Re: looking for some one to talk to ( Kenny )

[Guest guest]

Hello Kenny, my name is Kim

I don't live any where near AR. but we can always chat and send e-mails if you would like. If you have anyone of the instant messengers you can put me on your list it is kim75558 on any one of them...Hope to hear from you soon.

Take care

Kim

-- looking for some one to talk to

Hi, my name is kenny, and I live in Mesa, AZ. I am looking for some one in my area to talk to. Mesa is east of phoenix. I have RSD,and am having a hard time with it, dealing with docs,lawyers, ssi, w/c, and the every day pain, is driving me MAD. just need some one to talk to. thanks Kenny

[Guest guest]

Kenny,

Welcome to the group. I don't mean to "butt in" but it sounds like you and your wife could use some help in trying to deal with all of this...

Maybe a psychologist could help, or some type of marriage counselor. RSD is a major change in life, and you need to find out how to deal with that.

I am out on the East Coast, and am not sure if any of our members are in AZ.

We hold a chat daily on aol's IM. You can download that for free at aol.com

If you do that and would like to chat, send your new IM screen name to felicet867@... so that she can add you to her buddy list and invite you into chats if she sees you online during chat time (10 am weekdays - Eastern time - so early for you, 8 am).

Again, welcome,

Jo

[Guest guest]

Hi,KIM

Thanks for writing I live in AZ, not AR, But that’s Ok easy mistake, I am on MSN, and I am not sure how to use IM's. so I guess this will have to do, I did not feel to good earlier, so I returning this at 2:44 in the morning, had some bad words with the wife, and don't feel like sleeping now. this DAMM RSD is tearing us both up. Iam in pain all the time, and can't do all the things I used to do, and she is having a hard time understanding why I act the way I do. well nothing I can do about it, but hang in there.

talk later, KENNY

looking for some one to talk to

Hi, my name is kenny, and I live in Mesa, AZ. I am looking for some one in my area to talk to. Mesa is east of phoenix. I have RSD,and am having a hard time with it, dealing with docs,lawyers, ssi, w/c, and the every day pain, is driving me MAD. just need some one to talk to. thanks Kenny

[Guest guest]

had some bad words with the wife, and don't feel like sleeping now.

this DAMM RSD is tearing us both up. Iam in pain all the time, and

can't do all the things I used to do, and she is having a hard time

understanding why I act the way I do. well nothing I can do about it,

but hang in there.

>

Kenny

I understand the whole issue with spouses not understanding this as I

am dealing with my husband who for all his desire to understand

simply cant. He knows me as someone who worked, maintained a home,

was active and for the most part painfree..now I go to PT/OT alot,

take meds and he sees the swelling and how it hurts me but cant

understand why they cant " fix " it and for all I explain he doesnt

understand that it cant be " fixed " and hes worried about finances,

our mortgage and though I understand Im helpless to do anything else.

I spend hours per week with w/c people, my casemanager, UR and drs

offices...theres nothing I can do at this point but wait it out.

Maybe your wife would benefit from a spouses support group. I know

that someone on this board knows of a support group but for the life

of me I cant remember who. In any case, try not to let the stress get

to you as it will only make you feel worse.

Take care Kenny

Donna

[Guest guest]

Kenny,

Nation's Daughter has a support group for spouses.......

I can't remember the dang link for it though! So, hopefully, she'll be able to give it to you.

(I'm sending this to her also.....)

Maybe it would help if your wife was able to talk to other spouses that are dealing with RSD thru their spouses......

My husband tries to understand.......but, there are days that all we do is fight. But, then after a while, he realizes that what he's said/done was uncalled for, because there is nothing I can do about what he's complaining about, and he does apologize for it.

I have been dealing with this for almost 4 years now.........had 2 daughters before I got injured, and had my son 17 months ago. Believe me, RSD and Pregnancy is NOT a fun thing!

But, neither is dealing with 2 daughters, both with ADHD, and a baby all at the same time. My oldest is 9 (going on 19), and refuses to do much of anything right now. She's going to be starting on some kind of ADHD medicine here in a week or so......so, hopefully, that will help us out in getting her mood swings and stuff straightened out, and hopefully, she'll be a bit more helpful to my husband in keeping the house picked up instead of throwing a major fit every time she is asked.......

So, we all have our problems, whether it's with spouses understanding, children, parents, friends, or whoever is in our lives.

It's really hard for them to understand this disease, especially when it's almost impossible for us or the doctors to understand it.

Hang in there, once she starts to accept the fact that you are in severe pain, and what you can do now is very limited, it will get better.

Tonia

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