RE: To A/P or not to A/P, and for how long? That is the question

[Guest guest]

Hi everybody! You all make a good point and it is great that we can get

together and brainstorm these questions. Cooky, is right about waiting too

long. The disease process goes on no matter what if we are not doing something

about it by way of antibiotics or treatment. These have been shown to reduce

the inflammation. Studies coming out show that Minocin is the drug of choice

for these micoplasmas. It blocks their elimination. At least that is the way I

read it. They are doing studies with Lupus and Mino now. I'm glad to see that

something is being checked into instead of just stopping at the immune

suppressants which gave so much hope in the 1940's and so much grief later on.

The more doctors we wake up to antibiotics, the faster the word will get around.

The time has come. There are too many of us that are getting their lives back

with A/P, not to take notice. Now Amy brings out the point on how long should

we try it before giving up. Well, how much do

you value your life? How much time are you willing to invest? Unfortunately,

since A/P is still in the trial and research stages, there is no answer and the

manual hasn't been written yet. From what I read, A/P Minocin works for some,

for others it is doxy or clindy or zith or, it's any bodies guess. Each person

must try it on for size and give their experience. How long? Good question, it

varies. Because we all don't carry the same microbes, there is no set time.

Some have more bugs than others and different kinds. Each person's response is

also different. Some people heal faster, because their immune system is

stronger. Other's may have overlapping diseases and conditions that hamper

progress. Age, diet, exercise, lifestyle are all contributing factors. The

best thing to do since these CWD microbes are slow growing and slow dying is to

try the A/P and monitor yourselves carefully and take it as prescribed. Give it

some time and keep a journal. Some areas of

the body will heal and then some other areas will begin to show symptoms. The

micoplasmas are all over the body. So are the immune cells chasing them. Some

people who are not as sick can go into remission within 6 months, others maybe a

year or more. But you don't just wake up two years later in remission. You

start to see changes along the way. For some, Raynaud's will disappear first.

For others, it could be joints, and other's will still be blowing their noses

constantly for several years while they no longer need pain pills. Other's have

a problem with digestion and others with headaches, or heart- lung,

difficulties. We are all unique. The main thing is that to go back to the

1940's medicine is ludicrous. It didn't cure then and it will not cure now. It

killed then and it will kill now. These diseases are disfiguring and terminal.

So, what have we got to lose by trying them? Okay, I will get back e:mails that

say, " You can get Minocin induced Lupus " or

something else from long term antibiotics. That's where the experiments come

in. We each are an experiment.

The docs are there to monitor our progress or regress. That's why we do

frequent testing. That's why this site is here. We are all in an experimental

state. Doc's don't have the final answer and researchers are working on it. We

have to join together and not feel we each have the answer. Maybe we will reach

the answer together. Hopefully. Everybody jointly, let's keep each other

informed for the common good. And teach our doctors how to treat us. If they

think they are Gods, walk. Find another one. When their offices start emptying

out, they will take notice. Remember, they make their money off of you.

Healthy people do not support the docs or the pharmacists or any health

services. Sick people keep the industry going. Why should they cure us? HUH!

$$$$$-It's up to us to take charge of our health care system. I reached

remission in 18 months. Others are more and some are less fortunate than me. I

did see changes along the way. Monitor yourselves for

the answers and share the info with us all.~~~Thanks for allowing me to spew.

It's what I do best. Hope the best for all of you,~~~me, and everyone else

within ear shot. Dolores

C Stonkey <cookee1@...> wrote:

You also risk the chance of deformaties by waiting too long.

cooky

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of Amy

Sent: Saturday, February 09, 2008 4:57 PM

rheumatic

Subject: Re: rheumatic Re: $4 dollar program

Wow. I thought Harold's web page was very helpful. It tells what

possibilities are available to me ... and if one thing doesn't work then

I should try another.

One thing I wonder about though is how long should I work with one type

to know whether or not it works? I'm sure this will info will vary

too. It's a bit depressing to spend time on one, waiting to know

whether or not it will work.

