Re: Re: Colonoscopy prep

[Guest guest]

Jodi, talk to your dr about this.

 

The cleansing enema should be ad

ministered in three stages. The first

500 mL is administered with the pa

tient on his or her left side, the sec

ond 500 mL with the patient lying

prone, and the third 500 mL with the

patient on his or her right side. This

routine usually ensures distribution

of the cleansing enema throughout

the colon. If the effluent of the en

ema contains any solid fecal material,

the enema should be repeated.

The effectiveness of the cleansing

enema is entirely a function of the

care with which it is administered

and a willingness to repeat the en

ema if necessary.

 

jena

On Tue, Mar 10, 2009 at 12:04 PM, Wizop Marilyn L. Alm wrote:

At 07:36 PM 3/9/2009, you wrote:

Has anyone done high doses of Vitamin C or Magnesium to clear out for Colonoscopy?I considered it, but given that the Vitamin C is an acid, I was concerned that deliberately taking amounts beyond bowel tolerance would result in a very sore rectum. I don't react to magnesium that way.

My GI does not use Fleet preps anymore (that caused me to go to the ER)He's probably wise. They've been linked with kidney issues.

He gave me Miralax or MoviPrep- my choice. And he gave me Zolfram if I experience bad nausea.Don't forget to have electrolyte liquids on hand, plenty of SCD broths to drink, and food prepared for several days afterwards in case you feel ill afterwards.

Has anyone experienced the drug Propofol as the anesthesia? I have had a heard time with anesthesia in the past.I've had a serious time with anesthesia, as you know. I have not had propofol, but a friend of mine with numerous health issues has. She said one minute she was lying there waiting, and the next minute they were telling her she could get up and leave.

When's your procedure scheduled?

— Marilyn    New Orleans, Louisiana, USA    Undiagnosed IBS since 1976, SCD since 2001    Darn Good SCD Cook

    No Human Children    Shadow & Sunny Longhair Dachshund        

[Guest guest]

Jodi talk to your dr about trying this.

 

 

The cleansing enema should be ad

ministered in three stages. The first

500 mL is administered with the pa

tient on his or her left side, the sec

ond 500 mL with the patient lying

prone, and the third 500 mL with the

patient on his or her right side. This

routine usually ensures distribution

of the cleansing enema throughout

the colon. If the effluent of the en

ema contains any solid fecal material,

the enema should be repeated.

The effectiveness of the cleansing

enema is entirely a function of the

care with which it is administered

and a willingness to repeat the en

ema if necessary.

 

jena

On Tue, Mar 10, 2009 at 12:04 PM, Wizop Marilyn L. Alm wrote:

At 07:36 PM 3/9/2009, you wrote:

Has anyone done high doses of Vitamin C or Magnesium to clear out for Colonoscopy?I considered it, but given that the Vitamin C is an acid, I was concerned that deliberately taking amounts beyond bowel tolerance would result in a very sore rectum. I don't react to magnesium that way.

My GI does not use Fleet preps anymore (that caused me to go to the ER)He's probably wise. They've been linked with kidney issues.

He gave me Miralax or MoviPrep- my choice. And he gave me Zolfram if I experience bad nausea.Don't forget to have electrolyte liquids on hand, plenty of SCD broths to drink, and food prepared for several days afterwards in case you feel ill afterwards.

Has anyone experienced the drug Propofol as the anesthesia? I have had a heard time with anesthesia in the past.I've had a serious time with anesthesia, as you know. I have not had propofol, but a friend of mine with numerous health issues has. She said one minute she was lying there waiting, and the next minute they were telling her she could get up and leave.

When's your procedure scheduled?

— Marilyn    New Orleans, Louisiana, USA    Undiagnosed IBS since 1976, SCD since 2001    Darn Good SCD Cook

    No Human Children    Shadow & Sunny Longhair Dachshund        

[Guest guest]

Jodi, small bowell studies can be done 2 different ways, you can drink barium and ave multiple xrays over a period of hours until the barium reaches the caecal valve, or you can have it done under ct.

