Guest guest Posted July 20, 2004 Report Share Posted July 20, 2004 Thanks Jo, I just slept most of the day away. Tonight feel pretty good. Thought if I stayed off the feet the flare would settle down. Here's hoping. There was this young I call stupid resident in the hospital that wanted to test my sensation and movement in my feet. I told him not to touch but he did any way saying he wanted to do 1 thing. So like a fool I let him. To say the least no sleep that night and in the morning I just cried couldn't control it. I was given MS via IV which took the edge off. When the stupid doc made rounds I didn't really lay into him but let him know how displeased I was with him. His reaction was I'm sorry. So now I think I'm on the mend. I still need alot of rest but I'm getting there. I'm going through a grieveing process according to my counselor. I just think about how I was on the ventilator and couldn't talk but I knew what was going on. The things I heard scared me. I wanted to cry but couldn't. I still feel Like I need a good one. But i also know that perhaps tomorrow will be a better one, maybe with a little less pain. I so want to work on my new quilt. It's proving to be a little more brain teasing than I thought. Heres wishing you all some pain free hours. and some silence within. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2004 Report Share Posted July 21, 2004 Laurie , Im so sorry to hear youve had such a horrible time. Please know you are never alone.We care about you and your well being. Hugs dear friend and get well soon Jeannie"lroepke@..." wrote: Thanks Jo,I just slept most of the day away. Tonight feel pretty good. Thought if I stayed off the feet the flare would settle down. Here's hoping. There was this young I call stupid resident in the hospital that wanted to test my sensation and movement in my feet. I told him not to touch but he did any way saying he wanted to do 1 thing. So like a fool I let him. To say the least no sleep that night and in the morning I just cried couldn't control it. I was given MS via IV which took the edge off. When the stupid doc made rounds I didn't really lay into him but let him know how displeased I was with him. His reaction was I'm sorry.So now I think I'm on the mend. I still need alot of rest but I'm getting there. I'm going through a grieveing process according to my counselor. I just think about how I was on the ventilator and couldn't talk but I knew what was going on. The things I heard scared me. I wanted to cry but couldn't. I still feel Like I need a good one. But i also know that perhaps tomorrow will be a better one, maybe with a little less pain. I so want to work on my new quilt. It's proving to be a little more brain teasing than I thought.Heres wishing you all some pain free hours. and some silence within.Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2004 Report Share Posted July 23, 2004 Laurie, do not know if you remember me, it is s Momma, JoAnn......I wanted to write to you about quilting. Have you done that for along time, prior to rsd? Do you hand stitch it all or use the sewing machine to relieve your pain from trying to do things as done years ago. I think this would be such a wonderful talent to be able to do. Who taught you to do this? Have you sold alot of your quilts? They can sure be very expensive and some are rather heavy and do not cost as much. I hope for your sake that your able to do some quilting even if just 15 minutes at a time. Maybe you could just set a timer for what ever amount of time think you could handle it and not end of in flare and then stop and when feel better try it again? Not sure how that would do with your pain but one idea had. Hope your able to do it and perhaps give some for your family and friends. And perhaps sell some for money to help pay for all the meds and your on? Would be nice way to earn extra money and at same time do something you like to do anyway. Take care and so glad to have you back. Many hugs s Momma JoAnn Re: comming back,JO > I so want to work on my new quilt. It's proving to be a little more brain teasing than I thought. > Heres wishing you all some pain free hours. and some silence within. > Laurie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2004 Report Share Posted July 25, 2004 Jo, Wanted to reply about quilting. I machiene sew the top and when it's all put together I hand quilt it. Takes about 2 years to make one. Not very profitable. I just give them to friends and family. I did take time out to do one formyself. I wish I had a machiene that uses the knee to control it. It's kinda hard when I can't feel the presser foot or my feet hurt to much. It helps keep my mind off the pain when it's real bad. Right now I'm cutting out the pieces. There's so many different things to do so it depends on whats hurting. What I can do that day. Flare is finally settling down. I got socks on today!!! and can walk some in the apt. What a joy. Do you know about the drug oxicodone? Thats what the doc gave me this time. Only 3 days worth thou. I think he was afraid I would take the whole bottle. I wasn't quite there yet but the thoughts cross my mind. If you know what I mean. I know suicide is not an option. At least today is going along steady. Take care and yes I do remember you. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2004 Report Share Posted July 26, 2004 Laurie just want to jump in here about the med your asking about. I was on that for a year and for me was not good med as it has a strong way of making your mind go blank or numb. I guess it helped with pain somewhat but not enough for me. Instead I slept alot and if someone called would mumble my words, would forget even talked to someone, was an awful feeling. Now you know that just because happened to me does not mean would do same to you. I take the duragesic patches now and they do only fair on pain but at least help my mind stay clearer. Alot clearer in fact but still not clear like before on all these meds for so long. Are you thinking of taking the Oxycodone? If so how strong would it be? I hope if you take it works great for you. Just for me is not the med to take at all. Sorry takes so long to do your quilts as really do like to have one done by hand. My sister has lots of them as she went to many garage sales and big sales with many other people in booths selling things. Well enough of me. Take care both of you. s Momma JoAnn Re: comming back,JO > > Jo, > Wanted to reply about quilting. I machiene sew the top and when it's all put together I hand quilt it. Takes about 2 years to make one. Not very profitable. I just give them to friends and family. I did take time out to do one formyself. I wish I had a machiene that uses the knee to control it. It's kinda hard when I can't feel the presser foot or my feet hurt to much. It helps keep my mind off the pain when it's real bad. Right now I'm cutting out the pieces. There's so many different things to do so it depends on whats hurting. What I can do that day. > Flare is finally settling down. I got socks on today!!! and can walk some in the apt. What a joy. Do you know about the drug oxicodone? Thats what the doc gave me this time. Only 3 days worth thou. I think he was afraid I would take the whole bottle. I wasn't quite there yet but the thoughts cross my mind. If you know what I mean. I know suicide is not an option. At least today is going along steady. > Take care and yes I do remember you. > Laurie > > > > > Quote Link to comment Share on other sites More sharing options...
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