Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Prednisone is very hard on the stomach and digestive tract. Many people who are on it are also on some kind of anti-ulcer drug. Maybe that's what you're doctor was referring to. Pierre Lori > > Lori how did your daughters doctor appointment go. I'm sorry I missed your e.mail last night. My neph has always asked me if I have any pain just below my ribcage since starting pred...for the life of me I can't remember the reason why but I know I was supposed to call him if I ever had severe pain there. I hope your daughter just has some digestive tract upset from the pred and that it's easily resolved. > > Please let us know what they find out. You are both in my thoughts. > > Amy G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 I'm just getting really concerned with everything that is going on, she is taking so many medications. She is complaining about her stomache, sweating at night, and have to go to the bathroom alot, she is also really pale still. Lori > Prednisone is very hard on the stomach and digestive tract. Many people who > are on it are also on some kind of anti-ulcer drug. Maybe that's what you're > doctor was referring to. > Pierre > > Lori > > > > > > Lori how did your daughters doctor appointment go. I'm sorry I missed > your e.mail last night. My neph has always asked me if I have any pain just > below my ribcage since starting pred...for the life of me I can't remember > the reason why but I know I was supposed to call him if I ever had severe > pain there. I hope your daughter just has some digestive tract upset from > the pred and that it's easily resolved. > > > > Please let us know what they find out. You are both in my thoughts. > > > > Amy G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Lori, How long has she been taking the pred again? and Is she on daily doses or every other day doses? The first few weeks I was on the high doses I was ash white and looked like death warmed over. The night sweats are from the pred. I had them until my dose was under 40mg daily. I used to soak my sheets nightly and it's not fun at all. Getting up at night is also a pred thing, I could hardly sleep for more than 4-5 hours at a time but then I was wiped out by mid-afternoon and had to take a short nap. Is she on a diuretic? That could be the cause of having to get up to go to the bathroom a lot. It could also be...from the pred...(bet ya didn't see that one coming). On high doses I was up at least 2-3 times a night to pee. Once down under 40mg the night peeing let up a bit and now that I'm down to 7.5mg I can sleep for 8-9 hours without having to get up at all. The stomach pain could also be caused by stress....on the outside she may be handling things o.k. but inside she may be a nervous wreck. I just pulled out my notes in my b/p record book and the first 5 weeks on the prednisone starting at 80mg and coming down to 60mg daily I have written...nauseous/stomach pain. I was checked out for it a few times but they never found anything but " it's the prednisone " . I would still give her doctors a call about it and see what they want to do. Being that she is pale and not eating they may want to check her out again. Please remember this is temporary and you can pull thru this...we're here when you need us. Amy G. Lori > > > > > > Lori how did your daughters doctor appointment go. I'm sorry I missed > your e.mail last night. My neph has always asked me if I have any pain just > below my ribcage since starting pred...for the life of me I can't remember > the reason why but I know I was supposed to call him if I ever had severe > pain there. I hope your daughter just has some digestive tract upset from > the pred and that it's easily resolved. > > > > Please let us know what they find out. You are both in my thoughts. > > > > Amy G. To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Lori, How long has she been taking the pred again? and Is she on daily doses or every other day doses? The first few weeks I was on the high doses I was ash white and looked like death warmed over. The night sweats are from the pred. I had them until my dose was under 40mg daily. I used to soak my sheets nightly and it's not fun at all. Getting up at night is also a pred thing, I could hardly sleep for more than 4-5 hours at a time but then I was wiped out by mid-afternoon and had to take a short nap. Is she on a diuretic? That could be the cause of having to get up to go to the bathroom a lot. It could also be...from the pred...