Re: meds quit working? does it just keep getting worse?

[Guest guest]

I was on gabapentin for a year also but it never helped my muscle

spasms. A week ago my rheum switched me to Lyrica, too. Take 75mg

twice a week. Have had fibro over 16 years and have been getting

progressively worse. But not as severe pain yet as many of you have.

Sorry for the loss of your loving pet. I am sure he was very special

to you both.

Debbie J

>

> i've tried gabapentin, baclofen, flexeril, and now my doc is

starting

> me on lyrica. my husband finaly managed to talk me into trying it,

i

> had refused before because of the weight gain issue, and the

flexeril

> was working ok for me, but this past week has been

hell ...mounting!

> i'v never been this bad before, and this is while i'm on 2 meds, i

> can't imagine how it would be without. but why? does fibro tend to

get

> worse and worse as the years go by? i'd like to know what your

> experiences have been, to know if this is normal , or if something

is

> actualy wrong.

>

> and as this goes on, our darling guinnea pig just passed on, we

> actually had a funeral for him,i even allowed my son jess to miss

> school for the event, i gave a eulogy " as we stand here today and

bury

> our friend let it be known he's in our hearts till our very end and

> though we named him lucky we are the lucky ones ,to know him, hold

> him ,and call him our friend. "

>

[Guest guest]

Charity, from my personal experience... yes it gets worse with time. I had

symptoms in my 20's and brushed them off. I am now 43. The years made it worse

and worse as time went by. Since the major flare I had 4 years ago right before

my dianosis was made, I have never ever been the same. Fibro moved into my life

and stayed. I don't want to sound disappointing, but that is what I am hearing

from most of the people I have talked to that have this thing.

Please keep in mind, there are cases that get better. Just not many of them.

Also realize that their are medications for most of us that can help some. I

have heard lots of good things about Lyrica.

hugs,

Debra V.

Charity wrote:

i've tried gabapentin, baclofen, flexeril, and now my doc is starting

me on lyrica. my husband finaly managed to talk me into trying it, i

had refused before because of the weight gain issue, and the flexeril

was working ok for me, but this past week has been hell ...mounting!

i'v never been this bad before, and this is while i'm on 2 meds, i

can't imagine how it would be without. but why? does fibro tend to get

worse and worse as the years go by? i'd like to know what your

experiences have been, to know if this is normal , or if something is

actualy wrong.

and as this goes on, our darling guinnea pig just passed on, we

actually had a funeral for him,i even allowed my son jess to miss

school for the event, i gave a eulogy " as we stand here today and bury

our friend let it be known he's in our hearts till our very end and

though we named him lucky we are the lucky ones ,to know him, hold

him ,and call him our friend. "

---------------------------------

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[Guest guest]

Loved your eulogy!! It sounds to me as if you are going through a heavy flare

right now. We all have them, and usually just have to 'tough them out'. Nothing

seems to work, re medicines, when we have them. Once the flare subsides then the

meds once again begin to work. I don't know WHY this happens, it just does. No

doctor can explain it either. It's just a sad fact of fibro life. The good news

is that they don't last forever. There's really no predicting how long they will

last though. Usually mine lasted between a week and ten days, however my last

one lasted over six weeks, and I was about to give up hope. I thought I must

have just entered a new phase of the 'disorder'..punky word!! But, finally I did

come out of it. Of course, it DOES seem to get a bit worse each year. A lot of

doctors say it's not a 'progressive' disease, but then these doctors have never

had it, either. Most of us here do agree that it IS progressive. Only it usually

happens little by little so you really don't notice until you think back a few

years and remember you didn't have this or that back then.

I still think that right now you are going through a flare. You really won't be

able to judge how useful the Lyrica may be until your flare is over, so give it

a good chance.

Peace and Love

Caroline

> i've tried gabapentin, baclofen, flexeril, and now my doc is starting

> me on lyrica. my husband finaly managed to talk me into trying it, i

> had refused before because of the weight gain issue, and the flexeril

> was working ok for me, but this past week has been hell ...mounting!

> i'v never been this bad before, and this is while i'm on 2 meds, i

> can't imagine how it would be without. but why? does fibro tend to get

> worse and worse as the years go by? i'd like to know what your

> experiences have been, to know if this is normal , or if something is

> actualy wrong.

>

> and as this goes on, our darling guinnea pig just passed on, we

> actually had a funeral for him,i even allowed my son jess to miss

> school for the event, i gave a eulogy " as we stand here today and bury

> our friend let it be known he's in our hearts till our very end and

> though we named him lucky we are the lucky ones ,to know him, hold

> him ,and call him our friend. "

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[Guest guest]

thank you , it helps to hear that others see it too and thats really

all it is. I started getting a little more mobile yesterday, and so

far this morning I am a little better yet, so that helped ease my

fears as well, I think the sun comeing out for a visit and warming my

bones made a big difference...of course now I am hearing another

storm is rolling in and dreading it, but I will enjoy the sun today!

God Bless!

>

> Hi Charity - I''m sorry about the death of your pet. In regards to

your

> question about FM getting worse, my opinion is yes, it is a

progressive

> disease. But the rate it progresses is different for each of us.

And

> sometimes we go through flares that seem worse than anything we've

> experienced so far, but they pass, and life gets more manageable

again. Oh,

> and if you develop a new symptom, it is usually easy to just blame

it one

> the fibro monster. But sometimes it is something else that is

wrong and you

> should be checked by your doctor. That's my take on things. As

usual, I'm

> a couple days behind on the posts. Take care.

> Jeanne in WI

>

>

> > i've tried gabapentin, baclofen, flexeril, and now my doc is

starting me

> > on lyrica. my husband finaly managed to talk me into trying it, i

had

> > refused before because of the weight gain issue, and the flexeril

was

> > working ok for me, but this past week has been hell ...mounting!

> > i'v never been this bad before, and this is while i'm on 2 meds,

i can't

> > imagine how it would be without. but why? does fibro tend to get

worse and

> > worse as the years go by? i'd like to know what your experiences

have

> > been, to know if this is normal , or if something is actualy

wrong.

> >

> > and as this goes on, our darling guinnea pig just passed on, we

actually

> > had a funeral for him,i even allowed my son jess to miss school

for the

> > event,

>