Guest guest Posted May 21, 2001 Report Share Posted May 21, 2001 I'll give you three different instances of when I have lost my hair.. 1st time.. I quit taking the pill. That was the worst. I had bald spots everywhere and was seriously contemplating buying a wig. I finally went to the dermatologist where I got over 100 injections in the scalp over a couple of weeks. All the hair grew back.. even better and less grayer than before 2nd time.. pregnancy!! Every time I have a kid, I lose hair. Not as bad as the first time, but it was still gone. 3rd time.. after I found out my kids had cf. I get some pretty bad stress attacks going now and then, specially when the hubby doesnt feel like helping with the little ones. Serious amounts of stress can make your hair fall out (or make you pull it out ) If any of these three pertain to you... then it may help you understand why. I wouldn't do the injection thing tho unless you are losing tons. My last daughter is now 7 months and I am still losing hair, so don't feel like you're alone on this one. Tell ya what, tho... I'm now a little more grateful when I find a gray one ! B --- xxkerrithaxx@... wrote: > hello, > > i used to have long thick hair, now whenever i brush > it or wash it.....LOADS > of hair appears everywhere and im really scared. and > its really thin > > thankyou kerri > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2001 Report Share Posted June 1, 2001 , Bath & Body Works have a wonderful lotion called " Body Cream. " It comes in a large variety of scents (my favorite is coconut - LOL, I know some on the list will hate that one!). It is very rich dense moisturizer. I use it on my legs after I shave and they are moist and smooth all day. It costs around $11.00 for a good sized tube. I love it, so I consider it worth the splurge! Beth Houston, TX VBG - Dr. Srungaram 05/31/00 - 314 lbs. 05/31/01 - 186 lbs. 5'10 " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2001 Report Share Posted June 1, 2001 I've been using the products from www.uniquelyemu.com . My favorites for moisturizing the skin are " Therapeutic Moisturizing Lotion " and " Pure Emu Oil " . For a body wash and cleanser I use " Energizing Face & Body Cleanser " and for shampoo and conditioner I use their " Revitalizing Shampoo & Conditioner " . Their shampoo and conditioner feels way better than , Sebastian, and those other overpriced salon products. I just got the " Facial Moisture Cream " and only have been using it for about 3 days. O (no subject) hi........... just wanted to know if anyone knows of a real good penetrating cream for awful dry skin.......nothing seems to keep me soft.......or my skin hydrated......i hate my legs feeling like leather....... any ideas....... almost 2 years post op and life is great.......monday is my face lift.....in the fall i am having my flabb removed from my gut area.......... i am so grateful for all that i have been giving.....truly most of all it is an inside job......with keeping in balance mentally and spiritually........when i am in balance.......i know for today i have enough........for me, i have always wanted more..........today i try to fill my self up with spiritual food instead of feeding an insatiable hunger within my soul with food.......one of the reasons i wanted this surgery, i was sick and tired of eating....not only of being fat but, eating as well..... anyway......enuff of me....... thank you all for being here.......your thoughts are so important to me and many others......... hugz in N. Calif....... Homepage: http://groups.yahoo.com/group/Graduate-OSSG Unsubscribe: mailto:Graduate-OSSG-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2001 Report Share Posted June 1, 2001 How much protein supps & dry E are you getting in? I still get dry skin, but I guess I shouldn't be too surprised since I always had it. Finally got those other levels about right, so I'm actually better off than I was in my fat-avoidance days. Thanks, www.vitalady.com https://secure.paypal.com/affil/pal=vitalady%40bigfoot.com (no subject) > hi........... > just wanted to know if anyone knows of a real good penetrating cream for > awful dry skin.......nothing seems to keep me soft.......or my skin > hydrated......i hate my legs feeling like leather....... > any ideas....... > almost 2 years post op and life is great.......monday is my face lift.....in > the fall i am having my flabb removed from my gut area.......... > i am so grateful for all that i have been giving.....truly most of all it is > an inside job......with keeping in balance mentally and > spiritually........when i am in balance.......i know for today i have > enough........for me, i have always wanted more..........today i try to fill > my self up with spiritual food instead of feeding an insatiable hunger within > my soul with food.......one of the reasons i wanted this surgery, i was sick > and tired of eating....not only of being fat but, eating as well..... > anyway......enuff of me....... > thank you all for being here.......your thoughts are so important to me and > many others......... > hugz > in N. Calif....... > > > Homepage: http://groups.yahoo.com/group/Graduate-OSSG > > Unsubscribe: mailto:Graduate-OSSG-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2001 Report Share Posted June 1, 2001 For stubborn dry skin, I've found Vaseline Petroleum Jelly Cream-Creamy Formula to be the most effective not to mention least expensive treatment! It has vitamin E and is fragrance free. It's thick but absorbs nicely. It leaves your skin soft all day long. A. in Indy SRVG on 4-11-00 Dr. Huse St. 