Amy

wiccantwinpaths wrote:

>

> Harold's list is less than useful. Certain people love a certain

> generic, others hate the same one and say it's useless, the only one

> that didn't have a detractor turns out to be made by the same company

> as 2 other generic brands that did have detractors. I expanded his

> list to the Internet and found not a single one of the generics

> listed on his list, doesn't have it's follows and it's haters.

>

>

[Guest guest]

Dolores,

er.

I am so glad you brought the subject up on when we need to start, how long it

will take, etc. I think as soon as you find out there is another way to get into

remission than the awful drugs they hand us, the sooner the better

I have to take Biaxin, and I can tell it helps. I was the one that looked for

another doctor since my rheumatologist didn't even want me to go see another

doctor. (very selfish of her). I did anyway and she was surprised how well I am

doing after just three weeks on antibiotics. she told me I was going into

remission, the antibiotics had nothing to do with it. I will keep her informed

how I am doing. She is willing to do my blood tests every six week.

My pulmonary doctor was the one that started it and the other doctor agreed.

Last night my husband and I went out with some friends and one of the guys has

RA, he told me all the meds he is taking and I advised him and his wife to get

the book: The Road Back. I told her to read it and if they want too I will give

them addresses from doctors in TX that do antibiotic.

They promised to do it since even with the meds he is taking he is always in

pain. His doctor told him down the road he will have to go on something

stronger.

My husband also told me last night that he was afraid he would have to be my

caregiver soon, since I had gone downhill so fast since the beginning of

December. I thought the same but didn't want to say it, I was scared.

We need to let everyone know that has RA and all the other things with it that

there is only one way to get well and that's with antibiotics and a doctor that

knows what to do.

Thanks,

Eva

mike rosner <martysfolks2004@...> wrote:

Hi everybody! You all make a good point and it is great that we can

get together and brainstorm these questions. Cooky, is right about waiting too

long. The disease process goes on no matter what if we are not doing something

about it by way of antibiotics or treatment. These have been shown to reduce the

inflammation. Studies coming out show that Minocin is the drug of choice for

these micoplasmas. It blocks their elimination. At least that is the way I read

it. They are doing studies with Lupus and Mino now. I'm glad to see that

something is being checked into instead of just stopping at the immune

suppressants which gave so much hope in the 1940's and so much grief later on.

The more doctors we wake up to antibiotics, the faster the word will get around.

The time has come. There are too many of us that are getting their lives back

with A/P, not to take notice. Now Amy brings out the point on how long should we

try it before giving up. Well, how much do

you value your life? How much time are you willing to invest? Unfortunately,

since A/P is still in the trial and research stages, there is no answer and the

manual hasn't been written yet. From what I read, A/P Minocin works for some,

for others it is doxy or clindy or zith or, it's any bodies guess. Each person

must try it on for size and give their experience. How long? Good question, it

varies. Because we all don't carry the same microbes, there is no set time. Some

have more bugs than others and different kinds. Each person's response is also

different. Some people heal faster, because their immune system is stronger.

Other's may have overlapping diseases and conditions that hamper progress. Age,

diet, exercise, lifestyle are all contributing factors. The best thing to do

since these CWD microbes are slow growing and slow dying is to try the A/P and

monitor yourselves carefully and take it as prescribed. Give it some time and

keep a journal. Some areas of

the body will heal and then some other areas will begin to show symptoms. The

micoplasmas are all over the body. So are the immune cells chasing them. Some

people who are not as sick can go into remission within 6 months, others maybe a

year or more. But you don't just wake up two years later in remission. You start

to see changes along the way. For some, Raynaud's will disappear first. For

others, it could be joints, and other's will still be blowing their noses

constantly for several years while they no longer need pain pills. Other's have

a problem with digestion and others with headaches, or heart- lung,

difficulties. We are all unique. The main thing is that to go back to the 1940's

medicine is ludicrous. It didn't cure then and it will not cure now. It killed

then and it will kill now. These diseases are disfiguring and terminal. So, what

have we got to lose by trying them? Okay, I will get back e:mails that say, " You

can get Minocin induced Lupus " or

something else from long term antibiotics. That's where the experiments come in.

We each are an experiment.

