somewhat nervous about this. Now could be I am just not getting enough rest but can't see how that would be. Hi JoAnn,I totally understand what you are talking about! Since the RSD I always was having some problems with short term memory but about two years ago my memory problems became very severe. I too would be talking and just stop and have no idea what I was talking about. Also, everyday things like getting food, medicne,or something out of a cabinet I would not be able to remember where things were kept even though it had been in the same place for years. Or I would open a cabinet to get cookies or something and be standing in front of the cabinet and have no idea why I was standing there. Also I started falling. I mean everyday. Not tripping or losing my balance but just all of the sudden drop. This was not good because I have Osteoporosis (from the RSD, I am only in my 30's) And also my speech became almost unintelligible. I would try to say something and my voice and jaw would go into these spasms it was embarrassing and frustrating. My neuro did many tests and basically determined it was related to the RSD, I can't remember the actual diagnosis, but they changed my meds around put me on some new stuff and changed dosages of other stuff. It took a while but it helped. Sorry I can't be more specific about what exactly it was it's been a while ago,but it WAS related to the RSD. Have you called your doctor yet? I would definitely let him know, it's scary stuff when things like this happen. I still have short term memory loss and occasionally have the speech problems but I have not had a fall in a long time. Since my body is in intense physical and occupational therapy I decided t o take it upon my self to get some BRAIN therapy! I enrolled in a class at a local college, I already have my degree but thought this would be a good way to make my brain have to work. What used to come so naturally to me was very difficult. I graduated nursing school on the Dean's list and here I was taking a semi easy class and struggling through. I had an extremely difficult time with reading comprehension and memorization. I studied for hours every day. I ended up with a B which I was proud of considering that just a couple of years ago I was in a rehab hospital unable to do anything for my self and a poor prognosis. I was in a wheel chair and weighed 89 pounds (I am 5'11" tall) that's scary. I guess that even at our darkest hours we need to push hard to get our bodies and minds back in shape. It is so easy to give up, and believe me sometimes I did! Somewhere there was a spark in me that has kept me going. I think we all have that in us, sometimes it is just hard to find! Sorry to ramble on........and talk your ear off! Please let me know of your progress. Love, Jai