 

With ct, the most accepted way in Australia is for them to give you 2 litres of metamucil mixed with water, and for you to drink it over 1 hour, the have a ct. In america they have a product called VoLumen which provides a better negative contrast but it has not been approved of here in Australia.  I am currently trialing the use of full cream milk on patients which is scd illegal but 2 litres of metamucil mix will send you to the toilet for possibly a couple of days, and barium may constipate you and obscure pathology at your colonoscopy if you are not really cleared. You realy need to talk to your Dr. about which method you should use and be aware that they will all have side effects for your scd diet.

 

jena

Hi Marilyn, > >He gave me Miralax or MoviPrep- my choice. And > >he gave me Zolfram if I experience bad nausea.> > Don't forget to have electrolyte liquids on hand, > plenty of SCD broths to drink, and food prepared

> for several days afterwards in case you feel ill afterwards.> What kind of broths and juices can I drink the couple of days before the procedure? I want to eat lite. > >Has anyone experienced the drug Propofol as the > >anesthesia? I have had a heard time with anesthesia in the past.> > I've had a serious time with anesthesia, as you

> know. I have not had propofol, but a friend of > mine with numerous health issues has. She said > one minute she was lying there waiting, and the > next minute they were telling her she could get up and leave.

That's good to know. > When's your procedure scheduled?April 2nd as MY GI doesn't do procedures anymore so the younger GI does so scheduling wise they both need to be present so it takes time finding a good appointment time- they wanted me to do it in 2 weeks in the afternoon but the secretary asked me " are you the kind of patient that can skip both breakfast and lunch? and I was like " NO! " - something like this could totally set me back. So I have to wait to April. Which is fine.

Need to schedule the small bowel series during this waiting time.Jodi

[Guest guest]

Jodi, the milk is used on its own, not mixed with anything. The fats help dilate the loops of small bowel while the milk slows down the motility so we don't get blurred pictures. In regards to the barium, as long as you keep your bowels moving 2 weeks should be plenty of time in between.

jena

Thanks for the info Jena, > Jodi, small bowell studies can be done 2 different ways, you can drink> barium and ave multiple xrays over a period of hours until the barium> reaches the caecal valve, or you can have it done under ct.

I am allergic to CT contrast so CT's aren't very helpful in that case. I have has many. I forget the new generation CT that's much better with the GI tract- but my doc said I am not a good candidate for it due to allergy. He was actually unhappy with my latest CT that I had done in Israel.

> currently trialing the use of full cream milk on patients which is scd> illegal but 2 litres of metamucil mix will send you to the toilet for> possibly a couple of days, and barium may constipate you and obscure

> pathology at your colonoscopy if you are not really cleared. You realy need> to talk to your Dr. about which method you should use and be aware that they> will all have side effects for your scd diet.

Interesting. So they mic full cream or full fat milk with metamucil? How does this help with the images? Or is this something they use for the colonoscopy?Do you think 2 weeks between small bowel series and colonoscopy is enough time so the barium chalk doesn't interfere with the biopsies/pathology?

Thanks,Jodi

[Guest guest]

Holly,  VoLumen is not a prep for colonoscopy, it is a negative oral contrast for CT scanning uses.

Jena

I had a small bowel series in the hospital last summer that was horrible. Instead of the usual barium drink, they gave me some clear oily liquid. They also suggested I should wear a diaper (I declined), because it apparently causes a massive laxative effect. The drink tasted absolutely horrid, and made me feel sicker than any solution I've ever had to drink. I was nauseous and vomiting, and spent the rest of the day completely miserable. I wonder if this was VoLumen?

HollyCrohn'sSCD 12/01/08>> Jodi, small bowell studies can be done 2 different ways, you can drink

> barium and ave multiple xrays over a period of hours until the barium> reaches the caecal valve, or you can have it done under ct.> > With ct, the most accepted way in Australia is for them to give you 2 litres

> of metamucil mixed with water, and for you to drink it over 1 hour, the have> a ct. In america they have a product called VoLumen which provides a better> negative contrast but it has not been approved of here in Australia. I am

> currently trialing the use of full cream milk on patients which is scd> illegal but 2 litres of metamucil mix will send you to the toilet for> possibly a couple of days, and barium may constipate you and obscure

> pathology at your colonoscopy if you are not really cleared. You realy need> to talk to your Dr. about which method you should use and be aware that they> will all have side effects for your scd diet.

