Re: What am I going to do?

[Guest guest]

PLEASE PLEASE call hospital administrater, document if you remember, copy

this letter, and send with complaint to your insurance co. My pancrease is

burnt out but most of time levels in some respect show, THEY just don't know.

Once you have a file on the condition that is YOUR condition when you go in.

I've been to hell and back with doctors and hospitals. I have first hand

experience in this baloney. The reason they need a particular number,

usually amalayse , is because your insurance co., whatever it is, has a fixed

number where they will pay for treatmento the hospital.You need to get it in

writing from them. My doctor finally agreed when I'm in er I'm there because

I need to be. what happens is sometimes, I call them rolling attacks, by the

time I would get care, the numbers start to drop, then peak a few hrs later,

so on and so on. Get a new doctor as far as I am concerned. I had 7 before I

found the right one. That 's the difference. good luck. paula

[Guest guest]

PLEASE PLEASE call hospital administrater, document if you remember, copy

this letter, and send with complaint to your insurance co. My pancrease is

burnt out but most of time levels in some respect show, THEY just don't know.

Once you have a file on the condition that is YOUR condition when you go in.

I've been to hell and back with doctors and hospitals. I have first hand

experience in this baloney. The reason they need a particular number,

usually amalayse , is because your insurance co., whatever it is, has a fixed

number where they will pay for treatmento the hospital.You need to get it in

writing from them. My doctor finally agreed when I'm in er I'm there because

I need to be. what happens is sometimes, I call them rolling attacks, by the

time I would get care, the numbers start to drop, then peak a few hrs later,

so on and so on. Get a new doctor as far as I am concerned. I had 7 before I

found the right one. That 's the difference. good luck. paula

[Guest guest]

Thanks for listening. I'm just so depressed. And the pain is just so out of contol lately! I hope you are all having a better day.

, I'm so sorry you are having so much trouble. I can only suggest that you keep calm (hard to do) and try to out think them. It almost sounds like you might need to consider changing doctors and try to get one more sympathetic to your condition and case. I feel that when you are feeling as you are now you must try to be the most level headed. Be the most realistic of those you must deal with in your treatment. I know that's easy for me to say as I am not there, and I am not in your shoes. But I must tell you from my experience that your brain is your most important asset. Your worries are most real, your pain is most significant, and your professional relationships are most important. Chronic Panc. affected people don't have a lot of latitude to work with so you must think ahead and make the best possible position and case for yourself. It is not easy but it is the best thing for you to do. If nothing else, keep posting, we are here for you.

Best wishes

Poncho

[Guest guest]

Hi a,

Thanks for the advise. I don't understand why these doctors do this

to me. I should have started keeping ALL of my records myself from

the beginning. I have about 8 years of stuff to start collecting.

Maybe that will keep me busy & my mind off of my troubles. I do have

a case manager through the insurance company and I have talked to her

several times about this situation I'm in. I really need to call her

again tomorrow. I'm just about at my wits end! Thanks again for the

advise. I really appreciate it!!

Lots of Hugs,

P.S. And about this finding a new doctor? There are a whole 3 GI

doctors in this City. One I had seen in the past, and the other I

hear he isn't that great. Then I'm wondering, are any of them? And

the 3rd, of course, being the one I have now. I have been to Ohio

State, and now I see Dr. Lehman at IU, the only problem there is, he

really won't do much long distance. I see him in a couple weeks &

I'm going to be sure to tell him the problems I am having! Thanks.

By the way, how are you doing?

______________________________________________________________________

> PLEASE PLEASE call hospital administrater, document if you

remember, copy

> this letter, and send with complaint to your insurance co. My

pancrease is

> burnt out but most of time levels in some respect show, THEY just

don't know.

> Once you have a file on the condition that is YOUR condition when

you go in.