The docs are there to monitor our progress or regress. That's why we do frequent

testing. That's why this site is here. We are all in an experimental state.

Doc's don't have the final answer and researchers are working on it. We have to

join together and not feel we each have the answer. Maybe we will reach the

answer together. Hopefully. Everybody jointly, let's keep each other informed

for the common good. And teach our doctors how to treat us. If they think they

are Gods, walk. Find another one. When their offices start emptying out, they

will take notice. Remember, they make their money off of you. Healthy people do

not support the docs or the pharmacists or any health services. Sick people keep

the industry going. Why should they cure us? HUH! $$$$$-It's up to us to take

charge of our health care system. I reached remission in 18 months. Others are

more and some are less fortunate than me. I did see changes along the way.

Monitor yourselves for

the answers and share the info with us all.~~~Thanks for allowing me to spew.

It's what I do best. Hope the best for all of you,~~~me, and everyone else

within ear shot. Dolores

C Stonkey <cookee1@...> wrote:

You also risk the chance of deformaties by waiting too long.

cooky

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of Amy

Sent: Saturday, February 09, 2008 4:57 PM

rheumatic

Subject: Re: rheumatic Re: $4 dollar program

Wow. I thought Harold's web page was very helpful. It tells what

possibilities are available to me ... and if one thing doesn't work then

I should try another.

One thing I wonder about though is how long should I work with one type

to know whether or not it works? I'm sure this will info will vary

too. It's a bit depressing to spend time on one, waiting to know

whether or not it will work.

Amy

wiccantwinpaths wrote:

>

> Harold's list is less than useful. Certain people love a certain

> generic, others hate the same one and say it's useless, the only one

> that didn't have a detractor turns out to be made by the same company

> as 2 other generic brands that did have detractors. I expanded his

> list to the Internet and found not a single one of the generics

> listed on his list, doesn't have it's follows and it's haters.

>

>

[Guest guest]

Dolores,

Hi! Amy was talking about how long should you take a generic minocin before

deciding if it is not working and then deciding to try a different generic

as compared to using the brand name Minocin right away and paying the high

cost.

cooky

notice. Now Amy brings out the point on how long should we try it before

giving up. Well, how much do

you value your life? How much time are you willing to invest? Unfortunately,

since A/P is still in the trial and research stages, there is no answer and

the manual hasn't been written yet. From what I read, A/P Minocin works for

some, for others it is doxy or clindy or zith or, it's any bodies guess.

Each person must try it on for size and give their experience. How long?

Good question, it varies. Because we all don't carry the same

[Guest guest]

Dolores-

Thanks for sharing all of that. It helps--me at least--to hear it again.

mike rosner <martysfolks2004@...> wrote:

Hi everybody! You all make a good point and it is great that we can

get together and brainstorm these questions. Cooky, is right about waiting too

long. The disease process goes on no matter what if we are not doing something

about it by way of antibiotics or treatment. These have been shown to reduce the

inflammation. Studies coming out show that Minocin is the drug of choice for

these micoplasmas. It blocks their elimination. At least that is the way I read

it. They are doing studies with Lupus and Mino now. I'm glad to see that

something is being checked into instead of just stopping at the immune

suppressants which gave so much hope in the 1940's and so much grief later on.

The more doctors we wake up to antibiotics, the faster the word will get around.

The time has come. There are too many of us that are getting their lives back

with A/P, not to take notice. Now Amy brings out the point on how long should we

try it before giving up. Well, how much do

you value your life? How much time are you willing to invest? Unfortunately,

since A/P is still in the trial and research stages, there is no answer and the

manual hasn't been written yet. From what I read, A/P Minocin works for some,

for others it is doxy or clindy or zith or, it's any bodies guess. Each person

must try it on for size and give their experience. How long? Good question, it

varies. Because we all don't carry the same microbes, there is no set time. Some

have more bugs than others and different kinds. Each person's response is also

different. Some people heal faster, because their immune system is stronger.

