Re: my breakdown

[Guest guest]

In a message dated 12/7/2007 3:49:59 A.M. Pacific Standard Time,

faithoftheheart58@... writes:

I know my meds arent right

yet and it will take a few weeks to hopefully get this under control

but, for example, I love to go camping in a tent. I thought, what if

the monster wont let me do that anymore.

I have found that when we go on vacation, I can go out with the family and

do things, although I have to use a walker, because my legs tire out kind of

fast and I have balance issues. The way that I can do the vacations is that I

have to take every other day and recuperate in the motel room.

Love and gentle hugs,

Debi/So. Cal.-54

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Love and gentle hugs,

Debi/So. Cal.-54

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[Guest guest]

Hi Theresa, Mopping is one of the biggest triggers for my back pain so I can

relate . I might say my Fm is under control but then I might be fooled AGAIN.

Teaching, I imagine is treturous for a Fm sufferer. My hips,buttocks and thighs

are the most troubling parts. lol. Sinve I've been on Lyrica my extremities have

calmed down.

Keep posting and WE will keep replying.

GOD Bless YOU Theresa ! ! ! . . .

.................................................................................\

................

To: Fibromyalgia_Support_Group@...:

faithoftheheart58@...: Fri, 7 Dec 2007 10:59:24 +0000Subject: my

breakdown

Last night I had my breakdown. I know there will be more to come. I was

diagnosed on tuesday with the monster. I thought.. ok I can deal with this. Last

night I took a hot bath with epsom salts, as I read here was a good thing to

help pain. I felt fine afterward. I decided to mop my kitchen floor. Before I

was finished, the pain in my back was horrible. I went to bed and laid on my

ever present heating pad. It suddenly hit me as to how my life is now changed

forever. I know my meds arent right yet and it will take a few weeks to

hopefully get this under control but, for example, I love to go camping in a

tent. I thought, what if the monster wont let me do that anymore. Then there is

my career as a teacher. I work for the State of Tn and I know I cant let

management know I have this. They will let me go saying I can't do my job. If I

lose my job, I will have no medical insurance, which I desperately need now..

These thoughts were going through my head and scaring me to death. I feel better

mentally this morning. Yesterday my back was kiling me and today it is my legs,

hands and hips. I will somehow get through the day like I did yesterday and

start all over tomorrow. I just wish someone could tell me that it will be ok

and get better.Theresa

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[Guest guest]

Theresa,

It will be ok. Everyone goes through a grieving period. Wanting back our old

bodies and unfortunately, that does nto happen with fibro. Until they find a

cure, we have to adjust to our new bodies with the monster. You will have good

days and bad days. I know I do. I try to take it one day at a time one minute at

a time. We can never predict day to day how we are gonna feel. So glad you

joined our group and I hope we can be of some comfort to you. You are not alone.

Hugs,

john honeycutt wrote:

Hi Theresa, Mopping is one of the biggest triggers for my back pain so I can

relate . I might say my Fm is under control but then I might be fooled AGAIN.

Teaching, I imagine is treturous for a Fm sufferer. My hips,buttocks and thighs

are the most troubling parts. lol. Sinve I've been on Lyrica my extremities have

calmed down.

Keep posting and WE will keep replying.

GOD Bless YOU Theresa ! ! ! . . .

.................................................................................\

................

To: Fibromyalgia_Support_Group@...:

faithoftheheart58@...: Fri, 7 Dec 2007 10:59:24 +0000Subject: my

breakdown

Last night I had my breakdown. I know there will be more to come. I was

diagnosed on tuesday with the monster. I thought.. ok I can deal with this. Last

night I took a hot bath with epsom salts, as I read here was a good thing to

help pain. I felt fine afterward. I decided to mop my kitchen floor. Before I

was finished, the pain in my back was horrible. I went to bed and laid on my

ever present heating pad. It suddenly hit me as to how my life is now changed

forever. I know my meds arent right yet and it will take a few weeks to

hopefully get this under control but, for example, I love to go camping in a

tent. I thought, what if the monster wont let me do that anymore. Then there is

my career as a teacher. I work for the State of Tn and I know I cant let

management know I have this. They will let me go saying I can't do my job. If I

lose my job, I will have no medical insurance, which I desperately need now..

