Guest guest Posted December 26, 2001 Report Share Posted December 26, 2001 You too Susie. It is so nice to hear a few words from you guys who don't post reguarly, or at all. Really, thank you all for that. I do understand the time issue, I am just lucky to have internet at work and time to post from here, otherwie I'd be a lurker too! > I GUESS I AM ONE OF THGEM WHO NEVER TALKS ON THE LINE BUT ITS TO BUSY KEEPING IT ALL IN MIND , PLUS I DONT HAVE TIME ALL DAY .BUT I HAVE TO WISH YOU A NEW YEAR > > FR. SUSIE FRIESEN > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2001 Report Share Posted December 26, 2001 You too Susie. It is so nice to hear a few words from you guys who don't post reguarly, or at all. Really, thank you all for that. I do understand the time issue, I am just lucky to have internet at work and time to post from here, otherwie I'd be a lurker too! > I GUESS I AM ONE OF THGEM WHO NEVER TALKS ON THE LINE BUT ITS TO BUSY KEEPING IT ALL IN MIND , PLUS I DONT HAVE TIME ALL DAY .BUT I HAVE TO WISH YOU A NEW YEAR > > FR. SUSIE FRIESEN > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2001 Report Share Posted December 27, 2001 In a message dated 12/25/01 8:07:55 PM Pacific Standard Time, Susiefriesen@... writes: << I GUESS I AM ONE OF THGEM WHO NEVER TALKS ON THE LINE BUT ITS TO BUSY KEEPING IT ALL IN MIND , PLUS I DONT HAVE TIME ALL DAY .BUT I HAVE TO WISH YOU A NEW YEAR FR. SUSIE FRIESEN >> Hi Susie>>>>>waving.........Lori Jo ; ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2002 Report Share Posted November 4, 2002 Dear , Welcome to the GBIC email group! The insurance approval wait game varies for everyone. I know some that have been approved the very same day and others that have waited for over a year. Be encouraged and continued to read up and study about the possible procedure your doc/surgeon performs. The GBIC website is CHOCKED full of good stuff for you to read. Good luck and God bless your WLS journey! Love, Trace Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2002 Report Share Posted November 4, 2002 LAURA, Don't know about everyone else....I have Horizon BC/BS PPO and it took me 3 weeks to get approval. Pam hi everyone hello to everyone here i just joined.i have been through all doc appts and just waiting to hear from insurance company i feel as if i have ants in my pants, how long does it usually take to get approved? i am getting very excited would someone let me know thanks i look forward to get to know everyone bye laura To Subscribe to 's weekly FREE Newsletter send an email to GBCookbook-subscribe@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2002 Report Share Posted November 4, 2002 Hi . Welcome to our wonderful group. So nice to have you with us. Waiting for approval is the worst, and it takes a long time for some, like a couple of months. Hope you don't have to wait too long. Jeanne in WI Age 39 Open RNY 05/21/2002 314/ 243/150-175 5' 8 " djgraves@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2002 Report Share Posted November 4, 2002 Hi . Welcome to our wonderful group. So nice to have you with us. Waiting for approval is the worst, and it takes a long time for some, like a couple of months. Hope you don't have to wait too long. Jeanne in WI Age 39 Open RNY 05/21/2002 314/ 243/150-175 5' 8 " djgraves@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2004 Report Share Posted February 24, 2004 Dear , Welcome and happy that have found us,PLS-Friends!!! You will get alot good support here. As to your question I was told the same thing early on in the course of my symptoms. I was told it was probably MS or PLS or " time will tell " .My doctor was wonderful treating my symptoms accordingly. He explained to me it did not matter, it is just a name. He worded it so well it never really mattered. I hope you have a good and caring doctor that can help you through the bumps. Take care. Re: hi everyone > my doctors have ruled out MS (although that DOES run in my family) > and they've ruled out pretty much everything else at this point, so > here i am! and i too have tested negative for the genes that they > have identified and are " testable " for HSP and so we're at a little > bit of an impass i guess... > ...i already have the baclofen pump and it is helping but i am > progressing at the same time...and the docs say that even with the > definite diiagnosis of PLS or whatever it is that i am getting the > same treatment OF THE SYMPTOMS...so any ideas of what to do now? > just adapt and get on with it? i guess that's why i''m here to get > everyone else's take on things...thanks again in advance... > rachel > > > In a message dated 2/23/2004 10:17:15 PM Eastern Standard Time, > > PLS-FRIENDS writes: > > > > > > > ...PLS and HSP are the best guesses of my neurogeneticist right > now > > > and it sounds as if they could be correct...so i'm waiting for my > > > insurance company to agree to pay for the tests! in the meantime > i > > > figure i can talk to you nice people for some support and > > > commeraderie (did i spell that right?) ask me anything! is > there a > > > chat for this group? > > > > HI , > > > > Welcome to the online community and sorry for the reason you needed > to find > > us. We do have a Chat Forum. Since our community is so small (and > mighty, > > LOL), we have a scheduled Chat Session every Monday at 8:00 p.m. > EST. But anyone > > can announce a time they'd like to Chat with others and simply make > that > > announcement here and probably others will join you. > > http://sp-foundation.org/chat.htm > > > > As you may have read, PLS and HSP are basically a " diagnosis of > exclusion " . > > It's based on clinical symptoms, ruling things out with similar > symptoms > > through tests (such as MS and ALS), evaluating family history (HSP > is hereditary > > although in recessive forms it skips generations so you don't see a > family > > history in a lot of cases), and observation over time (waiting to > see what other > > symptoms develop). > > > > There is limited commercial gene testing for HSP, but it's only > testing for a > > few of the dominant types of HSP (where it passes from a parent to > a child). > > There are at least two dozen types of HSP, all caused by a > different gene. > > So, that means that if you are tested for one of the known HSP > genes and the > > test comes back " negative " , it doesn't mean you don't have HSP, it > just means > > you don't have one of those types. I have a form of HSP but not > one of the > > ones that gene testing is currently able to confirm. Don't know > what gene I > > have. > > > > Experts say there are common threads between neurologic disorders - > diseases > > along the motor neuron continuum (PLS, HSP, ALS and others) and > even other > > conditions like spinal cord disorder and Alzeihmers Disease and > Huntington's. > > That's because it's not a matter of the name of the disease, but > rather, the > > biochemical process that is going on. A disease name (likd PLS) > only describes > > a set of clinical symptoms, not the biochemical process beneath > those > > symptoms. There will undoubedly be ripple effects in discoveries. > There is so much > > attention to these conditions that I am hopeful that cures for many > will be > > found. > > > > I hope you will be able to attend a Connection event sometime and > meet > > others. You can see our Calendar of Events here: > > http://sp-foundation.org/calendar.htm > > > > best wishes, > > Kathi > > www.sp-foundation.org > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2004 Report Share Posted February 24, 2004 Dear , Welcome and happy that have found us,PLS-Friends!!! You will get alot good support here. As to your question I was told the same thing early on in the course of my symptoms. I was told it was probably MS or PLS or " time will tell " .My doctor was wonderful treating my symptoms accordingly. He explained to me it did not matter, it is just a name. He worded it so well it never really mattered. I hope you have a good and caring doctor that can help you through the bumps. Take care. Re: hi everyone > my doctors have ruled out MS (although that DOES run in my family) > and they've ruled out pretty much everything else at this point, so > here i am! and i too have tested negative for the genes that they > have identified and are " testable " for HSP and so we're at a little > bit of an impass i guess... > ...i already have the baclofen pump and it is helping but i am > progressing at the same time...and the docs say that even with the > definite diiagnosis of PLS or whatever it is that i am getting the > same treatment OF THE SYMPTOMS...so any ideas of what to do now? > just adapt and get on with it? i guess that's why i''m here to get > everyone else's take on things...thanks again in advance... > rachel > > > In a message dated 2/23/2004 10:17:15 PM Eastern Standard Time, > > PLS-FRIENDS writes: > > > > > > > ...PLS and HSP are the best guesses of my neurogeneticist right > now > > > and it sounds as if they could be correct...so i'm waiting for my > > > insurance company to agree to