Guest guest Posted November 23, 2004 Report Share Posted November 23, 2004 Hi , I do hope your sister proves negative for IgAN!!! Please do keep us posted on her and also on your labs when you get them. I hope you hear you are stable. That would make for a very nice Thanksgiving wouldn't it? In a message dated 11/23/2004 2:45:48 PM Pacific Standard Time, GNCCLEVENGER@... writes: > just wanted to tell everyone Happy thanksgiving. > I will be thinking of all of you. > My half sister who has had signs of IGA also is going to see my neph > at univerity of MD medical center sometime in dec. at first they told > her he wasn't seeing new patients and then when she told them she was > my sister, they said he would see her. I am going to go with her. I > went and had my labs done today-didn't want to get them done right > after having thanksgiving dinner. I'll try not to over due it. I have > to say I really feel better since I have been watching my sodium and > I am consistently about 5lbs lighter than I was. > This site is really great because of all the people here. I find it > very inspiring to read your posts. > thank you, > christine > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2004 Report Share Posted November 25, 2004 Lynne, How wonderful that they are doing well! Thanks for sharing the updates. What special children you have. Happy Thanksgiving to you and the others as well. I am thankful for all of you! ~Dana Happy Thanksgiving I have not written in a long time, but read the messages every day. For those of you who do not know me I am the mother of Brent . One year ago today Brent received a kidney from his younger brother. We have had a wonderful healthly year! Brent had a second son, and Matt, his brother got married. As I count my blessings today I had to take the time and say thank you to this wonderful group for all the prayers and support that was given to my family during the transplant process last year. My prayer is that you all have a wonderful, healthy day and that your needs will soon be met. God bless each of you. Love and prayers to all, Lynne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2004 Report Share Posted November 25, 2004 Happy Thanksgiving to all who are in the U.S. and belated Thanksgiving greetings to those in Canada. It's a good day to reflect on all the blessings of our lives, wherever you are. Betsy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2004 Report Share Posted November 28, 2004 Hi Lynne, thank you so much for taking the time to update us on your boys! I am so happy that Brent is doing so well with his new kidney. Congratulations on the new grandbaby and on the new daughther-in-law too! > I have not written in a long time, but read the messages every day. For those of you who do not know me I am the mother of Brent . One year ago today Brent received a kidney from his younger brother. We have had a wonderful healthly year! Brent had a second son, and Matt, his brother got married. As I count my blessings today I had to take the time and say thank you to this wonderful group for all the prayers and support that was given to my family during the transplant process last year. My prayer is that you all have a wonderful, healthy day and that your needs will soon be met. God bless each of you. > > Love and prayers to all, > Lynne > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2004 Report Share Posted November 28, 2004 Hi , Wow, it is great to hear from so many members who have been more quiet lately. Thanks for giving us your update. Please let us know when you get a date for your new pacemaker so I can put you on my prayer calendar for that day. Please do take care of yourself. I do hate to think of you letting yourself get run down and sick. > I have been reading all the posts, but not contributing lately...been > really busy at work, traveling, kids, doctors...you all know and do this > everyday too. I wanted to quickly write and wish all our American > friends a very Happy Thanksgiving. You know I didn't even think about > diet restrictions at Thanksgiving (last month for us Canadians), I have > to really start being more aware of reducing my salt. > > > > Amy, I am so sorry to hear about your frustrations with the pred and the > coat and the weight. I can appreciate how hard it is and unfortunately I > can't give you a real hug...but here is a CyberHug. Our attitude toward > these challenges sometimes is all we need to make us feel more positive, > so hang in there...good days and bad, I believe you will wean well and > will keep my fingers crossed for you. > > > > Pierre, how exciting to be trying something new. I hope it works out > well for you and that you are accepted into the program, but I will keep > praying for a kidney first. Take care. I really appreciate all your > practical answers to the questions here. It has helped me to understand > this disease immensely. > > > > Rita, I am so sorry to hear about the troubles you are having with your > relationship. Handling chronic diseases is very difficult on entire > families, sometimes it brings people closer and others it causes a wall > that separates. My husband has Type I diabetes and I just always > accepted it, because I can't change it. But it affects the entire family > every single day. When we eat, how we travel or go visit...everything. > He and I have always just dealt with our own stuff our own way and other > than trying to be supportive and kind to each other, its really hard to > understand how the other is feeling all the time. In addition to his > diabetes, my kidney and heart issues, our son is affected with a > congenital developmental disorder, Opitz syndrome...so life is > continually full of challenges and disease and illness are forever a > part of our lives. In all there is no cure, no fix and we just have to > do the best we can to feel the best we can and be the best we can...one > day at a time. That is why it is so important to have support groups > who empathize and understand the frustrations, the fears, the real- life > issues you must face everyday. So vent with me anytime...I will listen. > I may not have any advice, but I will listen with an open-heart. > > > > Peach, I am sorry things have been so tough on you. I pray it will get > better soon. > > > > I have been pretty tired lately, probably working too hard. But I have > also caught a bad bug...bronchitis, throat infection and been generally > under the weather. I keep trying to tell myself its mind over matter, > but my body is not paying attention. I mean I think I am usually pretty > healthy, I seem to always have the sniffles, I wrote this off to > allergies, and I exercise regularly (when I am not hacking up a lung), > and try to eat right. But my uncle said to me this weekend that every > time he sees me lately, I seem sick and that I must not be looking after > myself...this kind of surprised me. I guess I need to start paying > attention and tracking this stuff more closely. Up my vitamins or > something...because the winter hasn't even started yet. Yikes. Well, the > doctors have finally decided to replace my pacemaker and I am waiting > for the date now. I have had this current model for 10 years and > although the battery is working it can't control my upper rate and I > can't seem to get my heart rate to rise high enough when I am running or > working out, which causes major lightheadedness. They thought perhaps it > was the ramipril and we played with that for a few months...to no avail. > I have only started to have these problems as my lifestyle changed, diet > & exercise over the past year and losing over 40lbs. So they have > finally decided to replace it. I am excited about getting this done > asap, because I hope it will make me feel more energetic and able to > keep up with my schedule better. It is only a day surgery so that should > be ok. I hope too that by better controlling my heart, my kidneys won't > have to work so hard...so we will see. I will keep you posted. > > > > Thanks for listening and for being here to share with you all. I wish > you all health and happiness! - Vancouver, Canada > > > > > > > > > > > > > > > > Schorn > > Business Development Manager > > Imagis Technologies > > Tel: +1 ext 225 > > . > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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