Re: EEG sedative

[Guest guest]

Thanks Holly,

I really didn't want to, but I guess I just wanted someone to tell me not to.

HeJust recently had a severe reaction to amoxicillin(hives everywhere) he is

just barely bouncing back now. Have you ever (or anyone) had to give Benadryl

for a reaction in your child? Logan didn't do very well with it. I gave him

less than half of what the doc said to. I usually don't give him anything.

Thanks again,

Marcie

[Guest guest]

Hi - My son also had an MRI with this chlorohydrate(spelling?). He had

what they called a " paradoxial " reaction, not an allergic reaction.

Whatever, it was pure hell - He woke up and became extremely agitated almost

violent. For several hours he just cried and screamed and he could not walk

or even sit. We had to sit on the floor of the hospital and try to hold him

so he would not hit his head or hurt himself (thank God for the wonderful

nurse who helped us). The next morning (they did send him home that night

around midnight) he could not even walk - he crawled for several hours after.

I remember he seemed very frightened and they explained they crying and

yelling as being fearful and frustrated that his body could not cooperate

with what he wanted to do. He even pulled the IV out of his little arm and

was covered in blood.

I do not want to scare you but I was told that lots of kids can have this

type of reaction to varying degrees. He has had several types of medication

since and has been just fine. Ask the doctor if there is something else

where the reaction is more predicatable.

[Guest guest]

DONT DO IT! check out the ARI's publication on drugs and ASD. VERY few

kids do well with chrloral hydrate, mine does horribly. I think the stat is

70% of auties have an adverse or no reaction with CH. It hypes them up!

Besides that CH skews the EEG and wastes your time. do it sleep deprived or

don't bother.

Holly

----- Original Message -----

> Hi,

> My son is scheduled for an EEG this mo., and they want him to take

something

> called Chlorhydrate (spelling) I don't want him to have it. Has anyone

ever

> had this done with this drug?

> THANKS,

> Marcie (Logan's Mom)

>

[Guest guest]

we had EXTREMELY adverse reation. We had a 6yo drunk on our hands. Luckily

dh was there with me. I could not have done it alone. We had to hold him

down literally for 2 hours so he wouldnt hurt himself. He really was like a

child drunk. It was terrible. Dh and I were both sore all over the next day

from the experience of holding him down. Sleep deprived is much better!!

Hard on Dad--I made him stay up all night with him. LOL, but much easier all

the way around in the long run.

Blessings,

Neysa

praisinhim2day@...

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[Guest guest]

I have to give benadryl by mouth for both ant and mosquito bites to reduce

the swelling and itchiness.

Holly

----- Original Message -----

> Thanks Holly,

>

> I really didn't want to, but I guess I just wanted someone to tell me not

to.

> HeJust recently had a severe reaction to amoxicillin(hives everywhere) he

is

> just barely bouncing back now. Have you ever (or anyone) had to give

Benadryl

> for a reaction in your child? Logan didn't do very well with it. I gave

him

> less than half of what the doc said to. I usually don't give him anything.

> Thanks again,

> Marcie

>

[Guest guest]

has a seizure disorder as well as PDD. We have done numerous EEGs

all with chlorohydrate. She always takes 1 1/2 times whatever the

recommended dose for her weight no matter what the drug. The EEG people

always tell me that it will take 1/2 hour for the drug to take effect. It

is always longer. I think in our experience the drug has helped her. She

would never allow them to put the electrodes on otherwise. We always

swaddle her in some hospital sheets to help her relax and I lay on the bed

with her. I consider EEGs a necessary evil in our lives and the

chlorohydrate does help.

Cari in KY

[Guest guest]

> Hi,

> My son is scheduled for an EEG this mo., and they want him to take

something

> called Chlorhydrate (spelling) I don't want him to have it. Has

anyone ever

> had this done with this drug?

> THANKS,

> Marcie (Logan's Mom)

My son had an EEG and CAT scan done back in April. The first time we

tried the test they gave him the Chlorhydrate and it did not work, he

was so exicited to be in the hospital and he never fell asleep. They

wanted to give more but the doctor suggested we try again another

date. The week after I took him again but I sleep deprived him. I

let him stay up late and woke him up very early that morning. He did

end up falling asleep with a single dose and both test were done

successfully.

MT

[Guest guest]

The fast before the EEG is in case he throws up because he's been sedated.

It is common practice. They are covering their behinds. If you can

schedule the EEG first thing in the morning, then breakfast is only a little

late. Take something with you that he can eat when he wakes up.

Does your son have seizures, too? I'd be glad for you to email me privately

if you want. dsmall@...

Cari in KY mom to Melody 9.5 and 6 on Friday!!

[Guest guest]

My son has had two EEGs with choral hydrate and we were never told he

had to fast first. It took a very long time for him to fall asleep

and he woke up in the middle both times. Recently he has had an EEG

while just being wrapped snugly in a sheet while allowed to watch a

favorite videotape.

> The fast before the EEG is in case he throws up because he's been

sedated.

> It is common practice. They are covering their behinds. If you can

> schedule the EEG first thing in the morning, then breakfast is only

a little

> late. Take something with you that he can eat when he wakes up.

>

> Does your son have seizures, too? I'd be glad for you to email me

privately

> if you want. dsmall@q...

> Cari in KY mom to Melody 9.5 and 6 on Friday!!

[Guest guest]

Hi Marcie, I see you have lots of comments on this!! Zack (then age 3) also

had a weird reaction to chlorohydrate...totally wired him and he ran around

the waiting room of the CT lab (supposed to make him sleep) uncontrollable,

fell and split his lip open, blood everywhere. Needless to say, we didn't

have the CT scan done! Second attempt was with Valium, not sure how many of

those we ended up giving him....wired again. Third time they booked him at

a Children's Hospital and he was put under, not sure of the drug name, but

it was a sedative that only lasts for about 5 minutes. Worked finally.

This was about 2 years ago, and before we new he had autism. Good luck!

~Kim Z.

EEG sedative

> Hi,

My son is scheduled for an EEG this mo., and they want him to take something

called Chlorhydrate (spelling) I don't want him to have it. Has anyone ever

had this done with this drug?

THANKS,

Marcie (Logan's Mom)

[Guest guest]

My son experienced the same thing. He became quite agitated and very

violent when he woke up. It scared the heck out of me. Afterwards, he

slept for almost 14 hours. No amount of effort could awake him.

a - Madison WI

> Hi - My son also had an MRI with this chlorohydrate(spelling?). He had

> what they called a " paradoxial " reaction, not an allergic reaction.

> Whatever, it was pure hell - He woke up and became extremely agitated

almost

> violent. For several hours he just cried and screamed and he could not

walk

> or even sit. We had to sit on the floor of the hospital and try to hold

him

> so he would not hit his head or hurt himself (thank God for the wonderful

> nurse who helped us).