Re: Looking for support through this difficult time

[Guest guest]

Aiazeen,

First of all, I'm glad you have an SCD counselor who can work with you

individually on this. You might want to look at the weather in his or her

area -- if it's bad, the phone service may be down. It is,

unsurprisingly, scary when you reach out for assistance, and your

life-line is unavailable.

OK, let me see if I have this straight....

You went off the Asacol in October.

In December, you began a flare, but continued tapering your

prednisone?

I'm sorry that you are in a difficult situation -- have you gone back to

more digestible foods? Wait, I see that you have. Sorry -- I reading and

writing too quickly.

How much of those foods are you eating? Have you calculated the calories

you are taking in? I know that it can be awfully hard to keep eating and

eating when you feel dreadful and have no appetite. But if you aren't

taking in enough calories a day, you will continue to loose, and that's a

definite matter for concern.

I agree with your counselor to hold off on supplements, and to go with

bone broth for your calcium. Are you yet able to do DCCC or the SCD

yogurt? That can be helpful for calcium, as well.

You might look into pureeing meats and veggies into bone broth and

drinking it to add more calories. How are you on the healthy fats like

butter? That, too, can add calories.

Maybe someone else will have some other suggestions.

—

Marilyn

New Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

Aiazeen,

I cannot help you with all of the technicalities of your disease, but

I do want to send you some BIG (((HUGS))) during this frustrating and

difficult time. I'm thinking about you. Peace.