Guest guest Posted August 9, 2004 Report Share Posted August 9, 2004 Jo, The GP said I am not anemic but the tiredness is the RSD and the left and right leg are affected. I am soooo angry at myself I had another appointment scheduled with my pain doctor at the same time and forgot his. Oh well, I will call in the morning and explain my absent mindedness. HA!HA! They should already have heard that excuse already. Back to the GP. I am not taking Zocor because my cholesterol was 275 and I have lost weight and I am not eating much. My dad died at 39 of a massive heart attack, so he thinks possibly it is just inherited. One more pill to swallow at night. The other pill is kinda strange it is to be taken at noon to prevent me from taking such long naps and being so tired after work. The GP is concerned that I come home and immediately go to sleep for 4-5 hours wake up eat and then go back to bed. He has me taking Provigil(Modafinil-200 mg)at lunch to keep me awake. He laughed and said it was like an upper and maybe would give me energy. I don't really feel comfortable taking it but I took one at noon and I must admit I became very tired at 4:00 but was able to go to Target with a co-worker, eat diner, and now I am going to bed but I am about to pass out. Have you heard of that? I feel like I am now taking uppers, downers, and God knows what else is going into my body. I am still depressed but we didn't change that medication. He told me he wouldn't change the neurotin but he would add that new one because if it was working that we didn't need to mess with it and thinks that is what's causing my sleeping so much at home. That's a side effect supposingly of neurotin. Have you heard of the drugs? I guess doctors experiment on all of us RSDers. Thank you so much for caring. I just had a crying spell and I am not sure if it's just because one more doctor has said there's really not much we can do and no one knows a lot about the RSD or if I am just tired after my trip and work all day today. I have to find peace and I am still searching. I am working on my den becoming my room of tranquility. It's the two golden retreivers and myself but my mom comes uninvited all the time and I want one room that I can fix up. I have beach photos, a fake fish take that really is a tv with different scenes rotating, a small waterfall, ocean cds playing, seashells all around and I am looking for fabric this weekend to cover cushions with somethin with browns and blues with shells that match a shower curtain that I put up in the laundry room that connects to the den. I have had this in my mind for a while but just now acting on it. I am trying to take control again. I hope tomorrow to get an extra check from the school board and I am going to buy a cheap DVD player. I already have the TV/VCR combo but can't watch my DVD's out there. I will be fixed up and able to relax with soothing sounds and peaceful thoughts. I better close and get my beauty sleep (I wish!) Do you feel that your face has aged since being ill? Maybe it's my imagination. Take care and thanks for writing me.I need all of you now. Love, Deb from Louisiana jomal1@... wrote: Deb, As hard as it seems sometimes, yes, we can keep going. There are some days when I don't think it's possible I can make it through the day at the office, but somehow, I always manage to. It is exhausting, though. Let us know what your GP says.. hopefully, they can make some adjustments for you to get you through this difficult time. Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 I am working on my den becoming my room of tranquility. Deb, What a good idea. It's wonderful to have a place to go where you can simply just be, filled with all the things you enjoy. Sounds like a perfect haven. The neurontin may make you sleepy, however, there are alternatives to that which may work just as well (topomax, zanaflex, etc.) that may not make you as tired. Have they checked your for Fibro and/or Chronic Fatigue Syndrome? It does not sound like "just RSD" to me, as it came on rather suddenly, didn't it? That is usually the Drs way of saying "I don't know". Although you may not be anemic, there could be other things going on.... did they test blood sugars, etc? Don't give up trying to find an answer. Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2004 Report Share Posted August 10, 2004 > > In a message dated 08/09/2004 11:12:23 PM Eastern Standard Time, > ducote55@y... writes: > > I am working on my den becoming my room of tranquility. > Deb I live in a house with 3 other adults as well as my 12yr old daughter. I need to find a room that is mine. I retreat to my bedroom and read when things get too stressful or when I am feeling closed in but its not " mine " yanno? I think your room sounds wonderful, I live very close to the ocean and would love to reflect something like that inside my home. Enjoy your space Deb. Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Deb, Sorry for butting in, but this room sounds HEAVENLY! I think we all need a room like this! And yes, I, too, feel like my aged since getting rsd. I wonder why that is? Hope you're feeling better today. Not quite so down. Praying you have some peaceful moments with low pain. Faith I am working on my den becoming my room of tranquility. It's the two golden retreivers and myself but my mom comes uninvited all the time and I want one room that I can fix up. I have beach photos, a fake fish take that really is a tv with different scenes rotating, a small waterfall, ocean cds playing, seashells all around and I am looking for fabric this weekend to cover cushions with somethin with browns and blues with shells that match a shower curtain that I put up in the laundry room that connects to the den. I have had this in my mind for a while but just now acting on it. I am trying to take control again. I hope tomorrow to get an extra check from the school board and I am going to > buy a cheap DVD player. I already have the TV/VCR combo but can't watch my DVD's out there. I will be fixed up and able to relax with soothing sounds and peaceful thoughts. I better close and get my beauty sleep (I wish!) Do you feel that your face has aged since being ill? Maybe it's my imagination. Take care and thanks for writing me.I need all of you now. >Love, >Deb from Louisiana Express yourself instantly with MSN Messenger! Download today - it's FREE! Quote Link to comment Share on other sites More sharing options...
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