(bet ya didn't see that one coming). On high doses I was up at least 2-3 times a night to pee. Once down under 40mg the night peeing let up a bit and now that I'm down to 7.5mg I can sleep for 8-9 hours without having to get up at all. The stomach pain could also be caused by stress....on the outside she may be handling things o.k. but inside she may be a nervous wreck. I just pulled out my notes in my b/p record book and the first 5 weeks on the prednisone starting at 80mg and coming down to 60mg daily I have written...nauseous/stomach pain. I was checked out for it a few times but they never found anything but " it's the prednisone " . I would still give her doctors a call about it and see what they want to do. Being that she is pale and not eating they may want to check her out again. Please remember this is temporary and you can pull thru this...we're here when you need us. Amy G. Lori > > > > > > Lori how did your daughters doctor appointment go. I'm sorry I missed > your e.mail last night. My neph has always asked me if I have any pain just > below my ribcage since starting pred...for the life of me I can't remember > the reason why but I know I was supposed to call him if I ever had severe > pain there. I hope your daughter just has some digestive tract upset from > the pred and that it's easily resolved. > > > > Please let us know what they find out. You are both in my thoughts. > > > > Amy G. To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Lori, How long has she been taking the pred again? and Is she on daily doses or every other day doses? The first few weeks I was on the high doses I was ash white and looked like death warmed over. The night sweats are from the pred. I had them until my dose was under 40mg daily. I used to soak my sheets nightly and it's not fun at all. Getting up at night is also a pred thing, I could hardly sleep for more than 4-5 hours at a time but then I was wiped out by mid-afternoon and had to take a short nap. Is she on a diuretic? That could be the cause of having to get up to go to the bathroom a lot. It could also be...from the pred...(bet ya didn't see that one coming). On high doses I was up at least 2-3 times a night to pee. Once down under 40mg the night peeing let up a bit and now that I'm down to 7.5mg I can sleep for 8-9 hours without having to get up at all. The stomach pain could also be caused by stress....on the outside she may be handling things o.k. but inside she may be a nervous wreck. I just pulled out my notes in my b/p record book and the first 5 weeks on the prednisone starting at 80mg and coming down to 60mg daily I have written...nauseous/stomach pain. I was checked out for it a few times but they never found anything but " it's the prednisone " . I would still give her doctors a call about it and see what they want to do. Being that she is pale and not eating they may want to check her out again. Please remember this is temporary and you can pull thru this...we're here when you need us. Amy G. Lori > > > > > > Lori how did your daughters doctor appointment go. I'm sorry I missed > your e.mail last night. My neph has always asked me if I have any pain just > below my ribcage since starting pred...for the life of me I can't remember > the reason why but I know I was supposed to call him if I ever had severe > pain there. I hope your daughter just has some digestive tract upset from > the pred and that it's easily resolved. > > > > Please let us know what they find out. You are both in my thoughts. > > > > Amy G. To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 Lori I do think her body will get used to these medications after a while, and it won't be as bad. Having to go to the bathroom during the night is not a good thing, because it's important for people to get a good night's sleep. How much is she drinking after 6 PM? If you could limit that, it might help. The timing of medications can also affect this. For example, it's not a good idea to take a diuretic too late in the day. Pierre Re: Lori > > > I'm just getting really concerned with everything that is going on, > she is taking so many medications. She is complaining about her > stomache, sweating at night, and have to go to the bathroom alot, > she is also really pale still. > > Lori > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 Lori, I am so sorry had to listen to the lady and got so upset. Sometimes well-meaning people just don't think things out before they speak. has so much to adjust to doesn't she? In a message dated 12/18/2004 4:42:56 PM Pacific Standard Time, littlell523@... writes: > But I really don't have any idea how to help her through that, on top of > everything else we went to her sisters Christmas Program last night and a lady > that we all know was there and she started telling that she has Kidney > Problems and that they are no big deal, that she really doesn't need to take > meds for it and that I shouldn't be taking her blood pressure, the only > problem that she is going to have is when she is old enough to want kids, she is > not going to be able to, because it could kill her. I wanted to just blast > the stupid lady in the mouth. Needless to say I wasn't very nice and my > daughter started crying about what this loon told her. People can be really > stupid. > > Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 Amy is right Lori, and I should have added to my earlier message that I had two successful pregnancies with IgAN, and many of our other members have as well. In a message dated 12/18/2004 5:17:12 PM Pacific Standard Time, purrfect@... writes: > Please let know that she will be o.k. and that things will get > better once she gets used to the routine. There are others of us out here that > are going thru the same things as she is and though it's hard it is worth it in > the end. > > Amy G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 I have never really paid to much attention to how much she drinks at night. I will find out. Thank you. > Lori > > I do think her body will get used to these medications after a