To all those out there determined to exercise....

[Guest guest]

....., Rita, Amy, Bonnie, Aruna/Manju and (I think I

got everyone) - all of you inspire me!! : D

I was able to sleep in lots today (7.5 hours of sleep vs. the usual

4 - 6 hrs), but unfortunately, did not do my Pilates, as Kris and I

were rushing around today - he is flying to Switzerland as I speak,

on a wk long business trip.

However, I am very motivated to do Pilates tomorrow am. I'm going

to aim for 3x this week...I hope eventually to do some pilates every

morning before I go to work!

My only saving grace is my dancing, which is 2-3x a week. I don't

know how I will keep that up during the holidays however, our

classes end after this week!

But knowing that all of you are exercising, I will too! : )

Sophia

[Guest guest]

Hi Sophia,

Dance counts as exercise!!! If you are dancing 2-3 times a week, you are

already doing great.

I hope your husband has a great trip to Switzerland.

By the way, how in the world do you manage on 4-6 hours of sleep? I really

need 9 hours a night but can get by with 8. And less and I am really hurting.

In a message dated 12/4/2004 10:20:33 PM Pacific Standard Time,

yipee_ladybug@... writes:

> ...., Rita, Amy, Bonnie, Aruna/Manju and (I think I

> got everyone) - all of you inspire me!! : D

>

> I was able to sleep in lots today (7.5 hours of sleep vs. the usual

> 4 - 6 hrs), but unfortunately, did not do my Pilates, as Kris and I

> were rushing around today - he is flying to Switzerland as I speak,

> on a wk long business trip.

>

> However, I am very motivated to do Pilates tomorrow am. I'm going

> to aim for 3x this week...I hope eventually to do some pilates every

> morning before I go to work!

>

> My only saving grace is my dancing, which is 2-3x a week. I don't

> know how I will keep that up during the holidays however, our

> classes end after this week!

>

> But knowing that all of you are exercising, I will too! : )

>

> Sophia

[Guest guest]

Hi Sophia,

Dance counts as exercise!!! If you are dancing 2-3 times a week, you are

already doing great.

I hope your husband has a great trip to Switzerland.

By the way, how in the world do you manage on 4-6 hours of sleep? I really

need 9 hours a night but can get by with 8. And less and I am really hurting.

In a message dated 12/4/2004 10:20:33 PM Pacific Standard Time,

yipee_ladybug@... writes:

> ...., Rita, Amy, Bonnie, Aruna/Manju and (I think I

> got everyone) - all of you inspire me!! : D

>

> I was able to sleep in lots today (7.5 hours of sleep vs. the usual

> 4 - 6 hrs), but unfortunately, did not do my Pilates, as Kris and I

> were rushing around today - he is flying to Switzerland as I speak,

> on a wk long business trip.

>

> However, I am very motivated to do Pilates tomorrow am. I'm going

> to aim for 3x this week...I hope eventually to do some pilates every

> morning before I go to work!

>

> My only saving grace is my dancing, which is 2-3x a week. I don't

> know how I will keep that up during the holidays however, our

> classes end after this week!

>

> But knowing that all of you are exercising, I will too! : )

>

> Sophia

[Guest guest]

Hi Sophia,

Dance counts as exercise!!! If you are dancing 2-3 times a week, you are

already doing great.

I hope your husband has a great trip to Switzerland.

By the way, how in the world do you manage on 4-6 hours of sleep? I really

need 9 hours a night but can get by with 8. And less and I am really hurting.

In a message dated 12/4/2004 10:20:33 PM Pacific Standard Time,

yipee_ladybug@... writes:

> ...., Rita, Amy, Bonnie, Aruna/Manju and (I think I

> got everyone) - all of you inspire me!! : D

>

> I was able to sleep in lots today (7.5 hours of sleep vs. the usual

> 4 - 6 hrs), but unfortunately, did not do my Pilates, as Kris and I

> were rushing around today - he is flying to Switzerland as I speak,

> on a wk long business trip.

>

> However, I am very motivated to do Pilates tomorrow am. I'm going

> to aim for 3x this week...I hope eventually to do some pilates every

> morning before I go to work!

>

> My only saving grace is my dancing, which is 2-3x a week. I don't

> know how I will keep that up during the holidays however, our

> classes end after this week!

>

> But knowing that all of you are exercising, I will too! : )

>

> Sophia

[Guest guest]

Can I pose a silly question to the group, please?? I have seen and heard alot

about excercising, but have

a strange question!! When I was first diagnosed with IGAN just a couple of

weeks ago, I asked my doctor

about going to the chiropractor because of my lower back pain, well, I am now

sure that the majority of it

the 'flank pain' that you all have discussed quite a bit, however, she told me

that I could go to a chiropractor

but no 'sharp turns'. This lead me to be a bit concerned about some movements

and all... can anyone help

me??? I am sure that walking and all would be fine excercise, but the only time

that I have to do that stuff is

late in the evening when it is already dark here and I don't like to go out

alone in the dark, and I don't like to

have my kids out after dark either... not to mention I don't like to leave them

home alone after dark... what

kind of excercise am I supposed to be doing???? Can anyone help me here???

Also, I see talk of amounts of sleep... I also have 'Chronic Fatigue Syndrome'

and 'Hashimoto's Disease'....

do these things go along with IGAN or am I just cursed with too many things??