> > jena>

[Guest guest]

Marilyn, that is exactly how I feel. I have put this test off for 2 years trying to get past the drinking of that stuff. Katy

I think the clean-out is the most traumatic for me. I've spent 33 years with gut issues, and by dint of very hard work, I've regain control of my gut in the last 8 years, thanks to SCD. Now, twice in the last year, I've had to swallow four liters of horrid-tasting liquid designed to induce violent diarrhea. The whole psychology of the situation is bad for us SCDers.

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[Guest guest]

At 06:07 PM 3/29/2009, you wrote:

Does the industry understand how

violent this is for IBD'ers and the seriously ill?

I don't think they do. It's something I have observed, particularly when

dealing with specialists. Their focus is on their area of specialty, and

not on the entire person. In theory, the primary care physician

coordinates the specialists and sees the whole person, but we all know

how well that may or may not work. (Sometimes we get lucky with

competent, caring, and capable medics, and other times, we do

not.)

In the case of the gastroenterologist whom I had, he's apparently very

well liked by many people. For me, I told him of my special needs, and

the information went in one ear and out the other, and he issued

cookie-cutter instructions.

There was NO provision for the fact that, without certain supplements I

use for muscle spasm, I would be doubled up in pain and throwing up from

the pain. (Which, by the way, is what almost happened... and when Harry

called him at 4 am on 2 January, his response was, " Well, have her

bring some of the supplement to take after the procedure... " and he

had NO idea of what to suggest for me between 4 am and 8 am when they

took me for the procedure, not because he was cruel or thoughtless, but

because his mind was not geared to thinking of anything except the colon

he was going to examine.) The only item of consideration for him was the

fact that the supplements would obscure his view and therefore, I could

not have them. The results of my not having them did not have anything to

do with my colon, and therefore, they were irrelevant.

In contrast, my oncologist took everything like that into consideration,

once I made her aware of the complications I was facing. She made sure I

had medications to handle the pain, and helped me arrange everything with

the hospital so that things went very smoothly.

It can be a luck of the draw.

I wish they would grasp this

concept and invent something new- I mean plenty people would pay extra

money out of pocket to not go through such torture.

No arguments there. I just don't know what the procedure might be. I

understand the WHY of what they do. It doesn't mean I have to like it.

What I wish it were possible to do is to get the medical profession to

understand that we are all individuals and require individual treatments.

Not cookie cutters.

I mean, here you are, shaking in your shoes, and having put off a

necessary test, not because you don't know you need it, but because it

isn't tailored to your physical and psychological needs.

Here I am, going through the whole cancer rigamarole -- something I could

have been spared if I had had regular examinations. But because of an

experience with a gynecologist which was as bad for me as yours with the

colonoscopy when you were 17, I put off having exams... and so the

cell-changes weren't caught until they became cancerous. Now -- in either

case, the resulting surgery would have been the same... but it sure as

hades would have less terrifying for me with the Big C looming in

there.

A gentleman from the CPAP forum (who passed away about two months after I

got my diagnosis -- I wish I had had time to get to know him better --

used to sign his posts with " Someday, science will catch up to what

I'm saying. "

Well, someday, the medical profession will catch up to what Dr. Hass and

Elaine Gottschall were saying, too.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

At 06:54 PM 3/29/2009, you wrote:

Marilyn, that is exactly

how I feel. I have put this test off for 2 years trying to get past

the drinking of that stuff.

Katy,

If it's any help, you will be in my thoughts and prayers tomorrow and

Tuesday. Having been through this twice in the last year, you have my

profound sympathy.

I hope your test has no surprises and only good news!

After all, my grandmother died of complications of diverticulitis. She

had it as long as I can remember. My mother was just in hospital with

bleeding from diverticulitis. Ditto. But me, at 56, and with almost 8

years on SCD, had no sign whatsoever of the disease which has plagued the

lives of the women of my family.

May something similar be yours!

