Re: Severe joint inflammation while on intro diet - please advice

[Guest guest]

Hi Mo, So sorry you are having such pain. I have the same symptoms when I stop prednisone, it's quite common when stopping steriods. I haven't found any dietary relief, except to avoid dairy, which you aren't taking. I have found relief with acupunture and some herbs, turmeric and bosweillia, but the acupunture has been the most help. Your diet sounds great, especially the fish. With time your body will adjust to the loss of the steriods but until then maybe you can try some type of painkiller, like Tylenol, to get you through the rough spots. I know it isn't much advice, but it will pass. Best of luck.

Ann,

Living in Italy

Undiagnosed Crohn's since 1977 Diagnosed 15 years

Sacroiliitis 25 years

Rheumatoid arthritis 25 years

Pyoderma Gangronosum 2 years

SCD since July, 2008

Meds: None

To: BTVC-SCD Sent: Tuesday, February 10, 2009 10:34:09 AMSubject: Severe joint inflammation while on intro diet - please advice

Dear all,

I really need some advice on the following. I have been following the diet for more than six years now. In December I decided to go back to the intro diet because my doctor decided to stop entocort.

In the past few weeks I am having inflammations in multiple joints. I had joint problems before, but not as severe as now. It started with one knee, then after a few days the second knee also got fluid and felt warm. Then my ankle, elbow and shoulder. The joints are hot, painful and some have fluids (knees, ankle).

I am still on intro diet and only eating the following foods: chicken, salmon, cod, carrots, zucchini, and apple. I am trying to rotate foods (for example when I eat carrots two days, I leave it for three days).

My reaction to the diet in terms of bowel movements is very good as I only go once every day.

Can anyone please advice on how to deal with the joint problems? Should I remove particular foods or should I add more foods to my diet (and which ones).

Thank you,

Mo

[Guest guest]

Mo,

Do you have Crohn’s? You may be experiencing the joint pain that

often comes with Crohn’s, or a more full-blown case of rheumatoid arthritis, or

both. (I’m not a doctor; I’m suggesting that’s what it sounds like to me

because I have Crohn’s and rheumatoid arthritis.) You could take a

combination of glucosamine, condroitin and MSM a couple of times a day (read

the dosing information on the bottle), which I find helps my arthritis a lot

and doesn’t seem to irritate the bowel and has no other bad side effects. Or

take additional MSM as well. It takes a while – a week, two – for this to kick

in, and not everyone responds to it, but you may find it worth a try. There’s

also UC-II, which is undenatured chicken cartilage (sounds weird, I know). I

haven’t taken that myself but have heard good things about it.

n

From: BTVC-SCD

[mailto:BTVC-SCD ] On Behalf Of Mohammed Mo

Sent: Tuesday, February 10, 2009 4:34 AM

To: BTVC-SCD

Subject: Severe joint inflammation while on intro diet -

please advice

Dear

all,

I

really need some advice on the following. I have been following the diet for

more than six years now. In December I decided to go back to the intro diet

because my doctor decided to stop entocort.

In

the past few weeks I am having inflammations in multiple joints. I had joint

problems before, but not as severe as now. It started with one knee, then after

a few days the second knee also got fluid and felt warm. Then my ankle, elbow

and shoulder. The joints are hot, painful and some have fluids (knees, ankle).

I

am still on intro diet and only eating the following foods: chicken, salmon,

cod, carrots, zucchini, and apple. I am trying to rotate foods (for example

when I eat carrots two days, I leave it for three days).

My

reaction to the diet in terms of bowel movements is very good as I only go once

every day.

Can

anyone please advice on how to deal with the joint problems? Should I remove

particular foods or should I add more foods to my diet (and which ones).

Thank

you,

Mo

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[Guest guest]

Dear all,

Thank you for the support, it is really beneficial.

Full paleo sounds indeed very interesting, I will search for more information. Although to be honest I am slightly hesitant, because my main problem includes the joints (and not the muscles). However, I think it is definitely worth consideration.

Thank you,

Mo

>> Hi Mo...after 5+ years scd, I recently ( 4-5 weeks?) switched to full paleo --meaning NO beans ( which is a little heartbreaking, as I am exeptional at growing beans!! :-((( ... but this is the 1st time in 8-9 years --no more fibromyalgia!!!! Yay!!!!...this summer, I'm going to try my hand at fermenting beans & see if that works for me...but currently low-carb/paleo scd is the only thing that stops the pain! hth, gisele

>

[Guest guest]

Mo,

I am experiencing swollen and pain to the touch and hindered mobility. I have

determined

that it is a product of an anti-biotic given for infection. I am stopping the

drug and now I'm

much more mobile. So I would ask, what are your meds? Look deep for all the

side effects

and see if the cause could be drug related.

Wish you the best,

[Guest guest]

Mo

Are you eating any dairy, such as yogurt? What are the supplements you're taking?

After a year of eating a small amount of yogurt daily I developed a sensitivity to casein (the protein in milk) which took the form of severe and debilitating joint pain. I had to stop eating yogurt, and now I can't eat cheese either. This kind of joint pain is a common dairy sensitivity.

My allergic reaction to foods takes the form of hives and respiratory distress, but perhaps yours is joint pain. Which means you're possibly eating or taking a supplement that is giving your body distress. I was going to suggest carrots as the first item to test, but it sounds like you're already skipping three days after a serving of carrots. I find many supplements also give me some immune-related symptoms, so perhaps you also need to consider any supplements you're taking.

Your joint pain could also be coming from some other condition, and might be unrelated to food. I'd check in with your doctor as well. As healthy as SCD is it doesn't stop us from developing other health issues. I've gone on to develop neuromuscular and neurological problems (which do include some joint pain as well). And my gastroenterologist recently recommended I see a rheumotologist in addition to my regular appointments with a neurologist. So I'd check with your doctors.

Kim M.

SCD 5 years

[Guest guest]

Hi Ann in Italy :-) yup, no dried beans ...also no green beans or peas ( wah!!...tho I am going to test fermenting them this garden season & will still grow lots for my daughter ) ...also no dairy ( which I was already except I had ghee --now no ghee ) ...basically it is no "GBP" ( grains, beans/legumes, potatoes ) so it's not that much different than scd ...the low carb i do by restricting myself to low fructose fruits ( cooked berries, kiwis, some cooked apple, lemon) Paleo allows a few eggs a week...so I make unsweetened muffins to use as bread ( usually pecan, sometimes almond ..all nuts are o.k. except cashews on paleo ). So it's scd but with less sweets & no lectins ( from legumes)...currently I do this strict diet for 3 weeks with rotating legal antifungals, then one week of adding a bit of honey or bananas & acidophilus --then back to 3wks of strict etc ...In about 3-4 months, I am going to redo my stool test to see if this is working ( I have a hospital-aquired VERY stubborn strain of Candida called parapsilosis, as well as albicans ... I was a "sweet-o-holic" for decades lol so it might take awhile! but hope springs eternal...and now I am learning to appreciate the amazing range of edible greens!! be well, Gisele

[Guest guest]

I have found that a short course of ginger (powdered, in capsules, on a full

stomach) has been remarkably helpful for joint inflammation.

SCD since Oct 2000

IBD/celiac