Re: how to get a doctor to say Im disabled

[Guest guest]

I have encountered the same issues you now face years

back. I had to learn to force myself to become

extremely asssertive with the DOCs for them to listen

and ask them if they were in my shoes and experiencing

severe pain. Be assertive and persistant with the

Docs and other people you have to deal with. If they

are still ignoring you then tell them they will be

hearing from the medical board and your attorney if

they do not take action. Sometimes you just have to

over exagerate a bit without overdoing it. Many of

the med staffers I dealt with were very ignorant of my

pain, now I am on 100% service connected and receiving

disability from the Veterans Administration and Social

Security Disability. Tell them about your quality of

life and the fact your life does not amount to much

becaue of the pain and the inability to sleep or even

enjoy intimate relations. Keep a journal, get friends

to write a letter and be persistant. TAKE NO

PRISONERS!!!

--- spiritualsuze wrote:

> Hi everyone, have not been able to be active online

> in group much. Have

> been so sick,cant go out, can hardly bathe myself or

> shower now. Cant

> wash dishes or clean house. cant seem to function

> much at all. cant

> feed myself. have not worked since sept. cant get to

> a job interview or

> search for jobs cause so sick. How do I get my

> doctor to say I am

> disabled? I have tried to talk to him about it

> before about 2 years ago

> and he made a smart remark. I usually just see his

> physicians

> assistant. I talked to a disablity consultant and he

> says I have to get

> a doctor or psychologist to say I am disabled. When

> i try to talk to

> the doctor about how I cant work, how I am so tired

> and hurt all the

> time,how I cant function or take care of myself its

> like he is ignoring

> me. I dont know how to do this? How do I get someone

> to help me deal

> with this system and get some help getting my

> benefits? I have been in

> the doctors office just in tears for the past 3

> months. what does it

> take to get them to say Im not able to work?If

> anyone has any advice I

> would be grateful.

>

>

________________________________________________________________________________\

____

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

[Guest guest]

>

> Hi everyone, have not been able to be active online in group much.

Have

> been so sick,cant go out, can hardly bathe myself or shower now.

Cant

> wash dishes or clean house. cant seem to function much at all. cant

> feed myself. have not worked since sept. cant get to a job

interview or

> search for jobs cause so sick. How do I get my doctor to say I am

> disabled? I have tried to talk to him about it before about 2 years

ago

> and he made a smart remark. I usually just see his physicians

> assistant. I talked to a disablity consultant and he says I have to

get

> a doctor or psychologist to say I am disabled. When i try to talk

to

> the doctor about how I cant work, how I am so tired and hurt all

the

> time,how I cant function or take care of myself its like he is

ignoring

> me. I dont know how to do this? How do I get someone to help me

deal

> with this system and get some help getting my benefits? I have been

in

> the doctors office just in tears for the past 3 months. what does

it

> take to get them to say Im not able to work?If anyone has any

advice I

> would be grateful.

>

I have a question about where you live? Are you in or near a large

city or are you in a more rural area? And either way, I would check

either on line, such medline or webmd to see if there are any pain

clinics in the area that have doctors who specialize in pain

treatment. While that would not give you the medical history records

but that shouldn't be a problem as any new doctor would want you

previous records and while your present doctor is not cooperating,

any new doctor would see your medical history. And I do know that

there pain clinics popping up all over the country, but I also think

you need to check them out as far as how they treat or believe fibro

is an actual disease. I could suggest that you call Allsup and see

what they might say --- their number is an toll free one that is very

often at the bottom of the messages for this group.

Good luck!

[Guest guest]

>

> Hi everyone, have not been able to be active online in group much.

Have

> been so sick,cant go out, can hardly bathe myself or shower now.

Cant

> wash dishes or clean house. cant seem to function much at all. cant

> feed myself. have not worked since sept. cant get to a job

interview or

> search for jobs cause so sick. How do I get my doctor to say I am

> disabled? I have tried to talk to him about it before about 2 years

ago

> and he made a smart remark. I usually just see his physicians

> assistant. I talked to a disablity consultant and he says I have to

get

> a doctor or psychologist to say I am disabled. When i try to talk

to

> the doctor about how I cant work, how I am so tired and hurt all

the

> time,how I cant function or take care of myself its like he is

ignoring

> me. I dont know how to do this? How do I get someone to help me

deal

> with this system and get some help getting my benefits? I have been

in

> the doctors office just in tears for the past 3 months. what does

it

> take to get them to say Im not able to work?If anyone has any

advice I

> would be grateful.