These thoughts were going through my head and scaring me to

death. I feel better mentally this morning. Yesterday my back was kiling me and

today it is my legs, hands and hips. I will somehow get through the day like I

did yesterday and start all over tomorrow. I just wish someone could tell me

that it will be ok and get better.Theresa

_________________________________________________________________

Put your friends on the big screen with Windows Vista® + Windows Live™.

http://www.microsoft.com/windows/shop/specialoffers.mspx?ocid=TXT_TAGLM_CPC_Medi\

aCtr_bigscreen_102007

[Guest guest]

Theresa, it WILL get better. As it all sinks in, you will come to accept it and

know that you still have a life, and an important life at that. You will begin

learning coping strategies. For instance, breaking housework down into 15 minute

intervals. 15 minutes of housework, and as long as you need to recoup from that,

then another 15 minutes. Try to find someone to do the heaviest stuff, like

vacuuming. I sometimes take 2 hot baths a day. I cuddle up with my back buddy

whenever I feel like it. A hot bath with aromatherapy before I turn in for the

night. I don't take my night time meds till I'm out of the tub. I don't want to

fall asleep in there. You will learn how much you can do, and when. It just

takes time.

I hope you have a great doctor, that is key. Also, I come from a long line of

teachers. I have had several relatives who have taken time off for

health-related issues without losing their jobs. Are you not unionised there? If

you are, then you need to take advantage of the disabled workers clause most of

them have written into their contracts. Can you talk to your union rep? I do

hope you have a union in your state. I know each state is different, and each

union is different. There does have to be a way that you can take care of

yourself without losing your job. Good teachers are a valuable resource. Most

states know they have to take care of them.

As far as camping, start with a short trip and see how you do. You might be

pleasantly pleased to discover that doing something fun can help the pain and

fatigue. There are still things I am able to do at times, and I'm 62 and have

had this for over 35 years. I do 'baby' myself, and no longer feel guilty for

doing so. Teach your friends and family about this condition. There is a lot of

great info out there to share with them. If they understand, they will be a good

support system, which we all need. VERY important.

WE will all be rooting for you. You are still in shock. Take it one day at a

time, and don't obsess about what you may and may not be able to do next year.

DEEP breaths.

Peace and Love

Caroline

Last night I had my breakdown. I know there will be more to come. I was

diagnosed on tuesday with the monster. I thought.. ok I can deal with

this. Last night I took a hot bath with epsom salts, as I read here was

a good thing to help pain. I felt fine afterward. I decided to mop my

kitchen floor. Before I was finished, the pain in my back was horrible.

I went to bed and laid on my ever present heating pad. It suddenly hit

me as to how my life is now changed forever. I know my meds arent right

yet and it will take a few weeks to hopefully get this under control

but, for example, I love to go camping in a tent. I thought, what if

the monster wont let me do that anymore. Then there is my career as a

teacher. I work for the State of Tn and I know I cant let management

know I have this. They will let me go saying I can't do my job. If I

lose my job, I will have no medical insurance, which I desperately need

now.. These thoughts were going through my head and scaring me to

death. I feel better mentally this morning. Yesterday my back was

kiling me and today it is my legs, hands and hips. I will somehow get

through the day like I did yesterday and start all over tomorrow. I

just wish someone could tell me that it will be ok and get better.

Theresa

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[Guest guest]

Oh Theresa, my heart goes out to you. I don't know exactly what to say except

for that I understand. For most of us, we do have some good hours at times.

Some people even have days or weeks or so when it lets up some. I just hope

that maybe your doctor will work with you on getting the right pain medications.

We are always here to listen. We are all in a prison of the monster you

describe. Some of us have it to a greater extent than others. We do learn to

live with it sweetie. It takes lots of time and trial and error to find out

what works best for each individual. I also know what it is like to work with

this damn thing. It just attacks out of no where for no given reason.

Sweetie, I am here for you as the rest of this group is. You can email me

personally also anytime at ladybug75901@...

Debra V.

Theresa wrote:

Last night I had my breakdown. I know there will be more to come. I

was

diagnosed on tuesday with the monster. I thought.. ok I can deal with

this. Last night I took a hot bath with epsom salts, as I read here was

a good thing to help pain. I felt fine afterward. I decided to mop my

kitchen floor. Before I was finished, the pain in my back was horrible.

I went to bed and laid on my ever present heating pad. It suddenly hit

me as to how my life is now changed forever. I know my meds arent right

yet and it will take a few weeks to hopefully get this under control

but, for example, I love to go camping in a tent. I thought, what if

the monster wont let me do that anymore. Then there is my career as a

teacher. I work for the State of Tn and I know I cant let management

know I have this. They will let me go saying I can't do my job. If I

lose my job, I will have no medical insurance, which I desperately need

now.. These thoughts were going through my head and scaring me to

death. I feel better mentally this morning. Yesterday my back was

kiling me and today it is my legs, hands and hips. I will somehow get

through the day like I did yesterday and start all over tomorrow. I

just wish someone could tell me that it will be ok and get better.

