Guest guest Posted February 3, 2009 Report Share Posted February 3, 2009 Hi, I'm about 10 months on SCD. Reading some of the recent posts prompts me to ask if anyone can share their experience tapering off of 6-mp after being on SCD? That is the main reason I started the diet - to get off 6-mp in particular (Am also on Asacol but am less concerned taking that). Have been on 6-mp (75mg) for almost 10 yrs (since resection). Have generally been in remission for that time. Since starting SCD have felt less frequent and less severe 'aches' in my side. Can anyone share 6-mp tapering experience/advice/comments? Thanks. THis board is great. Ben Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2009 Report Share Posted February 3, 2009 > Hi, I'm about 10 months on SCD. Reading some of the recent posts > prompts me to ask if anyone can share their experience tapering off of > 6-mp after being on SCD? That is the main reason I started the diet - > to get off 6-mp in particular (Am also on Asacol but am less concerned > taking that). Have been on 6-mp (75mg) for almost 10 yrs (since > resection). Have generally been in remission for that time. Since > starting SCD have felt less frequent and less severe 'aches' in my > side. > > Can anyone share 6-mp tapering experience/advice/comments? > > Thanks. THis board is great. What dosage are you on? Myself, I was on one pill a day - forget the dosage level now - and then just took myself off of it once I felt much better. I didn't taper - and am not sure that is a problem. I was on two pills a day when I originally started SCD, and when I got violently bad die-off my first month with a high fever, my doctor dropped me off the 6 mp dose because it is an immuno suppressant and he wanted my immune system working to help beat the virus symptoms. Later on, he put me back on 1 pill. And I dropped that one myself at some point. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 THanks for the reply. Am on 1.5 pills / 75mg per day and am afraid to stop taking it because I feel good. Afraid to stay on it because over time I think it is hard on the liver. How widely prescribed is 6-mp for Crohn's? I do not have the impression that my GI has many patients on it (he's my third doc, after moving a couple times). I sure wish there were docs w/ experience w/ SCD... > > > Hi, I'm about 10 months on SCD. Reading some of the recent posts > > prompts me to ask if anyone can share their experience tapering off of > > 6-mp after being on SCD? That is the main reason I started the diet - > > to get off 6-mp in particular (Am also on Asacol but am less concerned > > taking that). Have been on 6-mp (75mg) for almost 10 yrs (since > > resection). Have generally been in remission for that time. Since > > starting SCD have felt less frequent and less severe 'aches' in my > > side. > > > > Can anyone share 6-mp tapering experience/advice/comments? > > > > Thanks. THis board is great. > > What dosage are you on? > > Myself, I was on one pill a day - forget the dosage level now - > and then just took myself off of it once I felt much better. > I didn't taper - and am not sure that is a problem. > > I was on two pills a day when I originally started SCD, and > when I got violently bad die-off my first month with a high > fever, my doctor dropped me off the 6 mp dose because it is > an immuno suppressant and he wanted my immune system > working to help beat the virus symptoms. > > Later on, he put me back on 1 pill. And I dropped that one > myself at some point. > > Mara > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2009 Report Share Posted February 5, 2009 Yes, would probably go to 1 pill per day first. I guess I need to talk to the doc about it. THanks.. > > > THanks for the reply. > > > > Am on 1.5 pills / 75mg per day and am afraid to stop taking it because > > I feel good. Afraid to stay on it because over time I think it is > > hard on the liver. > > Well, if you want to stop, you could experiment with > going down to 1 pill a day first and see how you do > with that. Or wait a while and then do > that. Or ask your doctor to look at your values, and > if you've had improvement, he very well may lower > your dosage himself. > > I was always fairly skeptical it was doing anything for me; > at most, it was preventing me from getting worse rather > than making me better, if you know what I mean, so I > didn't feel attached to it at all. > > > How widely prescribed is 6-mp for Crohn's? I do not have the > > impression that my GI has many patients on it (he's my third doc, > > after moving a couple times). I sure wish there were docs w/ > > experience w/ SCD... > > Pretty widely prescribed for crohn's/colitis. > > Mara > Quote Link to comment Share on other sites More sharing options...
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