's Carmel, IN Pre-op BMI 47, Pre-op Weight 278 lbs. As of 4-30-01, -111 lbs. and weighing in at 167! _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2001 Report Share Posted June 2, 2001 , When my daughter was small she had the worst dry skin. Her little hands would chap and then crack and bleed. No lotion seemed to be able to do the job so I took her to the doc. At that he he recommended I wash her well, cover her in Crisco (the solid stuff) and then put socks on her hands and leave it that way as long as possible up to 2 days and at least 12 hours. When I took it off, her hands were totally healed and as soft and supple as lamb skin. Sometime after that I saw a mysterious " C " Cream in the pharmacy and when I asked about it they told me many people wouldn try it, they wanted a RX so they transferred the Crisco into jars and labeled it. You might want to try it. Amber/FL (no subject) hi........... just wanted to know if anyone knows of a real good penetrating cream for awful dry skin.......nothing seems to keep me soft.......or my skin hydrated......i hate my legs feeling like leather....... any ideas....... almost 2 years post op and life is great.......monday is my face lift.....in the fall i am having my flabb removed from my gut area.......... i am so grateful for all that i have been giving.....truly most of all it is an inside job......with keeping in balance mentally and spiritually........when i am in balance.......i know for today i have enough........for me, i have always wanted more..........today i try to fill my self up with spiritual food instead of feeding an insatiable hunger within my soul with food.......one of the reasons i wanted this surgery, i was sick and tired of eating....not only of being fat but, eating as well..... anyway......enuff of me....... thank you all for being here.......your thoughts are so important to me and many others......... hugz in N. Calif....... Homepage: http://groups.yahoo.com/group/Graduate-OSSG Unsubscribe: mailto:Graduate-OSSG-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2001 Report Share Posted August 24, 2001 The following is a letter written to me from another looking for answers. Please write to her, including her email address until sshe registers. Thanks, Karyn In a message dated 8/22/01 11:18:03 PM US Eastern Standard Time, Paj220@... writes: > > > > > Karyn: > > I had pancreatitis in April of this year and was hospitalized for 3 weeks. > To date, the pain has not subsided. I am so in the dark regarding this > disease and am very interested in a support group in my area, Cincinnati, > Ohio or support through e-mail. I have so many unanswered questions. Can > you give me more information or point me in the right direction? The > foremost question I am seeking an answer to is, how can I be in constant > pain (some days are better than others) when the CT scan does not show that > the pancreas is not inflamed. What could be the explanation for the pain? > Please help! > Thank You, > <A HREF= " KarynWms@... " >Karyn , RN/Founder/President</A> <A HREF= " http://www.pancassociation.org " >Pancreatitis Association, International </A> Phone 1- / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2001 Report Share Posted September 14, 2001 Hi and Bil, I did email Bill privately. You are close with the numbers. I lost 218lbs, regained 64 back to 306 and relost down to my low of 189 lbs. Diet is DIE with a T. I changed the way I live my life. The way I eat has become habit just like my compulsive eating and grazing was. That is no longer my way of living. I am grateful for all the help this list has given and my other lists. Thanks for remembering me . Rita --- wrote: >I must > direct you to Rita on > the graduate list- she had gained back to 304 at 5 > years post and with > determination she is now down to 184--- so it is > possible.....but for me > I am about worn out with the issue.... I don't know > if I can diet again- > it becomes all- consuming shelly > correct me rita if > anything is wrong > > > > Homepage: > http://groups.yahoo.com/group/Graduate-OSSG > > Unsubscribe: > mailto:Graduate-OSSG-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 le, It might just be him. After all he is a minister, and you did sleep with him. Even if he *REALLY* *REALLY* like you he would have to deal with the moral issue of having sex before marriage. He might be more ashamed of himself for not resisting temptation. He could also be thinking that you wouldn't make a good mate because you slept with him. -Serena > Yeah, yeah, yeah, > > > I was on the pity pot when I wrote that, I