My neph did tell me that I

need to crawl up a different family tree and fall out cause there are so many

things in my history!!

I do have an aunt, also, who died at the age of 29 due to what was then called

just 'malignant hypertension'

that ended up destroying her kidneys... is that what I have going on??? I am

so confused... lol

Any answers to any and/or all questions would be so appreciated!!!!

Thanks,

Kris

Re: To all those out there determined to exercise....

Hi Sophia,

Dance counts as exercise!!! If you are dancing 2-3 times a week, you are

already doing great.

I hope your husband has a great trip to Switzerland.

By the way, how in the world do you manage on 4-6 hours of sleep? I really

need 9 hours a night but can get by with 8. And less and I am really hurting.

In a message dated 12/4/2004 10:20:33 PM Pacific Standard Time,

yipee_ladybug@... writes:

> ...., Rita, Amy, Bonnie, Aruna/Manju and (I think I

> got everyone) - all of you inspire me!! : D

>

> I was able to sleep in lots today (7.5 hours of sleep vs. the usual

> 4 - 6 hrs), but unfortunately, did not do my Pilates, as Kris and I

> were rushing around today - he is flying to Switzerland as I speak,

> on a wk long business trip.

>

> However, I am very motivated to do Pilates tomorrow am. I'm going

> to aim for 3x this week...I hope eventually to do some pilates every

> morning before I go to work!

>

> My only saving grace is my dancing, which is 2-3x a week. I don't

> know how I will keep that up during the holidays however, our

> classes end after this week!

>

> But knowing that all of you are exercising, I will too! : )

>

> Sophia

[Guest guest]

Can I pose a silly question to the group, please?? I have seen and heard alot

about excercising, but have

a strange question!! When I was first diagnosed with IGAN just a couple of

weeks ago, I asked my doctor

about going to the chiropractor because of my lower back pain, well, I am now

sure that the majority of it

the 'flank pain' that you all have discussed quite a bit, however, she told me

that I could go to a chiropractor

but no 'sharp turns'. This lead me to be a bit concerned about some movements

and all... can anyone help

me??? I am sure that walking and all would be fine excercise, but the only time

that I have to do that stuff is

late in the evening when it is already dark here and I don't like to go out

alone in the dark, and I don't like to

have my kids out after dark either... not to mention I don't like to leave them

home alone after dark... what

kind of excercise am I supposed to be doing???? Can anyone help me here???

Also, I see talk of amounts of sleep... I also have 'Chronic Fatigue Syndrome'

and 'Hashimoto's Disease'....

do these things go along with IGAN or am I just cursed with too many things??

My neph did tell me that I

need to crawl up a different family tree and fall out cause there are so many

things in my history!!

I do have an aunt, also, who died at the age of 29 due to what was then called

just 'malignant hypertension'

that ended up destroying her kidneys... is that what I have going on??? I am

so confused... lol

Any answers to any and/or all questions would be so appreciated!!!!

Thanks,

Kris

Re: To all those out there determined to exercise....

Hi Sophia,

Dance counts as exercise!!! If you are dancing 2-3 times a week, you are

already doing great.

I hope your husband has a great trip to Switzerland.

By the way, how in the world do you manage on 4-6 hours of sleep? I really

need 9 hours a night but can get by with 8. And less and I am really hurting.

In a message dated 12/4/2004 10:20:33 PM Pacific Standard Time,

yipee_ladybug@... writes:

> ...., Rita, Amy, Bonnie, Aruna/Manju and (I think I

> got everyone) - all of you inspire me!! : D

>

> I was able to sleep in lots today (7.5 hours of sleep vs. the usual

> 4 - 6 hrs), but unfortunately, did not do my Pilates, as Kris and I

> were rushing around today - he is flying to Switzerland as I speak,

> on a wk long business trip.

>

> However, I am very motivated to do Pilates tomorrow am. I'm going

> to aim for 3x this week...I hope eventually to do some pilates every

> morning before I go to work!

>

> My only saving grace is my dancing, which is 2-3x a week. I don't

> know how I will keep that up during the holidays however, our

> classes end after this week!

>

> But knowing that all of you are exercising, I will too! : )

>

> Sophia

[Guest guest]

Can I pose a silly question to the group, please?? I have seen and heard alot

about excercising, but have

a strange question!! When I was first diagnosed with IGAN just a couple of

weeks ago, I asked my doctor

about going to the chiropractor because of my lower back pain, well, I am now

sure that the majority of it

the 'flank pain' that you all have discussed quite a bit, however, she told me

that I could go to a chiropractor

but no 'sharp turns'. This lead me to be a bit concerned about some movements

and all... can anyone help

me??? I am sure that walking and all would be fine excercise, but the only time

that I have to do that stuff is

late in the evening when it is already dark here and I don't like to go out

alone in the dark, and I don't like to

have my kids out after dark either... not to mention I don't like to leave them

home alone after dark... what

kind of excercise am I supposed to be doing???? Can anyone help me here???

Also, I see talk of amounts of sleep... I also have 'Chronic Fatigue Syndrome'

and 'Hashimoto's Disease'....

do these things go along with IGAN or am I just cursed with too many things??

My neph did tell me that I

need to crawl up a different family tree and fall out cause there are so many

things in my history!!

I do have an aunt, also, who died at the age of 29 due to what was then called

just 'malignant hypertension'

that ended up destroying her kidneys... is that what I have going on??? I am

so confused... lol

Any answers to any and/or all questions would be so appreciated!!!!

