Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 Today my doctor gave me some samples of Lyrica. He says if it works for me, he will fight the insurance for me to get it. He said he's sure my psych doctor would help as well, as it is easier at times for her to get 'name brand' drugs for her patients. She already got several of them, though the only one I'm still taking is Lamictal. I will have to wait to talk to her on Monday, by the time I got home this afternoon it was too late. I will have to begin titering down on the Lamictal before starting the Lyrica anyway. He also switched me to oxyconton with the 5 mg oxycodone for break-through pain. He said that sometimes methadone IS hard on certain people, and if it were making me uncomfortable, I shouldn't take it. Of course I'm hoping to get onto the Lyrica in a week or so, and keeping my fingers crossed that it works better than the opiates do. He said I can keep taking them as long as I need, even with the Lyrica. So, when I start, I start at 50 mgs twice a day. That sounds like a plan. He said if I tolerate that, then I would take them 3 times a day, etc....Of course, there's always the off-chance that my psych doctor won't want me to change meds, but she's usually very reasonable about things. I am SO praying that they work for me. But, I do tend to have every side-effect known for most meds. I went through all of the anti-psychotics before ending up on the Lamictal, which is off-label for treating bi-polar. But, I have zero problems with it. Since Lyrica is also an epilepsy drug, maybe I'll be OK with that one too. I do know if it works and we can't get my insurance to cover it, I will be even more depressed. There is no way at all I can afford it if I have to pay full price for it. I could give up a few things, but I still couldn't afford to pay more than $50 a month. As strange as it seems, I can't wait to turn 65, as I will then get more each month. Plus, I have been promised that I can keep my state insurance rather than having to switch to Medicare. I hope they know what they're talking about. It's supposed to be one of the 'benefits' of allowing myself to be classified as SMI. Well, it's been a long day on top of no sleep. I did my grocery shopping while waiting for my scrip to be filled. I use the Osco pharmacy in Albertson's, so I can always 'kill two birds.... " I am going to take a nap. Oh, I lost nearly 8 pounds since this time last month. I was down 3 pounds the month before that. It's all because of that darned flare, I was in too much pain to cook or eat. Even now I'm not hungry, but probably cos I'm so tired. I bought some 'homemade' broccoli soup at Alberton's, it's one of my faves. All I would have to do is nuke it, but it's not even tempting me right now. I also bought a pint of Haagan Daazs coffee ice cream, even that's not doing it for me yet. I'm sure I will sleep for a few hours and wake up starving. I hope. Sorry about the length of this post. I'm just excited about the Lyrica, and brain-dead from fatigue, so I've just been rambling on. Catch you all later. I will have to finish reading posts later too. Peace and Love Caroline ____________________________________________________________ FREE 3D EARTH SCREENSAVER - Watch the Earth right on your desktop! Check it out at http://www.crawler.com/earth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 Oh Caroline, I am so happy for you. It sounds like you have a doctor that really cares and that is so rare in our case. I wish I could go see her, since I can't get any pain meds. I hope the Lyrica works for you too. This is good news and certainly worth going out of the house today. Yea, one for the good guys. Marti Caroline Witte wrote: Today my doctor gave me some samples of Lyrica. He says if it works for me, he will fight the insurance for me to get it. He said he's sure my psych doctor would help as well, as it is easier at times for her to get 'name brand' drugs for her patients. She already got several of them, though the only one I'm still taking is Lamictal. I will have to wait to talk to her on Monday, by the time I got home this afternoon it was too late. I will have to begin titering down on the Lamictal before starting the Lyrica anyway. He also switched me to oxyconton with the 5 mg oxycodone for break-through pain. He said that sometimes methadone IS hard on certain people, and if it were making me uncomfortable, I shouldn't take it. Of course I'm hoping to get onto the Lyrica in a week or so, and keeping my fingers crossed that it works better than the opiates do. He said I can keep taking them as long as I need, even with the Lyrica. So, when I start, I start at 50 mgs twice a day. That sounds like a plan. He said if I tolerate that, then I would take them 3 times a day, etc....Of course, there's always the off-chance that my psych doctor won't want me to change meds, but she's usually very reasonable about things. I am SO praying that they work for me. But, I do tend to have every side-effect known for most meds. I went through all of the anti-psychotics before ending up on the Lamictal, which is off-label for treating bi-polar. But, I have zero problems with it. Since Lyrica is also an epilepsy drug, maybe I'll be OK with that one too. I do know if it works and we can't get my insurance to cover it, I will be even more depressed. There is no way at all I can afford it if I have to pay full price for it. I could give up a few things, but I still couldn't