>

I have a question about where you live? Are you in or near a large

city or are you in a more rural area? And either way, I would check

either on line, such medline or webmd to see if there are any pain

clinics in the area that have doctors who specialize in pain

treatment. While that would not give you the medical history records

but that shouldn't be a problem as any new doctor would want you

previous records and while your present doctor is not cooperating,

any new doctor would see your medical history. And I do know that

there pain clinics popping up all over the country, but I also think

you need to check them out as far as how they treat or believe fibro

is an actual disease. I could suggest that you call Allsup and see

what they might say --- their number is an toll free one that is very

often at the bottom of the messages for this group.

Good luck!

[Guest guest]

I just called SS on Friday to reopen my case and they told me the best way

to get a dr. to state that I am disabled is to go to a psychiatrist and get

them to reach that conclusion. Then even SSI takes that into consideration and

grants cases.

Love and gentle hugs,

Debi/So. Cal.-54

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Be a good e-mail buddy, and ALWAYS

protect your friends from email address harvesters which can lead to more

Spam, unwanted mail, and even viruses.

Copy and paste into a new email and place parenthesis around the addresses.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

**************************************Check out AOL's list of 2007's hottest

products.

(http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001)

[Guest guest]

Suze,

Well I can only advise you on the doctor issue because I haven't finished going

through the disability nightmare yet. Do you only see one doctor? I've gotten

sarcastic remarks, or something about being on disability is less money and most

people can't get by on it. I've been told that my doctor's office " doesn't get

involved in that stuff " ... that was my GP who would only give me 2 weeks off.

You've just got to convince them. Is there a nurse in the office that might be

more supportive and could talk to the doctor? Is there other doctors you see

that might help?

I hate to say this, but it may have been my suicidal statements. The last thing

they want to do is send some back to work that might go postal. LOL... I joke

a lot... bear with me... all I really said was that every day I debate which

would be worse, a bullet to the head or going to work. The GP made a note in my

file but still only gave me 2 weeks. I asked the Rh about disability first; but

she said I had plenty going on to support it.

Of course, I'm still fighting for it. But since you aren't working anyway

you've got nothing to lose. I had nothing to lose either because they were

going to try to fire me anyway. This way at least I got out with all my

benefits still; thank heaven for that. I don't have to worry about what Lyrica

cost... that's why I'm fighting for the disability insurance. It includes my

benefits.

Good Luck!!

Angie

Carson City, NV; Single, five children (3 at home), 2 dogs, 5 cats, snow skiing,

camping, Harley Rider, Lone Wolf, Blue Thong Society/High Sierra Thong Snappers

member, LFA Advocate, independent, opinionated, outspoken, and open minded.

" It's always something. " ~~~Gilda Radner

http://360.yahoo.com/lovinglifeinnv

http://www.myspace.com/amkg

http://doripost.agrato.info/

http://www.facebook.com/profile.php?id=592316375

http://health.groups.yahoo.com/group/LupusSurvivorsU/

how to get a doctor to say Im disabled

Hi everyone, have not been able to be active online in group much. Have

been so sick,cant go out, can hardly bathe myself or shower now. Cant

wash dishes or clean house. cant seem to function much at all. cant

feed myself. have not worked since sept. cant get to a job interview or

search for jobs cause so sick. How do I get my doctor to say I am

disabled? I have tried to talk to him about it before about 2 years ago

and he made a smart remark. I usually just see his physicians

assistant. I talked to a disablity consultant and he says I have to get

a doctor or psychologist to say I am disabled. When i try to talk to

the doctor about how I cant work, how I am so tired and hurt all the

time,how I cant function or take care of myself its like he is ignoring

me. I dont know how to do this? How do I get someone to help me deal

with this system and get some help getting my benefits? I have been in

the doctors office just in tears for the past 3 months. what does it

take to get them to say Im not able to work?If anyone has any advice I

would be grateful.

________________________________________________________________________________\

____

Looking for last minute shopping deals?

Find them fast with Yahoo! Search.