> I've been to hell and back with doctors and hospitals. I have first

hand

> experience in this baloney. The reason they need a particular

number,

> usually amalayse , is because your insurance co., whatever it is,

has a fixed

> number where they will pay for treatmento the hospital.You need to

get it in

> writing from them. My doctor finally agreed when I'm in er I'm

there because

> I need to be. what happens is sometimes, I call them rolling

attacks, by the

> time I would get care, the numbers start to drop, then peak a few

hrs later,

> so on and so on. Get a new doctor as far as I am concerned. I had 7

before I

> found the right one. That 's the difference. good luck. paula

[Guest guest]

Hi a,

Thanks for the advise. I don't understand why these doctors do this

to me. I should have started keeping ALL of my records myself from

the beginning. I have about 8 years of stuff to start collecting.

Maybe that will keep me busy & my mind off of my troubles. I do have

a case manager through the insurance company and I have talked to her

several times about this situation I'm in. I really need to call her

again tomorrow. I'm just about at my wits end! Thanks again for the

advise. I really appreciate it!!

Lots of Hugs,

P.S. And about this finding a new doctor? There are a whole 3 GI

doctors in this City. One I had seen in the past, and the other I

hear he isn't that great. Then I'm wondering, are any of them? And

the 3rd, of course, being the one I have now. I have been to Ohio

State, and now I see Dr. Lehman at IU, the only problem there is, he

really won't do much long distance. I see him in a couple weeks &

I'm going to be sure to tell him the problems I am having! Thanks.

By the way, how are you doing?

______________________________________________________________________

> PLEASE PLEASE call hospital administrater, document if you

remember, copy

> this letter, and send with complaint to your insurance co. My

pancrease is

> burnt out but most of time levels in some respect show, THEY just

don't know.

> Once you have a file on the condition that is YOUR condition when

you go in.

> I've been to hell and back with doctors and hospitals. I have first

hand

> experience in this baloney. The reason they need a particular

number,

> usually amalayse , is because your insurance co., whatever it is,

has a fixed

> number where they will pay for treatmento the hospital.You need to

get it in

> writing from them. My doctor finally agreed when I'm in er I'm

there because

> I need to be. what happens is sometimes, I call them rolling

attacks, by the

> time I would get care, the numbers start to drop, then peak a few

hrs later,

> so on and so on. Get a new doctor as far as I am concerned. I had 7

before I

> found the right one. That 's the difference. good luck. paula

[Guest guest]

,

you might want to try something that I've come up to deal with doctors. I found

it really hard to get

copies of my records because a number of mine have retired or moved out of state

and locating them was

difficult and other the people want just way too much money for them. So,

I've created a " packet "

of information for the emergency doctors and others who have no real clue as to

how to deal with

chronic pancreatitis. I have multiple conditions and I have a page for diagnosis

and the current round

of treatment. A page for my current prescriptions and what they treat and my

dosages. A page for

medications and other things I'm allergic to. A page for my surgeries, a page

for things, knowledge or

doctors I need, a page that lists as many of my cases of pancreatitis attacks

that includes things

like dates, hospitals treated at and the doctor who treated me. It's basically a

shorter version of

the medical record paper trail that doctor's love so much. If you wish I can

email you a copy so you

can see how I put the information together. I've found that it impresses the

doctors a lot and makes

them more willing to listen to me. I'm in the process of creating a page of

preferred drugs because

i've discover that the drug Phenergan doesn't work on me for nausea, but the

reglan works like a

charm and also a treatment page for my cases of pancreatitis because at this

point I know the meds and

treatment down pat.

I would definitely suggest you look for another doctor. Your current one sounds

like they don't know

quite how to deal with you. If you can, see if there are any GI specialists who

deal specifically with

the pancreas. I had one of my former GI doctors who was good enough to know

that he didn't know

everything and actively found me a specialist. That's how I got to my doctor in

San Francisco. I

recommend looking at a teaching hospital as they are more likely to have one

than a straight medical

center.

Kimber

liamhoha20@... wrote:

> Hi a,

>

> Thanks for the advise. I don't understand why these doctors do this

> to me. I should have started keeping ALL of my records myself from

> the beginning. I have about 8 years of stuff to start collecting.

