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Re: Stretched Stoma - SLD response

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I have to jump in here and add my two cents...

I haven't posted in quite a while because I was too ashamed. After talking

privately to (thanks ever so much !!), and my doctors I have

come to the conclusion that I have a staple line disruption.

Unlike the previous poster, I am not eating abnormally. I am a proximal Open

RNY. Had my surgery 10/31/97. November of 2000 I noticed a gain of 10 lbs

which had me concerned. Since then I have severely limited my carb intake,

upped my water (64-80 ounces or better) , increased my exercise (exercising 5

days out of 7) and done whatever is necessary to get rid of the extra poundage.

Guess what? I gained an additional 20 lbs in a period of 8 weeks. When, in a

panic, I contacted the medical community for help. They wanted me to come in to

talk to their nutritionists. Mind you, these nutritionists have admitted that

they don't have a clue as to how to treat and advise weight loss surgery

patients.

I am fed up with people immediately assuming that you are eating like a pig when

there is a weight gain. If a " normie " were to gain that much weight in that

short a period, the doctors and medical staff would be breaking their necks

running tests and trying to find a mechanical reason for the problem. The last

thing they would ever consider doing is shaming the patient by handing them over

to a nutritionist and giving them dietary advice.

Mind you, not every one has a plumbing problem and some of us do overeat and

stuff ourselves with the wrong foods. But for those of us that are diligent

soldiers in this battle, I think a little effort should go into investigating

other reasons for weight gain.

I am desperate to have this problem fixed. I am also very certain that the

problem is mechanical not psychological. I am not consuming nowhere near the

calories necessary to put this much weight on me this fast. It is scary because

of the co-morbidities that I endured as a result of my previous 318 lbs. I

don't need to put my life in peril again..

was the only person I contacted that took me seriously. Prior to

speaking to her, I was in deep depression, thinking that I was a failure. To

watch your food intake like a hawk, exercise no matter how bad you are feeling,

drink enough fluid and water to float a boat and then not to be believed when

the scale keeps creeping up is devastating!

Before you mention it,... Yes! I have increased my protein as well. My heart

goes out to anyone who is going through this. I am told that some of us

proximal RNY's do experience this in the third or fourth year. I just was one

of the unlucky ones.

Hope to find help soon.

Carol

Richmond, VA

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There is no doubt that there is something wrong and no doubt that somehow it

can be fixed. If it is indeed a SLD, it will show on a barium swallow

x-ray. If it isn't SLD, it sounds like it could be hormonal effecting your

metabolism and how your body is using calories. Keep on pushing the medical

community until they come up with the reason for the weight gain AND a

solution. There are many other medical conditions that can cause huge sudden

weight gains that have nothing to do with how you're eating . . . I hope its

nothing serious and it is something simple like SLD . . . Let us know, we all

certainly understand your fear and frustration . . .

:o) Vicki

In a message dated 08/29/2001 8:37:06 AM Pacific Daylight Time,

civory@... writes:

> Mind you, not every one has a plumbing problem and some of us do overeat

and

> stuff ourselves with the wrong foods. But for those of us that are

diligent

> soldiers in this battle, I think a little effort should go into

investigating

> other reasons for weight gain.

>

> I am desperate to have this problem fixed. I am also very certain that

the

> problem is mechanical not psychological. I am not consuming nowhere near

the

> calories necessary to put this much weight on me this fast. It is scary

> because of the co-morbidities that I endured as a result of my previous 318

> lbs. I don't need to put my life in peril again..

>

> was the only person I contacted that took me seriously. Prior to

> speaking to her, I was in deep depression, thinking that I was a failure.

To

> watch your food intake like a hawk, exercise no matter how bad you are

> feeling, drink enough fluid and water to float a boat and then not to be

> believed when the scale keeps creeping up is devastating!

>

> Before you mention it,... Yes! I have increased my protein as well. My

> heart goes out to anyone who is going through this. I am told that some of

> us proximal RNY's do experience this in the third or fourth year. I just

was

> one of the unlucky ones.