while, and it > won't be as bad. > > Having to go to the bathroom during the night is not a good thing, because > it's important for people to get a good night's sleep. How much is she > drinking after 6 PM? If you could limit that, it might help. The timing of > medications can also affect this. For example, it's not a good idea to take > a diuretic too late in the day. > > Pierre > > Re: Lori > > > > > > > > I'm just getting really concerned with everything that is going on, > > she is taking so many medications. She is complaining about her > > stomache, sweating at night, and have to go to the bathroom alot, > > she is also really pale still. > > > > Lori > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 She has been on the pred for almost 3 weeks, she is taking 80 mg a day plus 2 stomache pills 2x a day. Wow this is one heavy drug.... Her doctor is afraid that she is getting an ucler.? I called the doctor here in town today and they told me not to stress it that it takes a few weeks for the pred not to do this. I am going to call her Kidney doctors on Monday. No really I going to call her Kidney doctors tomorrow, someone is going to tell me something. and I have talked about what is going on, but your right I really think that she is keeping a lot of things inside. She hates the diet that she is on and she hates taking all the meds. But I really don't have any idea how to help her through that, on top of everything else we went to her sisters Christmas Program last night and a lady that we all know was there and she started telling that she has Kidney Problems and that they are no big deal, that she really doesn't need to take meds for it and that I shouldn't be taking her blood pressure, the only problem that she is going to have is when she is old enough to want kids, she is not going to be able to, because it could kill her. I wanted to just blast the stupid lady in the mouth. Needless to say I wasn't very nice and my daughter started crying about what this loon told her. People can be really stupid. Lori Amy Griswold wrote: Lori, How long has she been taking the pred again? and Is she on daily doses or every other day doses? The first few weeks I was on the high doses I was ash white and looked like death warmed over. The night sweats are from the pred. I had them until my dose was under 40mg daily. I used to soak my sheets nightly and it's not fun at all. Getting up at night is also a pred thing, I could hardly sleep for more than 4-5 hours at a time but then I was wiped out by mid-afternoon and had to take a short nap. Is she on a diuretic? That could be the cause of having to get up to go to the bathroom a lot. It could also be...from the pred...(bet ya didn't see that one coming). On high doses I was up at least 2-3 times a night to pee. Once down under 40mg the night peeing let up a bit and now that I'm down to 7.5mg I can sleep for 8-9 hours without having to get up at all. The stomach pain could also be caused by stress....on the outside she may be handling things o.k. but inside she may be a nervous wreck. I just pulled out my notes in my b/p record book and the first 5 weeks on the prednisone starting at 80mg and coming down to 60mg daily I have written...nauseous/stomach pain. I was checked out for it a few times but they never found anything but " it's the prednisone " . I would still give her doctors a call about it and see what they want to do. Being that she is pale and not eating they may want to check her out again. Please remember this is temporary and you can pull thru this...we're here when you need us. Amy G. Lori > > > > > > Lori how did your daughters doctor appointment go. I'm sorry I missed > your e.mail last night. My neph has always asked me if I have any pain just > below my ribcage since starting pred...for the life of me I can't remember > the reason why but I know I was supposed to call him if I ever had severe > pain there. I hope your daughter just has some digestive tract upset from > the pred and that it's easily resolved. > > > > Please let us know what they find out. You are both in my thoughts. > > > > Amy G. To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 (((((((((Lori and )))))))))) If I was there I would have decked that woman for you both! Yes for some people it's a very slow progressing disease and they don't need to do much for it, but for others of us we DO need to watch our b/p and our diet and our meds and our lifestyle....what a idiot that woman was. Let me tell you that you are doing the right thing in taking her b/p daily to make sure it stays under control. Also childbirth isn't totally out of the question when she gets older and it won't kill her she'll just need to be under a high risk OB's care throughout the pregnancy and make sure she isn't on any drugs that could hurt the baby. Pregnancy can cause your b/p to rise and it can cause you to spill more protein in the urine but that's why you have doctors watching over you. Many of the women here have had successful pregnancies with IgAN. There is a possibility that her kidney function will be down far enough that the doctors tell her not to get pregnant but cross that bridge when you come to it...and remember there is always the adoption option. About the ulcers, yes prednisone can cause them and you have