Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 Hi I am on the beand. I have heard that many prefer TEVA over the oe you are taking.Remember every one is different but switch till you find one what agrees as the problem is the fillers the generics use. Different companies, different fillers. Marge > Hello all. I was wondering if anyone had come to a conclusion of what the best generic Mino is. I'm on Ranbaxy through Fry's Grocery and Drug store. Any feedback? Thanks, and I hope you are all doing well. > > Kimmie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2003 Report Share Posted December 9, 2003 I can't really tell Harald. I was on Remicade for awhile so I don't know if Remicade was helping or if it is the Ranbaxy. I still take alot of pain meds so maybe it's the pain meds. I was thinking of ordering from one of those Canadian pharmacy sites to get Wyeth brand Mino. Kimmie Re: rheumatic Generic Mino > Dear Group, > > If a generic mino has or has not worked for you for RA, please email this > information to rheumatic , and I will post it on the web page > http://www.tmgp.com/generic-mino.htm > > Kimmie, what have your results been with the Ranbaxy brand? > > Sincerely, Harald > > > At 10:25 PM 12/7/2003 -0700, you wrote: > > >Hello all. I was wondering if anyone had come to a conclusion of what the > >best generic Mino is. I'm on Ranbaxy through Fry's Grocery and Drug > >store. Any feedback? Thanks, and I hope you are all doing well. > > > >Kimmie > > > > > > > > > > > > > > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2007 Report Share Posted June 16, 2007 I went to the pharmacy yesterday and they told me that mino was no longer available except in the Generic form. I asked if it was no longer available for them or for anyone and they said no longer available anywhere. Has anyone else heard this? Will the Generic (which is much cheaper) help me? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2007 Report Share Posted June 16, 2007 I use generic and am in remission no pain rheumatic Generic Mino I went to the pharmacy yesterday and they told me that mino was no longer available except in the Generic form. I asked if it was no longer available for them or for anyone and they said no longer available anywhere. Has anyone else heard this? Will the Generic (which is much cheaper) help me? ---------------------------------------------------------------------------- avast! Antivirus: Inbound message clean. Virus Database (VPS): 000749-1, 06/15/2007 Tested on: 6/16/2007 10:27:43 AM avast! - copyright © 1988-2007 ALWIL Software. --- avast! Antivirus: Outbound message clean. Virus Database (VPS): 000749-1, 06/15/2007 Tested on: 6/16/2007 10:31:15 AM avast! - copyright © 1988-2007 ALWIL Software. http://www.avast.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2007 Report Share Posted June 18, 2007 Hi Geoff! Thanks for taking that initiative! I'm confused about Mr. Volk's assertion that Minocin cannot be labeled for rheumatic use. When I pick up my bottle of generic minocycline at my local Rite Aid, the package insert clearly says " this medication is also FDA approved for rheumatoid arthritis. " I was so excited by this the first time I saw it, and hoped it represented real progress and a step in the right direction. One of these days... ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2007 Report Share Posted June 18, 2007 Also, minocycline has been shown effective in a wide variety of neurodegenerative disorders i.e. Parkinson's, Alzheimer's and ALS (Lou Gehrig's). That is a HUGE market. Any search on _www.pubmed.com_ (http://www.pubmed.com) for minocycline, Parkinson's for instance, brings up a mass of (recent!) studies. Those in academia are working on this diligently. Hopefully the FDA and the average doc will catch up. ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2007 Report Share Posted June 18, 2007 Ethel kindly posted a contact for Triax pharmaceuticals and I took the initiative to directly speak with Volk, their VP of Marketing. I'm afraid our issues remain unchanged... Some years ago it was difficult to find anyone willing to prescribe the tetracycline family for RA. The most effective drug found for curing RA was minocycline, specifically brand name Minocin. Unfortunately for all of us who suffer with these diseases, Dr. Brown's work at NIH was roundly disregarded as it flew in the face of the " confused body " model, which is extremely lucrative, despite its proven track record. We wallowed in the nether world of needing a known treatment and being unable to obtain it due to the marketing and protectionist legal maneuvering of our pharmaceutical-health care complex. The more we tried to get treatment, the more they advertised, litigated and legislated against us. Then came the Trentham study. Like Rodney Dangerfield, a " sort " of antibiotic program finally got some respect. It was not the one Brown developed and proved. It was far more dangerous, and less effective, but it had one saving grace. It " legitimized " using antibiotics for rheumatic diseases. All patients had to do was obtain one of those little golden slips of paper -- a Rx -- using a reasonable bribe called an office visit fee. With that in hand we were now able to obtain minocycline, and we could reduce the dosage to the proper amount on our own. But a problem remained -- cost. Minocycline, despite being around many, many, years and long off patent, remained prohibitively expensive, or so we thought. Then reality set in. Minocycline, or