>

> Hope to find help soon.

> Carol

> Richmond, VA

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We might have to upgrade her from Mama to Saint . She's

been a normie for years now, yet she always supports us and always believes

in us. In a society that despises obesity, I'd call that a miracle.

Keep us posted Carol. The further out I get, the more I realize how

important it is to stay connected to others who are in the same boat...even

if they're on the other side of the boat.

Kim in Hotlanta...fellow diligent solider

Re: Stretched Stoma - SLD response

> I have to jump in here and add my two cents...

>

> I haven't posted in quite a while because I was too ashamed. After

talking privately to (thanks ever so much !!), and my

doctors I have come to the conclusion that I have a staple line disruption.

>

> Unlike the previous poster, I am not eating abnormally. I am a proximal

Open RNY. Had my surgery 10/31/97. November of 2000 I noticed a gain of 10

lbs which had me concerned. Since then I have severely limited my carb

intake, upped my water (64-80 ounces or better) , increased my exercise

(exercising 5 days out of 7) and done whatever is necessary to get rid of

the extra poundage. Guess what? I gained an additional 20 lbs in a period

of 8 weeks. When, in a panic, I contacted the medical community for help.

They wanted me to come in to talk to their nutritionists. Mind you, these

nutritionists have admitted that they don't have a clue as to how to treat

and advise weight loss surgery patients.

>

> I am fed up with people immediately assuming that you are eating like a

pig when there is a weight gain. If a " normie " were to gain that much

weight in that short a period, the doctors and medical staff would be

breaking their necks running tests and trying to find a mechanical reason

for the problem. The last thing they would ever consider doing is shaming

the patient by handing them over to a nutritionist and giving them dietary

advice.

>

> Mind you, not every one has a plumbing problem and some of us do overeat

and stuff ourselves with the wrong foods. But for those of us that are

diligent soldiers in this battle, I think a little effort should go into

investigating other reasons for weight gain.

>

> I am desperate to have this problem fixed. I am also very certain that

the problem is mechanical not psychological. I am not consuming nowhere

near the calories necessary to put this much weight on me this fast. It is

scary because of the co-morbidities that I endured as a result of my

previous 318 lbs. I don't need to put my life in peril again..

>

> was the only person I contacted that took me seriously. Prior to

speaking to her, I was in deep depression, thinking that I was a failure.

To watch your food intake like a hawk, exercise no matter how bad you are

feeling, drink enough fluid and water to float a boat and then not to be

believed when the scale keeps creeping up is devastating!

>

> Before you mention it,... Yes! I have increased my protein as well. My

heart goes out to anyone who is going through this. I am told that some of

us proximal RNY's do experience this in the third or fourth year. I just

was one of the unlucky ones.

>

> Hope to find help soon.

> Carol

> Richmond, VA

>

>

> Homepage: http://groups.yahoo.com/group/Graduate-OSSG

>

> Unsubscribe: mailto:Graduate-OSSG-unsubscribe

>

>

>

>

>

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Well, proof that I am as stubborn as I am reputed to be. If you're nuts,

then fine, we'll get to it. BUT FIRST, rule out the mechanics. Save the

guilt and " I THOUGHT I was OK " for later, but for now, check the mechanics.

(not to mention any other, AHEM, names in the land of the southern drawl)

When the brakes go out on your car, you do not stop and think about it or

ask yourself if, hmm, did I put my foot there? Nah, maybe I didn't. And try

it again? Nooooooooo. You check the mehcnaics FIRST, check your sanity

later.

But yes, I'm stubborn that way.

Re: Stretched Stoma - SLD response

> I have to jump in here and add my two cents...

>

> I haven't posted in quite a while because I was too ashamed. After

talking privately to (thanks ever so much !!), and my

doctors I have come to the conclusion that I have a staple line disruption.