Thanks,

Kris

Re: To all those out there determined to exercise....

Hi Sophia,

Dance counts as exercise!!! If you are dancing 2-3 times a week, you are

already doing great.

I hope your husband has a great trip to Switzerland.

By the way, how in the world do you manage on 4-6 hours of sleep? I really

need 9 hours a night but can get by with 8. And less and I am really hurting.

In a message dated 12/4/2004 10:20:33 PM Pacific Standard Time,

yipee_ladybug@... writes:

> ...., Rita, Amy, Bonnie, Aruna/Manju and (I think I

> got everyone) - all of you inspire me!! : D

>

> I was able to sleep in lots today (7.5 hours of sleep vs. the usual

> 4 - 6 hrs), but unfortunately, did not do my Pilates, as Kris and I

> were rushing around today - he is flying to Switzerland as I speak,

> on a wk long business trip.

>

> However, I am very motivated to do Pilates tomorrow am. I'm going

> to aim for 3x this week...I hope eventually to do some pilates every

> morning before I go to work!

>

> My only saving grace is my dancing, which is 2-3x a week. I don't

> know how I will keep that up during the holidays however, our

> classes end after this week!

>

> But knowing that all of you are exercising, I will too! : )

>

> Sophia

[Guest guest]

Kris,

I see a chiropractor regularly, just let them know you have kidney disease

and there are a few things they might avoid doing. My treatments haven't

changed any since my diagnosis, though most of my adjustments take place between

my shoulder blades.

As for exercising, I go to Curves 3 times a week and walk on my treadmill

when I can. My neph gave the rundown of low impact type exercises....Pliates is

good, TaiChi, Curves workouts are low impact since they use hydraulics,

swimming, walking, biking, resistance bands, or yoga (some positions shouldn't

be done as they put strain on the low back), basically anything that is weight

bearing but low impact. Weight training should be cleared with your neph first

as it will raise your b/p while you are working out with the weights. If your

b/p is running high or uncontrolled they may want you to hold off on weights.

I'm sorry to hear about your aunt...that is young! I don't have answers to your

disease connection questions...I hope someone else here can address those for

you.

Amy G.

Re: To all those out there determined to exercise....

Hi Sophia,

Dance counts as exercise!!! If you are dancing 2-3 times a week, you are

already doing great.

I hope your husband has a great trip to Switzerland.

By the way, how in the world do you manage on 4-6 hours of sleep? I really

need 9 hours a night but can get by with 8. And less and I am really

hurting.

In a message dated 12/4/2004 10:20:33 PM Pacific Standard Time,

yipee_ladybug@... writes:

> ...., Rita, Amy, Bonnie, Aruna/Manju and (I think I

> got everyone) - all of you inspire me!! : D

>

> I was able to sleep in lots today (7.5 hours of sleep vs. the usual

> 4 - 6 hrs), but unfortunately, did not do my Pilates, as Kris and I

> were rushing around today - he is flying to Switzerland as I speak,

> on a wk long business trip.

>

> However, I am very motivated to do Pilates tomorrow am. I'm going

> to aim for 3x this week...I hope eventually to do some pilates every

> morning before I go to work!

>

> My only saving grace is my dancing, which is 2-3x a week. I don't

> know how I will keep that up during the holidays however, our

> classes end after this week!

>

> But knowing that all of you are exercising, I will too! : )

>

> Sophia

[Guest guest]

Kris,

I see a chiropractor regularly, just let them know you have kidney disease

and there are a few things they might avoid doing. My treatments haven't

changed any since my diagnosis, though most of my adjustments take place between

my shoulder blades.

As for exercising, I go to Curves 3 times a week and walk on my treadmill

when I can. My neph gave the rundown of low impact type exercises....Pliates is

good, TaiChi, Curves workouts are low impact since they use hydraulics,

swimming, walking, biking, resistance bands, or yoga (some positions shouldn't

be done as they put strain on the low back), basically anything that is weight

bearing but low impact. Weight training should be cleared with your neph first

as it will raise your b/p while you are working out with the weights. If your

b/p is running high or uncontrolled they may want you to hold off on weights.

I'm sorry to hear about your aunt...that is young! I don't have answers to your

disease connection questions...I hope someone else here can address those for

you.

Amy G.

Re: To all those out there determined to exercise....

Hi Sophia,

Dance counts as exercise!!! If you are dancing 2-3 times a week, you are

already doing great.

I hope your husband has a great trip to Switzerland.

By the way, how in the world do you manage on 4-6 hours of sleep? I really

need 9 hours a night but can get by with 8. And less and I am really

hurting.

In a message dated 12/4/2004 10:20:33 PM Pacific Standard Time,

yipee_ladybug@... writes:

> ...., Rita, Amy, Bonnie, Aruna/Manju and (I think I

> got everyone) - all of you inspire me!! : D

>

> I was able to sleep in lots today (7.5 hours of sleep vs. the usual

> 4 - 6 hrs), but unfortunately, did not do my Pilates, as Kris and I

> were rushing around today - he is flying to Switzerland as I speak,

> on a wk long business trip.

>

> However, I am very motivated to do Pilates tomorrow am. I'm going

> to aim for 3x this week...I hope eventually to do some pilates every

> morning before I go to work!

>

> My only saving grace is my dancing, which is 2-3x a week. I don't

> know how I will keep that up during the holidays however, our

> classes end after this week!

>

> But knowing that all of you are exercising, I will too! : )

>

> Sophia

[Guest guest]

Kris,

I see a chiropractor regularly, just let them know you have kidney disease

and there are a few things they might avoid doing. My treatments haven't

changed any since my diagnosis, though most of my adjustments take place between

my shoulder blades.

As for exercising, I go to Curves 3 times a week and walk on my treadmill

when I can. My neph gave the rundown of low impact type exercises....Pliates is

good, TaiChi, Curves workouts are low impact since they use hydraulics,

swimming, walking, biking, resistance bands, or yoga (some positions shouldn't

be done as they put strain on the low back), basically anything that is weight

bearing but low impact. Weight training should be cleared with your neph first

as it will raise your b/p while you are working out with the weights. If your

b/p is running high or uncontrolled they may want you to hold off on weights.

I'm sorry to hear about your aunt...that is young! I don't have answers to your

disease connection questions...I hope someone else here can address those for

you.

Amy G.

Re: To all those out there determined to exercise....

Hi Sophia,

Dance counts as exercise!!! If you are dancing 2-3 times a week, you are

already doing great.

I hope your husband has a great trip to Switzerland.

By the way, how in the world do you manage on 4-6 hours of sleep? I really

need 9 hours a night but can get by with 8. And less and I am really

hurting.

In a message dated 12/4/2004 10:20:33 PM Pacific Standard Time,

yipee_ladybug@... writes:

> ...., Rita, Amy, Bonnie, Aruna/Manju and (I think I

> got everyone) - all of you inspire me!! : D

>

> I was able to sleep in lots today (7.5 hours of sleep vs. the usual

> 4 - 6 hrs), but unfortunately, did not do my Pilates, as Kris and I

> were rushing around today - he is flying to Switzerland as I speak,

> on a wk long business trip.

>

> However, I am very motivated to do Pilates tomorrow am. I'm going

> to aim for 3x this week...I hope eventually to do some pilates every

> morning before I go to work!

>

> My only saving grace is my dancing, which is 2-3x a week. I don't

> know how I will keep that up during the holidays however, our

> classes end after this week!

>

> But knowing that all of you are exercising, I will too! : )

>

> Sophia

[Guest guest]

You know Kris, it's only been during the past 30 years that they have been

able to actually identify many kidney diseases. Before that, they were

mostly all lumped together, assuming they were able to diagnose it at all.

For example, someone who today we know has IgAN would have simply been said

to have chronic glomerulonephritis, or earlier, they might have said

" Bright's disease " . If it was that long ago, it's possible that your aunt's

" malignant hypertension " was caused by an undiagnosed kidney disease. Even

today, if kidney diseases is only diagnosed very late when it's already very

advanced, even a biopsy can't tell what it is. So, in the past, it might

have been hard to say which came first, the kidney failure or the

hypertension. Malignant hypertension is something that could destroy kidneys

on its own, or it could be caused as part of kidney disease. Before

effective BP meds started coming along, there wasn't too much they could do

for severe hypertension, except put people on salt restriction, relaxation

and hope for the best. Many of the meds we take today weren't even around

until the 1980 and 90's. Older meds go back to the 70's and some to the

60's, a few to the 50's, but some of the early meds had severe side effects.

So, sometimes hypertension couldn't be treated and it became " malignant

hypertension " . This term just means that the BP is so high that it

immediately damages various organs like the kidneys, eyes, heart, brain.

Just over 50 years ago, President Roosevelt died of the complications from

severe hypertension.

There's always a way to exercise, and there is usually no reason not to

exercise moderately. Obviously, walking is a good one. Mall walking is safe

if you don't want to go out in the dark. Going up and down stairs in your

own house (or even just a cheap stepping stool). So is swimming, if there's

a pool around. One of the very first exercises that were recommended to me

by my second neph years ago is a stationary exercycle. You can do that at

home, at any time of the day really, and you don't have to worry about being

run over by speeding cars, nor the weather. Basic exercycles don't really

cost much, especially if you can find a used one. You really don't need one

with all the fancy doodads on it, like computer controls with interval

programs and the like. Handlebars, pedals and a way to adjust the tension.

That's all. A treadmill is good too, but cheap ones aren't very good, and

expensive ones are very expensive compared to an exercycle.

I don't know anything about the other conditions you have, and I have no

knowledge as to whether they are connected to IgAN.

Your doctor's comment about " sharp turns " and your chiropractor was probably

just reflective of the controversy of some chiropractic procedures. A number

of people who have had some procedures like that done in their neck area

have died of a stroke. So, I'm guessing that's what your doctor was

referring to, not exercise. But, if you're in doubt, do ask your doctor. In

fact, you absolutely should specifically ask your doctor about exercise

before you start any. Depending on your situation, some doctors might want

to schedule you for a heart stress test.

Pierre

Re: To all those out there determined to exercise....

>

> Can I pose a silly question to the group, please?? I have seen and heard

alot about excercising, but have

> a strange question!! When I was first diagnosed with IGAN just a couple

of weeks ago, I asked my doctor

> about going to the chiropractor because of my lower back pain, well, I am

now sure that the majority of it

> the 'flank pain' that you all have discussed quite a bit, however, she

told me that I could go to a chiropractor

> but no 'sharp turns'. This lead me to be a bit concerned about some

movements and all... can anyone help

> me??? I am sure that walking and all would be fine excercise, but the

only time that I have to do that stuff is

> late in the evening when it is already dark here and I don't like to go

out alone in the dark, and I don't like to

> have my kids out after dark either... not to mention I don't like to

leave them home alone after dark... what

> kind of excercise am I supposed to be doing???? Can anyone help me

here???

>

> Also, I see talk of amounts of sleep... I also have 'Chronic Fatigue

Syndrome' and 'Hashimoto's Disease'....

> do these things go along with IGAN or am I just cursed with too many

things?? My neph did tell me that I

> need to crawl up a different family tree and fall out cause there are so

many things in my history!!

>

> I do have an aunt, also, who died at the age of 29 due to what was then

called just 'malignant hypertension'

> that ended up destroying her kidneys... is that what I have going on???

I am so confused... lol

>

> Any answers to any and/or all questions would be so appreciated!!!!

>

> Thanks,

> Kris

[Guest guest]

You know Kris, it's only been during the past 30 years that they have been

able to actually identify many kidney diseases. Before that, they were

mostly all lumped together, assuming they were able to diagnose it at all.

For example, someone who today we know has IgAN would have simply been said

to have chronic glomerulonephritis, or earlier, they might have said

" Bright's disease " . If it was that long ago, it's possible that your aunt's

" malignant hypertension " was caused by an undiagnosed kidney disease. Even

today, if kidney diseases is only diagnosed very late when it's already very

advanced, even a biopsy can't tell what it is. So, in the past, it might

have been hard to say which came first, the kidney failure or the

hypertension. Malignant hypertension is something that could destroy kidneys

on its own, or it could be caused as part of kidney disease. Before

effective BP meds started coming along, there wasn't too much they could do

for severe hypertension, except put people on salt restriction, relaxation

and hope for the best. Many of the meds we take today weren't even around

until the 1980 and 90's. Older meds go back to the 70's and some to the

60's, a few to the 50's, but some of the early meds had severe side effects.

So, sometimes hypertension couldn't be treated and it became " malignant

hypertension " . This term just means that the BP is so high that it

immediately damages various organs like the kidneys, eyes, heart, brain.

Just over 50 years ago, President Roosevelt died of the complications from

severe hypertension.

There's always a way to exercise, and there is usually no reason not to

exercise moderately. Obviously, walking is a good one. Mall walking is safe

if you don't want to go out in the dark. Going up and down stairs in your

own house (or even just a cheap stepping stool). So is swimming, if there's

a pool around. One of the very first exercises that were recommended to me

by my second neph years ago is a stationary exercycle. You can do that at

home, at any time of the day really, and you don't have to worry about being

run over by speeding cars, nor the weather. Basic exercycles don't really

cost much, especially if you can find a used one. You really don't need one

with all the fancy doodads on it, like computer controls with interval

programs and the like. Handlebars, pedals and a way to adjust the tension.

That's all. A treadmill is good too, but cheap ones aren't very good, and

expensive ones are very expensive compared to an exercycle.

I don't know anything about the other conditions you have, and I have no

knowledge as to whether they are connected to IgAN.

Your doctor's comment about " sharp turns " and your chiropractor was probably

just reflective of the controversy of some chiropractic procedures. A number

of people who have had some procedures like that done in their neck area

have died of a stroke. So, I'm guessing that's what your doctor was

referring to, not exercise. But, if you're in doubt, do ask your doctor. In

fact, you absolutely should specifically ask your doctor about exercise

before you start any. Depending on your situation, some doctors might want

to schedule you for a heart stress test.

Pierre

Re: To all those out there determined to exercise....

>

> Can I pose a silly question to the group, please?? I have seen and heard

alot about excercising, but have

> a strange question!! When I was first diagnosed with IGAN just a couple

of weeks ago, I asked my doctor

> about going to the chiropractor because of my lower back pain, well, I am

now sure that the majority of it

> the 'flank pain' that you all have discussed quite a bit, however, she

told me that I could go to a chiropractor

> but no 'sharp turns'. This lead me to be a bit concerned about some

movements and all... can anyone help

> me??? I am sure that walking and all would be fine excercise, but the

only time that I have to do that stuff is

> late in the evening when it is already dark here and I don't like to go

out alone in the dark, and I don't like to

> have my kids out after dark either... not to mention I don't like to

leave them home alone after dark... what

> kind of excercise am I supposed to be doing???? Can anyone help me

here???

>

> Also, I see talk of amounts of sleep... I also have 'Chronic Fatigue

Syndrome' and 'Hashimoto's Disease'....

> do these things go along with IGAN or am I just cursed with too many

things?? My neph did tell me that I

> need to crawl up a different family tree and fall out cause there are so

many things in my history!!

>

> I do have an aunt, also, who died at the age of 29 due to what was then

called just 'malignant hypertension'

> that ended up destroying her kidneys... is that what I have going on???

I am so confused... lol

>

> Any answers to any and/or all questions would be so appreciated!!!!

>

> Thanks,

> Kris

[Guest guest]

You know Kris, it's only been during the past 30 years that they have been

able to actually identify many kidney diseases. Before that, they were

mostly all lumped together, assuming they were able to diagnose it at all.

For example, someone who today we know has IgAN would have simply been said

to have chronic glomerulonephritis, or earlier, they might have said

" Bright's disease " . If it was that long ago, it's possible that your aunt's

" malignant hypertension " was caused by an undiagnosed kidney disease. Even

today, if kidney diseases is only diagnosed very late when it's already very

advanced, even a biopsy can't tell what it is. So, in the past, it might

have been hard to say which came first, the kidney failure or the

hypertension. Malignant hypertension is something that could destroy kidneys

on its own, or it could be caused as part of kidney disease. Before

effective BP meds started coming along, there wasn't too much they could do

for severe hypertension, except put people on salt restriction, relaxation

and hope for the best. Many of the meds we take today weren't even around

until the 1980 and 90's. Older meds go back to the 70's and some to the

60's, a few to the 50's, but some of the early meds had severe side effects.

So, sometimes hypertension couldn't be treated and it became " malignant

hypertension " . This term just means that the BP is so high that it

immediately damages various organs like the kidneys, eyes, heart, brain.

Just over 50 years ago, President Roosevelt died of the complications from

severe hypertension.

There's always a way to exercise, and there is usually no reason not to

exercise moderately. Obviously, walking is a good one. Mall walking is safe

if you don't want to go out in the dark. Going up and down stairs in your

own house (or even just a cheap stepping stool). So is swimming, if there's

a pool around. One of the very first exercises that were recommended to me

by my second neph years ago is a stationary exercycle. You can do that at

home, at any time of the day really, and you don't have to worry about being

run over by speeding cars, nor the weather. Basic exercycles don't really

cost much, especially if you can find a used one. You really don't need one

with all the fancy doodads on it, like computer controls with interval

programs and the like. Handlebars, pedals and a way to adjust the tension.

That's all. A treadmill is good too, but cheap ones aren't very good, and

expensive ones are very expensive compared to an exercycle.

I don't know anything about the other conditions you have, and I have no

knowledge as to whether they are connected to IgAN.

Your doctor's comment about " sharp turns " and your chiropractor was probably

just reflective of the controversy of some chiropractic procedures. A number

of people who have had some procedures like that done in their neck area

have died of a stroke. So, I'm guessing that's what your doctor was

referring to, not exercise. But, if you're in doubt, do ask your doctor. In

fact, you absolutely should specifically ask your doctor about exercise

before you start any. Depending on your situation, some doctors might want

to schedule you for a heart stress test.

Pierre

Re: To all those out there determined to exercise....

>

> Can I pose a silly question to the group, please?? I have seen and heard

alot about excercising, but have

> a strange question!! When I was first diagnosed with IGAN just a couple

of weeks ago, I asked my doctor

> about going to the chiropractor because of my lower back pain, well, I am

now sure that the majority of it

> the 'flank pain' that you all have discussed quite a bit, however, she

told me that I could go to a chiropractor

> but no 'sharp turns'. This lead me to be a bit concerned about some

movements and all... can anyone help

> me??? I am sure that walking and all would be fine excercise, but the

only time that I have to do that stuff is

> late in the evening when it is already dark here and I don't like to go

out alone in the dark, and I don't like to

> have my kids out after dark either... not to mention I don't like to

leave them home alone after dark... what

> kind of excercise am I supposed to be doing???? Can anyone help me

here???

>

> Also, I see talk of amounts of sleep... I also have 'Chronic Fatigue

Syndrome' and 'Hashimoto's Disease'....

> do these things go along with IGAN or am I just cursed with too many

things?? My neph did tell me that I

> need to crawl up a different family tree and fall out cause there are so

many things in my history!!

>

> I do have an aunt, also, who died at the age of 29 due to what was then

called just 'malignant hypertension'

> that ended up destroying her kidneys... is that what I have going on???

I am so confused... lol

>

> Any answers to any and/or all questions would be so appreciated!!!!

>

> Thanks,

> Kris

[Guest guest]

Thank you so much for your help!! I do have an excercycle... I might have to

start using that... I also have stairs in my house... maybe I should try

that... I have gotten pain in my knees with the weight gain due to the thyroid

condition... do you think I will cause them to be worse or improve them??? Any

ideas??? However, last time I went to the dr. I was down by 10 pounds!!

The much higher bp meds has really taken away my appetite!!! That's a good

thing... believe me, I'm not complaining!!!! LOL

We don't have any malls in my hometown... so I can't do the mallwalking... that

would be fun I think!! But again, I live in Montana and there is a long way

between anything... the nearest town to me that has a mall is 150 miles... so

that's not too probable.. huh?!?!!?

I have also read alot coming through the group about the spontaneous bruising...

I've been having strange spontaneous bruising going on for 9 years or more...

do you suppose I have had this kidney thing for that long and it just wasn't

diagnosed yet? I know that 2 years ago was when the blood and proteins first

showed up in my urine and it really became a concern about 4 or 5 months ago

just after I had a virus.... I'm just wondering if it is possible that I've had

this this long???

Thanks for any and all answers, opinions, or suggestions!!!

Hugs,

Kris

Re: To all those out there determined to exercise....