> Maybe that will keep me busy & my mind off of my troubles. I do have

> a case manager through the insurance company and I have talked to her

> several times about this situation I'm in. I really need to call her

> again tomorrow. I'm just about at my wits end! Thanks again for the

> advise. I really appreciate it!!

>

> Lots of Hugs,

>

> P.S. And about this finding a new doctor? There are a whole 3 GI

> doctors in this City. One I had seen in the past, and the other I

> hear he isn't that great. Then I'm wondering, are any of them? And

> the 3rd, of course, being the one I have now. I have been to Ohio

> State, and now I see Dr. Lehman at IU, the only problem there is, he

> really won't do much long distance. I see him in a couple weeks &

> I'm going to be sure to tell him the problems I am having! Thanks.

> By the way, how are you doing?

>

> ______________________________________________________________________

>

>

> > PLEASE PLEASE call hospital administrater, document if you

> remember, copy

> > this letter, and send with complaint to your insurance co. My

> pancrease is

> > burnt out but most of time levels in some respect show, THEY just

> don't know.

> > Once you have a file on the condition that is YOUR condition when

> you go in.

> > I've been to hell and back with doctors and hospitals. I have first

> hand

> > experience in this baloney. The reason they need a particular

> number,

> > usually amalayse , is because your insurance co., whatever it is,

> has a fixed

> > number where they will pay for treatmento the hospital.You need to

> get it in

> > writing from them. My doctor finally agreed when I'm in er I'm

> there because

> > I need to be. what happens is sometimes, I call them rolling

> attacks, by the

> > time I would get care, the numbers start to drop, then peak a few

> hrs later,

> > so on and so on. Get a new doctor as far as I am concerned. I had 7

> before I

> > found the right one. That 's the difference. good luck. paula

>

>

> PANCREATITIS SUPPORT NETWORK

> Online e-mail group

>

> To reply to this message hit " reply " or send an e-mail to:

Pancreatitisegroups

>

> To subscribe to this e-mail group, simply send an e-mail to:

Pancreatitis-subscribeegroups

>

>

[Guest guest]

,

you might want to try something that I've come up to deal with doctors. I found

it really hard to get

copies of my records because a number of mine have retired or moved out of state

and locating them was

difficult and other the people want just way too much money for them. So,

I've created a " packet "

of information for the emergency doctors and others who have no real clue as to

how to deal with

chronic pancreatitis. I have multiple conditions and I have a page for diagnosis

and the current round

of treatment. A page for my current prescriptions and what they treat and my

dosages. A page for

medications and other things I'm allergic to. A page for my surgeries, a page

for things, knowledge or

doctors I need, a page that lists as many of my cases of pancreatitis attacks

that includes things

like dates, hospitals treated at and the doctor who treated me. It's basically a

shorter version of

the medical record paper trail that doctor's love so much. If you wish I can

email you a copy so you

can see how I put the information together. I've found that it impresses the

doctors a lot and makes

them more willing to listen to me. I'm in the process of creating a page of

preferred drugs because

i've discover that the drug Phenergan doesn't work on me for nausea, but the

reglan works like a

charm and also a treatment page for my cases of pancreatitis because at this

point I know the meds and

treatment down pat.

I would definitely suggest you look for another doctor. Your current one sounds

like they don't know

quite how to deal with you. If you can, see if there are any GI specialists who

deal specifically with

the pancreas. I had one of my former GI doctors who was good enough to know

that he didn't know

everything and actively found me a specialist. That's how I got to my doctor in

San Francisco. I

recommend looking at a teaching hospital as they are more likely to have one

than a straight medical

center.

Kimber

liamhoha20@... wrote:

> Hi a,

>

> Thanks for the advise. I don't understand why these doctors do this

> to me. I should have started keeping ALL of my records myself from

> the beginning. I have about 8 years of stuff to start collecting.