>

> Unlike the previous poster, I am not eating abnormally. I am a proximal

Open RNY. Had my surgery 10/31/97. November of 2000 I noticed a gain of 10

lbs which had me concerned. Since then I have severely limited my carb

intake, upped my water (64-80 ounces or better) , increased my exercise

(exercising 5 days out of 7) and done whatever is necessary to get rid of

the extra poundage. Guess what? I gained an additional 20 lbs in a period

of 8 weeks. When, in a panic, I contacted the medical community for help.

They wanted me to come in to talk to their nutritionists. Mind you, these

nutritionists have admitted that they don't have a clue as to how to treat

and advise weight loss surgery patients.

>

> I am fed up with people immediately assuming that you are eating like a

pig when there is a weight gain. If a " normie " were to gain that much

weight in that short a period, the doctors and medical staff would be

breaking their necks running tests and trying to find a mechanical reason

for the problem. The last thing they would ever consider doing is shaming

the patient by handing them over to a nutritionist and giving them dietary

advice.

>

> Mind you, not every one has a plumbing problem and some of us do overeat

and stuff ourselves with the wrong foods. But for those of us that are

diligent soldiers in this battle, I think a little effort should go into

investigating other reasons for weight gain.

>

> I am desperate to have this problem fixed. I am also very certain that

the problem is mechanical not psychological. I am not consuming nowhere

near the calories necessary to put this much weight on me this fast. It is

scary because of the co-morbidities that I endured as a result of my

previous 318 lbs. I don't need to put my life in peril again..

>

> was the only person I contacted that took me seriously. Prior to

speaking to her, I was in deep depression, thinking that I was a failure.

To watch your food intake like a hawk, exercise no matter how bad you are

feeling, drink enough fluid and water to float a boat and then not to be

believed when the scale keeps creeping up is devastating!

>

> Before you mention it,... Yes! I have increased my protein as well. My

heart goes out to anyone who is going through this. I am told that some of

us proximal RNY's do experience this in the third or fourth year. I just

was one of the unlucky ones.

>

> Hope to find help soon.

> Carol

> Richmond, VA

>

>

> Homepage: http://groups.yahoo.com/group/Graduate-OSSG

>

> Unsubscribe: mailto:Graduate-OSSG-unsubscribe

>

>

>

>

>

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Share on other sites

Well, proof that I am as stubborn as I am reputed to be. If you're nuts,

then fine, we'll get to it. BUT FIRST, rule out the mechanics. Save the

guilt and " I THOUGHT I was OK " for later, but for now, check the mechanics.

(not to mention any other, AHEM, names in the land of the southern drawl)

When the brakes go out on your car, you do not stop and think about it or

ask yourself if, hmm, did I put my foot there? Nah, maybe I didn't. And try

it again? Nooooooooo. You check the mehcnaics FIRST, check your sanity

later.

But yes, I'm stubborn that way.

Re: Stretched Stoma - SLD response

> I have to jump in here and add my two cents...

>

> I haven't posted in quite a while because I was too ashamed. After

talking privately to (thanks ever so much !!), and my

doctors I have come to the conclusion that I have a staple line disruption.

>

> Unlike the previous poster, I am not eating abnormally. I am a proximal

Open RNY. Had my surgery 10/31/97. November of 2000 I noticed a gain of 10

lbs which had me concerned. Since then I have severely limited my carb

intake, upped my water (64-80 ounces or better) , increased my exercise

(exercising 5 days out of 7) and done whatever is necessary to get rid of

the extra poundage. Guess what? I gained an additional 20 lbs in a period

of 8 weeks. When, in a panic, I contacted the medical community for help.

They wanted me to come in to talk to their nutritionists. Mind you, these

nutritionists have admitted that they don't have a clue as to how to treat

and advise weight loss surgery patients.

>

> I am fed up with people immediately assuming that you are eating like a

pig when there is a weight gain. If a " normie " were to gain that much

weight in that short a period, the doctors and medical staff would be

breaking their necks running tests and trying to find a mechanical reason

for the problem. The last thing they would ever consider doing is shaming

the patient by handing them over to a nutritionist and giving them dietary

advice.

