Update on life and my nephew

December 18, 2007

just got sent home. He's feeling a lot better. They gave him

a double shot (one in each leg) every night... I had to be there last

night for the shot and it was HORRIBLE!!!!! He, like the rest of us,

now has a healthy HATE of hospitals.

In other news, I worked TWO 8.5 hour days IN A ROW (Sunday and

Monday), and this is my first day off, and then tomorrow, I work

either 7.5 or 8.5 hours. My mom is p*ssed off at me, because I am

refusing to clean my room. I tried to explain to her about how much I

hurt, but she just said, well your dad has arthritis, but he still

does what needs to be done. My response was, well (no offense to

anyone with arthritis... I need to be tested or whatever to see if I

have ANY form of arthritis), sometimes fibromyalgia can hurt worse

than arthritis, plus dad only has arthritis in A FEW of his joints, he

doesn't have pain in EVERY SINGLE joint AND muscle! I also tried to

explain that all dad needs for his arthritis is an anti-inflammatory,

and that for these reasons, and for the fact that dad doesn't have any

OTHER health problems, that it is REALLY not fair to compare the 2 of

us or to insinuate that I should be doing more than dad does. I'm

pretty sure that it went in one ear and out the other. I'm REALLY

hurting, and all that I did in the past few days and all the stress

that I've been through in the past few days has NOT helped! I mean,

if I have not been in flare for the past 2 or 3 months, then I don't

want to know what a flare for my body will be like!! Plus, in the

very near future, I'm gonna have to spend another who knows how many

hours in the urgent care AGAIN, just in order to get the medicines

that I need, AGAIN. I just wish that life could be fair!! I know it

isn't, but wouldn't it be nice if it was?

Hugs

>

> Hi everyone! You know those calls that you get that make you cringe,

> and they usually start off with " Has anybody called you yet?! " , well

> my boyfriend and I got 2 of them this weekend (Just as my friggin

> internet went out, so I couldn't post). His great-uncle died on

> Friday or Saturday (we got the call Saturday morning). He leaves with

> his mom and grandma tomorrow (Monday) night to drive to West Virginia

> for the funeral. Saturday night, we got the call that my 15 month old

> nephew was hospitalized with a 105 degree fever and a seizure. First

> they thought it was pneumonia, then they thought it was something

> else, something else, and then something else. Now, they think it was

> all caused by a double ear infection. My nephew is like my own son to

> me. I got that phone call on Saturday night, and I just collapsed

> into tears on Greg. I wanted to get in the car and get to the

> hospital as fast as humanly possible (heck... call in the National

> Guard and airlift me there, just get me there!!!!! and NOW!!!!!, ya

> know what I mean?), but my dad wouldn't let me, because Greg and I

> were about 50 miles away from the hospital at our house, and there was

> that whole bit of the Winter Storm Warning, and over 200

> closures/delays (Northeastern Indiana, Madison County). Not to

> mention that today (Sunday), it took me 3 hours to make the normally 1

> hour drive to the hospital (It is like less than a mile from Target).

> I left the house at 11am and didn't get to the hospital until 2pm,

> and when I got there, could barely hold his head up, he was so

> exhausted. He lifted his head up when I came into the room, then it

> fell down, about a second after he had lifted it up, he did that 3

> times until his uncle (my sister in law's bro) said to him, " Do you

> want to hold you? " . Then, lifted his head up again, and

> it fell again, but that was enough of an answer for his uncle. He

> gave me , and I sat down in the chair, and my little buddy slept

> on my chest for about half an hour, before I had to go grab a bite to

> eat and then head to work (3:30pm to 11pm... NOT fun...). was

> in the hospital Saturday night, and he also spent tonight (Sunday) in

> the hospital, but we don't know if he'll be released tomorrow or not.

> I hope he will be, but I'd rather they be sure that he won't have

> another seizure or at least know EXACTLY what caused the seizure, so

> that we can prevent them in the future or SOMETHING. I don't want my

> little man in the hospital again (or at least until he gets his

> tonsules taken out or something like that... when he is OLDER, and we

> are ALL more capable of handling this). I thought my world was

> falling down around me when my dad called me to tell me that

> had a 105 temp and a seizure, and that the house had been full of

> paramedics (we're friends with all the paramedics and they ALL know

> ). When dad told me that ALL of the on-duty paramedics had come

> to the house, my first thought was " Oh shite, they're all there,

> because they're worried and they know something is HORRIBLY wrong. If

> they're worried, then that must mean that it is REALLY bad. " I'm

> still shaking, just thinking about my little buddy and how pathetic he

> looked in the hospital this morning, and how scared he must have been!

> :-((

> Please pray for !

>

> Thanks!

> Hugs!

>

> PS: That was the first time in a little over a month that I had bawled

> my eyes out! My head is still reeling from the havoc a crying session

> plays with my sinuses.

>

December 18, 2007

, this just goes to show how uneducated everyone is about fibro unless

they have fibro. It just can't be explained to someone who does not experience

it because they will NEVER know what kind of pain this is. Oh we look " just

fine " .... I am so sick of hearing that.

hugs,

Debra V.

AJ wrote: