Re: hello, i'm judy and new to the group

[Guest guest]

Hello Judy,welcome to group or Family shall I say. Im sorry to hear

your problems,but I must say that I do understand. As with the meds,I

too was on prednisone for a while and became depressed because the

weight gain was unreal!! I have been on Lyrica since september and at

first taking it was horrible,because my body had to adjust. Once it

did I actually had some relief but then my body got use to the dosage

and it had to be increased.I didnt have an appetite because my body

always has opposite side effects to meds,so I had to make myself eat.

The main problem I started having was hair loss,but doctor said it

wasnt from that but it was the only thing new to my routine. I

learned from the Lupus that the drugs are experimental and nothing

definitely works or it works from short periods of time.Sometimes we

have to go through the process of elimination,and just pray that the

side effects are minimal and the relief is maximum!!Take care,Be

Blessed.

Shundra

>

> Where should I start, I have been on a long journey that probably

> started in 1995 after a miscarriage. I hemmoraged alot and did not

After the new doc did his own lab

> testing and the tender point test, I FINALLY heard him refer to

> fibromyagia. Sorry for the long background, but it has been a

> progressing problem going back to 1995. My new doc recommended

> starting lyrica. I'm alittle skeptical with one of the side

effects

> being weight gain. The prednisone has made me gain tons of

weight.

> Any insight on giving this med a try would be greatly appreciated.

> I'm happy to have found this group to be able to talk to people who

> understand. My family is not very supportive, to them I look

fine.

> My next appointment is to get a tatoo on my forhead that says, " I

HURT "

> Thank you!

>

[Guest guest]

Welcome Judy! I know you will love this group. I have been on Lyrica for 3 weeks

now and I love it! I havent been on long enough to experience weight gain but

some on here say they didnt gain weight. I like you, hope that isnt true. The

initial side afffects ... for me feeling " high " , went away within a week. I

took it only at night for 5 days then the high feeling went away the 2nd day of

taking it twice a day. I have very little pain now. Theresa in Tn

Judy wrote: Where should I start, I have

been on a long journey that probably

started in 1995 after a miscarriage. I hemmoraged alot and did not

recover quickly. Slept all the time, very puffy, several mo's my fp

diagnosed me with hypothyroidism. As time passed I wasn't able to

get to sleep at night til 3 or 4 in the morning. My legs would drive

me nuts with the urge to move along with pain. My fp then diagnosed

me with restless leg syndrome. Prescribed requip. It helped the

restlessness for a while, did nothing for the pain. My fp then sent

me to a neurolagist. He tripled my requip dosage. By this time the

pain is all over. Espescially bad in the mornings, change of

weather, after over doing it, etc. My neurolagist then sends me to a

rhymatoligist. He rules out lyme's, lupus, rhymatial arthritis, etc.

and diagnosed me with polymyalgia. The treatment for poly is

steriods (predinisone) I think this is a nasty drug!! Poly is

suppose to go away within a year or two. I'm still on predinisone,

ever so slowly tapering off. By March 1 I should be off. I

recently, switched to a new rhymatoligist. After doing my own

research, I felt my symtoms pointed more to fibro and not poly. My

old prior doc could not get that word out of his mouth, that would

have meant he misdiagnosed me. After the new doc did his own lab

testing and the tender point test, I FINALLY heard him refer to

fibromyagia. Sorry for the long background, but it has been a

progressing problem going back to 1995. My new doc recommended

starting lyrica. I'm alittle skeptical with one of the side effects

being weight gain. The prednisone has made me gain tons of weight.

Any insight on giving this med a try would be greatly appreciated.

I'm happy to have found this group to be able to talk to people who

understand. My family is not very supportive, to them I look fine.

My next appointment is to get a tatoo on my forhead that says, " I HURT "

Thank you!

THERESA

MERRY CHRISTMAS!

Best wishes and peace to all my friends & family!

---------------------------------

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[Guest guest]

Welcome Judy - nice to have you with us. Yes, the road to a diagnosis is

often long and wearying. That's awful to be on steroids for so long. I do

not take Lyrica myself, but seems some here do fine on it, and a few don't.

I wish you luck with it.

Jeanne in WI

[Guest guest]

Welcome aboard Judy! I'm Melody in TX, look forward to getting to know you!

Judy wrote:

> Where should I start, I have been on a long journey that probably

> started in 1995 after a miscarriage. I hemmoraged alot and did not

> recover quickly. Slept all the time, very puffy, several mo's my fp

> diagnosed me with hypothyroidism. As time passed I wasn't able to

> get to sleep at night til 3 or 4 in the morning. My legs would drive

> me nuts with the urge to move along with pain. My fp then diagnosed

> me with restless leg syndrome. Prescribed requip. It helped the

> restlessness for a while, did nothing for the pain. My fp then sent

> me to a neurolagist. He tripled my requip dosage. By this time the

> pain is all over. Espescially bad in the mornings, change of

> weather, after over doing it, etc. My neurolagist then sends me to a

> rhymatoligist. He rules out lyme's, lupus, rhymatial arthritis, etc.

> and diagnosed me with polymyalgia. The treatment for poly is

> steriods (predinisone) I think this is a nasty drug!! Poly is

> suppose to go away within a year or two. I'm still on predinisone,

> ever so slowly tapering off. By March 1 I should be off. I

> recently, switched to a new rhymatoligist. After doing my own

> research, I felt my symtoms pointed more to fibro and not poly. My

> old prior doc could not get that word out of his mouth, that would

> have meant he misdiagnosed me. After the new doc did his own lab

> testing and the tender point test, I FINALLY heard him refer to

> fibromyagia. Sorry for the long background, but it has been a

> progressing problem going back to 1995. My new doc recommended

> starting lyrica. I'm alittle skeptical with one of the side effects

> being weight gain. The prednisone has made me gain tons of weight.

> Any insight on giving this med a try would be greatly appreciated.

> I'm happy to have found this group to be able to talk to people who

> understand. My family is not very supportive, to them I look fine.

> My next appointment is to get a tatoo on my forhead that says, " I HURT "

> Thank you!

>

>

>

> 1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr.

Some treatments are dangerous when given along with other meds as well as to

certain health conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't matter what it is) pls don't

be afraid to ask for help. It is the first step to trying to make that

situation better.

>

> 3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way. And that includes the things that one member

may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.

>

> 5. Pls let's be gentle with each other, and if you are having a bad day pls

let us know so that we can do our best to offer our support.

>

> Have a nice day everyone.

>

>