afford to pay more than $50 a month. As strange as it seems, I can't wait to turn 65, as I will then get more each month. Plus, I have been promised that I can keep my state insurance rather than having to switch to Medicare. I hope they know what they're talking about. It's supposed to be one of the 'benefits' of allowing myself to be classified as SMI. Well, it's been a long day on top of no sleep. I did my grocery shopping while waiting for my scrip to be filled. I use the Osco pharmacy in Albertson's, so I can always 'kill two birds.... " I am going to take a nap. Oh, I lost nearly 8 pounds since this time last month. I was down 3 pounds the month before that. It's all because of that darned flare, I was in too much pain to cook or eat. Even now I'm not hungry, but probably cos I'm so tired. I bought some 'homemade' broccoli soup at Alberton's, it's one of my faves. All I would have to do is nuke it, but it's not even tempting me right now. I also bought a pint of Haagan Daazs coffee ice cream, even that's not doing it for me yet. I'm sure I will sleep for a few hours and wake up starving. I hope. Sorry about the length of this post. I'm just excited about the Lyrica, and brain-dead from fatigue, so I've just been rambling on. Catch you all later. I will have to finish reading posts later too. Peace and Love Caroline __________________________________________________________ FREE 3D EARTH SCREENSAVER - Watch the Earth right on your desktop! Check it out at http://www.crawler.com/earth --------------------------------- Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 Wish you the best Caroline. I sure have heard lots of good things about Lyrica here. Love, Debra V. Caroline Witte wrote: Today my doctor gave me some samples of Lyrica. He says if it works for me, he will fight the insurance for me to get it. He said he's sure my psych doctor would help as well, as it is easier at times for her to get 'name brand' drugs for her patients. She already got several of them, though the only one I'm still taking is Lamictal. I will have to wait to talk to her on Monday, by the time I got home this afternoon it was too late. I will have to begin titering down on the Lamictal before starting the Lyrica anyway. He also switched me to oxyconton with the 5 mg oxycodone for break-through pain. He said that sometimes methadone IS hard on certain people, and if it were making me uncomfortable, I shouldn't take it. Of course I'm hoping to get onto the Lyrica in a week or so, and keeping my fingers crossed that it works better than the opiates do. He said I can keep taking them as long as I need, even with the Lyrica. So, when I start, I start at 50 mgs twice a day. That sounds like a plan. He said if I tolerate that, then I would take them 3 times a day, etc....Of course, there's always the off-chance that my psych doctor won't want me to change meds, but she's usually very reasonable about things. I am SO praying that they work for me. But, I do tend to have every side-effect known for most meds. I went through all of the anti-psychotics before ending up on the Lamictal, which is off-label for treating bi-polar. But, I have zero problems with it. Since Lyrica is also an epilepsy drug, maybe I'll be OK with that one too. I do know if it works and we can't get my insurance to cover it, I will be even more depressed. There is no way at all I can afford it if I have to pay full price for it. I could give up a few things, but I still couldn't afford to pay more than $50 a month. As strange as it seems, I can't wait to turn 65, as I will then get more each month. Plus, I have been promised that I can keep my state insurance rather than having to switch to Medicare. I hope they know what they're talking about. It's supposed to be one of the 'benefits' of allowing myself to be classified as SMI. Well, it's been a long day on top of no sleep. I did my grocery shopping while waiting for my scrip to be filled. I use the Osco pharmacy in Albertson's, so I can always 'kill two birds.... " I am going to take a nap. Oh, I lost nearly 8 pounds since this time last month. I was down 3 pounds the month before that. It's all because of that darned flare, I was in too much pain to cook or eat. Even now I'm not hungry, but probably cos I'm so tired. I bought some 'homemade' broccoli soup at Alberton's, it's one of my faves. All I would have to do is nuke it, but it's not even tempting me right now. I also bought a pint of Haagan Daazs coffee ice cream, even that's not doing it for me yet. I'm sure I will sleep for a few hours and wake up starving. I hope. Sorry about the length of this post. I'm just excited about the Lyrica, and brain-dead from fatigue, so I've just been rambling on. Catch you all later. I will have to finish reading posts later too. Peace and Love Caroline __________________________________________________________ FREE 3D EARTH SCREENSAVER - Watch the Earth right on your desktop! Check it out at http://www.crawler.com/earth --------------------------------- Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 Caroline, Seems like you have a great doc. that knows what he is doing, you are one of the lucky ones. I take Oxycontin 60 mg twice a day and Ibuprofen 800mg 3 times a day, Cymbalta 60 mg daily at sleep, My rhem. didn't want me to take Lyrica cause of the weight gain side effect. I don't need to gain wt.,already have enough to grab. LOL My legs are always swollen though from water(pitting edema). I take some