Guest guest Posted December 16, 2000 Report Share Posted December 16, 2000 Dear Henry I signed on to this network in hopes of finding out some information on how to deal with this disease but I have found it more like a chat line.. I have been checking around the internet looking for more info. I am a little worse and am losing weight to the point people comment on it. At my age toO much weight lose isnt good you start to look haggard well to me anyway. I have been busy of course xmas shopping and wrapping. Why is it that we have so little energy? Is there a medical reason? Did I read right that you are going to be doing work from home? Does that mean that you wont be on disablity anymore? Waiting to here from you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2000 Report Share Posted December 16, 2000 Dear , Hey! I haven't heard from you for a while, and I hope that you are doing O.K. Are you very ill now, or just not feeling really well. I hope that you've just been busy. Please write back when you have a chance, and/or feel up to it! :-) Your Pancreatitis Pal, Henry on 12/7/00 6:47 AM, PtPpurple@... at PtPpurple@... wrote: > I forgot to ask yoy Henry what career were you in? Do you not work at all > now? I havent been able to work for the past 7 years due to health problems. > I miss it as I am sure you do. > > > PANCREATITIS SUPPORT NETWORK > Online e-mail group > > To reply to this message hit " reply " or send an e-mail to: > Pancreatitisegroups > > To subscribe to this e-mail group, simply send an e-mail to: > Pancreatitis-subscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2000 Report Share Posted December 21, 2000 Dear , I am having the colonoscopy because I have had polyps removed in the past few years three times, and I am currently passing blood, and this is a worry to my G.I. dr. that more polyps may be growing further than the rectum. In fact she performed a flex sigmoidoscopy on me prior to my recent Whipple, and removed two benign polyps from the rectal wall. I'm sorry to hear of your aunt's delayed treatment, and demise. I am quite worried about my aunt, I have also lost a great aunt about five years ago to the same cancer which was inoperable. I hope treatments have advanced in time. There is no question in my layperson's head that this is a hereditary based condition, which has been documented to run in families who carry the unfortunate gene. Thank you for your kind concern over my E.R. visit, but it's no biggie really. I've been through the routine a thousand times, and now carry a laminated card with a copy of a letter explaining my condition to whom it may concern, Henry W. has this Chronic Panc. condition, and please follow requested treatment protocol for same, ect... With a few glaring exceptions I've recieved prompt, and appropriate care for a major, or relatively minor, but excrusiatingly painful accute attack of pancreatitis. The E.R. at MUSC is an excellent state of the art facility equipped to handle any emergency care under the sun, but can get chaotic during peak hours such as weekend DUI accidents, alcohol related domestic violence, ect. , I agree with your statement wholeheartedly, " God bless the good doctors. " Ain't that the truth, and it is a blessing, and a comfort to be cared for in a highly professional manner when one is truly desperately ill, and suffering greatly. I am feeling some better tonight, besides some nausea, vomiting, retching, and bloody diarrhea. Yuk! how are you doing my friend? I haven't had an update from you lately, and want to know that you are doing reasonably well under the unpleasant circumstances. Please fill me in on your current condition when you can my friend. God Bless you and yours this Christmas! :-) Much, Henry ---------------------------------------------------------------------------- on 12/20/00 5:47 PM, PtPpurple@... at PtPpurple@... wrote: > Henry why do you have to have a colonoscopy? I find it interesting that I > also had an aunt that had pancreatic cancer she died about 10 years ago . > They took along time to diagnose her at first they blamed her pain ect. on > nerves. I hope we have come a long way since then. I am so sorry to hear > you had to go to emerg. the emergency departments here are always a zoo > especially with all the govt. cuts .I am lucky that I can call my family > doctor at home and he calls the emerg for me and arranges for me to be seen > quickly. God bless the good doctors. > > > PANCREATITIS SUPPORT NETWORK > Online e-mail group > > To reply to this message hit " reply " or send an e-mail to: > Pancreatitisegroups > > To subscribe to this e-mail group, simply send an e-mail to: > Pancreatitis-subscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2000 Report Share Posted December 21, 2000 Henry you have