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

[Guest guest]

That's exactly what I ended up doing. I filed (my third time) as mentally ill.

This time it was granted on my first appeal. I let my psych doctor classify me

as SMI...seriously mentally ill. She really worked with me. Because of the SMI

classification I also qualified for extra benefits. Housing for one. I got on a

special housing plan run by HUD, section 8, my mental health provider and the

State government. I am allowed to live where I want, and I only pay 30% of my

income for rent and utilities. The plan pays the rest. I am also allowed to keep

my state insurance rather than have to switch to Medicare. The state insurance

(at my income level) has no deductables, and pays 100% of approved medications.

So, I pay nothing for doctor's visits, even specialists, nothing for

hospitilisation, nothing for meds. It really beats Medicare. I lost two entire

rounds of Disability applications based on the dx of CFS/FM. That was despite

the fact that my doctor's said I couldn't work. So, it was embarrassing to apply

for the SMI classification, but it paid off. Of course, nobody except my case

managers know about it...well, now you all do too, but, oh well!!! It really WAS

worth it.

Peace and Love

Caroline

I just called SS on Friday to reopen my case and they told me the best way

to get a dr. to state that I am disabled is to go to a psychiatrist and get

them to reach that conclusion. Then even SSI takes that into consideration and

grants cases.

Love and gentle hugs,

Debi/So. Cal.-54

____________________________________________________________

GET FREE 5GB EMAIL - Check out spam free email with many cool features!

Visit http://www.crawler.com/email to find out more!

[Guest guest]

Hi Caroline and Debi,

I thought I had read that before on here, that mental illness is one of the

easiest. And now that you are both saying it and even were told by SS that was

the best way, I'm going to try again with my psychiatrist. When I first told

him that I had found out that a mental problem was the best way to go, even with

all my other stuff, he was adamant that fibromyalgia was the way to go, or

Sarcoidosis. He kept pushing the point until I just gave up trying to discuss

it with him. I thought at the time that he was just trying to get out of doing

the paper work and being " responsible for something on paper " because he can be

defensive and now I'm sure I was right. I've been seeing him for longer than

I've had any of the other things and he dx me with PTSD years ago and major

depressive disorder. He kept stressing that these reasons weren't the reason I

quit working, that it was after a long time of working while I was depressed so

that it wouldn't be the major cause. I

don't really care what the major cause is, I just need the SSD and he knows it.

At my next visit I need to be prepared. He used to be a great doc, but now he

is very different.

Can anyone give me any ideas of how to present it to him? Do I need to get

something from SS to take to him to fill out first or just confront him again?

Any and all help would be greatly appreciated.

Thank you,

Marti

Caroline Witte wrote:

That's exactly what I ended up doing. I filed (my third time) as

mentally ill. This time it was granted on my first appeal. I let my psych doctor

classify me as SMI...seriously mentally ill. She really worked with me. Because

of the SMI classification I also qualified for extra benefits. Housing for one.

I got on a special housing plan run by HUD, section 8, my mental health provider

and the State government. I am allowed to live where I want, and I only pay 30%

of my income for rent and utilities. The plan pays the rest. I am also allowed

to keep my state insurance rather than have to switch to Medicare. The state

insurance (at my income level) has no deductables, and pays 100% of approved

medications. So, I pay nothing for doctor's visits, even specialists, nothing

for hospitilisation, nothing for meds. It really beats Medicare. I lost two

entire rounds of Disability applications based on the dx of CFS/FM. That was

despite the fact that my doctor's said I

couldn't work. So, it was embarrassing to apply for the SMI classification, but

it paid off. Of course, nobody except my case managers know about it...well, now

you all do too, but, oh well!!! It really WAS worth it.

Peace and Love

Caroline

I just called SS on Friday to reopen my case and they told me the best way

to get a dr. to state that I am disabled is to go to a psychiatrist and get

them to reach that conclusion. Then even SSI takes that into consideration and

grants cases.

Love and gentle hugs,

Debi/So. Cal.-54

__________________________________________________________

GET FREE 5GB EMAIL - Check out spam free email with many cool features!

Visit http://www.crawler.com/email to find out more!