pay for the tests! in the meantime > i > > > figure i can talk to you nice people for some support and > > > commeraderie (did i spell that right?) ask me anything! is > there a > > > chat for this group? > > > > HI , > > > > Welcome to the online community and sorry for the reason you needed > to find > > us. We do have a Chat Forum. Since our community is so small (and > mighty, > > LOL), we have a scheduled Chat Session every Monday at 8:00 p.m. > EST. But anyone > > can announce a time they'd like to Chat with others and simply make > that > > announcement here and probably others will join you. > > http://sp-foundation.org/chat.htm > > > > As you may have read, PLS and HSP are basically a " diagnosis of > exclusion " . > > It's based on clinical symptoms, ruling things out with similar > symptoms > > through tests (such as MS and ALS), evaluating family history (HSP > is hereditary > > although in recessive forms it skips generations so you don't see a > family > > history in a lot of cases), and observation over time (waiting to > see what other > > symptoms develop). > > > > There is limited commercial gene testing for HSP, but it's only > testing for a > > few of the dominant types of HSP (where it passes from a parent to > a child). > > There are at least two dozen types of HSP, all caused by a > different gene. > > So, that means that if you are tested for one of the known HSP > genes and the > > test comes back " negative " , it doesn't mean you don't have HSP, it > just means > > you don't have one of those types. I have a form of HSP but not > one of the > > ones that gene testing is currently able to confirm. Don't know > what gene I > > have. > > > > Experts say there are common threads between neurologic disorders - > diseases > > along the motor neuron continuum (PLS, HSP, ALS and others) and > even other > > conditions like spinal cord disorder and Alzeihmers Disease and > Huntington's. > > That's because it's not a matter of the name of the disease, but > rather, the > > biochemical process that is going on. A disease name (likd PLS) > only describes > > a set of clinical symptoms, not the biochemical process beneath > those > > symptoms. There will undoubedly be ripple effects in discoveries. > There is so much > > attention to these conditions that I am hopeful that cures for many > will be > > found. > > > > I hope you will be able to attend a Connection event sometime and > meet > > others. You can see our Calendar of Events here: > > http://sp-foundation.org/calendar.htm > > > > best wishes, > > Kathi > > www.sp-foundation.org > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2004 Report Share Posted February 24, 2004 Dear , Welcome and happy that have found us,PLS-Friends!!! You will get alot good support here. As to your question I was told the same thing early on in the course of my symptoms. I was told it was probably MS or PLS or " time will tell " .My doctor was wonderful treating my symptoms accordingly. He explained to me it did not matter, it is just a name. He worded it so well it never really mattered. I hope you have a good and caring doctor that can help you through the bumps. Take care. Re: hi everyone > my doctors have ruled out MS (although that DOES run in my family) > and they've ruled out pretty much everything else at this point, so > here i am! and i too have tested negative for the genes that they > have identified and are " testable " for HSP and so we're at a little > bit of an impass i guess... > ...i already have the baclofen pump and it is helping but i am > progressing at the same time...and the docs say that even with the > definite diiagnosis of PLS or whatever it is that i am getting the > same treatment OF THE SYMPTOMS...so any ideas of what to do now? > just adapt and get on with it? i guess that's why i''m here to get > everyone else's take on things...thanks again in advance... > rachel > > > In a message dated 2/23/2004 10:17:15 PM Eastern Standard Time, > > PLS-FRIENDS writes: > > > > > > > ...PLS and HSP are the best guesses of my neurogeneticist right > now > > > and it sounds as if they could be correct...so i'm waiting for my > > > insurance company to agree to pay for the tests! in the meantime > i > > > figure i can talk to you nice people for some support and > > > commeraderie (did i spell that right?) ask me anything! is > there a > > > chat for this group? > > > > HI , > > > > Welcome to the online community and sorry for the reason you needed > to find > > us. We do have a Chat Forum. Since our community is