Guest guest Posted May 9, 2001 Report Share Posted May 9, 2001 Hello, I have a son that is 12 that was diagnosed with CF when he was 2 months old. We went through hell up to that point, we would feed him and minutes later he would be crying. We couldn't do anything to please him and since he was our first child I thought we were inadequate parents. Finally I stared feeding him as much as he wanted, disregarding the parental " How To " books but I documented how much and how often he ate. At two months of age he drank 40 ounces of formula daily and had only gained 7 ounces from his birth weight. Thanks to my documentation on of the first tests given him was the sweat test and then we knew. Barry father of Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2001 Report Share Posted May 10, 2001 Hi Barry, welcome to the list. Always nice to see another dad on this matriarchalic list, LOL. You've done very right in that you kept an open eye and a diary about your son's problems. Bye Torsten > Hello, > I have a son that is 12 that was diagnosed with CF when he was 2 months > old. We went through hell up to that point, we would feed him and minutes > later he would be crying. We couldn't do anything to please him and since he > was our first child I thought we were inadequate parents. Finally I stared > feeding him as much as he wanted, disregarding the parental " How To " books > but I documented how much and how often he ate. At two months of age he > drank 40 ounces of formula daily and had only gained 7 ounces from his birth > weight. Thanks to my documentation on of the first tests given him was the > sweat test and then we knew. > Barry father of > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2001 Report Share Posted May 10, 2001 Hi Barry, welcome to the list. Always nice to see another dad on this matriarchalic list, LOL. You've done very right in that you kept an open eye and a diary about your son's problems. Bye Torsten > Hello, > I have a son that is 12 that was diagnosed with CF when he was 2 months > old. We went through hell up to that point, we would feed him and minutes > later he would be crying. We couldn't do anything to please him and since he > was our first child I thought we were inadequate parents. Finally I stared > feeding him as much as he wanted, disregarding the parental " How To " books > but I documented how much and how often he ate. At two months of age he > drank 40 ounces of formula daily and had only gained 7 ounces from his birth > weight. Thanks to my documentation on of the first tests given him was the > sweat test and then we knew. > Barry father of > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2001 Report Share Posted May 10, 2001 Hi Barry, welcome to the list. Always nice to see another dad on this matriarchalic list, LOL. You've done very right in that you kept an open eye and a diary about your son's problems. Bye Torsten > Hello, > I have a son that is 12 that was diagnosed with CF when he was 2 months > old. We went through hell up to that point, we would feed him and minutes > later he would be crying. We couldn't do anything to please him and since he > was our first child I thought we were inadequate parents. Finally I stared > feeding him as much as he wanted, disregarding the parental " How To " books > but I documented how much and how often he ate. At two months of age he > drank 40 ounces of formula daily and had only gained 7 ounces from his birth > weight. Thanks to my documentation on of the first tests given him was the > sweat test and then we knew. > Barry father of > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2001 Report Share Posted May 12, 2001 Welcome Colleen, My son was diagnosed at 4 months (now 14 months) and so far he has had no cf related problems. His lungs are clear and he does not require enzymes. CF varies greatly from mild to severe and you will find examples of it all here on this list. Good luck with little Elyse. Angie P. (mom to JC, 14 months, wcf) newcomer > I have joined your group and thought I would introduce myself. My > name is Colleen and my daughter was diagonsed when she was three > weeks old. Elyse is now 4 months old and I am happy to report that > she is doing well. She has not had any lungs problems and is gaining > weight. Her little personality is starting to show and I find her > quite entertaining. Thank you all of your honesty and willingness to > share. When Elyse was first diagnosed, I felt alone and scared. It > is comforting to that support is just an e-mail away. > > Colleen, mom to Elyse > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2001 Report Share Posted May 12, 2001 Welcome Colleen, My son was diagnosed at 4 months (now 14 months) and so far he has had no cf related problems. His lungs are clear and he does not require enzymes. CF varies greatly from mild to severe and you will find examples of it all here on this list. Good luck with little Elyse. Angie P. (mom to JC, 14 months, wcf) newcomer > I have joined your group and thought I would introduce myself. My > name is Colleen and my daughter was diagonsed when she was three > weeks old. Elyse is now 4 months old and I am happy to report that > she is doing well. She has not had any lungs problems and is gaining > weight. Her little personality is starting to show and I find her > quite entertaining. Thank you all of your honesty and willingness to > share. When Elyse was first diagnosed, I felt alone and scared. It > is comforting to that support is just an e-mail away. > > Colleen, mom to Elyse > > > > PLEASE do not post religious emails to the list. > > > ------------------------------------------- > > > The opinions and information exchanged on this list should > IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > -------------------------------------------------- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Hi. I am new to the SCD diet as of 2 weeks now. I am 38 and have had ulcerative colitis since I was 15. The last 2 years have been off and on increasingly worse. I am not responding to topicals and orals and my doctor is wanting to put me on Imuran which I refuse at this point to do. I am really hoping that I find relief through this diet and honestly, am afraid it won't. But I am 100% willing to follow this diet to a T as long as needed, and hope that my symptoms, at least don't get worse as I proceed so I can give it an honest try. My fear is that I will get real sick while waiting for things to turn around and have to make a tough decision regarding using a drug I am very much against and afraid of. I'm still trying to learn the do's and don'ts of this diet, and prior to starting this one I had been following a yeast free diet (only for a couple of weeks) I am wondering if the SCD diet alone will address yeast overgrowth or if I need to combine the two diets? Does anybody know anything about this, or had experience with recovery through yeast free diets? I'm confused and afraid to reintroduce certain things such as vinegars. The two together really makes the diet very limited so I would love to get the okay that the SCD is enough. I am so grateful to find this website, and join with others that are having problems like me. Thank you so much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 If you go to the group and look under files, there is information on SCD and yeast. You do have to limit a few extra things if you have yeast overgrowth but the diet is totally doable to control yeast. Misty CD - no meds SCD - 14 months today!!! > > Hi. I am new to the SCD diet as of 2 weeks now. I am 38 and have had ulcerative colitis since I was 15. The last 2 years have been off and on increasingly worse. I am not responding to topicals and orals and my doctor is wanting to put me on Imuran which I refuse at this point to do. I am really hoping that I find relief through this diet and honestly, am afraid it won't. But I am 100% willing to follow this diet to a T as long as needed, and hope that my symptoms, at least don't get worse as I proceed so I can give it an honest try. My fear is that I will get real sick while waiting for things to turn around and have to make a tough decision regarding using a drug I am very much against and afraid of. > I'm still trying to learn the do's and don'ts of this diet, and prior to starting this one I had been following a yeast free diet (only for a couple of weeks) I am wondering if the SCD diet alone will address yeast overgrowth or if I need to combine the two diets? Does anybody know anything about this, or had experience with recovery through yeast free diets? I'm confused and afraid to reintroduce certain things such as vinegars. The two together really makes the diet very limited so I would love to get the okay that the SCD is enough. > I am so grateful to find this website, and join with others that are having problems like me. > Thank you so much. > Quote Link to comment Share on other sites More sharing options...
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