Re: Who eats the full SCD Diet?

[Guest guest]

>My 11 yo son has eaten the full SCD diet for over a year. we spent a

week on the intro and then moved on fairly quickly according to the

directions in Breaking the Vicious Cycle. We have had a few setbacks

along the way but overall he is doing great. In addition to the diet

he also takes 2mg of LDN and probiotics from Lucy's Kitchen Shop.

Good Luck!!! Jill

> Hi there, I just wanted to check in and see how many people with

> Crohn's or UC have gotten to a point where they can eat the full SCD

> Diet?

> Thanks,

>

>

[Guest guest]

Please explain to me because I am new and I don't know what all the abb. stand for. what is LDN ? thank you

Subject: Re: Who eats the full SCD Diet?To: BTVC-SCD Date: Tuesday, March 3, 2009, 8:45 AM

>My 11 yo son has eaten the full SCD diet for over a year. we spent a week on the intro and then moved on fairly quickly according to the directions in Breaking the Vicious Cycle. We have had a few setbacks along the way but overall he is doing great. In addition to the diet he also takes 2mg of LDN and probiotics from Lucy's Kitchen Shop. Good Luck!!! Jill > Hi there, I just wanted to check in and see how many people with > Crohn's or UC have gotten to a point where they can eat the full SCD > Diet?> Thanks,> >

[Guest guest]

--Sorry for the abbreviation. LDN stands for Low Dose Naltrexone. This is a

new medication that is currently being studied for crohn's. It has to be

compounded at a compounding pharmacy. It has nothing to do with SCD although I

believe several other list members are on the drug as well. For more info.

google LDN Crohn's. It is being studied by a dr. jill smith in pennsylvania. (i

can't remember if its Univ. of Penn. or Penn. State) Anyway my son has done

very well on the diet but did have some residual cramping and this drug did away

with that. He has done so well with this combination (SCD and LDN)we will just

keep going and hope his health continues!!!

- In BTVC-SCD , Bertram wrote:

>

> Please explain to me because I am new and I don't know what all the abb. stand

for.  what is  LDN ? thank you

>

>

>

>

>

>

> Subject: Re: Who eats the full SCD Diet?

> To: BTVC-SCD

> Date: Tuesday, March 3, 2009, 8:45 AM

>

>

>

>

>

>

>

> >My 11 yo son has eaten the full SCD diet for over a year. we spent a

> week on the intro and then moved on fairly quickly according to the

> directions in Breaking the Vicious Cycle. We have had a few setbacks

> along the way but overall he is doing great. In addition to the diet

> he also takes 2mg of LDN and probiotics from Lucy's Kitchen Shop.

> Good Luck!!! Jill

> > Hi there, I just wanted to check in and see how many people with

> > Crohn's or UC have gotten to a point where they can eat the full SCD

> > Diet?

> > Thanks,

> >

> >

>

[Guest guest]

--Sorry for the abbreviation. LDN stands for Low Dose Naltrexone. This is a

new medication that is currently being studied for crohn's. It has to be

compounded at a compounding pharmacy. It has nothing to do with SCD although I

believe several other list members are on the drug as well. For more info.

google LDN Crohn's. It is being studied by a dr. jill smith in pennsylvania. (i

can't remember if its Univ. of Penn. or Penn. State) Anyway my son has done

very well on the diet but did have some residual cramping and this drug did away

with that. He has done so well with this combination (SCD and LDN)we will just

keep going and hope his health continues!!!

- In BTVC-SCD , Bertram wrote:

>

> Please explain to me because I am new and I don't know what all the abb. stand

for.  what is  LDN ? thank you

>

>

>

>

>

>

> Subject: Re: Who eats the full SCD Diet?

> To: BTVC-SCD

> Date: Tuesday, March 3, 2009, 8:45 AM

>

>

>

>

>

>

>

> >My 11 yo son has eaten the full SCD diet for over a year. we spent a

> week on the intro and then moved on fairly quickly according to the

> directions in Breaking the Vicious Cycle. We have had a few setbacks

> along the way but overall he is doing great. In addition to the diet

> he also takes 2mg of LDN and probiotics from Lucy's Kitchen Shop.

> Good Luck!!! Jill

> > Hi there, I just wanted to check in and see how many people with

> > Crohn's or UC have gotten to a point where they can eat the full SCD

> > Diet?

> > Thanks,

> >

> >

>

[Guest guest]

Hi ,

My dd has been on SCD for almost three years for Crohn's. She was able to eat

the full diet prob. 8 months after the started. She is now six months totally

med-free. SCD rocks

Ellen

[Guest guest]

>

> Hi ,

>

> My dd has been on SCD for almost three years for Crohn's. She was able to eat

the full diet prob. 8 months after the started. She is now six months totally

med-free. SCD rocks

>

> Ellen

>

Wow! Thanks for the reply.

Was she using any meds? how long had she had crohn's?

also, what does dd stand for?

thanks,

[Guest guest]

Hi ,

" dd " stand for " dear daughter " or " darling daughter "

We started her on SCD right after she was diagnosed at age 8 1/2. She spent a

week in the hospital, and her GI doc later told me it was " a miracle " that she

didn't need surgery. She has been VERY strict to stick to the diet for almost

three years (me too!).

She has weaned off of Prednisone, Flagyl, Prilosec and Imuran. Imuran was the

last one to go. We probably could have taken her off it before, but she wasn't

having any side effects. When we began to think of taking her off the diet, I

knew we would want her very stable without meds to even think of coming a bit

off the SC diet, so, here we are, six months med-free.

Wishing you good health,

Ellen