>

> Can I pose a silly question to the group, please?? I have seen and heard

alot about excercising, but have

> a strange question!! When I was first diagnosed with IGAN just a couple

of weeks ago, I asked my doctor

> about going to the chiropractor because of my lower back pain, well, I am

now sure that the majority of it

> the 'flank pain' that you all have discussed quite a bit, however, she

told me that I could go to a chiropractor

> but no 'sharp turns'. This lead me to be a bit concerned about some

movements and all... can anyone help

> me??? I am sure that walking and all would be fine excercise, but the

only time that I have to do that stuff is

> late in the evening when it is already dark here and I don't like to go

out alone in the dark, and I don't like to

> have my kids out after dark either... not to mention I don't like to

leave them home alone after dark... what

> kind of excercise am I supposed to be doing???? Can anyone help me

here???

>

> Also, I see talk of amounts of sleep... I also have 'Chronic Fatigue

Syndrome' and 'Hashimoto's Disease'....

> do these things go along with IGAN or am I just cursed with too many

things?? My neph did tell me that I

> need to crawl up a different family tree and fall out cause there are so

many things in my history!!

>

> I do have an aunt, also, who died at the age of 29 due to what was then

called just 'malignant hypertension'

> that ended up destroying her kidneys... is that what I have going on???

I am so confused... lol

>

> Any answers to any and/or all questions would be so appreciated!!!!

>

> Thanks,

> Kris

To edit your settings for the group, go to our Yahoo Group

home page:

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iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Thank you so much for your help!! I do have an excercycle... I might have to

start using that... I also have stairs in my house... maybe I should try

that... I have gotten pain in my knees with the weight gain due to the thyroid

condition... do you think I will cause them to be worse or improve them??? Any

ideas??? However, last time I went to the dr. I was down by 10 pounds!!

The much higher bp meds has really taken away my appetite!!! That's a good

thing... believe me, I'm not complaining!!!! LOL

We don't have any malls in my hometown... so I can't do the mallwalking... that

would be fun I think!! But again, I live in Montana and there is a long way

between anything... the nearest town to me that has a mall is 150 miles... so

that's not too probable.. huh?!?!!?

I have also read alot coming through the group about the spontaneous bruising...

I've been having strange spontaneous bruising going on for 9 years or more...

do you suppose I have had this kidney thing for that long and it just wasn't

diagnosed yet? I know that 2 years ago was when the blood and proteins first

showed up in my urine and it really became a concern about 4 or 5 months ago

just after I had a virus.... I'm just wondering if it is possible that I've had

this this long???

Thanks for any and all answers, opinions, or suggestions!!!

Hugs,

Kris

Re: To all those out there determined to exercise....

>

> Can I pose a silly question to the group, please?? I have seen and heard

alot about excercising, but have

> a strange question!! When I was first diagnosed with IGAN just a couple

of weeks ago, I asked my doctor

> about going to the chiropractor because of my lower back pain, well, I am

now sure that the majority of it

> the 'flank pain' that you all have discussed quite a bit, however, she

told me that I could go to a chiropractor

> but no 'sharp turns'. This lead me to be a bit concerned about some

movements and all... can anyone help

> me??? I am sure that walking and all would be fine excercise, but the

only time that I have to do that stuff is

> late in the evening when it is already dark here and I don't like to go

out alone in the dark, and I don't like to

> have my kids out after dark either... not to mention I don't like to

leave them home alone after dark... what

> kind of excercise am I supposed to be doing???? Can anyone help me

here???

>

> Also, I see talk of amounts of sleep... I also have 'Chronic Fatigue

Syndrome' and 'Hashimoto's Disease'....

> do these things go along with IGAN or am I just cursed with too many

things?? My neph did tell me that I

> need to crawl up a different family tree and fall out cause there are so

many things in my history!!

>

> I do have an aunt, also, who died at the age of 29 due to what was then

called just 'malignant hypertension'

> that ended up destroying her kidneys... is that what I have going on???

I am so confused... lol

>

> Any answers to any and/or all questions would be so appreciated!!!!

>

> Thanks,

> Kris

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Thank you so much for your help!! I do have an excercycle... I might have to

start using that... I also have stairs in my house... maybe I should try

that... I have gotten pain in my knees with the weight gain due to the thyroid

condition... do you think I will cause them to be worse or improve them??? Any

ideas??? However, last time I went to the dr. I was down by 10 pounds!!

The much higher bp meds has really taken away my appetite!!! That's a good

thing... believe me, I'm not complaining!!!! LOL

We don't have any malls in my hometown... so I can't do the mallwalking... that

would be fun I think!! But again, I live in Montana and there is a long way

between anything... the nearest town to me that has a mall is 150 miles... so

that's not too probable.. huh?!?!!?

I have also read alot coming through the group about the spontaneous bruising...

I've been having strange spontaneous bruising going on for 9 years or more...

do you suppose I have had this kidney thing for that long and it just wasn't

diagnosed yet? I know that 2 years ago was when the blood and proteins first

showed up in my urine and it really became a concern about 4 or 5 months ago

just after I had a virus.... I'm just wondering if it is possible that I've had

this this long???

Thanks for any and all answers, opinions, or suggestions!!!

Hugs,

Kris

Re: To all those out there determined to exercise....

>

> Can I pose a silly question to the group, please?? I have seen and heard

alot about excercising, but have

> a strange question!! When I was first diagnosed with IGAN just a couple

of weeks ago, I asked my doctor

> about going to the chiropractor because of my lower back pain, well, I am

now sure that the majority of it

> the 'flank pain' that you all have discussed quite a bit, however, she

told me that I could go to a chiropractor

> but no 'sharp turns'. This lead me to be a bit concerned about some

movements and all... can anyone help

> me??? I am sure that walking and all would be fine excercise, but the

only time that I have to do that stuff is

> late in the evening when it is already dark here and I don't like to go

out alone in the dark, and I don't like to

> have my kids out after dark either... not to mention I don't like to

leave them home alone after dark... what

> kind of excercise am I supposed to be doing???? Can anyone help me

here???