to be careful about the stomach pain due to that. I had to start on Nexium to control my nausea caused by the pred. The other question I had for you is: Is she taking her pred at the same time every day and with a FULL meal? I found that if I try to take it with just a glass of soy milk or a bit of toast it would make me feel very nauseous but if I take it will a full bowl of cereal and a glass of juice I'm o.k. You really need that food in your stomach to soften the effects of the drug on your stomach lining. Please let know that she will be o.k. and that things will get better once she gets used to the routine. There are others of us out here that are going thru the same things as she is and though it's hard it is worth it in the end. Amy G. Lori > > > > > > Lori how did your daughters doctor appointment go. I'm sorry I missed > your e.mail last night. My neph has always asked me if I have any pain just > below my ribcage since starting pred...for the life of me I can't remember > the reason why but I know I was supposed to call him if I ever had severe > pain there. I hope your daughter just has some digestive tract upset from > the pred and that it's easily resolved. > > > > Please let us know what they find out. You are both in my thoughts. > > > > Amy G. To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 I hope you weren't very nice Lori! In fact, I hope you really made her evening. I can deal with stupid people and I can deal with people who talk to much - but the combination is really deadly. I'm sorry that had to go through this. Cy Lori > > > > > > > > > > Lori how did your daughters doctor appointment go. I'm sorry I > missed > > your e.mail last night. My neph has always asked me if I have any > pain just > > below my ribcage since starting pred...for the life of me I can't > remember > > the reason why but I know I was supposed to call him if I ever had > severe > > pain there. I hope your daughter just has some digestive tract > upset from > > the pred and that it's easily resolved. > > > > > > Please let us know what they find out. You are both in my > thoughts. > > > > > > Amy G. > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 It amazes me what other people will say. I told her not to worry about what was said, that she is not educated on your condition. I also told her that in her life she will run into people that will think they know everything and in reality they know nothing. That some people talk just so that they can hear themselves talk. Lori > Lori, > > I am so sorry had to listen to the lady and got so upset. Sometimes > well-meaning people just don't think things out before they speak. > > has so much to adjust to doesn't she? > > > > In a message dated 12/18/2004 4:42:56 PM Pacific Standard Time, > littlell523@y... writes: > > > But I really don't have any idea how to help her through that, on top of > > everything else we went to her sisters Christmas Program last night and a lady > > that we all know was there and she started telling that she has Kidney > > Problems and that they are no big deal, that she really doesn't need to take > > meds for it and that I shouldn't be taking her blood pressure, the only > > problem that she is going to have is when she is old enough to want kids, she is > > not going to be able to, because it could kill her. I wanted to just blast > > the stupid lady in the mouth. Needless to say I wasn't very nice and my > > daughter started crying about what this loon told her. People can be really > > stupid. > > > > Lori > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 I doubt that she will be speaking to us any time soon, which is fine with me. I told her excatly what I thought. Lori Cy Webb wrote: I hope you weren't very nice Lori! In fact, I hope you really made her evening. I can deal with stupid people and I can deal with people who talk to much - but the combination is really deadly. I'm sorry that had to go through this. Cy Lori > > > > > > > > > > Lori how did your daughters doctor appointment go. I'm sorry I > missed > > your e.mail last night. My neph has always asked me if I have any > pain just > > below my ribcage since starting pred...for the life of me I can't > remember > > the reason why but I know I was supposed to call him if I ever had > severe > > pain there. I hope your daughter just has some digestive tract > upset from > > the pred and that it's easily resolved. > > > > > > Please let us know what they find out. You are both in my > thoughts. > > > > > > Amy G. > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 I agree that the women is an idiot. As for the pred, yes she has been taking it at the same time and with her snack and a glass of milk at night. What makes it weird is that the only time she is having the pains is in the middle of the day and later in the evening, it isn't an all day or night thing. Amy Griswold wrote:(((((((((Lori and )))))))))) If I was there I would have decked that woman for you both! Yes for some people it's a very slow progressing disease and they don't need to do much for it, but for others of us we DO need to watch our b/p and our diet and our meds and our lifestyle....what a idiot that woman was. Let me tell you that you are doing the right thing in taking her b/p daily to make sure it stays