know.....thank you all for your > support, I agree with all of you, there is truth in everything that everyone > told me, ...I think that there is some truth in the stuff that I wrote when I > was on that pity pot, so to speak. Um, let me rephrase what I was > thinking....It's hard to start out and find someone, but I have been there 3 > times! Men, (ok, maybe not all of them) are going to think that there is > something wrong with me for that! Ok, Ok, I DO NOT feel that I need a man to > complete me, that is not at all what I think!! I would like some tactile > comforting on occasion, I miss being touched and held. Caressed. I think > you can all relate to that. I do have some self esteem issues, but you know > because I present my self well, people don't always see it. I agree that > being involved with something else would be a valuable thing perhaps, but > where would I find time, I work 9-5, I go to the gym. I have to cook and > shop, I have been alone now for 4 years, and in the beginning I was content > that I was out of the bad relationship I was in. Then I was working on my > weight loss, and now, I am beginning to feel emotionally ok enough to even > think about having a relationship. I even wish that I could find more > girlfriends. I have a couple of really close friends, who I was hanging out > with, one is also a WLS person, who I met in a support group and her best > friend, but they now work on the weekends and are not available for hanging > out with. > > Ugg, I sound so pathetic! You know I didn't mention the one dating > experience that I had since I've had WLS, and that was this past June, I went > to a singles event that was put on by a local community theatre group, (that > would be my area of interest, the arts, acting, etc.), and I met a really > nice man, he was a minister. (Not my usual loser) He pursued me for a > couple of weeks and we just dated, finally I slept with him and after that he > never called me back. Now, I think, did I give in to him too quickly? Was > that it? What do men want anyway? In my youth (25) during a thin period, I > dated someone, who was an interesting guy, he tryed to get me to go to bed > with him, but I didn't feel comfortable and he never called me back. This > minister and I hit if off, I though, was he repulsed by me, this " romance " > kind of threw me for a loop. I called him once and straight out asked him, > did he still want to see me, he lied, and then never called me again. I can > only think that seeing me without clothes was too much for him, that maybe I > had too much " baggage " and " saggage " . > > Ok, I know I have done a lot, but I am a shy person....and I say that I am > shy, when tonight, my mother told me her cousins who are up from N.C., > visiting her told her after seeing me on Sunday, that they thought that I am > SO OUTGOING, SO STRIKING!! Well, thanks, coz, but they see this different > side of me, I am comfortable when I am around family, but put me in a social > setting and I do get shy. I agree that if and when I am ready (maybe) I will > find someone again, but you know I may not.... > > > Thanks again everyone for your support. > > Lets hope that its a good week for everyone. Compared to many my problems > are small. > > le > > RNY 7/28/98 > > 311 - now 175. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2001 Report Share Posted October 9, 2001 le, It might just be him. After all he is a minister, and you did sleep with him. Even if he *REALLY* *REALLY* like you he would have to deal with the moral issue of having sex before marriage. He might be more ashamed of himself for not resisting temptation. He could also be thinking that you wouldn't make a good mate because you slept with him. -Serena > Yeah, yeah, yeah, > > > I was on the pity pot when I wrote that, I know.....thank you all for your > support, I agree with all of you, there is truth in everything that everyone > told me, ...I think that there is some truth in the stuff that I wrote when I > was on that pity pot, so to speak. Um, let me rephrase what I was > thinking....It's hard to start out and find someone, but I have been there 3 > times! Men, (ok, maybe not all of them) are going to think that there is > something wrong with me for that! Ok, Ok, I DO NOT feel that I need a man to > complete me, that is not at all what I think!! I would like some tactile > comforting on occasion, I miss being touched and held. Caressed. I think > you can all relate to that. I do have some self esteem issues, but you know > because I present my self well, people don't always see it. I agree that > being involved with something else would be a valuable thing perhaps, but > where would I find time, I work 9-5, I go to the gym. I have to cook and > shop, I have been alone now for 4 years, and in the beginning I was content > that I was out of the bad relationship I was in. Then I was working on my > weight loss, and now, I am beginning to feel emotionally ok enough to even > think about having a relationship. I even wish that I could find more > girlfriends. I have a couple of really close