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Have y'all seen this in the New York Times online today??

http://www.nytimes.com/2007/12/10/us/10disability.html?_r=1 & th & emc=th & oref=slogi\

n

" Disability Cases Last Longer as Backlog Rises " .

in Louisiana

[Guest guest]

My only suggestions is that you keep an activity log, and a pain

log. I keep my activity log on an electronic calendar. I enter

stuff I did in blocks of time when I did it. I note the weather or

any other triggering factors for the fibromyalgia, and whether my

pain level is high or low or moderate, and anything else that's going

on. Periodically, when my doc needs to review it for the disability

company, I print it out - 2 days to a page. I use my Palm Pilot but

most if not all computers have a calendar or datebook function that

you can print.

Periodically, I take my activity log, and a paper monthly calendar.

I cross off days on the paper calendar where my fibromyalgia pain

would have affected my ability to work. That gives an easy graphic

illustration on how often I am affected by fibromyalgia.

When I went on disability, I was working for a small company that

rented me to a large company. The head of the contract probably did

me the biggest favor when he took me off the contract for a few

hours, and I was faced with the possibility of finding another

position. I realized that I simply could not look for another job in

the shape I was in. I wrote a letter to my doctor, detailing what my

life was like, what I could and couldn't do, and how my physical

condition was affecting my work (Keep in mind I did not go out for

fibro alone, but for super morbid obesity and degenerative knees as

well; fibro alone may have been a lot more bumpy, but you can *see*

obesity and bad knees on x-ray). My doctor went to bat for me;

heavens knows she had years of working with me on these issues to

draw from. I can't even imagine the amount of material she sent the

disability company.

My point is that if you can get it down in sentences, how it is

affecting you, what you can do and what you can't, and write a letter

to your doctor, it may help, rather than trying to explain it in a

fifteen minute visit with him. If he won't support you, do you have

other docs who might? Perhaps a therapist who can talk to your doc?

I wish you luck in this.

Z

[Guest guest]

I found the best thing was to have my brother with me. He is more forceful

than I am and he won’t just listen to BS. I think it’s important at a

certain time to have someone with you because that way they can verify, if

necessary, what you’ve told the doctor that you’ve been going through.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of Rex Burton

Sent: Sunday, December 09, 2007 5:09 PM

To: Fibromyalgia_Support_Group

Subject: Re: how to get a doctor to say Im disabled

I have encountered the same issues you now face years

back. I had to learn to force myself to become

extremely asssertive with the DOCs for them to listen

and ask them if they were in my shoes and experiencing

severe pain. Be assertive and persistant with the

Docs and other people you have to deal with. If they

are still ignoring you then tell them they will be

hearing from the medical board and your attorney if

they do not take action. Sometimes you just have to

over exagerate a bit without overdoing it. Many of

the med staffers I dealt with were very ignorant of my

pain, now I am on 100% service connected and receiving

disability from the Veterans Administration and Social

Security Disability. Tell them about your quality of

life and the fact your life does not amount to much

becaue of the pain and the inability to sleep or even

enjoy intimate relations. Keep a journal, get friends

to write a letter and be persistant. TAKE NO

PRISONERS!!!

--- spiritualsuze <spiritualsuze@ <mailto:spiritualsuze%40yahoo.com>

yahoo.com> wrote:

> Hi everyone, have not been able to be active online

> in group much. Have

> been so sick,cant go out, can hardly bathe myself or

> shower now. Cant

> wash dishes or clean house. cant seem to function

> much at all. cant

> feed myself. have not worked since sept. cant get to

> a job interview or

> search for jobs cause so sick. How do I get my

> doctor to say I am

> disabled? I have tried to talk to him about it

> before about 2 years ago

> and he made a smart remark. I usually just see his

> physicians

> assistant. I talked to a disablity consultant and he

> says I have to get

> a doctor or psychologist to say I am disabled. When

> i try to talk to

> the doctor about how I cant work, how I am so tired

> and hurt all the

> time,how I cant function or take care of myself its

> like he is ignoring

> me. I dont know how to do this? How do I get someone

> to help me deal

> with this system and get some help getting my

> benefits? I have been in

> the doctors office just in tears for the past 3

> months. what does it

> take to get them to say Im not able to work?If

> anyone has any advice I

> would be grateful.