to be the most pleasant young man to correspond with. IN spite of your poor health you keep an upbeat personality. I admire that. I just came from having an ultrasound and the technician was very chatty and tells me the mass is still there on my pancreas but it is small . My gall bladder on the other hand is in trouble with stones which would explain the increased pain. Have to wait until my doctor receives the report and decides what treatment. I imagine it will have to be removed that makes 4 operations in 5 years. But it could be worse with the original diagnosis I would have been dead after 6 months but instead I am here ready to celebrate xmas with my family. I hope you are feeling better Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2000 Report Share Posted December 29, 2000 Dear , Well, it's been a while since we corresponded so I thought I'd drop you a line. How's the gall bladder problem? I hope you won't have to have surgery. I hope the new year will be a better one for you and everyone else in our group! Your Pancreas Pal, Henry on 12/21/00 9:27 AM, PtPpurple@... at PtPpurple@... wrote: > Henry you have to be the most pleasant young man to correspond with. IN > spite of your poor health you keep an upbeat personality. I admire that. I > just came from having an ultrasound and the technician was very chatty and > tells me the mass is still there on my pancreas but it is small . My gall > bladder on the other hand is in trouble with stones which would explain the > increased pain. Have to wait until my doctor receives the report and decides > what treatment. I imagine it will have to be removed that makes 4 > operations in 5 years. But it could be worse with the original diagnosis I > would have been dead after 6 months but instead I am here ready to celebrate > xmas with my family. I hope you are feeling better > > > PANCREATITIS SUPPORT NETWORK > Online e-mail group > > To reply to this message hit " reply " or send an e-mail to: > Pancreatitisegroups > > To subscribe to this e-mail group, simply send an e-mail to: > Pancreatitis-subscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 Dear , I'm glad your sticking with us! Sorry about your health problems, like you said none of us chooses to have something dreadful like C. Panc., or Lupus, but here we are, we might as well stick together, and make the best of our lives. What choice is there? Glad you're here, and hope to continue to see you on the board posting. Be well, as well as you can. Your Pancreas Pal, Henry on 1/9/01 11:53 AM, loggiekw@... at loggiekw@... wrote: Well, I guess you guys are stuck with me. I do understand what it is like to have a chronic illness even if its not chronic panc. However, believe me - I'll take lupus any day over chronic panc - not that any of us get to choose our disease. Let's see - if I could pick which disease I want to live with forever, what would it be? Too bad, it doesn't work that way. I love all you guys and you have all helped me so much. I honestly don't know what I would do without you. You guys believed me and my pain when the doctors were ignoring me. You will never know how much that helped. Many days I simply thought I must be nuts or just imagining things since the docs couldn't find anything, but you guys offered me love, support, understanding, and encouraged me to keep pushing the docs to find out what was wrong with my stomach. If not for you, I might have let things go til I ended up with a hole in my gut from the problems. Anyway, I guess you guys are just stuck with me. Thanks for everything. eGroups Sponsor PANCREATITIS SUPPORT NETWORK Online e-mail group To reply to this message hit " reply " or send an e-mail to: Pancreatitisegroups To subscribe to this e-mail group, simply send an e-mail to: Pancreatitis-subscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2001 Report Share Posted January 10, 2001 THANKS hENRY Hope everyone is having a pain free day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2001 Report Share Posted January 22, 2001 In a message dated 01/21/2001 11:55:21 AM Central Standard Time, howmtp@... writes: << Dear , Sorry that you are having pain problems again. It sounds like you husband is really caring and coming around for you. I'm having problems with bad pain too this weekend, but am holding out. I agree with you about the central line. My veins are shot also, and my central line is a lifesaver in the hospital, as well as my J-tube in my belly. I hope they help you at the E.R. It is good to be on friendly terms with the docs down there! Your Pancreatitis Pal, Henry >> Henry and , I hope that this finds both of you feeling better or having less pain today????? Please keep us posted on how you are doing. Sandy Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.