> Maybe that will keep me busy & my mind off of my troubles. I do have

> a case manager through the insurance company and I have talked to her

> several times about this situation I'm in. I really need to call her

> again tomorrow. I'm just about at my wits end! Thanks again for the

> advise. I really appreciate it!!

>

> Lots of Hugs,

>

> P.S. And about this finding a new doctor? There are a whole 3 GI

> doctors in this City. One I had seen in the past, and the other I

> hear he isn't that great. Then I'm wondering, are any of them? And

> the 3rd, of course, being the one I have now. I have been to Ohio

> State, and now I see Dr. Lehman at IU, the only problem there is, he

> really won't do much long distance. I see him in a couple weeks &

> I'm going to be sure to tell him the problems I am having! Thanks.

> By the way, how are you doing?

>

> ______________________________________________________________________

>

>

> > PLEASE PLEASE call hospital administrater, document if you

> remember, copy

> > this letter, and send with complaint to your insurance co. My

> pancrease is

> > burnt out but most of time levels in some respect show, THEY just

> don't know.

> > Once you have a file on the condition that is YOUR condition when

> you go in.

> > I've been to hell and back with doctors and hospitals. I have first

> hand

> > experience in this baloney. The reason they need a particular

> number,

> > usually amalayse , is because your insurance co., whatever it is,

> has a fixed

> > number where they will pay for treatmento the hospital.You need to

> get it in

> > writing from them. My doctor finally agreed when I'm in er I'm

> there because

> > I need to be. what happens is sometimes, I call them rolling

> attacks, by the

> > time I would get care, the numbers start to drop, then peak a few

> hrs later,

> > so on and so on. Get a new doctor as far as I am concerned. I had 7

> before I

> > found the right one. That 's the difference. good luck. paula

>

>

> PANCREATITIS SUPPORT NETWORK

> Online e-mail group

>

> To reply to this message hit " reply " or send an e-mail to:

Pancreatitisegroups

>

> To subscribe to this e-mail group, simply send an e-mail to:

Pancreatitis-subscribeegroups

>

>

[Guest guest]

please remember your ins. case manager puts the interest of the co first.

what cit are you in? I am in Pitts. I think I can help locate a center nearby

for you. a let me know if I'm too pushy

[Guest guest]

please remember your ins. case manager puts the interest of the co first.

what cit are you in? I am in Pitts. I think I can help locate a center nearby

for you. a let me know if I'm too pushy

[Guest guest]

please remember your ins. case manager puts the interest of the co first.

what cit are you in? I am in Pitts. I think I can help locate a center nearby

for you. a let me know if I'm too pushy

[Guest guest]

Hi My name is I just read your email and I feel so bad for you. Is

there any possibility that you all so have ulcerative colitis? This causes

blood in the stool can be bright red and also causes diarrhea. I have had

attacks of it in the past its also pretty painful. Has any one checked you

for this? Can you not call Dr. Lemans office and get an earlier appointment?

You seem to have a lot of different doctors . Is that the way it works

where you live? Again I really feel for you and hope you can some relieve

soon

[Guest guest]

a, Please, never think you are being too pushy! I really need

any & all help I can get! Thanks for offering!

I'm sure my case manager does put the company first, but she has

helped me out sooooo much. With getting the TPN started, when I

couldn't find the " flutter valve " for my collapsed lung, she always

checks up on me, even if I'm not just out of the hospital.

I live in Springfield Ohio. And if you can help me, I truly

appreciate it!

Thanks again,

Lots of Hugs,

_____________________________________________________________________

> please remember your ins. case manager puts the interest of the co

first.

> what cit are you in? I am in Pitts. I think I can help locate a

center nearby

> for you. a let me know if I'm too pushy

[Guest guest]

Sorry ,

I forgot to answer about the ulcerative colitis........yes I think I

have been checked for anything & everything imaginable! My dad

passed away from colon/rectal cancer, so I get checked for everything

at least once a year. Thanks for the concern, and the advice about

it. How are you doing?

