Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 You're gonna need to talk to Tricia about this....not my area. Hey, I could tell you if you're crazy though. BarbaraDonna wrote: > Wish we could see it. Your doc mentioned the effect on the muscles with RSD. The docs where Tricia and I go are doing research on the prevalence of myositis occurring with RSD. I think Tricia has said to me that they've found that 40% of the clinic's RSD patients have it. Check with her. I've not seen anyone else here mention it and it makes me wonder if maybe some of the docs out there are unaware of it as a complication.> Barbara. Im interested in learning more about myositis. I'm curious if something like that is happening with me. As much as I keep active and follow my OT/PT exercises it feels like Im losing strength instead of gaining or even maintaining strength. My muscles are weak from the slightests exercise and this has never been a problem in the past. Hell folding clothes and cleaning out the fridge make my arms weak. Is this what myositis means or is it just another symptom others deal with?HugsDonna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 > You're gonna need to talk to Tricia about this....not my area. Hey, I could tell you if you're crazy though. Barbara > LOL!!! I dont need confirmation on that Barbara! I KNOW Im crazy! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 Hey Gang, I think we are all pretty nuts just to survive RSD or whatever initials the docs want to use for us. I bet they talk about us even worse than we do them. I hope one day to be there and overhear. I will feel their hears full of the truth and even though I am very angry today I would not wish this on any of them. I join all the crazy RSD special club members and love you all. Love, Deb from Louisiana Donna wrote: > You're gonna need to talk to Tricia about this....not my area. Hey, I could tell you if you're crazy though. Barbara> LOL!!!I dont need confirmation on that Barbara! I KNOW Im crazy!Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 > > Hey Gang, I think we are all pretty nuts just to survive RSD or whatever initials the docs want to use for us. I bet they talk about us even worse than we do them. Im pretty sure that my dr has talked behind my back many time, especially the ones who shake their heads at me and say " I simply dont know " or the ones that tell me to just " deal with it " . They are who drive me craziest! I join all the crazy RSD special club members and love you all. > Can we create a group filled with self professed crazys???? Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 I join all the crazy RSD special club members and love you all.> Can we create a group filled with self professed crazys???? :)HugsDonnaDonna, I thought that this is what the group is for LOL. I am still recovering from the great Dr O's tortures or excuse me tests. I went to my regular doctor yesterday and he asked me how were my tests and Dr. O's. Well needless to say I told him all the pain and suffering I had to endure, he laughed and said he has heard some of his tests are rather interesting. Then I told him that he wanted me to go to a special MRI in land close to DC. I also told him that after the MRI he would then send me somewhere else for a procedure that might cure, make me better or nothing at all. He said the brain MRI's are experimental but when I told him about the procedure he said He wants you to do what! Anyway he said to me that he can learn a lot from his tests, but about 1/2 of his reports he throws away. Anyway I hope everyone has a good day. Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 > > Donna, > I thought that this is what the group is for LOL. No place I'd rather be if I'm crazy. At least Im not alone He said the brain MRI's are experimental but when I told him about the procedure he said He wants you to do what! Lin, I've been reading the posts about this MRI he wants to do and it sounds way to experimental for me. Anyway he can give you some documented information on this? Can you contact the facility thats supposed to be doing it and speak to a clinician there? Gentle Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 I'm with you. We are definitely being talked about by our doctors and I bet they don't talk as nice as we do. HA!HA! PS I am having blood work Thursday to determine what else is going on with my body. I am too week, sleep too much, etc. I don't what they are looking for but maybe we all have it. Maybe it's contagious via computers. Deb from Louisiana Donna wrote: > > Hey Gang, I think we are all pretty nuts just to survive RSD or whatever initials the docs want to use for us. I bet they talk about us even worse than we do them.Im pretty sure that my dr has talked behind my back many time, especially the ones who shake their heads at me and say "I simply dont know" or the ones that tell me to just "deal with it". They are who drive me craziest!I join all the crazy RSD special club members and love you all.> Can we create a group filled with self professed crazys???? :)HugsDonna Quote Link to comment Share on other sites More sharing options...
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