Theresa

---------------------------------

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Theresa,

Hi. I felt the exact same way as you a couple months ago. Have faith

that you can find the right meds. I am on Cymbalta and it has really

hepled me. But I didn't see results until the 2nd week of taking it.

Everyone reacts differently to meds. But after a little trial and

error, I hope you will find the right ones for you.

At the beginning I felt so helpless and useless and so upset that I

am going to have this for life. We all go through it. Just see how

the meds will help. And keep your head up. And keep posting here,

because we know what you are going through and we are all willing to

listen.

What meds are you on???

Jerilyn

>

> Last night I had my breakdown. I know there will be more to come. I

was

> diagnosed on tuesday with the monster. I thought.. ok I can deal

with

> this. Last night I took a hot bath with epsom salts, as I read here

was

> a good thing to help pain. I felt fine afterward. I decided to mop

my

> kitchen floor. Before I was finished, the pain in my back was

horrible.

> I went to bed and laid on my ever present heating pad. It suddenly

hit

> me as to how my life is now changed forever. I know my meds arent

right

> yet and it will take a few weeks to hopefully get this under

control

> but, for example, I love to go camping in a tent. I thought, what

if

> the monster wont let me do that anymore. Then there is my career as

a

> teacher. I work for the State of Tn and I know I cant let

management

> know I have this. They will let me go saying I can't do my job. If

I

> lose my job, I will have no medical insurance, which I desperately

need

> now.. These thoughts were going through my head and scaring me to

> death. I feel better mentally this morning. Yesterday my back was

> kiling me and today it is my legs, hands and hips. I will somehow

get

> through the day like I did yesterday and start all over tomorrow. I

> just wish someone could tell me that it will be ok and get better.

> Theresa

>

[Guest guest]

Hi Theresa,

I'm so sorry you have just been dx with this horrible disease that robs us all

of the everyday things we like to do and those we don't like to do, but need to

be done.

Mopping and vacuuming send me into major spasms and can last a long time.

I've had to start using those swiffer sweets on my wood floors, first the dry

ones and then the wet ones. I also have a swiffer we jet that I use when I can.

These things are light weight and much easier to push back and forth because you

don't have to push down like with a mop. The vacuuming I put off until it is

absolutely necessary, whereas I used to do it every other day.

I can't take the hot baths because they make me worse in the long run, but

they do seem to work for a lot of people here and I'm glad that it worked for

you. Probably the best thing you can do is to rest after the bath instead of

going to work around the house or anywhere else for that matter. The hot water

lets the epsom salts be absorbed while your pores are open and this relaxes your

muscles. Using them right after is too soon. It's sort of like the new

philosophy on not strecthing before running but doing it after the muscles are

warmed up.

The stress you are going through worrying about your job and medical insurance

makes most of the symptoms of fibro worse. I know it is easier said than done,

but trying to relieve the stress is a good idea.

I live in CT, but grew up on Lookout Mountain, outside of Chattanooga, TN, so

we were neighbors back then. Being a teacher is demanding. I was a teacher and

then a special education advocate and have finally had to give all of that up.

I still keep my hand in enough to be eligible for health insurance, but it's a

different one and almost cost prohibitive. I still don't know what I would do

without it right now. Will have to figure that one out when the problem is upon

me.

I wish I could tell you it will get better, but I can tell you it will be OK.

One way or another we all get by with this monster lurking around us. I hope

you can get on meds that help you. Other people on here know a lot more about

that than I do and can be a real help.

Everything will be OK,

Marti

Theresa wrote:

Last night I had my breakdown. I know there will be more to come. I

was

diagnosed on tuesday with the monster. I thought.. ok I can deal with

this. Last night I took a hot bath with epsom salts, as I read here was

a good thing to help pain. I felt fine afterward. I decided to mop my

kitchen floor. Before I was finished, the pain in my back was horrible.

I went to bed and laid on my ever present heating pad. It suddenly hit

me as to how my life is now changed forever. I know my meds arent right

yet and it will take a few weeks to hopefully get this under control

but, for example, I love to go camping in a tent. I thought, what if

the monster wont let me do that anymore. Then there is my career as a

teacher. I work for the State of Tn and I know I cant let management

know I have this. They will let me go saying I can't do my job. If I

lose my job, I will have no medical insurance, which I desperately need

now.. These thoughts were going through my head and scaring me to

death. I feel better mentally this morning. Yesterday my back was

kiling me and today it is my legs, hands and hips. I will somehow get

through the day like I did yesterday and start all over tomorrow. I

just wish someone could tell me that it will be ok and get better.