Lots of Hugs,

______________________________________________________________________

> Hi My name is I just read your email and I feel so bad

for you. Is

> there any possibility that you all so have ulcerative colitis?

This causes

> blood in the stool can be bright red and also causes diarrhea>

[Guest guest]

Sorry ,

I forgot to answer about the ulcerative colitis........yes I think I

have been checked for anything & everything imaginable! My dad

passed away from colon/rectal cancer, so I get checked for everything

at least once a year. Thanks for the concern, and the advice about

it. How are you doing?

Lots of Hugs,

______________________________________________________________________

> Hi My name is I just read your email and I feel so bad

for you. Is

> there any possibility that you all so have ulcerative colitis?

This causes

> blood in the stool can be bright red and also causes diarrhea>

[Guest guest]

Hi B.

Wow, 5 weeks? How did he do it? My has gotten some better, for

now. It seems to do this, and just like you said, everything I eat,

comes out just as fast within 15 mins. I hate it! I'm glad Jim only

had a virus, and he is doing better. Isn't it amazing how many

people have the same things going on, and their stories are so much a

like? I'm just amazed, because before I didn't know a single person

who had this awful illness. Thanks for your support. And tell Jim

I'm glad he is better. How are you doing these days? Hanging in

there ok?

Lots of Hugs,

______________________________________________________________________

> I can't believe what you wrote. You just duplicated Jim's story.

I hope

> your diarrhea doesn't last 5 weeks like his. Jim went to the ER

and they did

> nothing. He did get an I.V. overnight and was told to see his

doctor. He

> won't go back to his G.P. of 5 years. He thinks its all in Jim's

head. I'd

> like his doctor to come and stay at my house for a week. We rotate

bedrooms

> around here. He had diarrhea so bad, that he might just as well

have put a

> camp cot in the bathroom. I had never seen anything like it in my

life.

> Every ten minutes. If anything went into his mouth it came out

just as fast.

> Jim has a J-tube and would just put water in and still it didn't

work. I'm

> just the wife, but I can tell you when your down, your down. I

know my Jim

> well enough that when he is sick it is for real. He is an upbeat

guy and

> hates being in the house all the time. He finally went to Dr.

Oravec his GI

> and as soon as he heard Jim's symptoms, he said you have that new

strain of

> virus. Jim was so relieved. He stayed on the antibiotics for 10

days and

> now he is up and out again. The diarrhea is gone. Don't let the

diarrhea

> go too long like Jim did. I totally understand your depression

and pain.

> I get down when Jim is sick because I can't help him.

>

> I hope you feel better soon. Jim read your story and said, I

know exactly

> what she is going through.

>

> Bye for now.

>

> B.

[Guest guest]

Hi B.

Wow, 5 weeks? How did he do it? My has gotten some better, for

now. It seems to do this, and just like you said, everything I eat,

comes out just as fast within 15 mins. I hate it! I'm glad Jim only

had a virus, and he is doing better. Isn't it amazing how many

people have the same things going on, and their stories are so much a

like? I'm just amazed, because before I didn't know a single person

who had this awful illness. Thanks for your support. And tell Jim

I'm glad he is better. How are you doing these days? Hanging in

there ok?

Lots of Hugs,

______________________________________________________________________

> I can't believe what you wrote. You just duplicated Jim's story.

I hope

> your diarrhea doesn't last 5 weeks like his. Jim went to the ER

and they did

> nothing. He did get an I.V. overnight and was told to see his

doctor. He

> won't go back to his G.P. of 5 years. He thinks its all in Jim's

head. I'd

> like his doctor to come and stay at my house for a week. We rotate

bedrooms

> around here. He had diarrhea so bad, that he might just as well

have put a

> camp cot in the bathroom. I had never seen anything like it in my

life.

> Every ten minutes. If anything went into his mouth it came out

just as fast.

> Jim has a J-tube and would just put water in and still it didn't

work. I'm

> just the wife, but I can tell you when your down, your down. I

know my Jim

> well enough that when he is sick it is for real. He is an upbeat

guy and

> hates being in the house all the time. He finally went to Dr.