under control. Also childbirth isn't totally out of the question when she gets older and it won't kill her she'll just need to be under a high risk OB's care throughout the pregnancy and make sure she isn't on any drugs that could hurt the baby. Pregnancy can cause your b/p to rise and it can cause you to spill more protein in the urine but that's why you have doctors watching over you. Many of the women here have had successful pregnancies with IgAN. There is a possibility that her kidney function will be down far enough that the doctors tell her not to get pregnant but cross that bridge when you come to it...and remember there is always the adoption option. About the ulcers, yes prednisone can cause them and you have to be careful about the stomach pain due to that. I had to start on Nexium to control my nausea caused by the pred. The other question I had for you is: Is she taking her pred at the same time every day and with a FULL meal? I found that if I try to take it with just a glass of soy milk or a bit of toast it would make me feel very nauseous but if I take it will a full bowl of cereal and a glass of juice I'm o.k. You really need that food in your stomach to soften the effects of the drug on your stomach lining. Please let know that she will be o.k. and that things will get better once she gets used to the routine. There are others of us out here that are going thru the same things as she is and though it's hard it is worth it in the end. Amy G. Lori > > > > > > Lori how did your daughters doctor appointment go. I'm sorry I missed > your e.mail last night. My neph has always asked me if I have any pain just > below my ribcage since starting pred...for the life of me I can't remember > the reason why but I know I was supposed to call him if I ever had severe > pain there. I hope your daughter just has some digestive tract upset from > the pred and that it's easily resolved. > > > > Please let us know what they find out. You are both in my thoughts. > > > > Amy G. To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 I agree that the women is an idiot. As for the pred, yes she has been taking it at the same time and with her snack and a glass of milk at night. What makes it weird is that the only time she is having the pains is in the middle of the day and later in the evening, it isn't an all day or night thing. Amy Griswold wrote:(((((((((Lori and )))))))))) If I was there I would have decked that woman for you both! Yes for some people it's a very slow progressing disease and they don't need to do much for it, but for others of us we DO need to watch our b/p and our diet and our meds and our lifestyle....what a idiot that woman was. Let me tell you that you are doing the right thing in taking her b/p daily to make sure it stays under control. Also childbirth isn't totally out of the question when she gets older and it won't kill her she'll just need to be under a high risk OB's care throughout the pregnancy and make sure she isn't on any drugs that could hurt the baby. Pregnancy can cause your b/p to rise and it can cause you to spill more protein in the urine but that's why you have doctors watching over you. Many of the women here have had successful pregnancies with IgAN. There is a possibility that her kidney function will be down far enough that the doctors tell her not to get pregnant but cross that bridge when you come to it...and remember there is always the adoption option. About the ulcers, yes prednisone can cause them and you have to be careful about the stomach pain due to that. I had to start on Nexium to control my nausea caused by the pred. The other question I had for you is: Is she taking her pred at the same time every day and with a FULL meal? I found that if I try to take it with just a glass of soy milk or a bit of toast it would make me feel very nauseous but if I take it will a full bowl of cereal and a glass of juice I'm o.k. You really need that food in your stomach to soften the effects of the drug on your stomach lining. Please let know that she will be o.k. and that things will get better once she gets used to the routine. There are others of us out here that are going thru the same things as she is and though it's hard it is worth it in the end. Amy G. Lori > > > > > > Lori how did your daughters doctor appointment go. I'm sorry I missed > your e.mail last night. My neph has always asked me if I have any pain just > below my ribcage since starting pred...for the life of me I can't remember > the reason why but I know I was supposed to call him if I ever had severe > pain there. I hope your daughter just has some digestive tract upset from > the pred and that it's easily resolved. > > > > Please let us know what they find out. You are both in my thoughts. > > > > Amy G. To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 I agree that the women is an idiot. As for the pred, yes she has been taking it at the same time and with her snack and a glass of milk at night. What makes it weird is that the only time she is having the pains is in the middle of the day and later in the evening, it isn't an all day or night thing. Amy Griswold wrote:(((((((((Lori and )))))))))) If I was there I would have decked that woman for you both! Yes for some people it's a very slow progressing disease