friends, who I was hanging out > with, one is also a WLS person, who I met in a support group and her best > friend, but they now work on the weekends and are not available for hanging > out with. > > Ugg, I sound so pathetic! You know I didn't mention the one dating > experience that I had since I've had WLS, and that was this past June, I went > to a singles event that was put on by a local community theatre group, (that > would be my area of interest, the arts, acting, etc.), and I met a really > nice man, he was a minister. (Not my usual loser) He pursued me for a > couple of weeks and we just dated, finally I slept with him and after that he > never called me back. Now, I think, did I give in to him too quickly? Was > that it? What do men want anyway? In my youth (25) during a thin period, I > dated someone, who was an interesting guy, he tryed to get me to go to bed > with him, but I didn't feel comfortable and he never called me back. This > minister and I hit if off, I though, was he repulsed by me, this " romance " > kind of threw me for a loop. I called him once and straight out asked him, > did he still want to see me, he lied, and then never called me again. I can > only think that seeing me without clothes was too much for him, that maybe I > had too much " baggage " and " saggage " . > > Ok, I know I have done a lot, but I am a shy person....and I say that I am > shy, when tonight, my mother told me her cousins who are up from N.C., > visiting her told her after seeing me on Sunday, that they thought that I am > SO OUTGOING, SO STRIKING!! Well, thanks, coz, but they see this different > side of me, I am comfortable when I am around family, but put me in a social > setting and I do get shy. I agree that if and when I am ready (maybe) I will > find someone again, but you know I may not.... > > > Thanks again everyone for your support. > > Lets hope that its a good week for everyone. Compared to many my problems > are small. > > le > > RNY 7/28/98 > > 311 - now 175. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2001 Report Share Posted October 19, 2001 There should be no problem with absorption. They are probably floundering around trying to find the antibiotic that the sinus infection is sensitive to. Michele (with one L) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2001 Report Share Posted November 15, 2001 The more I read of other peoples problems the more I believe I have had this all my life and until recently it has just layed dormant.I have, as you all probably know, had problems with my esophagus for years. Anything, mainly meats and chicken, could get stuck. It could take a few minutes and in some cases what seemed like hours to get it down, or up. As a child tying my shoes especially on cold mornings, would make my palms turn red and slightly swell. It was never really bad so I never bothered to tell mama.Then there was a full body break out that I had, supposedly from tide. I'm beginning to doubt the tide had anything to do with it. If I have had it all my life then I doubt the significance of the wisdom teeth, though I will have them removed anyway.Thank you for your thoughts and prayers, ttyl,Ty - (no subject)Hi Ty, I am trying to send you some of the old e-mail I had sent to thegroup., When my bad root canal was pulled no infection showed up either,nothing but the cavity in the side of the tooth and some bone loss in thejaw. I did however request the antibiotic Clindamycin and took 1000mg adayfor 10 days. I would say it took at least 3 months to see the most dramaticimprovement in my hives and they have been steadly getting better, I am offall anithistamines as of yesterday and still remain hive free. I am stilltaking the Zantac 75mg 2 x aday and will stop that shortly.Hi Rita & Everyone, Before my CU started I had the same problem with myesophagus. When I swallowed pork, chicken or some other foods (can'tremember what) they would get caught in my esophagus and I would have todrink water to make it go down. It did not happen all the time and it hurt.I never had a breathing problem. It didn't dawn on me my esophagus wasswollen. Sometimes the water would not make the food go down and would backflow into my mouth. Other times I would get a severe pain in the center ofmy chest (between the breasts) that radiated into my jaw ( I was screened byCardiologist & all was o.k.). Sometimes I hadn't eaten anything or in themiddle of the night the pain would start. When I got that pain I felt likeI had to burp and couldn't. When I drank some carbonated Sprite it made meburp & the pain went away. It happened a lot. I had gone to agastroentologist who did an endoscopy and then a swallowing test. He did notfind anything and said my esophageal muscles were so strong I could crackwalnuts with them (normal). The next day after the test I had the sameproblem. That's when I assumed my esophagus was swelling or having spasms.I was having a lot of GERD (Gastresophageaar Reflus Disease) and thought maybe the acid reflux was causing the problem. All this occured a long timebefore the CU & DCU started. I was on Prilosec