Oravec his GI

> and as soon as he heard Jim's symptoms, he said you have that new

strain of

> virus. Jim was so relieved. He stayed on the antibiotics for 10

days and

> now he is up and out again. The diarrhea is gone. Don't let the

diarrhea

> go too long like Jim did. I totally understand your depression

and pain.

> I get down when Jim is sick because I can't help him.

>

> I hope you feel better soon. Jim read your story and said, I

know exactly

> what she is going through.

>

> Bye for now.

>

> B.

[Guest guest]

Dear This is . I am at the moment waiting for the results

of my cat scan that was done on Wednesday it takes about a week to get

results. The surgeon is on holidays so I asked that a copy of the report be

sent to my family doctor so that I dont have to wait so long to hear the

news. Hopefully its something that can be rectified . Gall bladder removal

probably. I took a really bad reaction to the dye that they inject for cat

scans and have been sick with hives and itching ect. since. All that and I

had even took the predisione prior to the test to ward of a reaction. Oh

well its always something one just has to take it one day at a time.

[Guest guest]

Dear This is . I am at the moment waiting for the results

of my cat scan that was done on Wednesday it takes about a week to get

results. The surgeon is on holidays so I asked that a copy of the report be

sent to my family doctor so that I dont have to wait so long to hear the

news. Hopefully its something that can be rectified . Gall bladder removal

probably. I took a really bad reaction to the dye that they inject for cat

scans and have been sick with hives and itching ect. since. All that and I

had even took the predisione prior to the test to ward of a reaction. Oh

well its always something one just has to take it one day at a time.

[Guest guest]

,

here's the file. It's a MS word 2000 document. If you have a lower version of MS

Word, let me know

which one and I'll save the file as a down version so you can access it. I have

no problem with you or

anyone else stealing the idea. The more the merrier. It has made a big

difference in how my doctors

treat me (for the most part, there is the occasional idiot still out there).

Note to be aware of, when

you are in the emergency, pay attention to how the nurses react to a doctor.

That can tell you a lot

of how a doctor will act. If they say, " oh, him " in a digusted tone of voice,

beware. Also, if you're

aware enough, see how the doctor treats other patients. I had one jackass who

said to an eighty year

old woman who had a heart bypass and a huge history of heart attacks " What makes

you think you're

having chest pains? " he used such a tone of " you couldn't tell a chest pain from

a horse if you tried "

in his voice, I could tell he'd be a pain in the ass. I was right. He told me

take 2 aspirin and call

the doctor in the morning when I was having an attack.

As for your regular doctor, at least he's not pretending he knows what he is

doing and making things

worse with misdiagnosis. He's smart enough to know what he doesn't know. I've

learned to respect that

in doctors.

Kimber

liamhoha20@... wrote:

> Dear Kimber,

>

> Thanks for all the advise! Thats why I love this site, everyone is so

> helpful! If you would please, I would be very interested in seeing

> what you have put together. Is it ok if I steal your idea? I love

> it! I was seeing a doctor at Ohio State, which is a teaching

> hospital. That is where the dreaded 1st ERCP was performed, and I

> didn't leave for 6 weeks! My GI here in Spfld. won't do anything,

> except see me when I'm hospitalized, because he said Dr. Lehman at IU

> is one of the best in the world, and if I can be treated by the best,

> then thats what I need. Oh well. Thanks for all the wonderful

> ideas, and I'll be looking for your e-mail! Thanks again, my friend.

>

> Lots of Hugs,

>

> ______________________________________________________________________

>

>

> > > > PLEASE PLEASE call hospital administrater, document if you

> > > remember, copy

> > > > this letter, and send with complaint to your insurance co. My

> > > pancrease is

> > > > burnt out but most of time levels in some respect show, THEY

> just

> > > don't know.

> > > > Once you have a file on the condition that is YOUR condition

> when

> > > you go in.