and they don't need to do much for it, but for others of us we DO need to watch our b/p and our diet and our meds and our lifestyle....what a idiot that woman was. Let me tell you that you are doing the right thing in taking her b/p daily to make sure it stays under control. Also childbirth isn't totally out of the question when she gets older and it won't kill her she'll just need to be under a high risk OB's care throughout the pregnancy and make sure she isn't on any drugs that could hurt the baby. Pregnancy can cause your b/p to rise and it can cause you to spill more protein in the urine but that's why you have doctors watching over you. Many of the women here have had successful pregnancies with IgAN. There is a possibility that her kidney function will be down far enough that the doctors tell her not to get pregnant but cross that bridge when you come to it...and remember there is always the adoption option. About the ulcers, yes prednisone can cause them and you have to be careful about the stomach pain due to that. I had to start on Nexium to control my nausea caused by the pred. The other question I had for you is: Is she taking her pred at the same time every day and with a FULL meal? I found that if I try to take it with just a glass of soy milk or a bit of toast it would make me feel very nauseous but if I take it will a full bowl of cereal and a glass of juice I'm o.k. You really need that food in your stomach to soften the effects of the drug on your stomach lining. Please let know that she will be o.k. and that things will get better once she gets used to the routine. There are others of us out here that are going thru the same things as she is and though it's hard it is worth it in the end. Amy G. Lori > > > > > > Lori how did your daughters doctor appointment go. I'm sorry I missed > your e.mail last night. My neph has always asked me if I have any pain just > below my ribcage since starting pred...for the life of me I can't remember > the reason why but I know I was supposed to call him if I ever had severe > pain there. I hope your daughter just has some digestive tract upset from > the pred and that it's easily resolved. > > > > Please let us know what they find out. You are both in my thoughts. > > > > Amy G. To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 If it is intermittent abdominal pain, that would indicate that it is not pancreatitis so I am not so concerned about her enzyme levels knowing that. I do want her doctor to get to the bottom of it though. In a message dated 12/19/2004 7:36:47 AM Eastern Standard Time, Lori Lozano writes: > > >I agree that the women is an idiot. Â As for the pred, yes she has been taking it at the same time and with her snack and a glass of milk at night. Â What makes it weird is that the only time she is having the pains is in the middle of the day and later in the evening, it isn't an all day or night thing. Â > >Amy Griswold wrote:(((((((((Lori and )))))))))) If I was there I would have decked that woman for you both! Â Yes for some people it's a very slow progressing disease and they don't need to do much for it, but for others of us we DO need to watch our b/p and our diet and our meds and our lifestyle....what a idiot that woman was. > >Let me tell you that you are doing the right thing in taking her b/p daily to make sure it stays under control. Â Also childbirth isn't totally out of the question when she gets older and it won't kill her she'll just need to be under a high risk OB's care throughout the pregnancy and make sure she isn't on any drugs that could hurt the baby. Â Pregnancy can cause your b/p to rise and it can cause you to spill more protein in the urine but that's why you have doctors watching over you. Â Many of the women here have had successful pregnancies with IgAN. Â There is a possibility that her kidney function will be down far enough that the doctors tell her not to get pregnant but cross that bridge when you come to it...and remember there is always the adoption option. > >About the ulcers, yes prednisone can cause them and you have to be careful about the stomach pain due to that. Â I had to start on Nexium to control my nausea caused by the pred. Â The other question I had for you is: Â Is she taking her pred at the same time every day and with a FULL meal? Â I found that if I try to take it with just a glass of soy milk or a bit of toast it would make me feel very nauseous but if I take it will a full bowl of cereal and a glass of juice I'm o.k. Â You really need that food in your stomach to soften the effects of the drug on your stomach lining. > >Please let know that she will be o.k. and that things will get better once she gets used to the routine. Â There are others of us out here that are going thru the same things as she is and though it's hard it is worth it in the end. > >Amy G. > Â Lori > Â Â > > Â Â > > Â Â > > > Â Â > > Lori how did your daughters doctor appointment go. Â I'm sorry I > Â Â missed > Â Â > your e.mail last night. Â My neph has always asked me if I have any > Â Â pain just > Â Â > below my ribcage since starting pred...for the life of me I can't > Â Â remember > Â Â > the reason why but I know I was supposed to call him if I ever had > Â Â severe > Â Â > pain there. Â I hope your daughter just has some