more correctly, the brand name product, Minocin, was sold off to a dermatology company -- Triax. And the price more than tripled. So I called Triax today. I mentioned to the VP Marketing that there is a large market out there for Minocin in treating rheumatic diseases. Volk said he knows full well that market is there, but there is one small -- and for us extremely expensive -- snag. The package insert for Minocin only allows it to be recommended for acne. It cannot be labeled for rheumatic diseases without further studies and an NDA, a very expensive process, especially for a two-year old company focused on dermatological drugs. Therefore, they have no intention of pursuing it in the future. What does this mean for us? In short, we've been zapped. The price of " vanity " drugs knows no boundary of conscience nor willingness to pay. Our best line of defense against rheumatic diseases is permanently ensconced in the high-bucks world of makeup, glamour, falsies, implants, jewelry, fashion, mirrors and make-believe. The price for Minocin is not going down -- it will be going up -- as fast and as long as the market bears. These days $1.00-$1.25/pill is a good price. Get it anywhere you can. Very sad, indeed. Geoff Acts 2:39 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2007 Report Share Posted June 18, 2007 I attended the free screening of 's new movie, " Sicko. " I highly recommend it.Especially, after what I've just read below. This movie only touches the tip of the iceberg of what is wrong with our health care system. It is the gateway of knowing why America is sliding downhill so fast. There is much we can do. Other countries have it much easier. We can too, if we unite. Dolores Geoff <geoff@...> wrote: Ethel kindly posted a contact for Triax pharmaceuticals and I took the initiative to directly speak with Volk, their VP of Marketing. I'm afraid our issues remain unchanged... Some years ago it was difficult to find anyone willing to prescribe the tetracycline family for RA. The most effective drug found for curing RA was minocycline, specifically brand name Minocin. Unfortunately for all of us who suffer with these diseases, Dr. Brown's work at NIH was roundly disregarded as it flew in the face of the " confused body " model, which is extremely lucrative, despite its proven track record. We wallowed in the nether world of needing a known treatment and being unable to obtain it due to the marketing and protectionist legal maneuvering of our pharmaceutical-health care complex. The more we tried to get treatment, the more they advertised, litigated and legislated against us. Then came the Trentham study. Like Rodney Dangerfield, a " sort " of antibiotic program finally got some respect. It was not the one Brown developed and proved. It was far more dangerous, and less effective, but it had one saving grace. It " legitimized " using antibiotics for rheumatic diseases. All patients had to do was obtain one of those little golden slips of paper -- a Rx -- using a reasonable bribe called an office visit fee. With that in hand we were now able to obtain minocycline, and we could reduce the dosage to the proper amount on our own. But a problem remained -- cost. Minocycline, despite being around many, many, years and long off patent, remained prohibitively expensive, or so we thought. Then reality set in. Minocycline, or more correctly, the brand name product, Minocin, was sold off to a dermatology company -- Triax. And the price more than tripled. So I called Triax today. I mentioned to the VP Marketing that there is a large market out there for Minocin in treating rheumatic diseases. Volk said he knows full well that market is there, but there is one small -- and for us extremely expensive -- snag. The package insert for Minocin only allows it to be recommended for acne. It cannot be labeled for rheumatic diseases without further studies and an NDA, a very expensive process, especially for a two-year old company focused on dermatological drugs. Therefore, they have no intention of pursuing it in the future. What does this mean for us? In short, we've been zapped. The price of " vanity " drugs knows no boundary of conscience nor willingness to pay. Our best line of defense against rheumatic diseases is permanently ensconced in the high-bucks world of makeup, glamour, falsies, implants, jewelry, fashion, mirrors and make-believe. The price for Minocin is not going down -- it will be going up -- as fast and as long as the market bears. These days $1.00-$1.25/pill is a good price. Get it anywhere you can. Very sad, indeed. Geoff Acts 2:39 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2007 Report Share Posted June 19, 2007 Our local pharmacy price for Triax Minocin 100 mg is $1,000 for 100 capsules - a 1,000% increase from when I use to buy it. It's still available for uses other than dermatology (regardless of Triax' package insert) - providing you can afford it or have good insurance coverage. True, this price is highway robbery, but if you are taking 100 mg. M-W-F, that would cost $30 a week or $120 a month. If you take twice that dosage, the amount is $240 per month - still much cheaper than most car payments. If the generic works for you - great, but there have been any number of people in the group over the years that opted for the generic and were on it for months - in some cases a couple of years - with no results. Once they switched to Minocin, they started responding. Harold has created a site with information concerning generics other