>

>

__________________________________________________________

Never miss a thing. Make Yahoo your home page.

http://www.yahoo. <http://www.yahoo.com/r/hs> com/r/hs

[Guest guest]

That's a really good idea Tigger. I hadn't thought of that to get meds or a

doctor to say you are disabled.

It's weird that I haven't thought of it, because I take my assertive daughter

with me to see the Oncologist and Pulmonologist (for Sarcoidosis), because she

can think so well on her feet and is persistent until she gets an answer. She

also takes notes for me and helps me remember what the dr said. Particularly

when we are discussing treatment methods and the bone marrow biopsy. She is a

little too aggressive for me sometimes and the last time we were at the

Monologist talking about treatments for sarcoid she talked over me and

interrupted me and I didn't end of getting the answers to the questions I wanted

to ask. She even disagreed with me about a symptom at one point. So I have to

be careful where she goes in with me. Of course she drives me to the doctor so

it's hard to tell her not to go in. The only one so far she doesn't come in

with me to in the Eye Specialist, but she tells me when I need to go back, even

though I do go once a month. She doesn't like the

way my left eye looks now and wants me to move up my appt. She can be very

persistent.

Here I go again rambling on and on.

At any rate taking someone with you is a very good idea, I agree.

Take care,

Marti

Tigger wrote:

I found the best thing was to have my brother with me. He is more

forceful

than I am and he won’t just listen to BS. I think it’s important at a

certain time to have someone with you because that way they can verify, if

necessary, what you’ve told the doctor that you’ve been going through.

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of Rex Burton

Sent: Sunday, December 09, 2007 5:09 PM

To: Fibromyalgia_Support_Group

Subject: Re: how to get a doctor to say Im disabled

I have encountered the same issues you now face years

back. I had to learn to force myself to become

extremely asssertive with the DOCs for them to listen

and ask them if they were in my shoes and experiencing

severe pain. Be assertive and persistant with the

Docs and other people you have to deal with. If they

are still ignoring you then tell them they will be

hearing from the medical board and your attorney if

they do not take action. Sometimes you just have to

over exagerate a bit without overdoing it. Many of

the med staffers I dealt with were very ignorant of my

pain, now I am on 100% service connected and receiving

disability from the Veterans Administration and Social

Security Disability. Tell them about your quality of

life and the fact your life does not amount to much

becaue of the pain and the inability to sleep or even

enjoy intimate relations. Keep a journal, get friends

to write a letter and be persistant. TAKE NO

PRISONERS!!!

--- spiritualsuze <spiritualsuze@ <mailto:spiritualsuze%40yahoo.com>

yahoo.com> wrote:

> Hi everyone, have not been able to be active online

> in group much. Have

> been so sick,cant go out, can hardly bathe myself or

> shower now. Cant

> wash dishes or clean house. cant seem to function

> much at all. cant

> feed myself. have not worked since sept. cant get to

> a job interview or

> search for jobs cause so sick. How do I get my

> doctor to say I am

> disabled? I have tried to talk to him about it

> before about 2 years ago

> and he made a smart remark. I usually just see his

> physicians

> assistant. I talked to a disablity consultant and he

> says I have to get

> a doctor or psychologist to say I am disabled. When

> i try to talk to

> the doctor about how I cant work, how I am so tired

> and hurt all the

> time,how I cant function or take care of myself its

> like he is ignoring

> me. I dont know how to do this? How do I get someone

> to help me deal

> with this system and get some help getting my

> benefits? I have been in

> the doctors office just in tears for the past 3

> months. what does it

> take to get them to say Im not able to work?If

> anyone has any advice I

> would be grateful.

>

>

__________________________________________________________

Never miss a thing. Make Yahoo your home page.

http://www.yahoo. <http://www.yahoo.com/r/hs> com/r/hs

[Guest guest]

>

> My only suggestions is that you keep an activity log, and a pain

> log. I keep my activity log on an electronic calendar. I enter

> stuff I did in blocks of time when I did it. I note the weather

or

> any other triggering factors for the fibromyalgia, and whether my

> pain level is high or low or moderate, and anything else that's

going

> on. Periodically, when my doc needs to review it for the

disability

> company, I print it out - 2 days to a page. I use my Palm Pilot

but

> most if not all computers have a calendar or datebook function

that

> you can print.

>

> Periodically, I take my activity log, and a paper monthly

calendar.

> I cross off days on the paper calendar where my fibromyalgia pain

> would have affected my ability to work. That gives an easy

graphic

> illustration on how often I am affected by fibromyalgia.

>

> When I went on disability, I was working for a small company that

> rented me to a large company. The head of the contract probably

did

> me the biggest favor when he took me off the contract for a few

> hours, and I was faced with the possibility of finding another

> position. I realized that I simply could not look for another job

in

> the shape I was in. I wrote a letter to my doctor, detailing what

my

> life was like, what I could and couldn't do, and how my physical

> condition was affecting my work (Keep in mind I did not go out for

> fibro alone, but for super morbid obesity and degenerative knees

as

> well; fibro alone may have been a lot more bumpy, but you can

*see*

> obesity and bad knees on x-ray). My doctor went to bat for me;

> heavens knows she had years of working with me on these issues to

> draw from. I can't even imagine the amount of material she sent

the

> disability company.

>

> My point is that if you can get it down in sentences, how it is

> affecting you, what you can do and what you can't, and write a

letter

> to your doctor, it may help, rather than trying to explain it in a

> fifteen minute visit with him. If he won't support you, do you

have

> other docs who might? Perhaps a therapist who can talk to your doc?

>

> I wish you luck in this.

>

> Z

thank you , that is very helpful. I have felt so bad have not

had energy to do this sort of tracking of symptoms and have not had

much patience with documenting my functioning. I hate this kind of

paperwork crap and trying to prove to people that I am ill. most see

what I report as depression and not a physical restricton or

inability to do physical activities. have been giving my doctor a

general verbal account of my functioning on visits but now I need to

get more specific and more insistent with them on my status. I have

not wanted to do this for financial reasons. I have no one to help me

in my family much. no real support from anyone there that is of any

real help, more stress than assistance when I try to interact with

them.I am very isolated and alone at this point as far as help with

day to day help with things I need and emotionally as well.

>

[Guest guest]

> >

> > Hi everyone, have not been able to be active online in group

much.

> Have

> > been so sick,cant go out, can hardly bathe myself or shower now.

> Cant

> > wash dishes or clean house. cant seem to function much at all.

cant

> > feed myself. have not worked since sept. cant get to a job

> interview or

> > search for jobs cause so sick. How do I get my doctor to say I am

> > disabled? I have tried to talk to him about it before about 2

years

> ago

> > and he made a smart remark. I usually just see his physicians

> > assistant. I talked to a disablity consultant and he says I have

to

> get

> > a doctor or psychologist to say I am disabled. When i try to talk

> to

> > the doctor about how I cant work, how I am so tired and hurt all

> the

> > time,how I cant function or take care of myself its like he is

> ignoring

> > me. I dont know how to do this? How do I get someone to help me

> deal

> > with this system and get some help getting my benefits? I have

been

> in

> > the doctors office just in tears for the past 3 months. what does

> it

> > take to get them to say Im not able to work?If anyone has any

> advice I

> > would be grateful.

> >

> I have a question about where you live? Are you in or near a large

> city or are you in a more rural area? And either way, I would

check

> either on line, such medline or webmd to see if there are any pain

> clinics in the area that have doctors who specialize in pain

> treatment. While that would not give you the medical history

records

> but that shouldn't be a problem as any new doctor would want you

> previous records and while your present doctor is not cooperating,

> any new doctor would see your medical history. And I do know that

> there pain clinics popping up all over the country, but I also

think

> you need to check them out as far as how they treat or believe

fibro

> is an actual disease. I could suggest that you call Allsup and see

> what they might say --- their number is an toll free one that is

very

> often at the bottom of the messages for this group.

> Good luck!