>

> Mind you, not every one has a plumbing problem and some of us do overeat

and stuff ourselves with the wrong foods. But for those of us that are

diligent soldiers in this battle, I think a little effort should go into

investigating other reasons for weight gain.

>

> I am desperate to have this problem fixed. I am also very certain that

the problem is mechanical not psychological. I am not consuming nowhere

near the calories necessary to put this much weight on me this fast. It is

scary because of the co-morbidities that I endured as a result of my

previous 318 lbs. I don't need to put my life in peril again..

>

> was the only person I contacted that took me seriously. Prior to

speaking to her, I was in deep depression, thinking that I was a failure.

To watch your food intake like a hawk, exercise no matter how bad you are

feeling, drink enough fluid and water to float a boat and then not to be

believed when the scale keeps creeping up is devastating!

>

> Before you mention it,... Yes! I have increased my protein as well. My

heart goes out to anyone who is going through this. I am told that some of

us proximal RNY's do experience this in the third or fourth year. I just

was one of the unlucky ones.

>

> Hope to find help soon.

> Carol

> Richmond, VA

>

>

> Homepage: http://groups.yahoo.com/group/Graduate-OSSG

>

> Unsubscribe: mailto:Graduate-OSSG-unsubscribe

>

>

>

>

>

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I also had a staple line disruption. My original open RNY was on 8/11/99,

and in March of 2000, after a very long plateau and then weight gain, I went

for an upper GI...there it was. Carol, I know exactly how you feel because I

used to be quite active on these lists, then after finding out, I went into a

major slump, not wanting to answer any more questions, tired of newbies

asking me if I overate the surgery, etc...you get the picture, so I stopped

posting. Well, I got lucky and got approved by a new insurance company and

had a lap stomach transection on 8/24/00.

Anyway, Dr. Gagner, who did the lap transection, told me that my stoma had

stretched, but it was too dangerous to redo it, even though he was already in

there. That's the bad news. It seems that the risks of repairing a

stretched stoma, even when already under, are sometimes just too great.

As for the new and old transected stomachs finding each other again and

rejoining, yes, it can happen. He also explained when he transects a

stomach, he kind of folds or tucks the ends under or away from each other to

try to prevent this very thing. Well, we all know, no surgery is perfect.

If you start gaining for no apparent reason, first of all, stop blaming

yourself and go have an upper GI series. You'll then know if it's

mechanical, and deal with that. If not, then start investigating hormones or

other possibilities. Whatever it is, we're all here for you.

Good luck,

in NJ

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In a message dated 8/30/01 7:15:12 PM Pacific Daylight Time, watnext@...

writes:

> It seems that the risks of repairing a stretched stoma, even when already

> under, are sometimes just too great.

Okay, Folks, several of you have mentioned this. Now, WHY??

Please respond to me as well as to the list: I am flying out tomorrow morning

at 0-dark-hundred (okay really, 6 AM) to the San Diego area for a 4-day

weekend. I won't get back to my house until Tuesday evening. (spending Monday

night at my mother's as it is 25 mins closer to work and since I am returning

home at midnight Monday night...need I say more?) So, I will go no mail for

while I am gone.

Thanks and Y'All Have a Nice Labor Day Weekend!

In Charlottesville, VA

Roux-en-Y with Gall Bladder Removal: March 31, 1999, 318 lb.

July 26, 2001 -- 194

5'6.5 "

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In a message dated 8/31/01 12:50:22 AM Eastern Daylight Time,

Graduate-OSSG writes:

<<

In a message dated 8/30/01 7:15:12 PM Pacific Daylight Time, watnext@...

writes:

> It seems that the risks of repairing a stretched stoma, even when already

> under, are sometimes just too great.

Okay, Folks, several of you have mentioned this. Now, WHY??

>>

I guess because of the possibility of leaks, peritonitis and maybe adhesions,

as well as the additional time under. Don't know for sure, but that was the

impression I got.

in NJ

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