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

How can you guarantee that your body is replenished with the necessary electrolytes if you don't drink the solution? I assume that the Osmo-Prep is nothing more than a laxative and doesn't contain any nutrients/electrolytes. I have a colonoscopy scheduled for Wed, so I am interested in this alternative, too.Well those solutions never felt like they had any nutrients in them to me. Theyjust felt gross and nauseating physically. Once I almost fainted in the doctor'soffice because they had depleted me so much. Took the osmoprep and I drank a lot of chicken broth and water, tea, dilutedjuice, etc, had absolutely no problem with anything like that. And no nausea,and no stomach clenching up because you've got to drink the rest of it downand you just can't make yourself because it is so repulsive and you feel howrepulsive it is right down in your gut. As though your gut knows what it is aboutto do to you. It totally changes the experience IMO. MaraThanks,Jill>Posted by: "Mara Schiffren" alcibiades@... alcibiades500>Mon Mar 30, 2009 12:07 am (PDT)>>> At 01:12 AM 3/30/2009, you wrote:>>> There is an alternative to drinking that terrible liquid before >>> your colonoscopy. It is called Osmo-Prep and you have to get a >>> prescription from your doctor for it.>>>> Janet,>>>> I asked my gastroenterologist about Osmo-Prep, and he said that his >> group had determined that the pills were inadequate for preparation, >> and that many times, people had to re-do the preparation in order to >> get a clean procedure.>>That's not my experience at all. And I've used them a few times now.>> In any case, it's not the liquid itself that is terrible as far as I >> am concerned.>>>> It's the notion of swallowing ANYTHING to induce diarrhea, when I >> have fought, for so many years, to gain control of my guts.>Man, experientially there is a ***huge*** difference.>One is nausea inducing, the other is really easy. It makes it into an >entirely different experience.>It's just not that hard when all you have to do is swallow a bunch of >pills.>Mara

[Guest guest]

It is also too violent and aggressive for the elderly, the mentally handicapped,etc.

I don't know anyone who looks forward to such a horrible prep.

Marilyn, I don't know what med you take for your muscle spasms, but there might be a liquid alternative or a way to insist you take your med for next time--though I know you got cleared for 10 years was it?

At 06:07 PM 3/29/2009, you wrote:

Does the industry understand how violent this is for IBD'ers and the seriously ill?I don't think they do. It's something I have observed, particularly when dealing with specialists. Their focus is on their area of specialty, and not on the entire person. In theory, the primary care physician coordinates the specialists and sees the whole person, but we all know how well that may or may not work. (Sometimes we get lucky with competent, caring, and capable medics, and other times, we do not.)In the case of the gastroenterologist whom I had, he's apparently very well liked by many people. For me, I told him of my special needs, and the information went in one ear and out the other, and he issued cookie-cutter instructions.There was NO provision for the fact that, without certain supplements I use for muscle spasm, I would be doubled up in pain and throwing up from the pain. (Which, by the way, is what almost happened... and when Harry called him at 4 am on 2 January, his response was, "Well, have her bring some of the supplement to take after the procedure..." and he had NO idea of what to suggest for me between 4 am and 8 am when they took me for the procedure, not because he was cruel or thoughtless, but because his mind was not geared to thinking of anything except the colon he was going to examine.) The only item of consideration for him was the fact that the supplements would obscure his view and therefore, I could not have them. The results of my not having them did not have anything to do with my colon, and therefore, they were irrelevant.In contrast, my oncologist took everything like that into consideration, once I made her aware of the complications I was facing. She made sure I had medications to handle the pain, and helped me arrange everything with the hospital so that things went very smoothly. It can be a luck of the draw.

I wish they would grasp this concept and invent something new- I mean plenty people would pay extra money out of pocket to not go through such torture.No arguments there. I just don't know what the procedure might be. I understand the WHY of what they do. It doesn't mean I have to like it. What I wish it were possible to do is to get the medical profession to understand that we are all individuals and require individual treatments. Not cookie cutters.I mean, here you are, shaking in your shoes, and having put off a necessary test, not because you don't know you need it, but because it isn't tailored to your physical and psychological needs.Here I am, going through the whole cancer rigamarole -- something I could have been spared if I had had regular examinations. But because of an experience with a gynecologist which was as bad for me as yours with the colonoscopy when you were 17, I put off having exams... and so the cell-changes weren't caught until they became cancerous. Now -- in either case, the resulting surgery would have been the same... but it sure as hades would have less terrifying for me with the Big C looming in there.A gentleman from the CPAP forum (who passed away about two months after I got my diagnosis -- I wish I had had time to get to know him better -- used to sign his posts with "Someday, science will catch up to what I'm saying."Well, someday, the medical profession will catch up to what Dr. Hass and Elaine Gottschall were saying, too.

— Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund