Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 Deb - I hope that you were able to pull off at least a little bit of fun while you were in New Orleans. I'm heading that way on September 18th and I'm PSYCHED. Just hoping here that I'll still have the axillary catheter in place so that I'll feel comfortable enough to really enjoy myself. Airport security might be kinda interesting though between the SCS and the cath....Try to let them stop me !! Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 Deb, As hard as it seems sometimes, yes, we can keep going. There are some days when I don't think it's possible I can make it through the day at the office, but somehow, I always manage to. It is exhausting, though. Let us know what your GP says.. hopefully, they can make some adjustments for you to get you through this difficult time. Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 Deb - I definitely have an understanding of the struggle of trying to keep working with RSD. Sometimes I feel like I'm just being a stubborn old coot and that I ought to just bag the idea of trying to keep the work thing going. Day to day, I manage fairly well (although I have to admit that I tend to just drop off into oblivion once I get home each night). It's the "not-you-typical" work days that throw me for a loop. At least with normal days (no extra meetings, etc.), I've lerarned how to pace myself, taking breaks and the like. Somehow, though, if anything else gets thrown in (lol as it typically does), I'm a goner. With what I do I can virtually depend on a kid going into crisis and needing for me to arrange hospitalization (after helping the "troops" to quiet the battle) or a day filled with too many meetings by someone who doesn't have a clue about how to schedule things appropriately. Throw in a conference where the folks running it don't have any idea that there might be folks attending who need some simple accommodations and SPLAT. I love my work.....I love the kids, I love using my head and heart...but it's incredibly taxing. Right now I'm fairly terrified about how I'll do once they take out the catheter.....whenever that happens. I was barely managing without it and, frankly, just manage to get by now with it in place. I'm pretty concerned about what my pain levels and functioning will be once it is (inevitable) removed. Just kinda biding my time, I think. I'm glad that your mom is helping you out.....that kind of support is so important. I have two sisters left (parents have been gone for years). The one that lives locally is emotionally understanding but virtually unavailable to help at all on a day to day basis. My other sister (who I love dearly but she drives me nuts) has been terrific about driving up from the Cape (3 hrs. away) to help out with post-surgical detail. For your basic day to day stuff, I have no support. I try to be independent (and there's a lot of stuff that gets dropped and I look at it and say scr*w it...it can stay there), but there's so much stuff that I just cannot do. I cope by just acknowedging that I'm not perfect, never was and never will be, and move on. The phrase "I'm doing the best I can and that is good enough" is my mantra. Know that I am here if you ever need to vent....as I have just done the same. I'll yell your way when I'm down in Nawlins. Barbara Quote Link to comment Share on other sites More sharing options...
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