>

> Also, I see talk of amounts of sleep... I also have 'Chronic Fatigue

Syndrome' and 'Hashimoto's Disease'....

> do these things go along with IGAN or am I just cursed with too many

things?? My neph did tell me that I

> need to crawl up a different family tree and fall out cause there are so

many things in my history!!

>

> I do have an aunt, also, who died at the age of 29 due to what was then

called just 'malignant hypertension'

> that ended up destroying her kidneys... is that what I have going on???

I am so confused... lol

>

> Any answers to any and/or all questions would be so appreciated!!!!

>

> Thanks,

> Kris

To edit your settings for the group, go to our Yahoo Group

home page:

http://groups.yahoo.com/group/iga-nephropathy/

To unsubcribe via email,

iga-nephropathy-unsubscribe

Visit our companion website at www.igan.ca. The site is entirely supported by

donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

Hi ,

Thanks, yes dancing is great, but since being on the pred, my gut

sticks out and what's worse, it seems to roll over the waistband in

the pants/skirts that I wear.

= : O

Although, I guess it's not so bad these days, since I am tapering.

But I would like to (and I think I really need to) do some ab-

tightening exercise: hence the pilates.

Stress in my volunteer work and the prednisone makes you do an

amazing amount of things on little sleep...however, I don't manage

it at all. I start to get sick after a while...then I know I have

to slow down and get lotsa sleep. So, I really should get a good

nite's rest.

Sophia

> Hi Sophia,

>

> Dance counts as exercise!!! If you are dancing 2-3 times a week,

you are

> already doing great.

>

> I hope your husband has a great trip to Switzerland.

>

> By the way, how in the world do you manage on 4-6 hours of sleep?

I really

> need 9 hours a night but can get by with 8. And less and I am

really hurting.

>

>

>

> In a message dated 12/4/2004 10:20:33 PM Pacific Standard Time,

> yipee_ladybug@y... writes:

>

> > ...., Rita, Amy, Bonnie, Aruna/Manju and (I think

I

> > got everyone) - all of you inspire me!! : D

> >

> > I was able to sleep in lots today (7.5 hours of sleep vs. the

usual

> > 4 - 6 hrs), but unfortunately, did not do my Pilates, as Kris

and I

> > were rushing around today - he is flying to Switzerland as I

speak,

> > on a wk long business trip.

> >

> > However, I am very motivated to do Pilates tomorrow am. I'm

going

> > to aim for 3x this week...I hope eventually to do some pilates

every

> > morning before I go to work!

> >

> > My only saving grace is my dancing, which is 2-3x a week. I

don't

> > know how I will keep that up during the holidays however, our

> > classes end after this week!

> >

> > But knowing that all of you are exercising, I will too! : )

> >

> > Sophia

>

>

>

>

[Guest guest]

Hi Kris,

First, my condolences on your aunt. I am so sorry you lost her at such a

young age. That is always so hard.

I feel very bad that you also have chronic fatigue and Hashimoto's. I am

familiar with Chronic fatigue, but not Hashimotos. I have a good friend who is

in my Bible Study who has chronic fatigue and so I know how difficult that can

be. I am so sorry you have to deal with those on top of IgAN.

I have never heard a recommendation about sharp turns. Your internal organs

are very well protected. The only exercise that I know is questionable is

weight lifting and only because it can raise your BP.

If you have a library you have access to, you can try a video tape. Sophia

does Pilates, and I do too on some of my off running days. It is convenient to

pop in a tape or a DVD and have a good hour long work out.

Also, if you have cable, they usually have a fitness channel in the progr

amming and you can tune in to a program there.

Hope these suggestions help on the exercise.

In a message dated 12/5/2004 3:33:30 PM Pacific Standard Time,

jkbattin@... writes:

> I asked my doctor

> about going to the chiropractor because of my lower back pain, well, I am

> now sure that the majority of it

> the 'flank pain' that you all have discussed quite a bit, however, she told

> me that I could go to a chiropractor

> but no 'sharp turns'. This lead me to be a bit concerned about some

> movements and all... can anyone help

> me??? I am sure that walking and all would be fine excercise, but the only

> time that I have to do that stuff is

> late in the evening when it is already dark here and I don't like to go out

> alone in the dark, and I don't like to

> have my kids out after dark either... not to mention I don't like to leave

> them home alone after dark... what

> kind of excercise am I supposed to be doing???? Can anyone help me here???

>

>

> Also, I see talk of amounts of sleep... I also have 'Chronic Fatigue

> Syndrome' and 'Hashimoto's Disease'....

> do these things go along with IGAN or am I just cursed with too many

> things?? My neph did tell me that I

> need to crawl up a different family tree and fall out cause there are so

> many things in my history!!

>

> I do have an aunt, also, who died at the age of 29 due to what was then

> called just 'malignant hypertension'

> that ended up destroying her kidneys... is that what I have going on??? I

> am so confused... lol

>

> Any answers to any and/or all questions would be so appreciated!!!!

>

> Thanks,

> Kris