digestive tract > Â Â upset from > Â Â > the pred and that it's easily resolved. > Â Â > > > Â Â > > Please let us know what they find out. Â You are both in my > Â Â thoughts. > Â Â > > > Â Â > > Amy G. > > > > > > Â Â To edit your settings for the group, go to our Yahoo Group > Â Â home page: > Â Â http://groups.yahoo.com/group/iga-nephropathy/ > > Â Â To unsubcribe via email, > Â Â iga-nephropathy-unsubscribe > Â Â Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > Â Â http://www.igan.ca/id62.htm > > Â Â Thank you > > > Â Â Â Â Â Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 Yes, she says she is, her biggest problem tonight is that she says she is really hungry and she has already have her 2000mg of sodium, so I feel mean for telling her no and she is in her room not liking me very much. Lori Hi Lori, > > > >I am still concerned about her because blood and protein in her urine should > >not cause abdominal pain like that. Did they check her enzymes? > > > > > > > >In a message dated 12/17/2004 9:19:06 PM Pacific Standard Time, > >littlell523@y... writes: > > > >> We went to the doctors and he told me that her Protien is at 2+ and > >> her blood is at 3+, she has lost another 2 pounds. Â About the pain > >> he put her on this power to loosen her stool and upped her stomache > >> medicine. Â When I got home tonight she told me that her stomache > >> still really hurts. Â Hubby took her blood pressure at 8:30p.m. and > >> he said that he took it twice but it was 97/60, I've never seen it > >> that low on top, I am going to call her doctors at Childrens > >> Hospital in the morning, I don't think I will be getting much sleep > >> tonight. Â The other thing that we told the doctor is that she is up > >> alot in the night because she has to go to the bathroom, but also > >> because she is soaking everything with sweat. Â He told me to turn > >> the heat up in the house or get a heater for her room. Â I keep the > >> house at 68 at night. Â What do you think?? > >> > >> Thanks > >> Lori > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 That what I told the doctors this morning, she is going in tomorrow afternoon. Now, today she hasn't had any abdominal pain. I don't get it. Lori > > Â Â > Prednisone is very hard on the stomach and digestive tract. Many > > Â Â people who > > Â Â > are on it are also on some kind of anti-ulcer drug. Maybe that's > > Â Â what you're > > Â Â > doctor was referring to. > > Â Â > Pierre > > Â Â > > > Â Â > Lori > > Â Â > > > Â Â > > > Â Â > > > > Â Â > > Lori how did your daughters doctor appointment go. Â I'm sorry I > > Â Â missed > > Â Â > your e.mail last night. Â My neph has always asked me if I have any > > Â Â pain just > > Â Â > below my ribcage since starting pred...for the life of me I can't > > Â Â remember > > Â Â > the reason why but I know I was supposed to call him if I ever had > > Â Â severe > > Â Â > pain there. Â I hope your daughter just has some digestive tract > > Â Â upset from > > Â Â > the pred and that it's easily resolved. > > Â Â > > > > Â Â > > Please let us know what they find out. Â You are both in my > > Â Â thoughts. > > Â Â > > > > Â Â > > Amy G. > > > > > > > > > > > > Â Â To edit your settings for the group, go to our Yahoo Group > > Â Â home page: > > Â Â http://groups.yahoo.com/group/iga-nephropathy/ > > > > Â Â To unsubcribe via email, > > Â Â iga-nephropathy-unsubscribe > > Â Â Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > > Â Â http://www.igan.ca/id62.htm > > > > Â Â Thank you > > > > > > Â Â Â Â Â Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2004 Report Share Posted December 20, 2004 Well this is what I did, I went to the store and bought apples, grapes, and carrots then I told her that my understanding was that these foods were " free " (no sodium) so that she could eat as many as she wanted. She ate two apples and gave me a kiss, she also told me how much she hates this new life. Hi Lori, > > > > > >I am still concerned about her because blood and protein in her > urine should > > >not cause abdominal pain like that. Did they check her enzymes? > > > > > > > > > > > >In a message dated 12/17/2004 9:19:06 PM Pacific Standard Time, > > >littlell523@y... writes: > > > > > >> We went to the doctors and he told me that her Protien is at 2+ > and > > >> her blood is at 3+, she has lost another 2 pounds. About the > pain > > >> he put her on this power to loosen her stool and upped her > stomache > > >> medicine. When I got home tonight she told me that her > stomache > > >> still really hurts. Hubby took her blood pressure at 8:30p.m. > and > > >> he said that he took it twice but it was 97/60, I've never seen > it > > >> that low on top, I am going to call her doctors at Childrens > > >> Hospital in the morning, I don't think I will be getting much > sleep > > >> tonight. The other thing that we told the doctor is that she > is up > > >> alot in the night because she has to go to the bathroom, but > also > > >> because she is soaking everything with sweat. He told me to > turn > > >> the heat up in the house or get a heater for her room. I keep > the > > >> house at 68 at night. What do you think?? > > >> > > >> Thanks > > >> Lori > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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