Faith

[Guest guest]

-------Original Message-------

I agree with you, , about hoping the pain in my hip NOT turning out to rsd. I don't think it is though, because I don't have the burning in it, or the ice cold feeling, like I do my foot. It just hurts, all the time. Anyway, thanks again for the info ladies. I ap! piciate it. Hope your enjoying some low pain moments. Faith

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Faith,

When RSD Spreads, the symptoms can be totally different from spot to spot.

Mine never did feel the same way in each area it spread to. Sometimes, it would start out as just a constant pain, other times, it would start out as burning and stabbing....and, in my right arm, it started out as turning blue and cold but hardly any pain.

So, just because the pain/symptoms aren't the exact same, doesn't mean that it can't be.

Tonia

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[Guest guest]

> So, just because the pain/symptoms aren't the exact same, doesn't

mean that

> it can't be.

Tonia

As mine spreads it climbs up the left arm and each area that it

spreads to seems to feel just a little bit different. My wrist

swelled up and ached, my elbow was first diagnosed as tennis elbow

but later turned into it was spreading..its weak and catches with a

dull throbbing as it headed up my shouler the muscles constantly

ached and the underside burned like a razor burn as it went into my

neck it started out with constant headaches now when I keep it turned

for too long it throbs and low and behold it went into my hands (both

of them) and now burns like hot lava burned on them. So I guess with

each spread its going to be a different experience. *Sigh*

Hugs

Donna

[Guest guest]

Hi Faith, >Just my input on hip pain.. I've been experiencing horrible hip pain for >awhile now, finally decided to see my Dr, tell him to fix it. >They have done MRI's, xrays, etc. >What they have determined is it is NOT the RSD, but a combo of bursitis and >something torn in my sacrum joint, as well as a couple of herniated discs >(which they knew about before). They found the tear when they tried to give me >an injection in the joint and it just leaked right out. The joint is much >wider than it is supposed to be. >My feeling is to always try and find out if there is something else wrong, >something that can be fixed before deciding it's the RSD. >I hear the only way to repair the joint is surgically, and I'm not going >there yet. He wants to put pins in it, pull it back together. I don't think so. > >Hugs, >Jo

Jo, Thank you for your input. My dr didn't do any type of tests. She just figures that being on crutches for a little over two now has been hard on my hip. Acualy, it's the whole leg, hip and my lower back that hurts, but my hip hurts the most. This is why she's thinking that it's just from being on the crutches for so long. I'm sorry you have so much going on with your hip and back on top of the rsd. I don't blame you about not wanting the surgery right now though. I feel the same way about the 'dreaded' chair she had me get for long outings. She doesn't want me totally wear out my 'good' leg. I just love how she calls it that! That leg hasn't been 'good' since I was 9 years old and surgery done on it! Anyway, take care of yourself, Jo. If you want someone to complain with about hip pain, I'm here. I decided I'm going to try to start posting a little more than I was, when I can. I can't offer advice about meds and treatments because I haven't really had any myself, but I can try to offer support to those who need it. And it's just kind of nice to talk about this crap ( the effects of rsd on life) sometimes. Oh yeah, I'm going to try out my chair tomarrow. My WHOLE family, 7 families all together, are having a huge yard sale tomarrow at my moms' house. I'm going to sit in my chair with my foot proped up acting as cashier. I hope my chair is comfortable! I guess I'm going to find out! lol Oh well, I've yacked long enough. Once again, thanks for your input. Feel free to do it anytime, or just yack to me. I've been told I'm a great listener. (I talk alot too, most of the time lol) Gentle hugs to you and Praying you have some low pain moments, Faith P.S. I say 'low pain moments' because I've learned there is no such thing as pain 'free' moments when you have R S D. One more thing, Jo. I almost forgot. What is a sacrum joint? Don’t just search. Find. Check out the new MSN Search!

[Guest guest]

Faith,

would love to chat sometime. But I don't know how to do it.

I'am lucky I can do this.

Laurie

[Guest guest]

Amy, now hope I am not totally going to shame myself again, as is not

unusual for me to do so, but why can I not recall reading anything from you

lately? Is it just because have over 132 emails to go and have had to

delete so much last couple months or have I just sat here so long that

besides my tail-end going numb my brain has gone numb along with it? So

please, this is JoAnn, s Momma and if you and I have spoken forgive my

numb brain and tailend and update me on where you are and all about you at

my 2xhawks@...

email address so can write back and forth just at first and not bother all

on here. Actually so do not shame myself to all on here is point. But none

the less hello either first time or 100th time.

JoAnn

Re: faith

> hi faith! i think there are two amys (amey and amy) on this site!!

> i'm amy and not at all a traveler LOL i don't fish or gamble so it

> can't be me!! i know of dr. knobler in fort washington. he's a

> neurologist and very knowledgable! he even had RSD himself but put

> himself into remission. he's been on action news trying to raise

> awareness as well. you may want to try him if he isn't too far. i

> know PA is a big state but may be worth traveling to him for you.

> the man knows his stuff. how far are you from philly? talk to you

> soon!

> love,

> amy

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