Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 I have been on/off zithro for 6yrs. I never had prolems with sleepiness. Rigth now I am on zithro/plaq. sae <irishdrought2003@...> wrote: --The LLD I went to had me do different antibioics and if one worked stay with it but if a herx started to stop and try again and then if the herx kept going to go to the next antibiotic The zithromax I took just it not with mepron and for me I would get very sleepy. This would be a couple of hours later. It was hard to connect it with the zithromax because sleepiness is one of my worst sympotms. I started taking it at night and then during the day after around noon the sleepiness would hit again for the rest of the day. I went back to see the LLD for my second appt about a month ago and he had me stop it and gave me different medications for coinfections. So after I stopped a couple of weeks later the sleepiness did get somse better. I take a stimulant to help me stay awake and it helps me but when I was on the zithromax it didn't do much good. Also they told me that zithromax stays in your system for something like 10 days to 2 weeks. Sandy- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 I have R.A. and have been taking mino for a month now i find it to be very expensive and would like to know if others from the group are using a gerneric Zithro or Doxy for their therapy. Thank-You Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 Rose, I used Zithro form my PM. I do not have RA but the Zithro worked well for the PM. I used it because it is easier for my system to tolerate. Only had to take 250 mgs three days per week then taper down from there over a three year period. I have been off all treatment for the past 4 months and (knock on wood)still doing very well. Hope that this helps, Robbin --- craig bjerke <alco@...> wrote: > I have R.A. and have been taking mino for a month > now i find it to be very expensive and would like to > know if others from the group are using a gerneric > Zithro or Doxy for their therapy. > > Thank-You Rose > > > [Non-text portions of this message have been > removed] > > Robbin __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 Rose, I took Minocycline for about 1 year, after I was diagnosed with RA. I developed a sensitivity to it so my doctor put me on Zithromax, at 250mgs 3x/week. I've been on that dose for about 6 years now, and have been in remission for about 4 years. I've never had any nasty side effects from it, and I plan on taking it forever, if I must, in order to stay in remission. If I can answer any more questions for you, please feel free to email me at: willson@... Ana in Alaska rheumatic Zithro I have R.A. and have been taking mino for a month now i find it to be very expensive and would like to know if others from the group are using a gerneric Zithro or Doxy for their therapy. Thank-You Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 Ana, is the azithromyacin the generic for Zithromax? are you taking that or name? Thanks, Debbie rheumatic Zithro I have R.A. and have been taking mino for a month now i find it to be very expensive and would like to know if others from the group are using a gerneric Zithro or Doxy for their therapy. Thank-You Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 Debbie, I'm not sure if it is the generic, but that's what I take and have been taking for years now. No side effects for me, but I do take probiotics daily. Ana --- DEBBIE GIBSON <Debbullwinkle@...> wrote: > Ana, is the azithromyacin the generic for Zithromax? > are you taking that or name? > Thanks, Debbie > rheumatic Zithro > > I have R.A. and have been taking mino for a month > now i find it to be very expensive and would like to > know if others from the group are using a gerneric > Zithro or Doxy for their therapy. > Thank-You Rose > > [Non-text portions of this message have been > removed] > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2007 Report Share Posted November 1, 2007 i was told by a patient of dr f that it is very important to take brand name zith not generic. he said the generic often doesn't work. i am taking brand and starting to see results. monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2007 Report Share Posted November 5, 2007 I've run into similar problems with certain generics of Minocyn and Diflucan not working. Unfortunately my insurance won't pay for brand name when generics exist. I have found one of the generics for Zithro 250mg works well. I don't know the brand name but its a white pill instead of the usual red/pinkish pills. However I did recently take red 500mg generic Zithro pills that did work. Didn't pay attention to the name other than its in a green and white package. > > i was told by a patient of dr f that it is very important to take brand > name zith not generic. he said the generic often doesn't work. i am > taking brand and starting to see results. > > monique > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2007 Report Share Posted November 5, 2007 , I forgot to add I'll find out the generic manufacturer's name for the Zithro that works. My dr just switched me to Zithro for two months. Because of the Lyme disease I am doing the Schardt protocol which alternates 50 days of Diflucan then 50 days of antibiotics. Later this week I will be picking up the Zithro and will find out the manufacturer for you. > > > > i was told by a patient of dr f that it is very important to take > brand > > name zith not generic. he said the generic often doesn't work. i am > > taking brand and starting to see results. > > > > monique > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2007 Report Share Posted November 5, 2007 , I thought because of the dosing Minocin has to be taken 3 times a day. However you can take both Minocin and Zithromax at the same time because that is what my Lyme doctor had me taking for months. And actually I was taking Flagyl 3 times a day along with it! Zithro has a long half life so you can split the dosage up if its 500mg and take 250mg twice a day. Or you can take the whole dose of Zithro in the AM or PM which ever works best for you. Just remember to separate your Zithro dose by at least 4 hours from calcium, magnesium and iron or you will bind up the Zithro and make it not work. That goes for supplements as well as food containing those minerals. > > > Rose, > > I took Minocycline for about 1 year, after I was diagnosed with RA. > > I developed a sensitivity to it