Other's may have overlapping diseases and conditions that hamper progress. Age,

diet, exercise, lifestyle are all contributing factors. The best thing to do

since these CWD microbes are slow growing and slow dying is to try the A/P and

monitor yourselves carefully and take it as prescribed. Give it some time and

keep a journal. Some areas of

the body will heal and then some other areas will begin to show symptoms. The

micoplasmas are all over the body. So are the immune cells chasing them. Some

people who are not as sick can go into remission within 6 months, others maybe a

year or more. But you don't just wake up two years later in remission. You start

to see changes along the way. For some, Raynaud's will disappear first. For

others, it could be joints, and other's will still be blowing their noses

constantly for several years while they no longer need pain pills. Other's have

a problem with digestion and others with headaches, or heart- lung,

difficulties. We are all unique. The main thing is that to go back to the 1940's

medicine is ludicrous. It didn't cure then and it will not cure now. It killed

then and it will kill now. These diseases are disfiguring and terminal. So, what

have we got to lose by trying them? Okay, I will get back e:mails that say, " You

can get Minocin induced Lupus " or

something else from long term antibiotics. That's where the experiments come in.

We each are an experiment.

The docs are there to monitor our progress or regress. That's why we do frequent

testing. That's why this site is here. We are all in an experimental state.

Doc's don't have the final answer and researchers are working on it. We have to

join together and not feel we each have the answer. Maybe we will reach the

answer together. Hopefully. Everybody jointly, let's keep each other informed

for the common good. And teach our doctors how to treat us. If they think they

are Gods, walk. Find another one. When their offices start emptying out, they

will take notice. Remember, they make their money off of you. Healthy people do

not support the docs or the pharmacists or any health services. Sick people keep

the industry going. Why should they cure us? HUH! $$$$$-It's up to us to take

charge of our health care system. I reached remission in 18 months. Others are

more and some are less fortunate than me. I did see changes along the way.

Monitor yourselves for

the answers and share the info with us all.~~~Thanks for allowing me to spew.

It's what I do best. Hope the best for all of you,~~~me, and everyone else

within ear shot. Dolores

C Stonkey <cookee1@...> wrote:

You also risk the chance of deformaties by waiting too long.

cooky

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of Amy

Sent: Saturday, February 09, 2008 4:57 PM

rheumatic

Subject: Re: rheumatic Re: $4 dollar program

Wow. I thought Harold's web page was very helpful. It tells what

possibilities are available to me ... and if one thing doesn't work then

I should try another.

One thing I wonder about though is how long should I work with one type

to know whether or not it works? I'm sure this will info will vary

too. It's a bit depressing to spend time on one, waiting to know

whether or not it will work.

Amy

wiccantwinpaths wrote:

>

> Harold's list is less than useful. Certain people love a certain

> generic, others hate the same one and say it's useless, the only one

> that didn't have a detractor turns out to be made by the same company

> as 2 other generic brands that did have detractors. I expanded his

> list to the Internet and found not a single one of the generics

> listed on his list, doesn't have it's follows and it's haters.

>

>

[Guest guest]

Hi Cooky, I misunderstood Amy. I thought she was asking how long she should

try A/P. That, to me includes all antibiotics. My doc put me on Minocin from

day one, so I can not say how long people should stay on anything else. Only the

person taking the medication can tell if it is working or not. Some people take

longer and some people start seeing a difference right away. There is no way to

answer that question as it stands. I only know that I went into remission after

18 months of taking Minocin 100mg. twice a day every day. Personally, I would

crawl across the USA on my knees to get my Minocin. But that's me. Can't tell

others what to do. They must work with their docs on that one. Dolores

C Stonkey <cookee1@...> wrote: Dolores,

Hi! Amy was talking about how long should you take a generic minocin before

deciding if it is not working and then deciding to try a different generic

as compared to using the brand name Minocin right away and paying the high

cost.

cooky

notice. Now Amy brings out the point on how long should we try it before

giving up. Well, how much do

you value your life? How much time are you willing to invest? Unfortunately,

since A/P is still in the trial and research stages, there is no answer and

the manual hasn't been written yet. From what I read, A/P Minocin works for

some, for others it is doxy or clindy or zith or, it's any bodies guess.

Each person must try it on for size and give their experience. How long?

Good question, it varies. Because we all don't carry the same