which didn't help at all andlater on found I was allergic to it. Then I had a CAT Scan & that night Ibroke out in giant hives. I thought the hives were from the contrast used inth CAT Scan. I am not allergic to Iodine & can eat shellfish with no problem. Then after having the CU and angioedema for about 18 months I found thisgroup (I think it was that long) And thanks to this most informative group Ichecked out a seven year old root canal tooth. It was bad & I had itextracted on 5/17/01. It's been a slow recovery but I am making progress. Ialso found I had H Pylori and was treated for that. (bacteria in stomach thatcan cause an ulcer) I am trying to find a lab that does the Urea Breath testto retest for the H Pylori & can't find one. (update for Ty- I found one & ambeing retested this Monday) I took the medical tx. for the H pylori and thenfollowed it up with the Herbal tx/Mastic Gum capsules. The Mastic Gum issuppose to be more effective than the medical treatment. All in all, I amdoing great now. I haven't had a hive in a long time but still have littlepressure marks if I wear a belt & at times some pressure reddened areas underthe base of the bra but no itching there. I do get some skin itching on myback and feet but no hives and no angioedema. I am eating all foods nowexcept for bought spegetti sauce (update/I ate spegetti with meat saucethis past Monday and no hives or swelling occured.)(before was sensative tomany foods, was RAST tested & skin tested & all was negative) I havedecreased all my meds to just Allegra 60mg and Zantac at 8 PM. Tomorrow I amstopping the Allegra & see how I do. (update/ Have stopped all antihistaminesnow & no hives or angioedema) I have decided I will wait for 1 year beforeI start the procedure for a dental implant. I don't want to disturb anythingat the site. Ty, I hope this information will help. Right after my extraction I hada lot of swelling but it got better & better. You still have 2 teeth left toget out so don't stop now. I know you are suffering from the 2 extractionsbut please finish the job as those 2 remaining teeth will give you nothingbut trouble anyway. Do you have an appointment for there extraction? Atleast with these 4 teeth out should you continue to hive and swell you willknow it was not from the teeth and can look for something else. Just rememberit took 7 years for my hives to surface and I thought it was something elsethat caused it and it turned out to be a bad root canal tooth. Just hang inthere big guy & my family is praying for you. Seems like you are a member ofour family. I keep everyone updated as to your progress at our supper table. Hope today you are feeling much better. Fondly, Knorr, R.N.New JerseyCara, I just want to say, I went through all the tests you suggested and theGastro Doc. didn't find anything. On that day I was not having a problemswallowing. The next day I had the problem. The next week I had theswallowing test done and it was completely normal. Many times I stood overthe sink trying to bring up food that just would not go down. I even mademyself chew meat excessively so it wouldn't get caught in my esophagus Ihave not had the problem since having the bad root canal tooth out. This hivything brings out weird thing in normal people that are not in the medicalbooks.. As you suggested, it is good to have it checked to eliminate anypathology. Love, Knorr, NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2001 Report Share Posted December 20, 2001 In a message dated 12/20/2001 8:29:07 AM Pacific Standard Time, sbprasetyo@... writes: > Why do we " meat " cravers now have the sugar pangs? I chalk it up to my perverse psyche. I was not a big sweets eater pre-op; I was much more into bread and fat. But now, the only food which is really bad for my weight loss, is sugar. So of course, that's the one food I crave. Part of the " you always want what you can't have " syndrome. If for some reason I couldn't eat dairy, I am absolutely sure that would become my craving du jour. I guess I could seek some therapy to help with this, but heck, it's more fun to complain about it! Kate 6/00 - 250 lbs. 12/01 - 138 lbs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2001 Report Share Posted December 20, 2001 Not enough protein. Sorry. There's never enough for us. Sweet cravings is the #1 sign. It doesn't have to be in the toilet low, just too low for YOU. If' it's below pre-op levels, that's all it takes. Mine is as predictable as it can be. My levels reached pre-op this summer when I beefed for plastic redo and sure enough, appetite dropped off, weight dropped with it. Darn. Thanks, www.vitalady.com For info on PayPal, click this link: https://secure.paypal.com/affil/pal=vitalady%40bigfoot.com (no subject) > What a good day I am having with posts! > I too was a meat quantify eater and rarely ate sweets. A whole double cheese > pizza was preferred over a Snickers! Now 19 months post op I hear the call of > even Life Savers in my husband's coat pocket...and he is at work! Why do we > " meat " cravers now have the sugar pangs? I know I get all my protein in. > Barbara > > Homepage: http://groups.yahoo.com/group/Graduate-OSSG > > Unsubscribe: mailto:Graduate-OSSG-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2002 Report Share Posted July 27, 2002 Thanks Robin! Her liver function has always been normal. We did have an electrolyte panel and a med level taken yesterday. Her 'lytes are fine and her phenobarb level was 27. I was told this in the middle of the normal range. I have other thoughts, though. Her level has been taken quite a bit since Nov, when her seizure intensified. Her trough level was always in the mid to upper 30's. So, maybe the doc was right and she is growing out of her dose. She is doing fine now, just real tired from all of the seizures the other day. I was wondering which drug you started with and what order and why the other drugs were added. Was something done a month ago that you think has helped the seizure control? Thanks for your help! I hope you have been feeling better! Krisitne, Chelsea's mom(non-specific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2002 Report Share Posted November 16, 2002 Sharon, YAY! Sounds like you had a great appt with Shoffner! I'm so glad that things went so well and he seems to be able to help Clayton. Thanks for sharing! Blessings, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2002 Report Share Posted November 16, 2002 Sharon, Thank you for sharing. We will probably travel to Atlanta someday. but we are in the holding pattern now with Three other kids not showing any major signs. Although, GI issues continue with our oldest. I am so glad you went and had a possitive experience. I do not recall what mito dx Clay received at 2 1/2 Can you remind me. Has he had a DNA analysis? Just curious. Take care, What was his cocktail and what are the changes? -----Original Message-----From: lawblond7@... Sent: Saturday, November 16, 2002 12:29 PMTo: eosinophilic gastroenteritis ; gtube@...; Mito ; okbabes ; OUR-KIDS@...Cc: adultmito-owner Subject: (no subject)Hey all:We are back from are vacation - excuse me - trip to see shoffner in Atlanta. It was very informative and all went well. We stayed at the McDOnald house which was wonderful and everything went smooth.The appointment with Shoffner was so good. He is such a nice man. SO thoughtful, thorogh and nice with a great bedside manner. Very impressive. He spent 2 hours with us. Asking questions, exaiming clayton. It was so clear that he had extensively reviwed the 7 inch voulume of medical records that I sent him.He agreed with the the testing done and that Clay did have a mito disorder. He is not sure of the inheritance pattern and will try to find that from the biopsy. He did want a bunch of test undertaken when we got home on Clay and will send the list to us and our doctor. He also was concerned about Jakes CPK being so high and said he needs to see a neuro immediately for testing, including an MRI and EEG.In addition to all the usuall tests done, muscle biopsy, blood, urine, limbar puncture he tested Clayton for a chromosome 17 disorder (Velocardio facial or dis) as this was noted in many of clays records but never followed up on. This would be a diagnosis in addition to the mito one. The thinks 17 as others have due to his high arched palet, severe reflux (now corrected) and extra aortic arch. All and all it was very informative. I also was happy that he agreed with us holding out on the biopsy for clayton until recently. Clayton was diagnosed 2 1/2 years ago by Dr. . We never pursued a biopsy after the diagnosis as it would not have changed the treatment or anything at that time. However. now that Jake and cole are showing symptoms we decided to pursue it. He also acutally added that there may be some other things we can add to claytons cocktail and also diet may help him (like removing fats - whole protiens) - which we did before.Thanks for all the support guys.Love,SharonPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2004 Report Share Posted February 1, 2004 Cut the squash in half length wise, lay face down is shallow glass baking dish, pour in 1 to 1 1/2 cups of water, cover with plastic wrap and microwave on high for about 10 min. Allow to cool a bit so you can handle it and just take a fork and start raking the pulp out and it will amaze you how it comes out in shreds like spaghetti. Then prepare your ground turkey with sauce and enjoy. Hope this helps. A. B. LAP RNY 3/22/03 Dr. Steve Weinstein, MD. Mobile, Alabama BMI 65/43 386/265-121LBS. 59 years old Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2009 Report Share Posted February 12, 2009 When you can tolerate beans and cook them to the specifications to SCD, is there anything you can use the water in? I cooked some beans with salt pork and they turned out fantastic. The bean water/brother was also tasty and I would like to use it in a soup as a base. Has anyone ever tried this? Is it recommended or even legal due to what is in the water from the beans? Thanks, Guerin UC/C Remicade Quote Link to comment Share on other sites More sharing options...
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