Re: re: what a coworker said about a friend with fibro~~~~

[Guest guest]

Stories like this always make me boil. Probably cos they hit so close to home.

However, I would challenge anyone to look at me and know when I had or when I

hadn't taken a pain med. I look nor act no different with or without them. I

have never been 'hopped up' on any meds. Too much coffee, sure! That is the ONLY

time anyone would EVER see me 'hopped up'. The sad thing is that people can see

us in our normal state and we look tired and we have brain fog, and they just

assume we are 'drugged'. It is so unfair! I know fibro patients who have never

taken any pain meds or any other meds for that matter, and people still think

they're 'high' on something. It really sucks!! Being 'high' infers feeling good.

That's the last thing we feel!! It is just all so nuts! I wish I had never

confided in my daughter that I take pain meds, as now she blames everything

wrong with me on them. I surely don't tell anyone else I take them, except for

you all. Of course, when I stopped taking my bi-polar meds and would be in a

'manic' phase, I couldn't blame anyone for thinking I was on something. But,

that's just 'normal' for the manic phase. It's like taking massive amounts of

speed, at least that's kinda how it feels, and that's what most people would

assume I had done. However, I have been back on my bi-polar meds for years now,

and never have that going on.

Peace and Love

Caroline

> I can't believe how many ignorant people are out there! I can figure

> out why they aren't friends anymore! This isn't the first time I've

> heard this. My boyfriend is very supportive of me and we work

> together and he has pushed me to tell more people about my disease

> so we can educate people. But I've encountered the same reaction,

> one person said.. " yeah my mother in law has fibromyalgia, but she

> milks it she's always hopped up on pain meds and she is on

> disability! " I was so outraged!!!! However, it was a customer and we

> are new and don't have many of those so I tried to bite my tongue,

> luckily I haven't seen him since. All I could think was about his

> poor mother in law, hopefully her whole family doesn't feel the same

> way he did. I was sick for such a long time before finding out that

> it was fibro...and it was me who told the doctor I think its

> fibro...I knew I had some disease that may not be cured, but I never

> thought I could have a disease that people are so uneducated about

> even in the healthcare community. I never thought I would have to

> justify taking pain medication or needing to rest especially to

> medical professionals. And honestly there are tons of us on here who

> deal with this. I often thought maybe we should write a talk show

> like Oprah or something and tell her that she should do a show about

> diseases that are not recognized in the general public or healthcare

> community. That when you are diagnosed you not only deal with the

> problems of a disease but the problem of a society not recognizing

> it as such. At least we all have each other!

>

> NC

/

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[Guest guest]

As far as the never getting a " high " out of the meds, i know what you

mean! I hate the doctors that think we are going to get ADDICTED to

the pain meds, just because we need to take them!! In my opinion, in

order to get ADDICTED to pain meds, you need to be able to feel

that " high " . I never have, and i'm pretty darn sure that i never

will! So, if I never feel a " high " from the pain meds and never

REALLY feel anything from them except a bit more tired than usual

(not even that much pain relief), then how in the world can i get

ADDICTED to them? When I say ADDICTION, i am speaking of the

term " psychological addiction " vs. " physical dependence " . Sure, I am

physically dependent on them, because if I don't take the pain meds,

my level 6-7-8 pain becomes level 7-8-9-10 pain... ya know what i

mean?? Sorry, that's my rant about doctors!!

Love and Hugs

>

> Stories like this always make me boil. Probably cos they hit so

close to home. However, I would challenge anyone to look at me and

know when I had or when I hadn't taken a pain med. I look nor act no

different with or without them. I have never been 'hopped up' on any

meds. Too much coffee, sure! That is the ONLY time anyone would EVER

see me 'hopped up'. The sad thing is that people can see us in our

normal state and we look tired and we have brain fog, and they just

assume we are 'drugged'. It is so unfair! I know fibro patients who

have never taken any pain meds or any other meds for that matter, and

people still think they're 'high' on something. It really sucks!!

Being 'high' infers feeling good. That's the last thing we feel!! It

is just all so nuts! I wish I had never confided in my daughter that

I take pain meds, as now she blames everything wrong with me on them.

I surely don't tell anyone else I take them, except for you all. Of

course, when I stopped taking my bi-polar meds and would be in

a 'manic' phase, I couldn't blame anyone for thinking I was on

something. But, that's just 'normal' for the manic phase. It's like

taking massive amounts of speed, at least that's kinda how it feels,

and that's what most people would assume I had done. However, I have

been back on my bi-polar meds for years now, and never have that

going on.

>

> Peace and Love

> Caroline

>

>

>

> > I can't believe how many ignorant people are out there! I can

figure

> > out why they aren't friends anymore! This isn't the first time

I've

> > heard this. My boyfriend is very supportive of me and we work

> > together and he has pushed me to tell more people about my

disease

> > so we can educate people. But I've encountered the same reaction,

> > one person said.. " yeah my mother in law has fibromyalgia, but she

> > milks it she's always hopped up on pain meds and she is on

> > disability! " I was so outraged!!!! However, it was a customer and

we

> > are new and don't have many of those so I tried to bite my

tongue,

> > luckily I haven't seen him since. All I could think was about his

> > poor mother in law, hopefully her whole family doesn't feel the

same

> > way he did. I was sick for such a long time before finding out

that

> > it was fibro...and it was me who told the doctor I think its

> > fibro...I knew I had some disease that may not be cured, but I

never

> > thought I could have a disease that people are so uneducated

about

> > even in the healthcare community. I never thought I would have to

> > justify taking pain medication or needing to rest especially to

> > medical professionals. And honestly there are tons of us on here

who

> > deal with this. I often thought maybe we should write a talk show

> > like Oprah or something and tell her that she should do a show

about

> > diseases that are not recognized in the general public or

healthcare

> > community. That when you are diagnosed you not only deal with the

> > problems of a disease but the problem of a society not

recognizing

> > it as such. At least we all have each other!

> >

> > NC

> /

>

> ____________________________________________________________

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