Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 It must be the time for upper resp, I have had an inner ear infection and it really hasn't helped with the treatment for the sarcoid or getting over the surgeries I have had to have lately. Jeanna, You have so much extra on your plate. I really admire the spirit that you put behind your disease. Hugs to you. Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 Tracie, you get to be the human show and tell with your gp like I do, isn't it good to know your broken down old body is good for something. I hope you get to start the remicade soon and hopefully will get to feeling better. your friendly Texan, jeanna PS It must be the time for upper resp, I have had an inner ear infection and it really hasn't helped with the treatment for the sarcoid or getting over the surgeries I have had to have lately. -- Remicade I will be starting Remicade treatment soon- I expect to hear from my GP next week as to when I start. Right now, I'm on antibiotics for an upper resp. infection, so i know it'll be late next week that I can start- if the insurance blessings have been recvd.Fortunately, I will be able to go the infusion center here in Paradise- just 8 miles frm home. My GP had a hayday today, she got to feel the "waffles" in the back of my arms and the granulomas in my joints. She even brought in the office staff to "feel me" so that they all had an idea of what is happening (and maybe develop some compassion). Everyone was like--oh shit! That has to really hurt! duh!Tracie~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 Hope you feel better soon Tracie and the Remicade gets approved and all goes smoothly for a change... Best Wishes... Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2003 Report Share Posted December 6, 2003 Hi Tracie- I would be really interested in what you think of the Remicade treatment after you have it. My rheumatologist would like me to try it (if it passes thru the insurance co.). I get the same reaction to the subcutaneous tumor and nodules on my arm, though. EVERYBODY in the office has to look at it and touch it and they are in awe. Especially the students (there are a lot of those in Boston) But it doesn't bother me , I've had it for 9 mos now and its " old hat " ! BUt anyway I'm just getting over a bladder infection myself and have been kind of waiting and hesitating on the Remicade procedure. Could you keep me posted on on how you are doing? I would really appreciate it. THanks a lot. Luv, Debbie T. > I will be starting Remicade treatment soon- I expect to hear from my GP next > week as to when I start. Right now, I'm on antibiotics for an upper resp. > infection, so i know it'll be late next week that I can start- if the insurance > blessings have been recvd. > > Fortunately, I will be able to go the infusion center here in Paradise- just > 8 miles frm home. > > My GP had a hayday today, she got to feel the " waffles " in the back of my > arms and the granulomas in my joints. She even brought in the office staff to > " feel me " so that they all had an idea of what is happening (and maybe develop > some compassion). Everyone was like--oh shit! That has to really hurt! duh! > > Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2003 Report Share Posted December 6, 2003 Debbie, You bet I will let you know how the Remicade goes. I know that it helped Aisha for a while, and it helped . I too, am waiting for the insurance to cover it. Hopefully we'll know next week- or I wait until my Medicare comes into effect on the 1 Feb 2004. But i want it now! Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2003 Report Share Posted December 7, 2003 Thank ya! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2004 Report Share Posted March 7, 2004 ELODIA grits are good for combating murphy's law.......lol Quint Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2004 Report Share Posted March 7, 2004 ELODIA grits are good for combating murphy's law.......lol Quint Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Elodia, I started Remicade back in December, and I'm just now really starting to feel the effects of it. I also feel bad the day after the infusion, and it's the same with the MTX as well. I'm actually able to get up and down for the first time in a year without intense pain, and I'm sleeping so much better. I noticed that the effects wore off after 7 weeks, so my doctor has decided to increase frequency to every 7 weeks for now. I guess we'll see how that goes for a bit and then go from there. I hope this medication works for you. I've spoken to so many others that it's helped tremendously. Best wishes, Neisa Remicade Ok it's my turn. Will all you people taking the Remicade please give an update on how you think it is doing for you? Elodia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Elodia, I started Remicade back in December, and I'm just now really starting to feel the effects of it. I also feel bad the day after the infusion, and it's the same with the MTX as well. I'm actually able to get up and down for the first time in a year without intense pain, and I'm sleeping so much better. I noticed that the effects wore off after 7 weeks, so my doctor has decided to increase frequency to every 7 weeks for now. I guess we'll see how that goes for a bit and then go from there. I hope this medication works for you. I've spoken to so many others that it's helped tremendously. Best wishes, Neisa Remicade Ok it's my turn. Will all you people taking the Remicade please give an update on how you think it is doing for you? Elodia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Elodia, I started Remicade back in December, and I'm just now really starting to feel the effects of it. I also feel bad the day after the infusion, and it's the same with the MTX as well. I'm actually able to get up and down for the first time in a year without intense pain, and I'm sleeping so much better. I noticed that the effects wore off after 7 weeks, so my doctor has decided to increase frequency to every 7 weeks for now. I guess we'll see how that goes for a bit and then go from there. I hope this medication works for you. I've spoken to so many others that it's helped tremendously. Best wishes, Neisa Remicade Ok it's my turn. Will all you people taking the Remicade please give an update on how you think it is doing for you? Elodia Quote Link to comment Share on other sites More sharing options...
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