re: what a coworker said about a friend with fibro

[Guest guest]

I can't believe how many ignorant people are out there! I can figure

out why they aren't friends anymore! This isn't the first time I've

heard this. My boyfriend is very supportive of me and we work

together and he has pushed me to tell more people about my disease

so we can educate people. But I've encountered the same reaction,

one person said.. " yeah my mother in law has fibromyalgia, but she

milks it she's always hopped up on pain meds and she is on

disability! " I was so outraged!!!! However, it was a customer and we

are new and don't have many of those so I tried to bite my tongue,

luckily I haven't seen him since. All I could think was about his

poor mother in law, hopefully her whole family doesn't feel the same

way he did. I was sick for such a long time before finding out that

it was fibro...and it was me who told the doctor I think its

fibro...I knew I had some disease that may not be cured, but I never

thought I could have a disease that people are so uneducated about

even in the healthcare community. I never thought I would have to

justify taking pain medication or needing to rest especially to

medical professionals. And honestly there are tons of us on here who

deal with this. I often thought maybe we should write a talk show

like Oprah or something and tell her that she should do a show about

diseases that are not recognized in the general public or healthcare

community. That when you are diagnosed you not only deal with the

problems of a disease but the problem of a society not recognizing

it as such. At least we all have each other!

NC