EDS...Cold hands and Lower than normal body temperature.

[Guest guest]

Hi all,

I might have a slight touch of Raynaud's. My hands and feet are sometimes

cold. I like to sleep under a quilt ALWAYS since I alternate from feeling hot

or cold...sometimes.

QUESTION: My normal temperature is typically below 98.6 degrees. I am normal

at 97.0 or so, This means when I am at 99.0 degrees I am miserable. So, when

it comes to body heat... " Where IS everybody " :-D.

Is there any of you who have low body temperature?

Caro

[Guest guest]

My temperature is always in the 96 & 97 degree F range. It is hard to

get the doctor to understand that 99 is a temperature for me. I do

believe that I have Raynaud's also. I notice it alot now since I've been

home after having my knee surgery. I think I was too busy at work before

to notice.

Marla

HEDS

CA

CDillardda@... wrote:

>Hi all,

>

>I might have a slight touch of Raynaud's. My hands and feet are sometimes

>cold. I like to sleep under a quilt ALWAYS since I alternate from feeling hot

>or cold...sometimes.

>

>QUESTION: My normal temperature is typically below 98.6 degrees. I am normal

>at 97.0 or so, This means when I am at 99.0 degrees I am miserable. So, when

>it comes to body heat... " Where IS everybody " :-D.

>

>Is there any of you who have low body temperature?

>

>Caro

>

>

>

[Guest guest]

My kids and I also have lower than usual body temperatures. While most of

the world find 37 C to be a normal temp for us 35 C is normal. The other

morning woke up not feeling well. His temp was 32 C. I know that

the thermometer was working because I tried it on me after. started

his day with a nice warm bath.

It is often difficult to get a doctor to listen when I issist that my child

is sick when his temp is 37 C.

I know that my blood pressure and heart rate decrease a lot when I lie down.

My hands and feet are often cold. I have found that since having the boys I

don't feel cold all the time like I used to.

[Guest guest]

I run a constant 96.8 degree body temperature, sometimes a 'tad' lower when

I first get up in the morning/afternoon/ or evening.....lol.

I think a good number of EDsers have discovered this. My GP several years

ago said I was absolutely mistaken, until I took a digital thermometer with

me to my next appointment and showed him. He said, " Hmmm, interesting! "

J:O)hn

[Guest guest]

In a message dated 5/14/03 7:46:05 PM Eastern Daylight Time,

CDillardda@... writes:

<< Is there any of you who have low body temperature?

>>

Normal for me is between 96-97 F.........I have actually registered a temp of

95.6......I have no idea, and the thermometer was not broke.

Hugs,

Sue G.

[Guest guest]

In a message dated 5/15/2003 6:06:45 AM Pacific Daylight Time,

smginleyrn@... writes:

> <<Is there any of you who have low body temperature?

> >>

>

I am about 96.8 normally.

98.6 is sick and 99.1 is Hospital time!

Always been that way.

Debbi

[Guest guest]

Re: EDS...Cold hands and Lower than normal body temperature.

> In a message dated 5/14/03 7:46:05 PM Eastern Daylight Time,

> CDillardda@... writes:

>

> << Is there any of you who have low body temperature?

> >>

>

> Normal for me is between 96-97 F.........I have actually registered a temp

of

> 95.6......I have no idea, and the thermometer was not broke.

>

> Hugs,

> Sue G.

The last time I was sick, my body temp was really low - about 95.7 or so!

But my normal body temp is 96.8

[Guest guest]

I am the opposite and seem to run at about 37.8 - 38C, so am a little

HOT but my skin is cold and I have both Raynauds Disease (diagnosed

aged 12) and RSD (since 1993,But then I am also on Adalat which tends

to make you HOT.

Sharon

> In a message dated 5/14/03 7:46:05 PM Eastern Daylight Time,

> CDillardda@a... writes:

>

> << Is there any of you who have low body temperature?

> >>

>

> Normal for me is between 96-97 F.........I have actually registered

a temp of

> 95.6......I have no idea, and the thermometer was not broke.

>

> Hugs,

> Sue G.