>

>

I am near a fairly large city,Daytona Beach FL and have been

going to a pain clinic with neurologist/pain specialist that has been

treating me for the fibro since 2004, same neurologist pain

specialist has been treating me all this time, mainly have been seen

by his physicians assistant for past 2 years every month almost. Have

been telling them since june that I didnt think I could continue to

work. told them today that I had lost 3 jobs since aug, and that I

could work for about 30 days and then I would crash, have not worked

since end of sept now. I told them how I cant cook,wash dishes, shop

or go out. how going to social security for a few min on monday after

getting dressed and and going to grocery store I was so exhausted

after that had to go to bed for 2 days after that. cant do much

laundry or cleaning, and have no one to help me with anything. have

no family who is of any real assistance. Have no one to advocate for

me when I am talking to them and they wont listen or are not paying

attention. I complained about staff in there today how they lost my

disablity insurance paperwork and my claim was dismissed. I

complained about how my paperwork often gets lost and messages are

not returned. I explained how I cant feed myself and how I know I

cant think straight or get organized with dealing with paperwork and

insurance and business matters.how it looks like there was a

paperstorm in my apt and papers all over the place. I need some

support but have little or no support from friends or family. I

explained all this to them today. I dont know if they heard me. I

told them I filed the disablity claim with social security and got a

disablity consultant to help me with it. after going to doctor and to

grocery store had to come home was to tired to go anywhere else today

even though had other things I needed to do. I did write some notes

on a page telling about my level of functioning for past 3 days and

how I have been feeling.I dont know what Im going to do if I cant get

some cooperation from them. I told them I am going to see psycholgist

they referred me to on monday. I did give them paperwork for patient

assistance programs for medications and asked if the right person got

my paperwork.

[Guest guest]

>

> Suze,

> Well I can only advise you on the doctor issue because I haven't

finished going through the disability nightmare yet. Do you only see

one doctor? I've gotten sarcastic remarks, or something about being

on disability is less money and most people can't get by on it. I've

been told that my doctor's office " doesn't get involved in that

stuff " ... that was my GP who would only give me 2 weeks off.

>

> You've just got to convince them. Is there a nurse in the office

that might be more supportive and could talk to the doctor? Is there

other doctors you see that might help?

>

> I hate to say this, but it may have been my suicidal statements.

The last thing they want to do is send some back to work that might

go postal. LOL... I joke a lot... bear with me... all I really

said was that every day I debate which would be worse, a bullet to

the head or going to work. The GP made a note in my file but still

only gave me 2 weeks. I asked the Rh about disability first; but she

said I had plenty going on to support it.

>

> Of course, I'm still fighting for it. But since you aren't working

anyway you've got nothing to lose. I had nothing to lose either

because they were going to try to fire me anyway. This way at least

I got out with all my benefits still; thank heaven for that. I don't

have to worry about what Lyrica cost... that's why I'm fighting for

the disability insurance. It includes my benefits.

>

> Good Luck!!

> Angie

> Carson City, NV; Single, five children (3 at home), 2 dogs, 5 cats,

snow skiing, camping, Harley Rider, Lone Wolf, Blue Thong

Society/High Sierra Thong Snappers member, LFA Advocate, independent,

opinionated, outspoken, and open minded.

>

> " It's always something. " ~~~Gilda Radner

>

>I talked to nurse today and told her how depressed I was and how I

cant do anything for myself. I told her I could not afford the anti

depressant they had had me on for 2 years and I was crying just about

the whole time.explained how dealing with people on any level is too

stressful, cant stand to be around people and lose patience with them

and become nasty, how my friends dont want to be around me and I am

bad company, how I cant go out or go anywhere because it is too

overwhelming to me, how pain is too much after just trying to shop

for about an hour and have to come home and go to bed. she asked me

if I was thinking of harming myself and I said sometimes I think of

it, that I am afraid and upset, that there is nothing to look forward

to except about 40 more years of being in pain and alone. how I have

lost everything I cared about since car accident in 2001 and have no

family or anyone to help me.how I am afraid I will be on the street

with nothing. She asked me if I had a plan, well I told her no, cause

I was afraid she would put me inpatient and I might not get out of

there until I had nothing left or have a big huge bill that I cant

pay now. I just said I was depressed and felt hopeless, not that I

had a plan. maybe I should say how I want to blow my head off

sometimes.Maybe that would make them pay attention. I told them how I

had lost 3 jobs since august and cant work for pain and fatigue.she

brought me a bunch of samples of meds to take til I can get patient

assistance programs to help with meds.I tried to tell her the

antidepressant she brought me gave me a headache for 2 weeks the last

time I took it but she didnt want to hear that. told me to take it

anyway. I hate this fighting with docs and nurses and bureaucrats and

I am just so tired all I want to do is die.I told her I hurt all over

today that even my face hurts and my jaws hurt and my scalp hurts all

over.