so my doctor put me on Zithromax, > > at 250mgs 3x/week. I've been on that dose for about 6 years now, > > and have been in remission for about 4 years. I've never had any > > nasty side effects from it, and I plan on taking it forever, if I > > must, in order to stay in remission. If I can answer any more > > questions for you, please feel free to email me at: > > willson@... > > Ana in Alaska > > > > rheumatic Zithro > > > > I have R.A. and have been taking mino for a month now i find it to > > be very expensive and would like to know if others from the group > > are using a gerneric Zithro or Doxy for their therapy. > > Thank-You Rose > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2007 Report Share Posted November 5, 2007 Pain while taking Zithro in the first 1-4 weeks suggests Lyme infection especially if the pain is in the knees. Lyme spirochetes are very susceptible to Zithro. Did the dr ever suggest the RA is Lyme related? One way of dealing with the herxes believe it or not is to take a low dose of Benedryl. Preferably the children's dye free liquid Benedryl. This is according to my Lyme doc. It helped me. His alternate suggest was olive oil and lemon mixed in water though I could never bring myself to drink that. > > the 1st 5 weeks on zith i had the worst pain i have ever had in 10 years > with RA. but now am doing better. i think it was herxing so i just took > pain killers and worked thru it. it's worth it. > > monique > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2007 Report Share Posted November 6, 2007 , from an oldie, I can assure you many of us cut our teeth early on in these diseases by drinking the olive oil, lemon and water drink....but we also added GARLIC to the mix. I must have done this daily for three years. It really isn't bad once you get used to it and time it so that you don't smell like garlic in public. ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2007 Report Share Posted November 6, 2007 hi my insurance would not pay for generic UNTIL i got my doc to write only brand name no substitutions and then they did cover it. i have met ppl who when they got generic the ap no longer worked so don't want to take chances if i can help it. monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2007 Report Share Posted November 6, 2007 tell me more re the protocol angela. wow 50 days of diflucan - only once or continuously? that's hard on liver no? how do you feel when you do it? thanks monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 I did not say I don't NEED it any more but getting well has a lot of hills and trails to go down and I have been down a bunch of them. Our bodies are just eaten up with YEAST. I still take this but not like I used to. Why? Because I am in remission and am SOOOO careful to keep my yeast at bay with my DIET and the probiotics. I do cleanses every four to six months. I am very, very careful as this disease has my full attention and respect. I found out that yeast was a grand player in this and I have worked hard to keep it down. This is one way to help jumpstart your body naturally and to learn to do every possible thing that you can to get well. For several years there, I have one son who would walk into the house and complain that he could tell I had taken my drink that day as I reeked. He was right. And then on another note, nobody in my family will take my sinus rinse.......until they are really sick. Then, they will. Hope this helps. ps on an interesting note, my husband who has elected to be treated the conventional route for cancer, has a huge yeast problem. The first thing they did was give him his new diet instructions. I already knew this diet. It is probably still here at the support site. They want his body as alkaline as I can keep it for him. Perhaps, not in my lifetime, but my children's, we will get there in making this connection public. ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 how did the olive oil lemon garlic drink help you sandra? why don't you need it anymore? thanks monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 , Actually 50 days on diflucan is no big deal if you do it right. thousands of people are doing the protocol. As part of the protocol Dr. Schardt says to stop taking anything that also uses the CYP3A4 liver pathway. So I had to stop Diltizem while on the Diflucan. The interesting thing is my liver enzymes were already elevated and once I did the first 50 days of Diflucan my liver enzymes all went back to normal! Which one dr suggested that meant the Lyme was in my liver and the Diflucan had eradicated those spirochetes. I went back on Diltizem to see if I could handle it with the Diflucan and it only elevated the enzymes slightly. I have more energy than I have had in ages and feel better on Diflucan than I did previously when I was solely on antibiotics for the Lyme. Here's an interview with Dr. Shardt to learn more about the protocol. http://www.immunesupport.com/library/showarticle.cfm/id/6431 He also has his own website in German if anyone would like that URL. I run it through Babelfish to translate it. > > tell me more re the protocol angela. wow 50 days of diflucan - only once > or continuously? that's hard on liver no? how do you feel when you do it? > > thanks > monique > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 , I think because I grew up in the South the idea of consuming olive oil was entirely alien to me. And the suggestion of drinking it in water repulsive. lol Sorry I can't try the Garlic suggestion because I am very allergic to Garlic. If I consume Garlic I have trouble breathing. It was suggested the reason is the sulfur it contains, but really no idea. I just started getting weird food reactions in the past several years after contracting Lyme. But I was also struck in the stomach by lightning so I sometimes think that might have caused the food reactions too. Also have IBS now and didn't used to. > > , from an oldie, I can assure you many of us cut our teeth early on > in these diseases by drinking the olive oil, lemon and water drink....but we > also added GARLIC to the mix. I must have done this daily for three years. > It really isn't bad once you get used to it and time it so that you don't > smell like garlic in public. > > > > ************************************** See what's new at http://www.aol.com > > > Quote Link to comment Share on other sites More sharing options...
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