people have used effectively, and, I think, listing pharmacies in Canada that have good prices on Minocin. There are other countries that sell Minocin even cheaper than Canada and you don't need a prescription - but make sure you are dealing with a reliable source. Ethel rheumatic Re: Generic Mino > Ethel kindly posted a contact for Triax pharmaceuticals and I took the > initiative to directly speak with Volk, their VP of Marketing. I'm > afraid our issues remain unchanged... > > Some years ago it was difficult to find anyone willing to prescribe the > tetracycline family for RA. The most effective drug found for curing RA > was minocycline, specifically brand name Minocin. Unfortunately for all > of us who suffer with these diseases, Dr. Brown's work at NIH was roundly > disregarded as it flew in the face of the " confused body " model, which is > extremely lucrative, despite its proven track record. > > We wallowed in the nether world of needing a known treatment and being > unable to obtain it due to the marketing and protectionist legal > maneuvering of our pharmaceutical-health care complex. The more we tried > to get treatment, the more they advertised, litigated and legislated > against us. Then came the Trentham study. > > Like Rodney Dangerfield, a " sort " of antibiotic program finally got some > respect. It was not the one Brown developed and proved. It was far more > dangerous, and less effective, but it had one saving grace. It > " legitimized " using antibiotics for rheumatic diseases. > > All patients had to do was obtain one of those little golden slips of > paper -- a Rx -- using a reasonable bribe called an office visit fee. > With that in hand we were now able to obtain minocycline, and we could > reduce the dosage to the proper amount on our own. But a problem > remained -- cost. > > Minocycline, despite being around many, many, years and long off patent, > remained prohibitively expensive, or so we thought. Then reality set in. > Minocycline, or more correctly, the brand name product, Minocin, was sold > off to a dermatology company -- Triax. And the price more than tripled. > > So I called Triax today. I mentioned to the VP Marketing that there is a > large market out there for Minocin in treating rheumatic diseases. > > Volk said he knows full well that market is there, but there is one > small -- and for us extremely expensive -- snag. The package insert for > Minocin only allows it to be recommended for acne. It cannot be labeled > for rheumatic diseases without further studies and an NDA, a very > expensive process, especially for a two-year old company focused on > dermatological drugs. Therefore, they have no intention of pursuing it in > the future. > > What does this mean for us? In short, we've been zapped. > > The price of " vanity " drugs knows no boundary of conscience nor > willingness to pay. Our best line of defense against rheumatic diseases > is permanently ensconced in the high-bucks world of makeup, glamour, > falsies, implants, jewelry, fashion, mirrors and make-believe. The price > for Minocin is not going down -- it will be going up -- as fast and as > long as the market bears. > > These days $1.00-$1.25/pill is a good price. Get it anywhere you can. > > Very sad, indeed. > > Geoff > > Acts 2:39 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2007 Report Share Posted June 19, 2007 Hi emluv23! Geoff here. You wrote: " I'm confused about Mr. Volk's assertion that Minocin cannot be labeled for rheumatic use. (snip) the package insert clearly says " this medication is also FDA approved for rheumatoid arthritis. " " This is probably a waste of 41¢ and an envelope but... If you still have that package insert, or get another one, maybe it would be worth highlighting that text and mailing to Volk at Triax. If you go to www.triax.com and check out their leadership you'll see the names of the head honchos, and an address. Who knows, maybe a tiny bit of groundswell would open the gates. OTH... as long as the drug remains " acne-only " they protect their dermatology $$ by keeping it off the market in a less expensive package. I doubt they'd be game to cannibalize their dermatology market in favor the rheumatic one. Just my 2¢ Geoff Acts 2:39 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2007 Report Share Posted June 19, 2007 Ethel, In the future, please do not refer to " the generic, " because there is not a single generic. Instead, a number of companies manufacture generic minocycline using different processes, and these generics will be different. I have tried to report on the efficacity of generics by manufacturer, but I need more inputs from our Group. Please see www.tmgp.com/minocin.htm for reporting to date. Sincerely, Harald At 10:37 AM 6/19/2007, you wrote: >... If the generic works for you - great, but there have been any >number of people in the group over the years that opted for the >generic and were on it for months - in some cases a couple of years >- with no results. Once they switched to Minocin, they started responding. > >Harold has created a site with information concerning generics other >people have used effectively, and, I think, listing pharmacies in >Canada that have good prices on Minocin. There are other countries >that sell Minocin even cheaper than Canada and you don't need a >prescription - but make sure you are dealing with a reliable source... " > >Ethel Quote Link to comment Share on other sites More sharing options...
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