> > > > I've been to hell and back with doctors and hospitals. I have

> first

> > > hand

> > > > experience in this baloney. The reason they need a particular

> > > number,

> > > > usually amalayse , is because your insurance co., whatever it

> is,

> > > has a fixed

> > > > number where they will pay for treatmento the hospital.You need

> to

> > > get it in

> > > > writing from them. My doctor finally agreed when I'm in er I'm

> > > there because

> > > > I need to be. what happens is sometimes, I call them rolling

> > > attacks, by the

> > > > time I would get care, the numbers start to drop, then peak a

> few

> > > hrs later,

> > > > so on and so on. Get a new doctor as far as I am concerned. I

> had 7

> > > before I

> > > > found the right one. That 's the difference. good luck. paula

> > >

> > >

> > > PANCREATITIS SUPPORT NETWORK

> > > Online e-mail group

> > >

> > > To reply to this message hit " reply " or send an e-mail to:

> Pancreatitisegroups

> > >

> > > To subscribe to this e-mail group, simply send an e-mail to:

> Pancreatitis-subscribeegroups

> > >

> > >

[Guest guest]

,

here's the file. It's a MS word 2000 document. If you have a lower version of MS

Word, let me know

which one and I'll save the file as a down version so you can access it. I have

no problem with you or

anyone else stealing the idea. The more the merrier. It has made a big

difference in how my doctors

treat me (for the most part, there is the occasional idiot still out there).

Note to be aware of, when

you are in the emergency, pay attention to how the nurses react to a doctor.

That can tell you a lot

of how a doctor will act. If they say, " oh, him " in a digusted tone of voice,

beware. Also, if you're

aware enough, see how the doctor treats other patients. I had one jackass who

said to an eighty year

old woman who had a heart bypass and a huge history of heart attacks " What makes

you think you're

having chest pains? " he used such a tone of " you couldn't tell a chest pain from

a horse if you tried "

in his voice, I could tell he'd be a pain in the ass. I was right. He told me

take 2 aspirin and call

the doctor in the morning when I was having an attack.

As for your regular doctor, at least he's not pretending he knows what he is

doing and making things

worse with misdiagnosis. He's smart enough to know what he doesn't know. I've

learned to respect that

in doctors.

Kimber

liamhoha20@... wrote:

> Dear Kimber,

>

> Thanks for all the advise! Thats why I love this site, everyone is so

> helpful! If you would please, I would be very interested in seeing

> what you have put together. Is it ok if I steal your idea? I love

> it! I was seeing a doctor at Ohio State, which is a teaching

> hospital. That is where the dreaded 1st ERCP was performed, and I

> didn't leave for 6 weeks! My GI here in Spfld. won't do anything,

> except see me when I'm hospitalized, because he said Dr. Lehman at IU

> is one of the best in the world, and if I can be treated by the best,

> then thats what I need. Oh well. Thanks for all the wonderful

> ideas, and I'll be looking for your e-mail! Thanks again, my friend.

>

> Lots of Hugs,

>

> ______________________________________________________________________

>

>

> > > > PLEASE PLEASE call hospital administrater, document if you

> > > remember, copy

> > > > this letter, and send with complaint to your insurance co. My

> > > pancrease is

> > > > burnt out but most of time levels in some respect show, THEY

> just

> > > don't know.

> > > > Once you have a file on the condition that is YOUR condition

> when

> > > you go in.

> > > > I've been to hell and back with doctors and hospitals. I have

> first

> > > hand

> > > > experience in this baloney. The reason they need a particular

> > > number,

> > > > usually amalayse , is because your insurance co., whatever it

> is,

> > > has a fixed

> > > > number where they will pay for treatmento the hospital.You need

> to

> > > get it in

> > > > writing from them. My doctor finally agreed when I'm in er I'm

> > > there because

> > > > I need to be. what happens is sometimes, I call them rolling

> > > attacks, by the

> > > > time I would get care, the numbers start to drop, then peak a

> few

> > > hrs later,

> > > > so on and so on. Get a new doctor as far as I am concerned. I

> had 7

> > > before I

> > > > found the right one. That 's the difference. good luck. paula

> > >

> > >

> > > PANCREATITIS SUPPORT NETWORK

> > > Online e-mail group

> > >

> > > To reply to this message hit " reply " or send an e-mail to:

> Pancreatitisegroups

> > >

> > > To subscribe to this e-mail group, simply send an e-mail to:

> Pancreatitis-subscribeegroups

> > >

> > >

[Guest guest]

Hi Kimber!