Theresa

---------------------------------

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

You will have some good days especially after your meds are better in tune

with each other. I camped in a tent for several years after my diagnosis.

I'd have to nap sometimes and miss out on some of the activities, and it's

darn hot napping in a tent in the summer. LOL! Make sure you have a

well-supporting mattress to lie on. Also, many people with FM continue to

work for many years. It might feel like the end of the world, but it's not.

It's just a big sucky life change that you WILL get through. Take care.

Jeanne in WI

> Last night I had my breakdown. I know there will be more to come. I was >

> diagnosed on tuesday with the monster. I thought.. ok I can deal with >

> this. Last night I took a hot bath with epsom salts, as I read here was

> a good thing to help pain. I felt fine afterward. I decided to mop my

> kitchen floor. Before I was finished, the pain in my back was horrible. I

> went to bed and laid on my ever present heating pad. It suddenly hit

> me as to how my life is now changed forever.

[Guest guest]

I never thought I’d survive it… and some days I’m not sure if I will. There

will be a lot of issues that you will go through, much like the one’s when

there is a death… you grieve, get angry and all the others. I’m still not

sure about acceptance though, I have a hard time with that one.

Which constantly brings me back to the question of what type of mattress

would be best? It’s the one thing I want to buy when my house sells and

when I move into the apartment… who knows when that will be?

Tigger (Ruth) in Rhode Island

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of Dave and

Jeanne

Sent: Saturday, December 08, 2007 9:58 AM

To: Fibromyalgia_Support_Group

Subject: Re: my breakdown

You will have some good days especially after your meds are better in tune

with each other. I camped in a tent for several years after my diagnosis.

I'd have to nap sometimes and miss out on some of the activities, and it's

darn hot napping in a tent in the summer. LOL! Make sure you have a

well-supporting mattress to lie on. Also, many people with FM continue to

work for many years. It might feel like the end of the world, but it's not.

It's just a big sucky life change that you WILL get through. Take care.

Jeanne in WI

> Last night I had my breakdown. I know there will be more to come. I was >

> diagnosed on tuesday with the monster. I thought.. ok I can deal with >

> this. Last night I took a hot bath with epsom salts, as I read here was

> a good thing to help pain. I felt fine afterward. I decided to mop my

> kitchen floor. Before I was finished, the pain in my back was horrible. I

> went to bed and laid on my ever present heating pad. It suddenly hit

> me as to how my life is now changed forever.

[Guest guest]

Dear Theresa,

You were just diagnosed, are you on any medications yet? Hopefully

you will be able to get your symptoms under control enough to keep working. You

will be much better off to continue working for as long as possible. Staying at

home will just cause you to think about all your aches and pains.If you get on

the right meds, and supplements you may feel alot better. I know how hard this

is but a positive attitude makes a big difference Check out The Secret!! . If

you need any advice about meds or supplements just ask, most of us can give you

the basics.Personally, I believe in Coq10 for energy and gingo biloba for

memory(as long as not taking aspirin or other blood thinners). You need to talk

to your doc, (you need a rhematologist if you don't have one),to get you on the

right medications including an antidepressant and pain meds.Make sure you are

getting good nites sleep whenever possible.Wishing you pain free days!!

Jodi M. ( Have fibro, for more than 10

years and continue to work as home care nurse and have a home based business)

Theresa wrote:

Last night I had my breakdown. I know there will be more to come. I

was

diagnosed on tuesday with the monster. I thought.. ok I can deal with

this. Last night I took a hot bath with epsom salts, as I read here was

a good thing to help pain. I felt fine afterward. I decided to mop my

kitchen floor. Before I was finished, the pain in my back was horrible.

I went to bed and laid on my ever present heating pad. It suddenly hit

me as to how my life is now changed forever. I know my meds arent right

yet and it will take a few weeks to hopefully get this under control

but, for example, I love to go camping in a tent. I thought, what if

the monster wont let me do that anymore. Then there is my career as a

teacher. I work for the State of Tn and I know I cant let management

know I have this. They will let me go saying I can't do my job. If I

lose my job, I will have no medical insurance, which I desperately need

now.. These thoughts were going through my head and scaring me to

death. I feel better mentally this morning. Yesterday my back was

kiling me and today it is my legs, hands and hips. I will somehow get

through the day like I did yesterday and start all over tomorrow. I

just wish someone could tell me that it will be ok and get better.

Theresa

Jodi (JEM)

---------------------------------

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