so small (and > mighty, > > LOL), we have a scheduled Chat Session every Monday at 8:00 p.m. > EST. But anyone > > can announce a time they'd like to Chat with others and simply make > that > > announcement here and probably others will join you. > > http://sp-foundation.org/chat.htm > > > > As you may have read, PLS and HSP are basically a " diagnosis of > exclusion " . > > It's based on clinical symptoms, ruling things out with similar > symptoms > > through tests (such as MS and ALS), evaluating family history (HSP > is hereditary > > although in recessive forms it skips generations so you don't see a > family > > history in a lot of cases), and observation over time (waiting to > see what other > > symptoms develop). > > > > There is limited commercial gene testing for HSP, but it's only > testing for a > > few of the dominant types of HSP (where it passes from a parent to > a child). > > There are at least two dozen types of HSP, all caused by a > different gene. > > So, that means that if you are tested for one of the known HSP > genes and the > > test comes back " negative " , it doesn't mean you don't have HSP, it > just means > > you don't have one of those types. I have a form of HSP but not > one of the > > ones that gene testing is currently able to confirm. Don't know > what gene I > > have. > > > > Experts say there are common threads between neurologic disorders - > diseases > > along the motor neuron continuum (PLS, HSP, ALS and others) and > even other > > conditions like spinal cord disorder and Alzeihmers Disease and > Huntington's. > > That's because it's not a matter of the name of the disease, but > rather, the > > biochemical process that is going on. A disease name (likd PLS) > only describes > > a set of clinical symptoms, not the biochemical process beneath > those > > symptoms. There will undoubedly be ripple effects in discoveries. > There is so much > > attention to these conditions that I am hopeful that cures for many > will be > > found. > > > > I hope you will be able to attend a Connection event sometime and > meet > > others. You can see our Calendar of Events here: > > http://sp-foundation.org/calendar.htm > > > > best wishes, > > Kathi > > www.sp-foundation.org > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 I always use the meter that most closely matches the finger prick results at the doctor's office. You, hopefully, won't be in the hospital very much, but you will, hopefully, be in your doctor's office every three months or so. Take them all with you next time you go and test every one at the same time you get your finger stick there. Carol Ron Conrad wrote: > ultrasmart. Closer to what the meter in the hospital would have been. > Which one would be better to go by? The higher readings, or the lowers > ones? ANd also which is the better meter in general? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 I always use the meter that most closely matches the finger prick results at the doctor's office. You, hopefully, won't be in the hospital very much, but you will, hopefully, be in your doctor's office every three months or so. Take them all with you next time you go and test every one at the same time you get your finger stick there. Carol Ron Conrad wrote: > ultrasmart. Closer to what the meter in the hospital would have been. > Which one would be better to go by? The higher readings, or the lowers > ones? ANd also which is the better meter in general? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 Hi, my name is Emelinda and i am new to this group. A little about myself. I am 28 years old, i live in North Carolina. I have 2 beautiful boys ages 3 & 8, also i am married....I joined this group because i need some support and just people to chat with about losing weight...Right now i am at 434 pounds but a good note is that 2 months ago i was 450 pounds so i have lost 16 pounds so far.......Anyways, i am looking forward to getting to know everyone and supporting everyone as well...Take care and god bless.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2006 Report Share Posted August 15, 2006 Emelinda, Welcome to the group.....It sounds like your already on the right track. Congrats on the weight you have lost already....Are you planning on surgery? Do you have a date? Mike T Hi Everyone > Hi, my name is Emelinda and i am new to this group. A little about > myself. I am 28 years old, i live in North Carolina. Quote Link to comment Share on other sites More sharing options...
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