I'm so sorry you are not feeling so well. Yeah, when I first started

taking pain meds, (many years ago, it seems) I hated it too. Thanks

for the file! It is great! I do have a " Personal Health Records "

that was on " MY Software " when I got this computer last May. I had

to really change it to fit my history. This file you sent me will

really help too, I'm hoping. The last couple days I have been busy

printing all kinds of things off the internet & putting them in a

binder, so if & when I need to go back to the ER the yeah-who doctors

might believe I know what I'm talking about! Please, get lots of

rest this weekend, and I hope you get to feeling better real quick.

Thanks again, my friend. Lots of Hugs,

______________________________________________________________________

> ,

> here's the file. It's a MS word 2000 document. If you have a lower

version of MS Word, let me know

> which one and I'll save the file as a down version so you can

access it. I have no problem with you or

> anyone else stealing the idea. The more the merrier. It has made a

big difference in how my doctors

> treat me (for the most part, there is the occasional idiot still

out there). Note to be aware of, when

> you are in the emergency, pay attention to how the nurses react to

a doctor. That can tell you a lot

> of how a doctor will act. If they say, " oh, him " in a digusted tone

of voice, beware. Also, if you're

> aware enough, see how the doctor treats other patients. I had one

jackass who said to an eighty year

> old woman who had a heart bypass and a huge history of heart

attacks " What makes you think you're

> having chest pains? " he used such a tone of " you couldn't tell a

chest pain from a horse if you tried "

> in his voice, I could tell he'd be a pain in the ass. I was right.

He told me take 2 aspirin and call

> the doctor in the morning when I was having an attack.

>

> As for your regular doctor, at least he's not pretending he knows

what he is doing and making things

> worse with misdiagnosis. He's smart enough to know what he doesn't

know. I've learned to respect that

> in doctors.

> Kimber

>

>

[Guest guest]

,

here's the file. It's a MS word 2000 document. If you have a lower version of MS Word, let me know

which one and I'll save the file as a down version so you can access it. I have no problem with you or

anyone else stealing the idea. The more the merrier. It has made a big difference in how my doctors

treat me

Hi Kimber, I can see that all of us should have a file like yours of our medical history. Even with my pancreas removed I need a file to make things much more simple for doctors when I go to their office. Can you tell me about Glucosamine? Why do you take it and are there any adverse effects from it? My sister has been trying to get me to take it for my bones since I don't have ovaries and don't take estrogen. I have had ovarian cancer and am concerned what medicines I take. Thanks for any information you can give me. Shirley

[Guest guest]

,

here's the file. It's a MS word 2000 document. If you have a lower version of MS Word, let me know

which one and I'll save the file as a down version so you can access it. I have no problem with you or

anyone else stealing the idea. The more the merrier. It has made a big difference in how my doctors

treat me

Hi Kimber, I can see that all of us should have a file like yours of our medical history. Even with my pancreas removed I need a file to make things much more simple for doctors when I go to their office. Can you tell me about Glucosamine? Why do you take it and are there any adverse effects from it? My sister has been trying to get me to take it for my bones since I don't have ovaries and don't take estrogen. I have had ovarian cancer and am concerned what medicines I take. Thanks for any information you can give me. Shirley

[Guest guest]

I know the feeling totally I am so sorry you are going through all of

this it just isn't far...

you are in my thoughts and prayers

Hugs and kisses

your pancreatis pal from Michigan