diuretics Hctz which helps some. Need to have bathroom close by so I take it at nite and have to get up 3 to 6 times a night to use the bathroom. PCP wanted to put me on stronger diuretic(Lasix) but I feel I am too yoiung for all that but maybe will change my mind if it truly gets rid of the water and I lose weight,Probably about 8 to 10 lbs 0of water in legs. More I work and stand on my feet, drive walk the more swollen they get also..I am a homecare nurse that can hardly take care of herself but try to have a positive attitude cause when home I feel even worse. Got to keep mind busy and body moving. Just really want to get my home business to be enough income to quit nursing eventually,business keeps me busy too but hard to do both. I reqally think I will feel better when get rid of the stress of nurising job. twenty five years of taking care of others seems like eonough to me. Btw I believe my fibro started after mom and father in law passed away within one month of each other and then had two auto accidents. That was back in 90 and 91. I have been seeing rhem. for this monster illness for about 12 or 13 years.I have no idea where I started just ranting on and on. I just needed to do some venting, Hubby keeps yelling at me when I sleep when I am home and not clean or do other things that need to be done(like pay bills)can't concentrate on it. Kids complain sometimes too, Even my own dtr that has fms/cfs but thank goodness her fms is not causing too much pain for her, she sleeps alot and takes Cymbalta. Her worst symptom has always been severe dizzy spells. I hope she gets better instead of worse.She is also on a few other meds. I better go now, read the rest of the posts, I know I mentioned this before in one of my posts but I started listening to the cd of The Secret on my mp3 player b4 bed, it is very relaxing and helps with the pain and is great advice,for a positive lifestyle. Goodnite all! Jodi debra van ness wrote: Wish you the best Caroline. I sure have heard lots of good things about Lyrica here. Love, Debra V. Caroline Witte wrote: Today my doctor gave me some samples of Lyrica. He says if it works for me, he will fight the insurance for me to get it. He said he's sure my psych doctor would help as well, as it is easier at times for her to get 'name brand' drugs for her patients. She already got several of them, though the only one I'm still taking is Lamictal. I will have to wait to talk to her on Monday, by the time I got home this afternoon it was too late. I will have to begin titering down on the Lamictal before starting the Lyrica anyway. He also switched me to oxyconton with the 5 mg oxycodone for break-through pain. He said that sometimes methadone IS hard on certain people, and if it were making me uncomfortable, I shouldn't take it. Of course I'm hoping to get onto the Lyrica in a week or so, and keeping my fingers crossed that it works better than the opiates do. He said I can keep taking them as long as I need, even with the Lyrica. So, when I start, I start at 50 mgs twice a day. That sounds like a plan. He said if I tolerate that, then I would take them 3 times a day, etc....Of course, there's always the off-chance that my psych doctor won't want me to change meds, but she's usually very reasonable about things. I am SO praying that they work for me. But, I do tend to have every side-effect known for most meds. I went through all of the anti-psychotics before ending up on the Lamictal, which is off-label for treating bi-polar. But, I have zero problems with it. Since Lyrica is also an epilepsy drug, maybe I'll be OK with that one too. I do know if it works and we can't get my insurance to cover it, I will be even more depressed. There is no way at all I can afford it if I have to pay full price for it. I could give up a few things, but I still couldn't afford to pay more than $50 a month. As strange as it seems, I can't wait to turn 65, as I will then get more each month. Plus, I have been promised that I can keep my state insurance rather than having to switch to Medicare. I hope they know what they're talking about. It's supposed to be one of the 'benefits' of allowing myself to be classified as SMI. Well, it's been a long day on top of no sleep. I did my grocery shopping while waiting for my scrip to be filled. I use the Osco pharmacy in Albertson's, so I can always 'kill two birds.... " I am going to take a nap. Oh, I lost nearly 8 pounds since this time last month. I was down 3 pounds the month before that. It's all because of that darned flare, I was in too much pain to cook or eat. Even now I'm not hungry, but probably cos I'm so tired. I bought some 'homemade' broccoli soup at Alberton's, it's one of my faves. All I would have to do is nuke it, but it's not even tempting me right now. I also bought a pint of Haagan Daazs coffee ice cream, even that's not doing it for me yet. I'm sure I will sleep for a few hours and wake up starving. I hope. Sorry about the length of this post. I'm just excited about the Lyrica, and brain-dead from fatigue, so I've just been rambling on. Catch you all later. I will have to finish reading posts later too. Peace and Love Caroline __________________________________________________________ FREE 3D EARTH SCREENSAVER - Watch the Earth right on your desktop! Check it out at http://www.crawler.com/earth --------------------------------- Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
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